It's About Children - Spring 2003 Issue by East Tennessee Children's Hospital

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It's About Children - Spring 2003 Issue by East Tennessee Children's Hospital

  1. 1. 102 Board of Directors James S. Bush Chairman Robert Madigan, M.D. Vice Chairman Robert M. Goodfriend Secretary/Treasurer Michael Crabtree Dawn Ford Peyton Hairston Jeffory Jennings, M.D. Bob Koppel Donald E. Larmee, M.D. Dugan McLaughlin Chris Miller, M.D. Alvin Nance Dennis Ragsdale J. Finbarr Saunders, Jr. William F. Searle III Bill Terry, M.D. Laurens Tullock Danni Varlan Medical Staff Chris Miller, M.D. Chief of Staff Lewis Harris, M.D. Vice Chief of Staff David Nickels, M.D. Secretary Chiefs of Services Lise Christensen, M.D. Chief of Medicine Cameron Sears, M.D. Chief of Surgery David Birdwell, M.D. Chief of Pathology Clifford J. Meservy, M.D. Chief of Radiology Mike Mysinger, D.D.S. Chief of Dentistry Mark Cramolini, M.D. Chief of Anesthesiology Administration Bob Koppel President Paul Bates Vice President for Human Resources Joe Childs, M.D. Vice President for Medical Services Rudy McKinley Vice President for Operations Jim Pruitt Vice President for Finance Beckie Thomas, R.N. Vice President for Patient Care A quarterly publication of East Tennessee Children’s Hospital, It’s About Children is designed to inform the East Tennessee community about the hospital and the patients we serve. Children’s Hospital is a private, independent, not-for-profit pediatric medical center which has served the East Tennessee region for more than 65 years and is certified by the state of Tennessee as a Comprehensive Regional Pediatric Center. Ellen Liston Director of Community Relations David Rule Director of Development Wendy Hames Editor Katie Harvey Assistant Editor Neil Crosby Cover/Contributing Photographer “Because Children are Special…” …they deserve the best possible health care given in a positive atmosphere of friendliness, cooperation and support— regardless of race, religion or ability to pay.” …their medical needs are closely related to their emotional and informational needs; therefore, the total child must be considered in treating any illness or injury.” …their health care requires special understanding, special equipment, and specially trained personnel who recognize that children are not miniature adults.” …their health care can best be provided by a facility with a well-trained staff whose only interests and concerns are with the total health and well-being of infants, children and adolescents.” Statement of Philosophy East Tennessee Children’s Hospital www.etch.com Artwork by some of Children’s Hospital’s special patients On the cover: 15-year-old Elijah Hill. Read his story on pages 4-6. – by Emma, age 10 – by Bret, age 8 – by Rachel, age 9
  2. 2. Carmen Tapiador, M.D. B.S. (biology) — Ateneo de Manila University, Philippines, 1989 M.D. — University of the East, Philippines, 1993 Internship — Iloilo Doctors Hospital, Philippines, 1993-94 Residency — Nassau County Medical Center, New York, 1999 Fellowship — Winthrop University Hospital, Long Island, New York, 2002 Family — Husband, Danny Valderrama; son Matthew, 2 years Interests — Cross stitch, shopping, dining out, travel SubspecialistP R O F I L E 3 Carmen Tapiador, M.D., likes to confront things that challenge her or even frighten her. As a medical student, pediatrics, and particularly pediatric endocrinology, fell into that category. “Pediatrics was not easy,” she said. “Endocrinology was challenging, too.” But she liked the challenge, and also knew that from a personal standpoint, a practice as a pediatric endocrinologist would allow her to better balance her own family life as a wife and mother. “I was married in 1998 while in residency,” she said. “I looked at the way different specialties would work with a family and with raising children, and I found that scheduling would be more flexible with pediatric endocrinology.” Now the parents of a 2-year-old son, Matthew, Dr. Tapiador and her husband, Danny Valderrama, found East Tennessee to be a good place for Matthew to grow up. “It’s not a big city, but it is not so far removed from larger cities,” she said. “It reminds me of the small city where we grew up in the Philippines. Everyone we meet here is so pleasant, not just at the hospital, but everywhere we go in the area.” Dr. Tapiador recently joined David Nickels, M.D., and Bruce Keenan, M.D., in their busy and growing pediatric endo- crinology practice at Children’s Hospital. Working with Drs. Nickels and Keenan, Dr. Tapiador will help provide care to the area’s children with diabetes, growth disorders, thyroid problems and other medical conditions. Diabetic children comprise about 50 percent of the practice’s patients and children with growth disorders, another 45 percent. Dr. Tapiador is especially interested in diabetes and is pleased with the improvements in care and technology that recently have become available. New insulins are an improvement over previous versions, and new insulin pumps are user friendly, making them the most ideal treatment for children at this time. Information recorded by the insulin pumps can be downloaded, enabling the endocrinologist to review the child’s rate of insulin delivery and therefore learn a great deal about how the child is responding to treatment. Adolescents and teens with diabetes provide a special challenge for pediatric endocrinologists such as Dr. Tapiador. Meeting their needs requires extra effort, patience, support and information. “It’s already a challenge to be an adoles- cent,” she said. “So to add diabetes into the mix is more difficult for the patients. “Teens don’t want to be different from their peers, and syringes with insulin set them apart from the group,” she added. Working in concert with Drs. Nickels and Keenan, Dr. Tapiador will help to meet the increasing medical needs of this region’s children. Pediatric endocrinologist balances medicine, family
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  4. 4. 5 The symptoms from both of these conditions are what brought Elijah to Children’s Hospital in the winter of 1996 when he was 8 years old. Elijah had already experienced several strokes as a result of his Moyamoya disease, and his sickle cell condition was continuing to weaken his body. That year Elijah developed pneumonia and was admitted to Children’s Hospital. At the time, Elijah was still in the custody of his biological parents. Six months after recovering from his pneumonia, Elijah was back at Children’s Hospital, and it was at this time that he was introduced to foster parents Deb and Mike Hill. The Hills spent time with him, became his foster parents, and officially adopted Elijah on June 14, 2001. Elijah is the oldest of the Hills’ five adopted children, which also include Mark, 14; Isaac, 7; Brijah, 6; and Allie, 4. Mark and Isaac are Elijah’s biological brothers. Deb and Mike also have two biological children, Jami, 29, and Erin, 26. When Elijah was younger, his illnesses caused him a great deal of discomfort, but with the Hills and Children’s Hospital, Elijah has been able to live a better life. When Deb first met Elijah at the hospital, she was amazed at the atmosphere the nursing staff had created around him. She could tell the staff cared greatly for Elijah because of their tender and loving approach with him. “The nurses and doctors were extremely protective of Elijah and were determined to give him the best care possible,” she said. Once Elijah’s family and the medical staff at Children’s Hospital learned more about his condition, they had to weigh their options. Although surgery can correct some of the damage Moyamoya does to blood flow in the brain, it is an incurable disease, and the surgery is not for everyone. The Hills, however, were determined to do anything they could to help Elijah, and working with Doris Wortham, M.D., at Children’s Primary Care Center, they were able to find and convince one of the few Moyamoya experts in the United States that Elijah was an excellent candidate for brain surgery. He eventually underwent two brain surgeries at Vanderbilt Children’s Hospital in Nashville. The type of surgery Elijah had was called “pial synangosis.” It involved taking a vein from his scalp, and, while keeping blood flowing through the vein, opening a window of bone beneath the vein, carefully opening the coverings of the brain, and grafting the vein directly on to the brain. Deb said the surgeon, Scott Standard, M.D., explained that what this did was comparable to a how a lizard grows a new tail. New pathways of veins were able to grow around where this vein was placed, allowing full blood flow to the brain. The procedure was performed on the right side of Elijah’s brain first. Two weeks later, the left side, which was more severely damaged by the strokes, was operated on. Elijah hasn’t had a stroke since his second brain surgery and is now able to have his follow-up care at Children’s Hospital. Elijah’s sickle-cell treatment includes red blood cell transfusions every four weeks to help prevent additional strokes, followed by a five-day chelation hookup after each transfusion to remove the iron that has built up in his body. This procedure involves the administration of IV medications through a port in his side 24 hours a day for five consecutive days. With assistance from Children’s Hospital’s Home Health Care, Elijah is able to undergo the chelation hookup at home, which keeps him close to his family and friends in a more comfortable and familiar environment. “Without Home Health, Elijah would have to be admitted to the hospital five days every month,” said Pam Wilson, clinical coordinator for Children’s Hospital’s Home Health Care. “This is much more convenient and comfortable for both Elijah and his family.” The Hills couldn’t agree more. They have a special relationship with the staff at Home Health, and they are extremely appreciative of the services they provide. Home Health even helped the Hills have a better Christmas, thanks in part to Home Health employee DeAndré Jones, who delivers medical equipment to their house. “Home Health is wonderful,” Deb said. “I definitely think one heals better at home, and I think we’d be in serious trouble without them.” Elijah also visits Ray Pais, M.D., pediatric hematologist/oncologist and director of the Hematology/Oncology Clinic at Elijah and his father, Mike Hill, are interviewed by Mary Loos of WBIR-TV Channel 10 during the 2002 Children’s Miracle Network Broadcast at Children’s Hospital.
  5. 5. 6 Children’s, for some components of his sickle cell treatments, including the monthly transfusions to help prevent additional strokes. “Dr. Pais has done everything for Elijah,” Deb said. “He fights tooth and nail for him.” For the most part, Elijah enjoys his visits to the clinic. Deb says it’s like a second home for the entire family. When his brothers and sisters go with him, they each know exactly what toy or game they want to play with before they arrive. Elijah is also a patient of the Children’s Hospital Rehabilitation Center. Nadine Trainer, M.D., pediatric physiatrist at Children’s Hospital’s Rehabilitation Center, has helped Elijah obtain an electric wheelchair, which has given him more mobility and independence, according to his mother. “It has really opened his world,” she said. “Now when his brothers and sisters go outside to play, he’s right out there with them.” The Children’s Hospital Rehabilitation Center has also helped Elijah to get a “stander,” a device that enables Elijah to stand and be more comfortable, especially at school. Despite his health condition and all the adversity he has faced, Elijah approaches life with a smile. “Eli is amazing,” Deb said. “He is always smiling.” Pam Wilson expressed the same sentiment. “He has a beaming smile,” she said. Elijah likes the same things any 15-year- old boy does: music, computer games and hanging out with friends. He also loves to play cards, a hobby that has proven educational — he learned his numbers by playing with them. Elijah is full of enthusiasm and is a determined young man who has an unbridled love for life. With his parents’ help and support from the staff at Children’s Hospital, he has been able to fight through a great deal of adversity. by Jarrett Ellis, Guest Relations Representative, and Katie Harvey, Publications Specialist Elijah with his pediatric hematologist/oncologist, Ray Pais, M.D.
  6. 6. 7 To: care@etch.com Sent: Thursday, December 26, 2002 9:16 PM Subject: Thank You From The Bottom Of Our Hearts! Hi, my name is Rinda Tolliver, and my daughter’s name is Nichole Tolliver. Nichole had been sick most of this year with tonsillitis, and I took her to a specialist who said her tonsils had to come out and then sent it through to the insurance company, and the insurance denied it because it was “with them pre-existing.” I needed help because the other hospital turned us away because we could not pay for the surgery up front! I was looking through our phone book and just happened to find Children’s Hospital. I made a call, got my daughter a new doctor, and at Children’s Hospital the surgery was done. They didn’t turn me away for any reason, and I would just like to say a great big thank you to Children’s Hospital for all you do! Kids really do matter to you. This is one story that doesn’t get too old to tell all my friends and to anyone with sick kids. Thank you sincerely from the bottom of our hearts. God bless you all and everyone there. Sincerely, Rinda Tolliver October 2, 2002 My son had surgery at your hospital Sept. 25, 2002. Dr. Preston Smith performed the surgery in your outpatient surgery department. I work in the health care profession, so I know all about good and bad customer service. Our service was great from Admitting to when we were discharged. There were four or five different people who came in our room, and they all carried a smile on their faces. If we needed something or just asked a question, your staff was right on top of it. My husband and I would like to say thank you, especially to Curtis; she took very good care of Nathanael. Dr. Smith and your staff at Children’s Hospital are great. Keep up the good work. Racheal Henegar Elizabethton, TN To whom it may concern: When my daughter became ill recently, we were advised to take herto the emergency room. Because of her age (16), I didn’t immediatelyconsider Children’s. While driving to Knoxville, however, I thoughtof your hospital and decided to take her there. I am extremely gladthat I did. Your staff was absolutely wonderful from beginning to end. Thenurses, doctors, volunteers, even the folks who transported her fromplace to place could not have done more to make both of us feelat ease. I have been in the emergencyrooms of several hospitals with variousadult members of my family and havenever been treated so well. In spite of her age, when my daughterexpressed a wish for a “dollie” to sleepwith, the nurse found her a teddy bearthat had been donated from one of theschools. It was constantly by her sidewhile she was a patient and has a placeof honor in her bedroom now that she’sback home. The customer friendly attitude of yourstaff goes a long way to making adifficult experience less troublesome. Ican’t thank you enough for the kindnessshown to us. Keep up the good work. Sheila Wilshire
  7. 7. 8 The finishing touches are being made on a major aspect of Children’s Hospital’s three-year expansion project — the 42,000-square-foot addition to the Koppel Plaza at the corner of Clinch Avenue and 21st Street (pictured at right). Several hospital departments currently located in the Children’s Hospital Medical Office Building and the main hospital building are relocating to the new space. Nursing Administration and Community Relations have already moved to the first floor of the building, and other departments are scheduled to move between now and April. These include: the Byrd Board Room, Child Life, Development, Pediatric Hematology/ Oncology, Infectious Disease, Information Systems, Marketing and Physician Services, Neonatology, Pastoral Care, the Print Shop, Service Excellence and Social Work. Spaces vacated in the Medical Office Building by some of these departments will then be made available for additional or expanded physician offices. On the other side of the hospital campus, work began in October 2002 on excavation of the former Emergency Department and physician parking lots at the corner of Clinch Avenue and 20th Street for a new 115,000-square-foot, seven-story patient tower. Foundation work has begun on the tower and will continue into April. Then the structure of the building can begin to “come out of the ground,” and it Building for the future should be enclosed and under roof by late 2003. This project also includes a third- floor addition over the existing Emergency Department and Outpatient Clinic area and extensive renovation of all semi-private patient rooms with half baths in the existing patient tower into private rooms with full baths. To ensure that the new rooms are patient- and staff-friendly, the hospital has set up two mock patient rooms on the third floor of the Koppel Plaza (pictured above). The rooms have been evaluated by hospital staff who offered suggestions on renovation. Once construction is complete, Children’s Hospital will have 95 private patient rooms with full baths; a larger Emergency Department; an expanded 13-bed Pediatric Intensive Care Unit; an expanded 44-bed Neonatal Intensive Care Unit; an expanded Surgery Department; more space for support services, families, staff and storage; additional elevators; and a larger cafeteria and Food and Nutrition Services department. The hospital’s licensed beds will increase from 122 to 152. The cost for the hospital addition, including construction and furnishings, is $31.8 million. In addition to the major main campus project, two projects are well on their way at the Children’s West outpatient services campus at Pellissippi Parkway and Westland Drive. • The Children’s West Surgery Center (pictured below) is expected to open for patient visits in April, after receiving certification. The pediatric outpatient surgery center, a joint venture between Children’s Hospital and 14 area surgeons and dentists, includes two operating rooms with capacity to expand to three ORs. • Bidding on the construction of the Children’s Hospital Rehabilitation Center took place in January, and work on the facility could begin some time in February. The new center, which will be relocated from its present site on Gleason Road, will have approximately 21,500 square feet all on one level in an updated facility. The total cost for all the projects on Children’s Hospital’s two campuses is $47.5 million. by Katie Harvey, Publications Specialist
  8. 8. 9 New officers of the Children’s Hospital Medical/Dental Staff took office on January 1, following elections last fall. Officers are elected for a two-year term, continuing through the end of 2004. Chris Miller, M.D., who most recently served as Vice Chief of Staff, is the new Chief of Staff. Miller, a pediatric neurologist in practice with Child Neurology Services, joined the hospital’s medical staff in 1986. As Chief of Staff, Dr. Miller is responsible for a variety of tasks, including serving as a standing member of the Children’s Hospital Board of Directors; enforcing Medical Staff Bylaws, Rules and Regulations; reporting to the hospital’s Board of Directors on the performance and maintenance of quality of the Medical Staff’s provision of medical care; receiving and interpreting the policies of the board to the Medical Staff; and representing the views, policies and needs of the Medical Staff to the board. The new Vice Chief of Staff is Lewis Harris, M.D., pediatric neurosurgeon in practice with Neurosurgical Associates. He joined the hospital’s medical staff in 1995. The Vice Chief of Staff is responsible for assuming the Chief of Staff’s duties in his absence and also attends meetings of the Board of Directors in preparation of assuming the responsibilities of Chief of Staff in 2005. The other 2003-04 Medical/Dental Staff officers are: Secretary, David Nickels, M.D.; Chief of Medicine, Lise Christensen, M.D.; Chief of Surgery, Cameron Sears, M.D.; Chief of Anesthesiology, Mark Cramolini, M.D.; Chief of Dentistry, Mike Mysinger, D.D.S.; Chief of Pathology, David Birdwell, M.D.; Chief of Radiology, Cliff Meservy, M.D.; and Members-at-large to the Executive Committee of the Medical Staff, from the Department of Medicine, John Buchheit, M.D., and from the Department of Surgery, John Little, M.D. In addition to the new Medical Staff officers, Children’s Hospital is pleased to welcome the expertise of the following new medical staff members who have joined our staff in recent months: Jeffrey T. Abrams, M.D., pediatrics; Mohammed Ahmed, M.D., nephrology; Salwa Alkhoury, M.D., pediatrics; Cameron Blevins, M.D., pediatrics; Jason Troy Cheney, M.D., pediatrics; Mariano de la Mata, M.D., pediatrics; Stephen Franklin, M.D., ophthalmology; Tom T. Gallaher, M.D., plastic surgery; Marcin Gornisiewicz, M.D., rheumatology; Kimberly Hicks, M.D., pediatrics; Robert Q. Ingraham, M.D., neurosurgery; Sangeetha Kodoth, M.D., allergy and immunology; Jay Lucas, M.D., pediatric plastic surgery; Larry G. Maden, M.D., neonatology; Drew Osborn, D.D.S., pediatric dentistry; Stephen L. Perkins, M.D., ophthalmology; M. Taite Seals, M.D., otolaryngology; Andrew L. Smith, M.D., family practice; Edwin Spencer, M.D., orthopedics; and Barbara Summers, M.D., pediatrics. by Katie Harvey, Publications Specialist, and Genny Kirchner, student intern New Medical/Dental Staff officers installed, new physicians added to staff Through its Web site, Children’s Hospital is offering a series of free e-newsletters called New Parent eNews for expectant and new parents. Each e-newsletter contains stage-specific information on health, nutrition, learning and development. The New Parent eNews newsletter offers information throughout the pregnancy and as new parents take the newborn home for the first time. The New Parent eNews newsletters include information on pregnancy myths, staying healthy during pregnancy, multiple births, caring for a newborn, immunizations, communicating with and nurturing a new baby, preparing siblings for Web site offers New Parent eNews a new family member, medical conditions and problems that can affect newborns, how becoming a parent affects the parents’ relationship and more. The New Parent eNews newsletter is written for parents of children up to two years of age. New parents may sign up to receive stage-appropriate e-mails by supplying their e-mail address and expected due date or date of their baby’s birth. The subscriber will receive e-mail newsletters periodically until the child reaches age two. Users can enroll in New Parent eNews by clicking on the New Parent eNews icon on the home page of the Children’s Hospital Web site, www.etch.com. New Parent eNews is offered on the Children’s Hospital Web site through KidsHealth, a leading provider of licensed pediatric health care content. The Children’s Hospital Web site, www.etch.com, recently added a major new feature. The Physician Directory is a searchable feature accessible from the home page to help families find a pediatrician near their home. The directory is searchable by East Tennessee county, by area of Knox County or by pediatrician name. Information provided in the search includes the name of the pediatric practice; the physicians associated with the practice; brief biographies of the physicians; the practice’s address, phone number and fax number; driving instructions to the office location(s); and links to related Web sites. A searchable Pediatric Subspecialist Directory will be added soon. Web site launches physician directory
  9. 9. 10 Children’s Hospital will once again sponsor the Pediatric & Neonatal Conference April 3-4 at the Knoxville Airport Hilton. As a continuation of last year’s “Grow For It” theme, this 23rd annual conference — themed “Here We Grow Again” — will host two nationally known keynote speakers, include displays from area medical vendors and provide breakout sessions on a variety of topics. Keynote speaker Steve Sobel, M.D., is one of the country’s most popular motivational speakers and author of the best seller, “The Good Times Handbook — Your Guide to Positive Living and Exciting Life.” Dr. Sobel is a major keynote speaker for nurses and health care professionals throughout the United States. The conference’s other keynote speaker, Terry S. Johnson, ARNP, RNC, MN, is a neonatal nurse clinician-practitioner and founder of Lodestar Enterprises, Inc., a professional service firm providing education and consulting services to health care systems and providers. Her creative, insightful presentations range from neonatal and patient management topics to interpersonal and organizational issues in the workplace. In addition to the main keynote sessions, participants also will be able to choose from four tracts of general pediatrics, neonatology, critical care and professional development, which is new this year. During breaks between sessions, participants will have the opportunity to visit vendor booths from medical supply companies, Children’s Hospital departments and other health care agencies. This conference is designed for nurses, physicians, respiratory therapists, nurse practitioners, physician assistants, medical assistants, students and all other health care professionals interested in current issues and advances in the care of infants and children. For more information or to register, contact the Children’s Hospital’s Education Department at (865) 541-8618 or visit www.etch.com/pnconf.cfm. by Seth Linkous, Public Relations Specialist Children’s plans Pediatric and Neonatal Conference The Children’s Hospital Auxiliary installed new officers in January. The officers elected were President Nancy Mason, Vice President Kathy Payne, Treasurer Wilma Floyd, Recording Secretary Barbara Nixon and Corresponding Secretary Nellie Thomas. The Auxiliary also gave a $50,000 gift from net Gift Shop proceeds, which is earmarked for the following needs: $21,467 for six electric beds on the Third Floor; $13,500 to purchase Fantasy of Trees 2002 proved that fantasies really do come true for visitors, volunteers and organizers alike. This year’s move to the new Knoxville Convention Center provided organizers and designers with more space and allowed even more holiday splendor to be enjoyed by all. More than 54,300 guests — an all-time attendance record — experienced “A Storybook Christmas” amidst beautiful holiday decorations in the spectacular new setting. More space, more people at New Children’s Hospital Auxiliary officers are, left to right: Nancy Mason, president; Kathy Payne, vice president; Nellie Thomas, corresponding secretary; and Barbara Nixon, recording secretary. Not pictured is Wilma Floyd, treasurer. Auxiliary elects officers, gives gift to hospital The proceeds from this year’s show — estimated at more than $290,000, which is an increase over last year’s record net of $278, 296 — will fund the purchase of state-of- the-art medical equipment for the Pediatric and Neonatal Intensive Care Units. The real stars of this year’s Fantasy of Trees were the 8,922 volunteers who 2002FantasyofTrees donated in excess of 110,500 hours to make this year’s event such a success in its new home. Children’s Hospital extends its thanks to all volunteers and visitors to the 2002 show. syringe pumps for the NICU; $7,500 for the Star 102.1 Radiothon in March to benefit Home Health and Hematology/Oncology; $3,250 to purchase a prisma blood warmer for the Continuous Renal Replacement Therapy (CRRT) machine in the PICU; $2,288 for the Meal Fund; $1,400 to purchase a Lindholm Child Laryngoscope for the Surgery Department; and $595 to purchase a tracheotomy doll for the Education Department. By Katie Harvey, Publications Specialist and Genny Kirchner, student intern
  10. 10. 11 Imagine you are expecting a baby and have prepared for labor and delivery at a hospital near your home. When labor begins, you head to the hospital, where you deliver your baby. Hopefully everything goes smoothly and your baby is healthy. But sometimes babies encounter difficulties during labor and delivery and need specialized care. If you deliver your baby at Fort Sanders Park West Hospital in West Knoxville, or at the new Baptist Hospital for Women in Farragut (scheduled to open in July), your newborn will have access to special care provided by Children’s Hospital neonatal nurses. The program is called Children’s Neonatal Services, and it is an extension of the services provided by the Neonatal Intensive Care Unit and the Neonatal Transport Team at Children’s Hospital. Area hospitals contract with Children’s Hospital to provide an experienced neonatal nurse clinician (a registered nurse with specialized training) in the labor and delivery unit to provide neonatal expertise at deliveries and provide care both to critically ill newborns and well babies. The nurses staff these facilities 24 hours a day, seven days a week. The service provides the referral facility with skilled nurses who can stabilize newborns experiencing complications and who can readily identify the need for transport to Children’s Hospital for more intensive care or, at the least, can arrange for further consultation with a neonatologist at Children’s Hospital. The Children’s nurses attend all high-risk vaginal deliveries and all C-sections. They work alongside the labor and delivery staff, providing true multidisciplinary care, and are often involved in the parent education process. In addition, the neonatal nurse clinicians serve as an educational liaison for the referral hospitals, providing monthly in-services on a wide range of neonatal health care topics for the staff at those facilities. Children’sNeonatalServices providescareoutsideourdoors Nurses selected for this program have at least two years of high-risk neonatal nursing experience and certification as instructors in Basic Life Support and the Neonatal Resuscitation Program. They must attend and pass a 40-hour comprehensive program and complete a clinical practicum under the direction of a neonatologist. They are credentialed at the referral facilities as Allied Health Providers and operate under approved medical protocols adopted by the neonatologists at Children’s Hospital and approved by the medical staff at the referral facilities. The nurses must be skilled in intubation, chest tube insertion, line placement for administration of emergent medications, and the initiation of emergent care when a neonatologist is not immediately available. Children’s Neonatal Services currently has nine nurses serving in this role, and a new training program with 12 participants began late last fall. The program has been active in area referral facilities since 1995.
  11. 11. Please send the free brochure titled “Personal Records” Name_________________________________ Address _________________________________________ City ____________________ State _____ Zip ____________Phone #___________________________ Please call me at the above phone number for a free confidential consultation concerning planned giving. Please send me more information about deferred giving. I have already included Children’s Hospital in my estate plan in the following way: ____________________________________________________________________ Please send me information about The ABC Club. Children’s Hospital Development Office (865) 541-8441 ( ) EstatePlanning... Whoneedsawill?Whybother? Include Children’s Hospital In Your Estate Plans. Join The ABC Club. For More Information, Call (865) 541-8441 by David Rule, Director of Development 12 BB “If something happened to both of us, your Mom would get the kids, so why bother?” Here’s why: Your state’s plan for taking care of your children (and for distributing all that you have accumulated during your lifetime) may not match up well with what you would prefer to do. As hard as our lawmakers work and as well intentioned as they may be, have you ever disagreed with laws that they pass? As much as we respect our judges, have you ever questioned their decisions? If you fail to prepare a will, you are allowing the legislature (via the laws they have written) and the courts (via their interpretation of those laws) to determine the custody of your minor children, should such a need arise. If you were choosing the person to care for your children, you would probably look at many different factors: • Who raises their children the way you are raising yours? • Who has religious beliefs that are closest to yours? • Who has a large enough home? • Who is in good health? • Who would treat them the way you would? • Who would take them to baseball games or ballet lessons or soccer practice or swim meets or school plays, and who would take pictures at these activities? Perhaps your parents or your spouse’s parents, a brother or sister or a close friend would be best suited to raise your children. Would you really want them in court fighting over custody of your children because you failed to plan? Do you have enough life insurance and other assets to support your children until they are grown, educated and on their own? Perhaps you would want the people who are raising your children to also be in charge of the funds you would leave for their support. But you might prefer to have a separate individual or a trust company manage the money for them. Whatever your answers to the questions above, a properly prepared will is the only way to assure that your wishes are carried out. For more information on wills and estate planning including a copy of our booklet, “Personal Records,” please send your name and address to the Children’s Hospital Development Department via the reply form below. Or you may contact David Rule, Director of Development, at dsrule@etch.com, or Teresa Goddard, CFRE, Senior Development Officer, at tgoddard@etch.com. Both may be reached by phone at (865) 541-8162. Editor’s note: Because restoring the health of sick and injured children is Children’s Hospital’s mission, this first installment in our “Why Bother” series on wills and estate planning focuses on the need to plan for custody of minor children. Our next issue will discuss some of the special needs and circumstances within a family that make a will especially important. ecause (your) Children are Special... a will is vital!
  12. 12. 13 U p c o m i n g e v e n t s t o b e n e f i t C h i l d r e n ’ s Mark your calendars now for several upcoming events designed to entertain families and benefit Children’s Hospital. Thanks to the wonderful people of East Tennessee who host and participate in these events, Children’s Hospital can continue to provide the best pediatric health care for all the children of this region. For more information about any of these events, contact the Children’s Hospital Development Department at (865) 541-8441 or visit the calendar of events on the Children’s Hospital Web site at http://www.etch.com/attractions.cfm. Gladys Knight to take ‘Center Stage’ Grammy Award winning singer Gladys Knight will perform “Center Stage” at the 11th annual benefit for Children’s Hospital April 5 at the Knoxville Marriott. Gladys Knight and the Pips, a vocal group comprised of several of Knight’s relatives, made their chart debut in 1961 with “Every Beat of My Heart” when Gladys was just 16 years old. Four decades of hits followed on several record labels, including Motown, Buddah, Columbia and MCA. Ten of their songs reached No. 1 on the R&B chart, five became Top 20 hits and three were awarded Grammys. Some of their hits include “I Heard it Through the Grapevine,” “Neither One of Us (Wants to Be the First to Say Goodbye)” and “Midnight Train to Georgia.” Knight released her first solo album, A Good Woman, in 1991. In February 1998, Gladys Knight and the Pips were inducted into the Rhythm and Blues Hall of Fame. The Center Stage benefit will begin at 6:30 p.m. with cocktails and hors d’oeuvres in the Main Lobby of the Knoxville Marriott, followed by dinner and Gladys Knight’s performance. A dance band will perform following the concert. Underwriting support is provided by Goody’s, Clayton Homes, Pilot Corporation and LandAir. A special thanks goes to Bob and Wendy Goodfriend, who will serve as co-chairs for the eleventh year. Center Stage has raised more than $1.2 million for Children’s Hospital since its inception. Star 102.1 Radiothon Be sure to listen to the second annual Radiothon, sponsored by longtime Children’s Hospital supporters Star 102.1 radio and the Journal Broadcast Group from 6 a.m. to 6 p.m. on March 6 and 7. Star 102.1 morning personalities Marc and Kim will broadcast live from West Town Mall, encouraging listeners to “tune in for children” and make a personal pledge to help Children’s Hospital. The money raised during the event will be used to buy new medical equipment for Children’s Hospital and equipment and supplies for Children’s Home Health Care. Last year, Radiothon raised more than $137,000 for Children’s Hospital. One great way for your family, business or church group to be involved in Radiothon is to be a “Cash Cop for Kids.” A “Cash Cop” is an individual who agrees to solicit donations for Children’s Hospital from coworkers, friends and families in the month prior to Radiothon. Just let us know when you want to be “on patrol” to help the kids, and we’ll get you “deputized” and ready to go. Food City Family Race Night NASCAR fans will want to race to Knoxville’s Civic Coliseum March 19 from 5-9 p.m. for a unique night of family fun. Activities at the Food City Family Race Night include autograph signings by NASCAR drivers, free food sampling, show cars, simulators and shopping for souvenirs. Tickets are $4 in advance or $5 at the door, and children ages 12 and under are admitted free. Tickets can be purchased at any Knoxville area Food City. A special thanks to Food City, WATE-TV 6 and the Knoxville News-Sentinel for their sponsorship to ensure the Food City Family Race Night continues to be a success. “Cutest Little Baby Face” Contest On March 29 and 30, photographs will be taken for the 13th Annual “Cutest Little Baby Face” contest at Belz Factory Outlet World in Pigeon Forge. The contest is open to children ages 5 and younger. Participants may pre-register for the event by completing a registration form in the Center Court area inside the outlet mall. Pre-registration is also available by calling the Children’s Hospital Development Department at (865) 541-8437. The entry fee for pre-registration is $5, and registration at the event is $7. The fee includes a choice of 5x7 portrait of the participant. After all entry photographs are taken, voting will take place at the outlet mall on April 11 from 9 a.m. to 6 p.m. and on April 12 from 9 a.m. to 3 p.m. A $1 donation to Children’s Hospital will count as 100 votes for a favorite baby photo. The child with the most votes wins and will be announced at the “Baby Face Parade,” which will begin at 3:30 p.m. on April 12 at Belz. TK’s Breakfast B97.5 morning radio personality TK Townshend will host the Eighth Annual TK’s Breakfast for Children’s Hospital May 3 at the Knoxville Marriott from 9-11 a.m. Families can enjoy music and entertainment during the breakfast, and live and silent auctions will be held as well. The performers for this year’s event have not been confirmed yet, but local and national celebrities who have participated in the past include All-4-One, Jim Brickman, Lee Greenwood and Jordan Hill. Last year, more than 1,000 guests attended the breakfast, which raised more than $44,000 for Children’s Hospital. The breakfast is sponsored by B97.5, Comcast, BI-LO, Charter Media, local O’Charley’s restaurants, American Airlines and the Knoxville Marriott. Tickets for guests ages 7 and up are $6 in advance or $7 at the door. Children ages 6 and under are admitted free. Children’s Hospital Invitational Golf Tournament The 20th annual Children’s Hospital Invitational Golf Tournament to benefit the Oliver William Hill, Jr., M.D., Pediatric Neurology Laboratory will take place Monday, May 12 at Fox Den Country Club. The event, whose signature sponsor is Ruby Tuesday, raised more than $47,000 last year. Special thanks to the following 20-year sponsors: Goody’s Family Clothing; Barber & McMurray Architects; Engert Plumbing and Heating; First Tennessee Bank; Home Federal Bank; Knoxville Pediatric Associates; Knoxville Coca-Cola; Vreeland Engineers; and Pershing Yoakley & Associates. by Katie Harvey, Publications Specialist While most guests sit at the table and not on it, everyone enjoys the food at TK’s Breakfast.
  13. 13. 14 Q&A if SIDS may result from more than one problem, or that several events must happen together for SIDS to occur. One theory is that an anatomical defect, most likely in the brain, leads to a problem in the way the baby breathes or the way blood flows throughout the body. Another possibility is that affected infants have developmental delay that slows the development of proper breathing or blood flow. Q. How can I reduce the risk of SIDS? A. One of the most important things you can do to help reduce the risk of SIDS is to put your healthy baby on its back to sleep. Do this when your baby is being put down for a nap or at bedtime. When babies are newborns, keep them happily positioned on their backs by swaddling them snugly with hands up near their mouths so they can comfort themselves. As they get older, they will start to move around a bit at night, so do not wrap them in blankets. By the time they are 5 or 6 months old, they will be able to roll over in both directions, making it more difficult for parents to keep them on their backs at night. Try not to worry. At that age the risk for SIDS has begun to drop. Parents should do their best to help the baby get settled on the back or propped on one side. Q. Are there exceptions to the rule about putting babies on their back to sleep? A. Of course. There are infants with specific breathing or health conditions who should sleep on their stomachs or sides. If a baby was born with a birth defect, often spits up after eating, or has a breathing, lung or heart problem, be sure to talk with the child’s pediatrician about which sleep position to use. Sudden Infant Death Syndrome (SIDS) New parents often come home from the hospital with many questions about the safety, health and wellness of their new infant. They have questions about eating, illness, baby-proofing their home, and the sleep patterns of new babies. A circumstance that many new parents fear is Sudden Infant Death Syndrome (SIDS), which is the sudden and unexplained death of an infant under one year of age. Dr. Stephen Prinz, neonatologist and director of the Neonatal Intensive Care Unit at East Tennessee Children’s Hospital, offers the following information on SIDS. Q. What is Sudden Infant Death Syndrome? A. Sudden Infant Death Syndrome (SIDS), sometimes known as crib death, is the major cause of death in babies from 1 month to 1 year of age. Most SIDS deaths occur when a baby is between 1 month and 4 months old. More boys than girls are victims, and most deaths occur during the fall, winter and early spring months. The death is sudden and unpredictable; in most cases, the baby seems healthy. Death occurs quickly, usually during a sleep time. There is no way to predict or prevent SIDS. Q. What causes SIDS? A. After 30 years of research, scientists still cannot find one definite cause or causes for SIDS. No one knows for sure, but researchers around the world are searching for an answer. It appears as
  14. 14. 15 Upcoming Community Education Classes For more information or to register for any of these classes, to be added to the Healthy Kids mailing list for announcements of upcoming classes or to receive our free Healthy Kids parenting newsletter, please call (865) 541-8262. Announcements about upcoming classes can be seen on WBIR-TV 10 and heard on area radio stations. Or visit our Web site at www.etch.com and click on “Healthy Kids Education and News.” Children’s Hospital’s Healthy Kids Campaign is a community education initiative of the hospital’s Community Relations Department to help parents keep their children healthy. Parents worry that babies may choke on spit-up or vomit during their sleep if sleeping on their backs. However, there is no evidence that sleeping on the back causes choking. Parents may also worry about plagiocephaly, a flat spot on the back of the head. Babies can and should be placed on their stomachs when awake. Some “tummy time” during the hours that babies are awake can be good for babies. Q. Can sharing a bed with my baby help reduce the risk of SIDS? A. No research conclusively proves that sleep sharing (having the baby sleep in the bed with the parents) reduces the risk of SIDS. However, parents who sleep share should take these precautions: • Make sure the mattress fits tightly against the headboard and has no space around it where a baby’s head could get stuck. • Make sure there are no cords or plastic bags anywhere near the bed. • Parents who smoke should not co-sleep. • The best advice is to talk with your pediatrician about sleep sharing. Q. What is recommended about the child’s bedding? A. Make sure the baby sleeps on a firm mattress or other firm surface. Don’t use fluffy blankets or comforters under or over the baby. Don’t let the baby sleep on a waterbed, sheepskin, pillow or other soft materials. When your baby is very young, don’t place stuffed toys or pillows in the crib. Q. What are other specific recommendations to reduce the risk of SIDS? A. Babies should be kept warm, but they should not be allowed to get too warm. Keep the temperature in the baby’s room so that it feels comfortable. Create a smoke- free zone around the baby. No one should smoke around the baby; babies and young children exposed to smoke have more colds and other diseases, as well as an increased risk of SIDS. If the baby seems sick, call the family pediatrician right away. Make sure all babies and young children receive their immunizations (shots) on schedule. Significant gastroesophageal reflux disease in the infant can also be associated with an increased risk of SIDS. If the child is having choking episodes, frequent spitting or episodes of perioral cyanosis, this should be brought to the pediatrician’s attention. The pediatrician can then determine whether or not the infant needs to be examined for possible gastroesophageal reflux disease. Q. Are there recommendations to consider before the child is born? A. Early and regular prenatal care can also reduce the risk of SIDS. The risk of SIDS is higher for babies whose mother smoked regularly during pregnancy. For the baby’s health, mothers should not use alcohol or drugs during the pregnancy unless the medications are prescribed by a physician. If possible, women should consider breastfeeding new babies. Breast milk helps keep babies more healthy. If breastfeeding is not possible, the mother should not feel guilty and should use a formula, which provides excellent nutrition as well. Compiled by Janya Marshall, Associate Director for Public Relations Stephen Prinz, M.D. Infant & Child CPR Monday, February 24, and Monday, March 17, 6:30-9 p.m. Children’s Hospital Koppel Plaza — Cost: $18 This class will teach caregivers cardio pulmonary resuscitation and choking maneuvers for children ages eight and younger. This class also teaches home safety. Participants must be at least 14 years old to attend. Class size is limited, so preregistration is required. Safe Sitter Saturday, March 22, 9 a.m.-3 p.m. Children’s Hospital Koppel Plaza — Cost: $15 Safe Sitter is a national organization that teaches young adolescents safe and nurturing baby-sitting techniques and the rescue skills needed to respond appropriately to medical emergencies. Instructors are certified through Safe Sitter nationally. Participants must be ages 11-14 and must provide their own lunch.
  15. 15. NON–PROFIT ORGANIZATION U.S. POSTAGE PAID PERMIT 433 KNOXVILLE, TN We always try to stay current with friends of the hospital. If for any reason you should receive a duplicate issue, please notify the hospital at (865) 541-8257. Children’s Hospital 2018 Clinch Ave. • P.O. Box 15010 Knoxville, Tennessee 37901-5010 RETURN SERVICE REQUESTED If you’re looking for an easy way to support East Tennessee Children’s Hospital, why not buy a specialty Tennessee license plate? The Tennessee General Assembly has passed a bill approving a specialty plate to benefit the hospital. Pictured here is the design, created by Morris Creative Group (and pending approval by the state). Before the plate can be issued, Children’s Hospital must receive at least 1,000 commitments (including an initial payment of $35) from people interested in purchasing the plate. The $35 is in addition to each county’s renewal fee, so the average total cost per plate will be about $60. About 50 percent of the revenue generated from the specialty plate will directly benefit the hospital. We need your help to reach the 1,000-plate goal! For more information or to purchase a specialty Children’s Hospital license plate, contact the hospital’s Development Department at (865) 541-8441.

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