ChildrenÕs Hospital
2018 Clinch Ave. ¥ P.O. Box 15010
Knoxville, Tennessee 37901-5010
We always try to stay current with f...
Board of Directors
James S. Bush
Chairman
Robert Madigan, M.D.
Vice Chairman
Robert M. Goodfriend
Secretary/Treasurer
Mich...
54
It was a cold, they were sure. But it
didnÕt go away, so they blamed it on
allergies. In September 2003, six-year-old
J...
The 20th annual Fantasy of Trees will
help you discover "Where Your Heart
Finds Christmas" this holiday season.
This heart...
9
Alfred P. Kennedy Jr., M.D.
B.A. (natural science) Ð Lehigh University, Bethlehem, Pa., 1986
M.D. Ð Hahnemann University...
Children’sNews...
The corner of Clinch Avenue and
20th Street has had a major makeover
in the past two years. What was onc...
1312
Estate Planning...
Your lawyer, the Òhead coachÓ of your estate planning team
Include
Children’s Hospital
in your est...
becomes particularly problematic during
the age bracket of six weeks to four
months, an age period that coincides
with the...
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It's About Children - Winter 2004 Issue by East Tennessee Children's Hospital

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It's About Children - Winter 2004 Issue by East Tennessee Children's Hospital

  1. 1. ChildrenÕs Hospital 2018 Clinch Ave. ¥ P.O. Box 15010 Knoxville, Tennessee 37901-5010 We always try to stay current with friends of the hospital. If for any reason you should receive a duplicate issue, please notify the hospital at (865) 541-8257. NON-PROFIT ORGANIZATION U.S. POSTAGE PA I D PERMIT 433 KNOXVILLE, TN The holidays are just around the corner, and many East Tennesseans are making gift lists and planning family get-togethers. The ChildrenÕs Hospital Auxiliary has an easy way to check one important task off your holiday "to-do" list: purchase the just-released 2004 ChildrenÕs Hospital Auxiliary Holiday Greeting Card to help the areaÕs children. This is the 40th year the ChildrenÕs Hospital Auxiliary has sold holiday cards to benefit the hospital. Again this year artist and Auxiliary member Jan Church has designed the annual Christmas card. This yearÕs exclusive holiday card is titled "Home for the Holidays." The card features a festively decorated mantle, tree and wreath that represent "home" and is full of holiday delight. Church began designing greeting cards for ChildrenÕs Hospital in 1991 with her design "Bears on Sleighs" when she was chosen from a prospective artist search. After designing the following yearÕs card, Church took a year off. Because of the beautiful designs she paints and the success of the card sales, Church was asked to return and has donated the card design for several years running. Cards are $1 each; they can be purchased in any quantity including boxed sets of 12 cards for $12, and personalization is available on bulk orders. The cards are suitable for business and personal use. Proceeds from the holiday cards will be used to support a variety of the AuxiliaryÕs programs at ChildrenÕs Hospital to help make hospitalization more comfortable for the children we serve. For more information or to place an order, send an e-mail request to wharalson@etch.com or call the Volunteer Services and Resources Department at ChildrenÕs Hospital at (865) 541-8136. by Amber Birdwell, student intern Winter 2004Winter 2004 Holiday cards benefit children, spread seasonal cheerHoliday cards benefit children, spread seasonal cheer
  2. 2. Board of Directors James S. Bush Chairman Robert Madigan, M.D. Vice Chairman Robert M. Goodfriend Secretary/Treasurer Michael Crabtree Dawn Ford Peyton Hairston Jeffory Jennings, M.D. Bob Koppel Donald E. Larmee, M.D. Dugan McLaughlin Chris Miller, M.D. Alvin Nance Dennis Ragsdale J. Finbarr Saunders, Jr. William F. Searle III Bill Terry, M.D. Laurens Tullock Danni Varlan Medical Staff Chris Miller, M.D. Chief of Staff Lewis Harris, M.D. Vice Chief of Staff David Nickels, M.D. Secretary Chiefs of Services Lise Christensen, M.D. Chief of Medicine Cameron Sears, M.D. Chief of Surgery David Birdwell, M.D. Chief of Pathology Clifford J. Meservy, M.D. Chief of Radiology Mike Mysinger, D.D.S. Chief of Dentistry Mark Cramolini, M.D. Chief of Anesthesiology Administration Bob Koppel President Paul Bates Vice President for Human Resources Joe Childs, M.D. Vice President for Medical Services Rudy McKinley Vice President for Operations Jim Pruitt Vice President for Finance Beckie Thomas, R.N. Vice President for Patient Care A quarterly publication of East Tennessee Children’s Hospital, It’s About Children is designed to inform the East Tennessee community about the hospital and the patients we serve. Children’s Hospital is a private, independent, not-for-profit pediatric medical center that has served the East Tennessee region for more than 65 years and is certified by the state of Tennessee as a Comprehensive Regional Pediatric Center. Ellen Liston Director of Community Relations David Rule Director of Development Wendy Hames Editor Neil Crosby Cover/Contributing Photographer “Because Children are Special…” ...they deserve the best possible health care given in a positive, child/family-centered atmosphere of friendliness, cooperation, and support - regardless of race, religion, or ability to pay.” ...their medical needs are closely related to their emotional and informational needs; therefore, the total child must be considered in treating any illness or injury.” ...their health care requires family involvement, special understanding, special equipment, and specially trained personnel who recognize that children are not miniature adults.” ...their health care can best be provided by a facility with a well-trained medical and hospital staff whose only interests and concerns are with the total health and well-being of infants, children, and adolescents.” Statement of Philosophy East Tennessee Children’s Hospital www.etch.com The Bottom LineArtwork by some of Children’s Hospital’s special patients 2 Meg Dustin Hanna 3 Judy Caudill and Amy Steger Volunteer Services and Resources Department East Tennessee ChildrenÕs Hospital Judy and Amy, Tonight, after I got home from the Junior Volunteer Banquet, I was thinkingof some things, and I just wanted to thank you for giving me the opportunityto volunteer at the hospital for the past three years. It has been an amazingexperience, and I canÕt wait till next summer. I could never, ever give back what the hospital has given me. The experience,the friendships, the good and hard times, just everything is more than I couldever imagine. The reason I started volunteering was so I could be in thehospital setting to see what it was like, to see if IÕd like it. Thanks to yourprogram, I know exactly what I want to do when I grow up. I donÕt have tosearch during college; I know. Last spring I got to go upstairs to the NICU for a report I was doing for school.The only way I got up there was because I was a junior volunteer. IÕve alwaysliked little babies, and when I went into that unit, I knew. I knew I was goingto work there for the rest of my life (well, until retirement ...). ItÕs justsomething you can feel. The nurse said she knew in nursing school that theminute she went in there, it was for her. I know itÕs for me, too. I have a quote I love that I want to share with you. ÒDonÕt ask yourself whatthe world needs. Ask yourself what makes you come alive, and then go anddo that. Because what the world needs is people who have come alive.ÓVolunteering at ChildrenÕs Hospital has made me come alive. Thank you somuch for what you do. You truly have changed my life. As I said, I couldnever give back to the hospital what itÕs given me. Love, Lauren Baumgardner Knoxville On the cover: Jacob ÒJakeÓ Wallace is a cancer survivor. Read his story on pages 4-5. Dear ChildrenÕs Hospital, My family and I have been a part of ChildrenÕs Hospital for about five years, visiting the facility quite frequently concerning our children. It is a very warm and inviting facility. The specialists, doctors, nurses and staff open their hearts to all children who enter the hospital, whether it be for a lengthy stay or just a check-up. They make the children feel special and that they are important to them. The Web site shows that same caring environment on its pages. It is a great and informative Web site. We visit it often to get the latest updates on information like booster seats and car seats. Keep up the good work! Christina McCloud Crossville Dear ChildrenÕs Hospital, My son, Chris, was born nine weeks early. He weighed in at just three pounds, 13 ounces and spent the first of his life in a neonatal intensive care unit. When Chris was finally able to come home from the hospital, his doctors warned us that his premature birth would likely result in developmental delays. For the first year of his life, Chris appeared to be developing normally. Then at around 18 months, he began falling behind. Chris was referred to the East Tennessee ChildrenÕs Hospital Rehabilitation Center Ñ an agency of the United Way of Greater Knoxville Ñ where he received both speech and occupational therapy until his third birthday, when the public school system took over. Chris was eventually diagnosed with autism, but weÕre convinced that early intervention and the therapy he received at the East Tennessee ChildrenÕs Hospital Rehabilitation Center made a difference in his prognosis. Today, Chris is a bright, energetic, seven-year-old who loves reading, playing video games and giving hugs. Chris still has a long road in front of him, but weÕre glad that East Tennessee ChildrenÕs Hospital Rehabilitation Center was there when he needed it. Holly Pichiarella Knoxville
  3. 3. 54 It was a cold, they were sure. But it didnÕt go away, so they blamed it on allergies. In September 2003, six-year-old Jacob "Jake" Wallace couldnÕt shake the symptoms, so his mother, Rhonda, took him to the family pediatricianÕs office for an examination. Jake completed a course of antibiotics prescribed by Dr. Stephanie Shults, the family pediatrician. However, his symptoms did not completely resolve. In fact, within weeks, Jake had begun snoring loudly and had even experienced episodes of sleep apnea. Rhonda contacted Dr. Donald Ellenburg, JakeÕs pediatric allergist, thinking the symptoms might be related to allergies, and that his adenoids would probably need to be taken out. Dr. Ellenburg performed routine head, neck and chest X-rays on Jake on October 17, 2003. As expected, JakeÕs adenoids were very enlarged and an appointment was made with Dr. John Little, pediatric ear, nose and throat specialist (otolaryngologist) at ChildrenÕs Hospital, to have them removed. In addition, JakeÕs chest X-ray showed apparent enlarged lymph nodes in the center of his chest. He was referred to ChildrenÕs Hospital for further evaluation through a CT scan. This scan confirmed the presence of a mass in his chest. On October 24, 2003, Dr. Little removed JakeÕs tonsils and adenoids. As a result of the CT scan and the enlarged lymph nodes, Dr. Little sent the tonsil and adenoid tissue for a frozen pathology; the initial results for the frozen section came back normal. Other tissue was sent for further testing to confirm this finding. Jake was released from the hospital the following day. Four days after surgery, however, Jake became very ill. He had a fever of 103 degrees and was nauseated and confused. The Wallaces returned to the ChildrenÕs Hospital Emergency Department, and Dr. Little admitted Jake to the hospital because of the fever and vomiting. About this same time, the final pathology from the earlier tests returned, and Dr. Little told the Wallaces that the results indicated Jake had lymphoma. A form of cancer, lymphoma is a general term for a group of malignant (cancer) disorders that affect the lymphatic tissues. Found throughout the body, lymphatic tissues make up the various parts of the lymph system, which plays an important role in the bodyÕs defense against infection. As a result of the diagnosis, Jake became a patient of the ChildrenÕs Hospital Hematology/Oncology Clinic and Dr. Ray Pais, Director of Hematology/Oncology. Jake began chemotherapy on October 31, 2003. Dr. Pais explained to the Wallaces that Jake would be on 24 months of chemotherapy: eight months of intensive therapy and then 16 months of maintenance. During a portion of his treatment, the family was required to bring Jake to the hospital four days a week for treatment. That meant the Wallace family was driving 96 miles round trip to the hospital from their home in LaFollette. As a result of that drive and JakeÕs frequent need for medical attention, the Wallaces were only home for 10 days during one six-week period. Jake became a patient of ChildrenÕs Hospital Home Health Care during a portion of his therapy because his treatment schedule was falling on the weekend, and they would have to come through the Emergency Department for the treatments. Dr. Pais and the Wallace family knew that Jake might inadvertently be exposed to dangerous germs in the Emergency Department. Because JakeÕs immune system was weakened by the cancer and the chemotherapy, infections were very hazardous for him, and it was important to keep him away from any area that could have an abundance of germs. A Home Health Care nurse came to the WallacesÕ home to administer medications and chemotherapy treatments. This meant Jake was able to stay home more with his younger brother Riley, who missed Jake whenever he was at the hospital. "Our family only has wonderful things to say about the hospital, the clinic and Home Health Care,Ó Rhonda said. ÒWe are blessed that the hospital is only a 96-mile round trip. If it werenÕt for ChildrenÕs Hospital, we would be in Memphis or farther away for treatment. We have a two-year-old son who doesnÕt understand why we have to stay away for those days; he would be broken- hearted if we had to stay away longer for a trip across the state or even the country." Unfortunately, children with cancer experience frequent hospitalizations as a result of high fever, changes in their red or white blood counts and infection. Jake is no stranger to staying at ChildrenÕs Hospital. "For a while we were staying at the hospital for several days every week," Rhonda said. "It was a difficult time with Riley staying with his grandparents and away from us and from Jake." During JakeÕs initial hospitalization the medical staff, social workers and child life specialist talked with him about losing his hair due to the chemotherapy treatments. Jake decided he didnÕt want to lose his hair because he didnÕt like that his Dad had thinning hair on the top of his head. His father, Andy, decided to try to help Jake with that problem. "One day while we were at the hospital, Andy disappeared to the ChildrenÕs Hospital Gift Shop, and when he came back, he spent a long time in the bathroom of JakeÕs room," Rhonda said. "I remember thinking it was taking him a long time, when he came out to reveal that he had bought disposable razors and shaved his entire head for Jake." Jake really didnÕt like his Dad without any hair but eventually thought it was funny. JakeÕs treatments lasted through the holidays in 2003. During the familyÕs experience with ChildrenÕs Hospital and JakeÕs illness, their community, family and church supported them mentally, emotionally and financially. "We could not have made it through some of those days without our church and family," Rhonda said. "People were having hotdog dinners, spaghetti dinners and even blood drives for Jake throughout this entire ordeal." The Hematology/Oncology Clinic environment was an eye-opening experience, according to Rhonda. "Andy and I were amazed at the number of children who were being treated there and even more astounded by the growing number of new diagnoses that were made. We realized that many other families had been dealing with chronically ill children and were not receiving the continued support over the long haul that we were experiencing." It was this realization that led the Wallaces to inquire about potential ways to help some of those families. "We were glad to discover the Adopt-A-Family program was in place at ChildrenÕs," she said. The Adopt-A-Family Program identifies families through the Social Work Department and Home Health Care that could most benefit from additional assistance, especially during the holiday season (for more information on this program, see page 13). As families are identified, the Community Relations Department gets those families ÒadoptedÓ by community organizations, hospital departments and individuals. Those groups then purchase gifts and/or gift certificates for the family members. "One thing we have learned is that even though it may sound awful to have a child endure cancer, it is really not just about us, or about JakeÓ Andy said. ÒIt is about watching God work through those around us to provide physically, emotionally and spiritually. Many times we have been provided just exactly what we needed at just the exact time by someone elseÕs unseen hand." The Wallaces have become "advocates" for the hospital through several events over the last year. In March 2004, they traveled to West Town Mall in Knoxville to tell their story to the thousands of listeners of the Star 102.1 Radiothon for ChildrenÕs Hospital, and in June 2004 they shared their story with the viewers of the ChildrenÕs Miracle Network Telethon on WBIR-TV 10. In October 2004, the Wal- Mart in La Follette hosted a local telethon for ChildrenÕs Hospital. JakeÕs school, Valley View Elementary, had raised money to donate. Jake and his teacher presented the Wal-Mart Telethon and ChildrenÕs Hospital with a check for $1,562 that the children had raised. The night before the ChildrenÕs Miracle Network telethon in June, the Wallace family again visited the ChildrenÕs Hospital emergency department, but this time Jake wasnÕt the patient. Two-year-old Riley had been excited by family visitors at their house, fallen off their home slide and broken his collar bone. "Jake had needed to be isolated from cousins, family and friends while his immune system was low, so we hadnÕt had company in eight months except for each set of grandparents," Rhonda explained. "I think Riley was more excited about the visitors than Jake, and I also think his excitement led to a lot of playing that led to his injury." ( C O N T I N U E D O N P A G E 1 5 ) JAKEJAKE Jake and his parents, Rhonda and Andy, appeared with WBIR-TV 10’s Ted Hall on the 2004 Children’s Miracle Network Telethon at Children’s Hospital.
  4. 4. The 20th annual Fantasy of Trees will help you discover "Where Your Heart Finds Christmas" this holiday season. This heartwarming event is an annual tradition that marks the beginning of the holiday season in Knoxville. It will take place at the Knoxville Convention Center November 24-28. More than 300 designer-decorated items will reflect Christmases past, present and future, while entertainment, activities for children and unique shops will bring the magic of the holidays to life. Enjoy wandering through the Fantasy Forest while admiring beautifully decorated trees, holiday accessories, room scenes, fireplace mantles, swags, door designs, table centerpieces, topiaries and "Adopt-A-Trees" donated by local school children. Visit the Gingerbread Village where deliciously decorated gingerbread houses created by area bakers, chefs and children smell as good as they look. Each day entertainers from throughout East Tennessee will perform at the Fantasy Theater. Singers, dancers and other entertainers will help ring in the holiday season by sharing their talents. While enjoying the trees, decorations, activities and entertainment, visitors also can shop in the Holiday Marketplace. Shoppers will find unique holiday items ranging from childrenÕs gifts and toys to clothing and accessories to holiday decorations. A family-oriented event, the Fantasy of Trees offers activities and fun for children of all ages. For the youngest guests, activities include many returning favorites such as a beautiful 30-horse carousel and visits with Santa. New activities include Christmas Tree Jewel Boxes (children can decorate tree-shaped boxes); a Holiday Art Mosaic (little artisans can help create a large mosaic by designing their own squares); My Holiday Apron (SantaÕs little helpers can decorate their own apron); Picture Me Holiday Necklace (children can design jewelry with their picture on it); and more new activities. New holiday boutiques have been added for adults, making it easy to shop for everyone on your Christmas list. The 2004 Fantasy of Trees hopes to capture the nostalgic feeling of Christmases past each night by recreating the old MillerÕs Department Store Christmas tree lighting that was a favorite Knoxville event in the 1960s. New designer categories and entertainment have also been added, and the traditions that make the Fantasy of Trees the premier holiday event in East Tennessee each year are returning. Fantasy visitors also will be able to purchase a ticket for just $5 for their chance to win a beautiful seven-foot tree decorated by Target Stores of Knoxville. Target will create a special theme for the raffle tree, which will be surrounded by childrenÕs toys, games and holiday goodies. The lucky winner will take home the tree and everything that surrounds it. Tickets will be on sale at the Fantasy through Sunday, November 28, at 4 p.m., and the winner will be chosen immediately after the ticket selling ends. Since 1985, ChildrenÕs Hospital has received overwhelming community support for its annual Fantasy of Trees. Again this year, hundreds of businesses and individuals have participated in the Sponsor Program, which is invaluable to the success of each yearÕs show. Special events at the Fantasy of Trees include: Opening Night Gala Tuesday, November 23, 7-11 p.m. Dance the night away at the seasonÕs first and most festive party! Enjoy cocktails, an evening buffet, a private preview and sale of designer trees and holiday accessories and shopping in the Holiday Marketplace. Festive attire is requested at this black-tie-optional event. Tickets are $150 per person and must be purchased in advance. Call (865) 541-8136 for ticket information and availability. The gala is sponsored by Metron North America, with promotional support from CityView Magazine. Babes in Toyland Parade Wednesday, November 24, 7 p.m. DonÕt miss the first and only indoor Christmas parade of the season as kids from area child care centers show off their colorful costumes while parading to the sounds of a real marching band. The paradeÕs grand finale features Santa Claus and indoor "fireworks" provided by Pyroshows, Inc. The parade is broadcast live on WVLT-TV Volunteer News at 7 p.m. and is sponsored by Dollywood. Call Home Free on Thanksgiving Day Thursday, November 25 Visitors to the Fantasy of Trees can talk by phone with Grandma or another special relative on this holiday, compliments of Sprint. SantaÕs Senior Stroll Friday, November 26, 9-10 a.m. Seniors and walkers of all ages can enjoy a one-mile walk through the splendor and sparkle of this yearÕs Fantasy of Trees. Tables will be set up at the end of the walk with information on health topics of interest to seniors. Best of all, seniors 55 and over get a half-price admission of $4 to enjoy all of the Fantasy of Trees when they arrive during SantaÕs Senior Stroll; this discount cannot be combined with any other discounts. SantaÕs Senior Stroll is sponsored by Baptist Senior Health Centers and Knoxville Coca-Cola. Teddy Bear Brunch Friday, November 26, 11 a.m. Treat your little ones to a special party at the Teddy Bear Brunch. Children are invited to bring their teddy bears and enjoy a variety of childrenÕs activities and 76 entertainment, including a "beary" special meal and holiday goodies. Tickets are $25 per person and include free admission to the Fantasy of Trees. Tickets must be purchased in advance. Call (865) 541-8136 for ticket information and availability. The Teddy Bear Brunch is sponsored by BellSouth, Comcast and MINT Magazine. The Fantasy of Trees is more than just a special holiday event for many East Tennesseans; all proceeds from each yearÕs show benefit Children's Hospital. This yearÕs event will benefit the hospitalÕs Open Door Endowment Fund that ensures Children's Hospital can continue to provide health care to all children, regardless of their parentsÕ ability to pay the medical bill. The Fantasy has raised more than $3.3 million for Children's Hospital since its inception in 1985. This spectacular holiday event would not be possible without the more than 116,000 volunteer hours that make the Fantasy of Trees a reality year after year. Children's Hospital would like to thank everyone involved in making this event a success, ensuring Children's Hospital can continue to provide the best in pediatric health care to all of East Tennessee's children. For more information about the 2004 Fantasy of Trees, visit our web site at www.etch.com/fantasy.cfm. by Kathryn DeNovo student intern 2004 Fantasy of Trees Show Times Wednesday, November 24 9 a.m. to 9 p.m. Thursday, November 25 Thanksgiving Day 3 to 9 p.m. Friday, November 26 9 a.m. to 9 p.m. Saturday, November 27 9 a.m. to 9 p.m. Sunday, November 28 Noon to 6 p.m. 2004 Fantasy of Trees Major Event Sponsors: Celebrating 20 Years of the November 24-28 Co-chair Becky Vanzant, assistant co-chair Linda Redmond and co-chair Karen Waldbauer
  5. 5. 9 Alfred P. Kennedy Jr., M.D. B.A. (natural science) Ð Lehigh University, Bethlehem, Pa., 1986 M.D. Ð Hahnemann University, Philadelphia, 1990 Internship and Residency Ð Geisinger Health System, Danville, Pa., 1990-95 Fellowship (pediatric surgery) Ð ChildrenÕs Mercy Hospital at the University of Missouri, Kansas City, 1995-97 Fellowship (clinical pediatric urology) Ð Dupont Hospital for Children, Wilmington, Del., 2002 Family Ð Wife, Lisa; son, Parker (age 2); twin daughters, Alexis and Amber (age 1) Personal interest Ð playing piano A chance to practice pediatric surgery at a freestanding childrenÕs hospital along with a teaching appointment at a university were significant factors for drawing ChildrenÕs HospitalÕs newest pediatric surgeon to our medical center. Alfred P. Kennedy Jr., M.D., joined the East Tennessee Pediatric Surgery Group, P.L.L.C., at ChildrenÕs Hospital in July to help serve the surgical needs of this regionÕs children. Dr. Kennedy joined pediatric surgeons Alan E. Anderson, M.D., and Gus Papadakis, M.D., in the surgical group. Dr. Kennedy said he is looking forward to the chance to teach general surgical residents at the University of Tennessee while also practicing at ChildrenÕs. Further, the East Tennessee region is similar to the area in central Pennsylvania where he grew up, adding another important factor into his decision to relocate here. First interested in general surgery while in medical school, Dr. Kennedy was encouraged by a mentor to consider pediatric surgery. During his residency at Geisinger Health System in Pennsylvania, he traveled to the University of Missouri, Kansas City, to complete a rotation in pediatric surgery. "I really enjoyed it and fit in well with the staff at UMKC," he said. He later completed his fellowship in pediatric surgery at the same hospital. As a pediatric surgeon, Dr. Kennedy is most interested in minimally invasive surgeries and pediatric urological surgeries. "Minimally invasive surgery is a newer procedure in pediatrics. It helps kids to get better quicker with less pain," he said. "It utilizes a smaller incision and the organs are not exposed to an open-air environment as with traditional surgery with a larger incision. This means there is less in the body that has to heal, and the patient gets better more quickly." Technology has changed the face of pediatric surgery in significant ways in recent years. "The industry has developed more pediatric-sized instrumentation," Dr. Kennedy explained. "We can offer much more now than even 10 years ago to our patients because of this. Industry had focused first on adult-sized instrumentation," which isnÕt always adaptable to use with younger, smaller patients. With the newer technology, surgeries to treat such common problems as appendicitis and hernias are easier on the patients. "Kids are not small adults," he continued. "They have different physiology even with the same medical condition. In addition, their psychosocial needs are different; youÕre dealing with the whole family, not just the patient, when the patient is a child, and it can be a difficult situation for everyone." At Children's Hospital, the full complement of pediatric specialists ensures Dr. Kennedy can work with a variety of other specialists to solve complicated medical cases. "ItÕs one of the reasons I wanted to practice here," he added. Dr. Kennedy said that in addition to appendix removals and hernia repairs, he often treats patients with "lumps and bumps" that need to be removed when they cannot be diagnosed with certainty by the patientsÕ primary care physicians. More complicated cases include children with various congenital anomalies and obstructions of the gastrointestinal tract. Dr. Kennedy also is especially interested in urological surgical cases, such as undescended testicles, hydroceles, incontinence, bladder reflux, circumcision and kidney obstructions and tumors. "We can do so much more now because of the latest technology" that is available to care for patients, Dr. Kennedy said. "Most of the surgeons in our group are recently trained, and we can offer the latest surgical techniques to the East Tennessee community." In conjunction with his colleagues at East Tennessee Pediatric Surgery Group, P.L.L.C., Dr. Kennedy will help to provide the best in pediatric surgical services to the children of this region. Pediatric surgeon joins hospital staff 8 Physician fulfills lifelong mission Kevin C. Brinkmann, M.D. B.A. (biology) Ð University of Tennessee, Chattanooga, 1993 M.D. Ð UT, Memphis, 1997 Internship and Residency Ð UT, Memphis, 1998-2001 Fellowship (pediatric critical care) Ð UT, Memphis, 2001-04 Family Ð Wife, Jennifer; expecting a baby daughter in January 2005; two Shetland sheepdogs Personal interest Ð golf, listening to music, camping and hiking A native of the Chattanooga area, pediatric critical care specialist Kevin Brinkmann, M.D., has returned to East Tennessee to fulfill a mission he has held throughout his life Ð to take care of children. After spending a decade in Memphis, Dr. Brinkman relocated to Knoxville in July to provide care to critically ill patients in the Pediatric Intensive Care Unit at ChildrenÕs Hospital. He joins pediatric critical care specialists Joe Childs, M.D., and Matthew Hill, M.D., in the PICU. "As a pediatric critical care specialist, I am able to satisfy my interest for using the latest technology to take care of children and help them get back on their feet toward recovery," Dr. Brinkmann said. "I cannot think of anything better to do with my life than to work to save a childÕs life or help a child toward recovery." In the ChildrenÕs Hospital PICU, Dr. Brinkmann and his colleagues treat children with a wide variety of very serious medical conditions. Among the more common conditions are: respiratory distress, near-drownings, seizure disorders, complications of diabetes, severe asthma attacks and severe infections. In addition, children admitted to the PICU may have metabolic disorders, liver failure or heart failure. They also may have been injured in accidents, and Dr. Brinkmann notes that two things parents can do to help prevent head injuries are insist their children wear helmets while riding a bicycle and use their seatbelts while riding in passenger vehicles. The ChildrenÕs PICU also treats children recovering after some major surgeries, such as scoliosis repair, neurosurgical surgeries (especially after tumors are removed), and lung or heart surgery. These children may recover for just a few hours or even a few days in the PICU before being moved to a regular patient room. Whatever the childÕs need for intensive care, medical advances are improving treatment options and patient outcomes. "We have better strategies for day-to-day supportive care," Dr. Brinkmann said. "We also have better mechanical ventilators. The high-frequency oscillatory ventilator is a lifesaver for many kids with severe lung disease or acute respiratory distress syndrome, where the breathing sacs fill with protein and fluid." Staff in the PICU recently used a new therapy for the first time at ChildrenÕs. CRRT, or continuous renal replacement therapy, is similar to dialysis to support a child with kidney failure or metabolic problems. "There are exciting technologies weÕre just now getting to use with kids," Dr. Brinkmann said. But even as technology improves, other challenges remain. "Helping families understand their childÕs illness and how to cope, and providing support to them, are challenges," Dr. Brinkmann said. "ItÕs very important that a family understands whatÕs going on, and thatÕs part of my job Ð not just treating the child. Parents are a part of their childÕs recovery. Their voice and calming behaviors can be better than the medication for some children. "I canÕt imagine, not yet being a parent, what some of these parents are going through," said Dr. Brinkmann, whose first child -- a girl -- is due to be born in early 2005. "Becoming a father will help me to be a better doctor." Dr. Brinkmann praised his colleagues, Drs. Childs and Hill, as well as the PICU nurses, Respiratory Care staff and other patient care support staff. "It would be an understatement to call them well trained and highly motivated," he said. "I couldnÕt do my job or provide such a high level of care without them." Dr. Brinkmann arrived at ChildrenÕs Hospital at an exciting time. The PICU is one of the departments that will grow significantly through the hospitalÕs current expansion project. The unit will not only add beds but also will be able to offer individual rooms to most patients. These improvements will ensure greater comfort and privacy for a larger number of critically ill patients receiving care each day at our pediatric medical center. Subspecialist Profiles
  6. 6. Children’sNews... The corner of Clinch Avenue and 20th Street has had a major makeover in the past two years. What was once a parking lot has been transformed into a seven-story addition to ChildrenÕs Hospital. The new space will allow the hospital to offer 95 private patient rooms with full baths and increase its number of beds from 122 to 152. Departments that will be expanded include the Pediatric Intensive Care Unit, Neonatal Intensive Care Unit, Emergency Department, the inpatient medical/ surgical units, Radiology, Neurology/ Sleep Lab, Food and Nutrition Services, and others. Construction of the tower is nearing completion, and several floors in the tower are now open. HereÕs a look at recent changes to the ChildrenÕs Hospital campus: ¥ The Emergency Department opened its new space in mid-October. ¥ The new areas of second, third and fourth floors are set to open in November. ¥ The fifth floor addition was scheduled for completion in November, while the sixth floor addition is to be completed in December. ¥ The new kitchen and dining facilities will be completed in January. In conjunction with the construction project, ChildrenÕs Hospital is also updating several services to ensure patients and their families have the most comfortable stay possible. For many years the hospital has provided a video cart, which offered patients a selection of VHS movies. The video cart is being eliminated, and a closed-circuit digital television system is being installed, purchased with a $75,000 contribution from the ChildrenÕs Hospital Auxiliary. This is the AuxiliaryÕs largest single contribution ever made to ChildrenÕs Hospital. The new system will allow patients to choose from a wide range of cable channels and movies right in their room. The system also will include several channels for patient education. With the hospitalÕs growth has come the need for an updated telephone system. Effective in October, all patient rooms are now called by dialing (865) 246-7 and the patient room number. In other construction news: In 2003 the ChildrenÕs West Surgery Center and the ChildrenÕs Hospital Rehabilitation Center moved into new facilities at Pellissippi Parkway and Westland Drive. Recently the Tennessee Chapter of the American Society of Interior Designers and the International Interior Design Association honored the interior designers who designed these two facilitiesÕ interior spaces. Susan Ballard and Rebecca Tinsley of Corporate Interiors, Inc., won a Silver Award for the interior design they created at the ChildrenÕs West Surgery Center and a Bronze Award for their interior design of the Rehabilitation Center. by Kathryn DeNovo, student intern Building Blocks 1110 Beckie Thomas to retire After 27 years of service to ChildrenÕs Hospital, Beckie Thomas, R.N., Vice President of Patient Care Services, will retire January 1, 2005. Thomas began her career at ChildrenÕs Hospital on February 13, 1978, as the Assistant Director of Nursing. She also served as Director of Nursing and Assistant Administrator before becoming Vice President in 1982. ThomasÕ many responsibilities at Children's Hospital have included the supervision of all the medical centerÕs nursing units (Emergency Department, Neonatal and Pediatric Intensive Care Units, outpatient clinics, inpatient services and surgery), as well as the hospitalÕs Rehabilitation Center and the departments of Quality Management, Social Work, Child Life, Pastoral Care, Infection Control and Home Health Care. Her responsibilities as Vice President of Patient Care Services also include the management of the budget and financial viability of these many clinical areas, which has taken on added emphasis with each passing year. When Thomas joined ChildrenÕs HospitalÕs senior management 22 years ago, patients made just over 26,700 visits to the hospital annually, while patients made more than 136,000 visits to the hospital in the 2003/04 fiscal year. This phenomenal growth has presented financial challenges, related both to the growing number of patients and to the increasing size of the hospitalÕs staff to serve those patients. ChildrenÕs has had significant improvements to the staff, programs and services for patients while Thomas worked here. The Child Life department was created more than 20 years ago. More recently, Child-Family Centered Care and Service Excellence, two initiatives that shape the hospitalÕs policies, programs and the staffÕs daily activities were implemented to ensure patients receive the best care and service in a setting that encourages family involvement. Another major achievement was the growth and relocation of ChildrenÕs Home Health Care and the Children's Hospital Rehabilitation Center into larger, improved locations. Currently, all nursing departments are being expanded and renovated as part of the hospitalÕs ongoing expansion project on our main campus. As the hospitalÕs services have grown, Thomas has worked tirelessly to ensure that our patientsÕ diverse health care needs are met and the clinical staff has the best working conditions and benefits available. While ThomasÕs contributions to the hospital have been many, she is quick to give the credit to others. "The quality people I work with are innovators and go-getters Ð that truly has been the greatest aspect of Children's Hospital," she said. "The hospital has had the ability to attract the best people, and without that ability, nothing would happen. The recruitment of so many pediatric subspecialists to the hospital in recent years also has brought a significant new dimension to the services we can offer. "I have been so fortunate in this part of my career to work in a place where the priorities are children and their families and the quality of care provided," she added. "The nurses, physicians, other staff members, the members of the board, Administration, everyone has a great working relationship where the center of care truly is the patients." She also notes the importance of the hospitalÕs relationship with the community: "Our involvement with the community stands out with the way the hospital is viewed in such a positive light Ð it is because of the quality of care we provide." ThomasÕs achievements and hard work have not gone unnoticed by the hospital or the medical community. Thomas was awarded the Meritorious Service Award for Executive Staff on October 1 at the 66th annual meeting of the Tennessee Hospital Association. In addition to this award, the Nursing Administration Suite in Koppel Plaza will be named in her honor. The Rebecca C. Thomas Suite is a testament to her years of dedication, caring and hard work. Bob Koppel, President of ChildrenÕs Hospital, said Thomas will be greatly missed. "Beckie has served in senior management positions for almost three decades, during which time she has embodied what it means to be a leader, an administrator, a community servant and a health care advocate," Koppel said. "She has consistently been involved in area and state organizations that support Children's Hospital, the hospital industry and the children we serve. "Children's Hospital has been fortunate to have a person like Beckie Thomas as part of its management team, and the loss of her presence will be sorely felt when she retires," Koppel continued. "She has ( CONTINUED BOTTOM OF NEXT PAGE) Laura Barnes named vice president of patient care services Laura Barnes, R.N., M.S.N., C.N.A.A.,B.C., currently the Nursing Director of Critical Care Services at Children's Hospital, will become Vice President of Patient Care Services effective January 2, 2005. Barnes brings 30 years of work experience at ChildrenÕs Hospital and an abundance of management experience to her new position. Hired by ChildrenÕs as a Pediatric Intensive Care Unit staff nurse in April 1974, Barnes has served as a Head Nurse, the Assistant Director of Nursing Services, Child Life Coordinator, Director of ChildrenÕs Home Health Care, Director of Child Health Education, and, most recently, as Nursing Director of Critical Care Services. She holds a masterÕs degree in nursing from the University of Tennessee. "[Retiring Vice President] Beckie Thomas has been a tremendous asset to Children's Hospital for nearly three decades," Barnes said. "I am honored to be following in her footsteps and look forward to continuing the initiatives she was so instrumental in developing and supporting, such as Service Excellence and Child-Family Centered Care." Bob Koppel, President of Children's Hospital, said as he considered the type of person to be ThomasÕ successor, "I wanted to make sure Children's Hospital would continue to have someone who would provide effective leadership to our organization and enthusiastically be supportive of our Mission and Goals. "We were fortunate to already have such a person in our organization," he added. "Laura is well known throughout our organization and the nursing profession as a mission- driven leader. She has been instrumental in developing and overseeing a variety of new programs and improvements at Children's Hospital and was an ideal choice to fill the Vice President position." by Rupal Mehta, publications specialist Beckie Thomas Laura Barnes ( B E C K I E T H O M A S C O N T I N U E D ) been an outstanding employee and resource to our medical center, to the health care profession and to the East Tennessee community." A retirement reception will take place December 16 from 2-4 p.m. at the hospital to honor ThomasÕ many years of dedication and efforts to provide the best possible care for our patients. Thomas graduated from St. MaryÕs Memorial School of Nursing, and she is licensed as a Registered Nurse in Tennessee. She is active in the Tennessee Board of Nurse Executives, where she formerly served as secretary and treasurer at the state level. She is also a member of the American Organization of Nurse Executives. She was past vice president and president of the Knoxville chapter of Executive Women International, and she is a member and former chair of the United Way Allocation Panel. by Rupal Mehta, publications specialist Beckie Thomas, retiring Children's Hospital Vice President for Patient Care Services, was honored recently by THA for her many years of service to the health care field. Among the Children's Hospital staff attending the event were (left to right) Rudy McKinley, Vice President for Operations; Paul Bates, Vice President for Human Resources; and Jim Pruitt, Vice President for Finance.
  7. 7. 1312 Estate Planning... Your lawyer, the Òhead coachÓ of your estate planning team Include Children’s Hospital in your estate plans. Join the ABC Club. For more information, call (865) 541-8441. Please send the free brochure titled ÒPersonal Records.Ó Name______________________________ Address__________________________________________ City___________________________ State_______ Zip_____________ Phone#(______)___________ r Please call me at the above phone number for a free confidential consultation concerning planned giving. r Please send me more information about deferred giving. r I have already included ChildrenÕs Hospital in my estate plan in the following way: __________________________________________________________________________ r Please send me information about the ABC Club. ChildrenÕs Hospital Development Office (865) 541-8441 Why should I get a lawyer? CanÕt I just get a "will kit" or some software for my computer? The 10th Amendment to the Constitution of the United States reads: "The powers not delegated to the United States by the Constitution, nor prohibited by it to the states, are reserved to the states respectively, or to the people." Among the powers held by each state are the establishing of its own set of laws. Though there may be some similarities in the laws of each state, there are many differences. Tennessee law contains three different "titles" relating to wills and estates, which contain 17 separate chapters containing 15 different parts and more than 300 subparts. If you find this confusing, imagine trying to put together a "will kit" or a software package that would be accurate for all 50 states. Imagine dealing with a software program with all of those intricate differences and how confusing that could be. The opportunities for error are enormous, especially when you consider the number of changes that can be made by 50 state legislatures each year. Whether you are wealthy or of modest means, there is simply no substitute for your lawyerÕs knowledge of the laws of your state when drawing up your will. Think for a moment about some of the things your lawyer can do for you: ¥ Guide you as you select a guardian for your minor children; ¥ Help you reach as many of your in estate law and many other important matters. Just as each state has different laws, each family has different priorities for handling all of the assets they accumulate during a lifetime. Your situation is important; it requires and deserves the individual attention you can only get from your lawyer. You and your family deserve the peace of mind that comes from having a properly drawn will. For a copy of our free planning booklet, "Personal Records," send your name and address to us via the reply form below. Or you may email David Rule, Director of Development, at dsrule@etch.com or Teresa Goddard, CFRE, Senior Development Officer, at tgoddard@etch.com, or call them at (865) 541-8441. objectives as possible with a minimum of taxes and other headaches; ¥ Present alternative plans for you to consider and explain the benefits and the drawbacks of each; ¥ Advise you if your situation calls for the expertise of other professionals such as CPAs, Trust Officers or CLUs; ¥ Guide you in selecting a personal representative to carry out your wishes through your will; ¥ Make certain your will is properly signed and witnessed; ¥ Help you take special circumstances of all types into account; ¥ Advise you about the benefits and drawbacks of holding property in joint names; ¥ Advise you about charities you may wish to assist through your will; and, ¥ Guide you about upcoming changes Every day at ChildrenÕs Hospital, social workers and Home Health Care and Rehabilitation staff members see families who cannot afford to provide presents for their children during the holidays. Several years ago, these hospital employees decided to make those familiesÕ needs a priority during the holidays. Coordinated by the staff in the Community Relations Department, the hospital chooses about 30 families to assist each year. Families are elected through specific criteria, must be current patient families and will only receive help for one holiday season to ensure that as many families as possible are assisted. Family names are never given to the public. Community groups, businesses, organizations, individuals and families "adopting" these families are provided with a list of the familyÕs needs, such as childrenÕs ages, gender, needs and likes or dislikes. Groups may also purchase food or gifts for the family home. Some groups also donate gift certificates to local retail, discount and grocery stores so families can purchase specific gifts or meet personal needs. This also offers the parents a chance to purchase special items for their children and be more involved in their familyÕs holiday celebration. Because the number of families has grown from 20 to 30 over the last five years, ChildrenÕs Hospital continues to need more groups to adopt families during the holiday season. If you are interested in participating in the Adopt- A-Family program or for more information, call the Community Relations Department at (865) 541-8276. by Janya Marshall, Associate Director for Public Relations Adopt-A-Family program brightens patients’ holidays When the ChildrenÕs Hospital Auxiliary was created in 1964, the groupÕs goal was simply to make the stay of the hospitalÕs young patients and their families as comfortable as possible. As the Auxiliary celebrated its 40th anniversary in September, few could have foreseen the impact this group would make on ChildrenÕs in terms of its volunteer and fund-raising efforts to support much- needed equipment and programs. The Auxiliary hosted its fall meeting and anniversary celebration September 21 at the hospital, with many longtime members in attendance. Elizabeth Thomas, Director of Volunteer Services and Resources for ChildrenÕs Hospital, remembers the events behind the AuxiliaryÕs founding. "In 1964, Anne Ragsdale Regas founded the Auxiliary with a purpose of making the stay of our patients and their families a little better and more comfortable. Anne, whose son Dennis had been a patient at ChildrenÕs, enlisted the help of friends and neighbors to begin the Auxiliary and served as the groupÕs first president." On September 15, 1964, the first ChildrenÕs Hospital Auxiliary meeting minutes were recorded. Another founding member, Evelyn Pollard, still volunteers at ChildrenÕs Hospital today and fondly remembers the AuxiliaryÕs first days: "With no money and lots of elbow grease, we cleaned out a closet and stocked it with toys for the patients." Pollard also recalls the groupÕs first fund- raising effort, the holiday greeting card sale. "We had to hand deliver all the cards ourselves; it gave us a good opportunity to become better known in the community," she said. In 1970, the Auxiliary had the opportunity to fulfill its dream of opening a gift shop when the new hospital building opened on Clinch Avenue. "During the move, we had to [help] roll patients down the street to the new location. We moved everything by hand," Pollard said. "And the new gift shop was really exciting. If we had a $100 day, it was a great day. I am amazed how much we sell there now." Today, the annual holiday greeting card sale continues to be the groupÕs most popular fund-raising activity, and additional efforts include annual plant sales and other events that raise funds to support the AuxiliaryÕs services for patients and families. This yearÕs greeting card currently is available for purchase (see page 16 for more information about the card). The Auxiliary, ever eager to make a childÕs stay at ChildrenÕs Hospital more comfortable, is making exciting plans to adapt and expand its services as the hospital completes its move into the new patient tower this fall and renovates existing areas of the hospital during 2005. "Keeping up with patientsÕ and familiesÕ needs and embracing new programs to make their hospital stays as comfortable as possible is the AuxiliaryÕs daily goal," president Nancy Mason said. by Rupal Mehta, publications specialist Auxiliary celebrates 40 years of giving DatestoRememberUpcoming events to benefit ChildrenÕs Hospital January WATE-TV Mini-Telethon for Camp Cure (Diabetes Camp) January 9 JamminÕ in Your Jammies January 28-30 February University of Tennessee Dance Marathon February 4 & 5 March Star 102.1 Radiothon March 3 & 4 Cutest Little Baby Face Contest March 5-6 and 18-19 TKÕs Breakfast March 12 For more information about any of these events, call (865) 541-8441 or visit our Web site at www.etch.com and click on "Coming Attractions." Nine of the AuxiliaryÕs past presidents joined current president Nancy Mason and hospital president Bob Koppel for a group photo during the AuxiliaryÕs 40th anniversary celebration. Pictured are (left to right) Nancy Tipton, Jane Walker, Nancy Flynn, Wanda Haralson, Evelyn Pollard, Koppel, Anne Palmer, Peg Parker, Mason, Zurma (Hemry) Caldwell and Carole Lebert.
  8. 8. becomes particularly problematic during the age bracket of six weeks to four months, an age period that coincides with the peak incidence of Shaken Baby Syndrome. Infants cry to communicate their needs: they are hungry, need to burp, are uncomfortable or are tired. Sometimes there is no reasonable explanation for a babyÕs cries, and it is easy for caregivers to become frustrated because they canÕt seem to comfort the crying child. Unfortunately, shaking a crying baby has the desired effect: although at first the baby cries more out of fear, it eventually stops crying as the brain is damaged. Q : How can Shaken Baby Syndrome be prevented? 14 15 Shaken Baby Syndrome is the leading cause of death in child abuse cases in the United States. While the consequences of SBS can be fatal, they are 100 percent preventable. Joe Childs, M.D., Medical Director of the Pediatric Intensive Care Unit at ChildrenÕs Hospital, answers parentsÕ questions about Shaken Baby Syndrome and offers advice on how to prepare a plan that will reduce a childÕs risk of Shaken Baby Syndrome. Q : What is Shaken Baby Syndrome? A : Shaken Baby Syndrome is the term used to describe the group of signs and symptoms caused by someone vigorously shaking an infant or small child, which causes brain damage. In some cases, the shaking is accompanied by the final impact of the babyÕs head against a bed, chair or other surface. The degree of brain damage depends on the amount and duration of the shaking and the forces involved in the impact of the head. Q : Why is shaking a baby so dangerous? A : When someone forcefully shakes a baby, the childÕs head rotates uncontrollably because infantsÕ neck Shaken Baby Syndrome A : The most important thing to know about handling a crying child is: what will you do when you become frustrated? And you will become frustrated Ð all parents do. It is important to realize just saying "donÕt shake a baby" is not enough. A plan of action or suggestions to deal with the situation must be prepared. Finding ways to alleviate your stress at these critical moments will significantly reduce the risk to the child. If a baby in your care wonÕt stop crying, try the following: ¥ Make sure the babyÕs basic needs are met (For example, is the baby tired or hungry?). ¥ Check for signs of illness, like fever or swollen gums. ¥ Rock or walk with the baby. ¥ Sing or talk to the baby. ¥ Offer the baby a pacifier or a noisy toy. ¥ Take the baby for a ride in a stroller or in the car in his or her car seat. ¥ Swaddle the baby snugly in a blanket. ¥ Turn on the stereo, run the vacuum cleaner or run water in the tub (babies like rhythmic noise). ¥ Hold the baby close against your body and breathe calmly and slowly. ¥ Call a friend or relative for support or to take care of the baby while you take a break. ¥ If nothing else works, put the baby in the crib on his or her back and muscles are not developed enough to provide support for the head. The violent movement moves the infantÕs brain back and forth within the skull, rupturing blood vessels and nerves throughout the brain and tearing the brain tissue. The brain strikes the inside of the skull, causing bruising and bleeding to the brain. The damage is even greater when the shaking ends with an impact, because the forces of acceleration and deceleration associated with an impact are strong. After the shaking, the swelling in the brain can cause enormous pressure within the skull, compressing blood vessels and increasing overall injury to its delicate structure. Q : What is the outcome or prognosis of SBS victims? A :About 20 percent of all SBS cases are fatal in the first few days after injury. In some studies of SBS, the death rate is almost half of all babies involved. Children who survive may suffer partial or total blindness, hearing loss, seizures, developmental delays, speech and learning difficulties, severe mental retardation or paralysis. In milder cases, the baby may appear normal immediately after the shaking but may eventually develop one or more of these problems. Q : Can tossing or rough play cause SBS? A : No. Parents need to be assured that playing with children in an age- appropriate way will not cause the injuries associated with SBS. There is slight danger in tossing a baby in the air, but it is from the possibility of dropping the child. Even then, most children do not suffer life-threatening injuries from short falls. Riding in a backpack while the parent jogs or rides a bike will not cause SBS-type injuries. Q : Why is crying the most common trigger for shaking? A : Normally, an infant will spend two to three hours each day crying; 20-30 percent of infants exceed that amount of time, sometimes substantially. Crying Dr. Joe Childs walk away. Check on the baby every 10 minutes. If you are a parent, there are things you should do to protect your child from being harmed by someone else. Make sure that anyone who helps care for your child, including your spouse, the childÕs grandparents, siblings, child care providers and others, know the dangers of shaking a baby. Parents need to let those caring for their child know that it is OK to call for help when needed. You also should be cautious to only leave your child in the care of people who you know you can trust. Many of the SBS cases seen involve children who were left with male caretakers with minimal investment in the childÕs well-being, such as a casual or new boyfriend of the mother. Parents should also be aware the use of alcohol or drugs increases a personÕs chances of a violent or out-of-control reaction such as shaking. Do not use or allow others to use these substances when around your baby. Remember that a crying baby is not a reflection on your care. It is OK to let an infant cry if you have tried numerous things to quiet him or her. If you are concerned about a babyÕs crying, contact your childÕs health care provider. For more information, visit our web site at www.etch.com/sbs.cfm. treatment, but we choose to drive to ChildrenÕs Hospital because Jake trusts the staff, and so do we," Rhonda said. Jake enjoys telling everyone about his experience at ChildrenÕs. "He came to the hospital for a bone scan, and the young man in the Radiology Department gave Jake a copy of the ÔpictureÕ of his bones," Rhonda said. "On the first Ôshow-and-tellÕ at school, Jake took it to show everyone, and it hangs in his room during Halloween as his very own skeleton." "We would not have survived without ChildrenÕs Hospital," Rhonda said. "With their special care of JakeÕs medical needs, we were able to just be a family and found the blessings necessary to live day-by-day with our faith. ChildrenÕs staff provided us with that opportunity during the most difficult time of our sonÕs life." During the University of Tennessee versus University of Florida football game this fall, Jake and his family were watching the game on television. One of the commercials featured Lance Armstrong and his bravery throughout his battle with cancer. The commercial showed Armstrong stating, "I am a cancer survivor." Jake looked at his mother and boldly stated, "Hey, Mom, I am a cancer survivor, too." He went on to ask, "Mom, you want to know why? Because that is what God wanted me to be!" "According to our faith, God does not say all things that work for His plan are going to be easy or are going to be something that we understand. However, even in these circumstances, we are seeing that God is working in our lives and in JakeÕs life like never before," Rhonda said. by Janya Marshall, Associate Director for Public Relations JAKE ( C O N T I N U E D F R O M P A G E 5 ) Andy and Rhonda brought Riley to ChildrenÕs that evening and then came back to share JakeÕs story less than 24 hours later. "We know that our children will be taken care of in the best possible manner at ChildrenÕs Hospital," Rhonda said. "Whether it is for a major illness or a childhood injury, we wonÕt take our children to any other place. The staff provides the best care for the medical and emotional needs of the entire family." Jake continues his chemotherapy treatment at home and as a ChildrenÕs Hospital Hematology/Oncology Clinic patient. He visits every 28 days for IV chemotherapy, every two weeks for lab work, and once a month for respiratory treatments. The plan is to continue treatments until November 2005. "We actually have the opportunity to visit a facility closer to home for JakeÕs

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