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Child Behavior Problems and Parental Well-Being in
Families of Children With Autism: The Mediating Role of
Mindfulness and Acceptance
Leah Jones, Richard Patrick Hastings, Vasiliki Totsika, Lisa
Keane, and Neisha Rhule
Abstract
Few research studies have explored how the level of a child’s
behavior problems leads to
psychological distress in parents of children with autism. The
authors explored whether
psychological acceptance and mindfulness mediated this
relationship between child behavior
and parental distress. Seventy-one mothers and 39 fathers of
children with autism
participated, by reporting on their own positive and negative
psychological well-being and
their child’s behavior problems. Psychological acceptance was
found to act as a mediator
variable for maternal anxiety, depression, and stress, and for
paternal depression. General
mindfulness and mindful parenting had significant mediation
effects for maternal anxiety,
depression, and stress. These results contribute to evidence that
mindfulness and acceptance
may be important parental psychological processes, with
implications for parent support.
Key Words: autism spectrum disorder; parents; mindfulness;
mindful parenting; psychological acceptance
Parents, especially mothers, of children with an
autism spectrum disorder (ASD) often report
elevated psychological-distress profiles compared
with parents of typically developing children
(Eisenhower, Baker, & Blacher, 2005; Schieve,
Blumberg, Rice, Visser, & Boyle, 2007; Totsika,
Hastings, Emerson, Berridge, & Lancaster 2011)
and compared with parents of children with other
disabilities, including Down syndrome (Da-
browska & Pisula, 2010; Olsson & Hwang,
2003), Fragile X syndrome (Abbeduto et al.,
2004), cerebral palsy (Eisenhower et al., 2005),
and intellectual disability (ID) alone (Blacher &
McIntyre, 2006; Totsika et al., 2011). Within
samples of parents of children with ASD, child
behavior problems have regularly been associated
with negative outcomes, in cross-sectional and
longitudinal designs (Hastings et al., 2005;
Herring et al., 2006; Lecavalier, Leone, & Wiltz,
2006; Lounds, Seltzer, Greenberg, & Shattuck,
2007; Totsika et al., 2011). Given the longitudinal
design of some studies (e.g., Herring et al., 2006;
Lecavalier et al., 2006), there is evidence to
indicate that child behavior problems function
as a risk factor for parental negative outcomes.
With both theoretical and practical consider-
ations in mind, it is important to ask how the
behavior problems of children with ASD come to
have an impact on parental well-being. ‘‘How’’
questions in this context relate to the identification
of mediator variables, defined as the processes that
intervene between a risk factor (e.g., child behavior
problems) and outcomes (such as parental psycho-
logical distress; see Baron & Kenny, 1986).
Identification of mediator variables is theoretically
important because we develop a better understand-
ing of psychological distress in parents. At the
practical level, mediator variables represent pro-
cesses that might be targeted via intervention.
Researchers have explored a range of psycho-
logical process variables that may be related to
well-being in parents of children with ASD. For
example, negative correlations with parental
negative outcomes (i.e., increased reporting of
the process variable associated with lower levels of
psychological distress) have been identified for
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L. Jones et al. 171
optimism (Greenberg, Seltzer, Krauss, Chou, &
Hong, 2004), attributions of control (M. J. Weiss,
2002), and self-efficacy (Hastings & Brown, 2002).
Only rarely have psychological process variables
been examined statistically as potential mediators
of the relationship between child behavior
problems and parental well-being (Hastings &
Brown, 2002; J. A. Weiss, Cappadocia, MacMul-
lin, Viecili, & Lunsky, 2012). Therefore, more
research is needed, specifically with a focus on
mediation processes.
A particular problem in the search for relevant
psychological process variables is the starting point
of which processes to examine. Our rationale for
selection was to look to an emerging trend in
intervention research with parents and other carers
of children and adults with ASD and/or ID.
Increasingly, the ‘‘third wave’’ therapies such as
acceptance and commitment therapy (ACT;
Hayes, Strosahl, & Wilson, 1999) and mindful-
ness-based therapies (Chiesa & Serretti, 2011;
Grossman, Nieman, Schmidt, & Walach, 2004)
have been evaluated as intervention models to
reduce psychological distress in carers of individ-
uals with developmental disabilities. The results of
these evaluations of acceptance-based (e.g., Black-
ledge & Hayes, 2006; Noone & Hastings, 2009,
2010) and mindfulness-based (e.g., Benn, Akiva,
Arel & Roeser, 2012; Ferraioli, & Harris, 2013;
Singh et al., 2006; Singh et al., 2007) interventions
are encouraging in terms of stress-reduction
outcomes. However, theory-building research,
such as evidence for the mediating role of
acceptance and mindfulness processes in under-
standing carer well-being, generally postdates these
intervention-evaluation research developments.
In the first research to explore mindfulness and
acceptance in parents of children with developmen-
tal disabilities, Lloyd and Hastings (2008) found
evidence that increased psychological acceptance
was associated both cross-sectionally and longitudi-
nally with psychological distress in mothers of
children with ID. Mindfulness was also measured in
this research as a dispositional (trait) variable, but no
significant associations with maternal well-being
were found. The authors suggested using a situa-
tional measure of mindfulness in the parenting
context in future research. MacDonald, Hastings,
and Fitzsimons (2010) found evidence, in a cross-
sectional design, that acceptance measured in
relation to parenting acted as a mediator of the
relationship between child behavior problems and
paternal well-being (stress, anxiety, and depression).
In a partial replication study, J. A. Weiss et al. (2012)
also found cross-sectional evidence of acceptance
acting as a mediator variable for the well-being
(nonspecific psychological distress) of mothers of
children with ASD.
The main aims of the current research were to
(a) replicate the finding that psychological accep-
tance may act as a mediator of the association
between child behavior problems and psycholog-
ical distress in mothers of children with ASD, (b)
extend this exploration of acceptance to fathers of
children with ASD, (c) explore the putative role of
general mindfulness and mindfulness in the
parenting context (using a new measure designed
for the current study) as a mediator for both
mothers and fathers, and (d) explore any mediated
relationships for parental positive perceptions as
opposed to psychological distress. In terms of the
final aim, existing family-research findings indicate
that positive well-being is distinct from an absence
of psychological distress, and that positive and
negative outcomes are associated with different
variables (Hastings & Taunt, 2002). No associations
between mindfulness or acceptance and parental
positive perceptions have been found in previous
research with parents of children with ID (Lloyd &
Hastings, 2008; MacDonald et al., 2010). However,
we are not aware of existing research addressing this
question with both mothers and fathers of children
with ASD.
Based on previous research findings, we
hypothesized that psychological acceptance would
mediate the relationship between the behavior
problems of children with ASD and their parents’
psychological distress, but not their parents’
positive perceptions. Although we also explored
the putative mediating role of mindfulness, we had
no directional hypotheses, given the lack of
previous empirical findings.
A secondary aim of the research was to report
initial psychometric data on a mindful-parenting
scale suitable for use with parents of children with
disabilities. There is a lack of measures of mindful
parenting, and our research on psychological
acceptance suggested that it is important to measure
these psychological processes in the context of the
relationship with the child with disability.
Method
Participants
Seventy-one mothers and 39 fathers (who were
partners of the mothers) participated in the
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172 Parental Well-Being, Mindfulness, and Acceptance
research. The majority of parents were biological
parents—one adoptive mother, one foster moth-
er, one adoptive father, one foster father, and one
stepfather also participated. All fathers and 59 of
the mothers were either married or cohabiting,
and 12 mothers were divorced, single, or wid-
owed. Mothers were on average 45 years of age
(SD 5 4.64), and fathers 46 years (SD 5 4.01).
Thirty-eight mothers (54%) and 25 fathers (64%)
were educated to university-degree level or higher,
with 23 mothers (32%) and 35 fathers (90%) in
employment at the time of the research. Modal
household income for the current sample of 71
families was £25,000–£35,000 per year (British
pounds sterling, approximately $40,000–$55,000
US dollars; median household income was
£35,000–£45,000, approximately $55,000–$70,000
US dollars). Most participants (94%) described
themselves as being of White British ethnicity, and
the majority of families had two children living in
the family home.
Participants’ socioeconomic position (SEP)
was computed by categorizing families in one of
four possible groups, depending on whether at least
one parent in the family was currently employed (if
so, scoring 1), whether total annual household
income was above the modal value for the sample
(£35,000; if so, scoring 1), and whether the mother
in the family was educated to university-degree
level (if so, scoring 1). Seven families (10% of 71
families) comprised the lowest possible group
(neither parent employed, family income below
£35,000 annually, mother educated below univer-
sity level); 19 families (27%) comprised the second
lowest group; 17 families (24%) comprised the
second highest group; and the highest possible
group contained 28 families (39%).
Parents reported on their children’s charac-
teristics, including what diagnostic label their
children had received, when the diagnosis was
received, and who provided the diagnosis. Twen-
ty-nine of the families’ children (41%) had a
diagnosis of high-functioning autism or Asperger
syndrome, 27 children (38%) had a diagnosis of
autism, and 15 children (21%) had a diagnosis
of autism spectrum disorder. Seventy-one percent
of the children scored within the range typical of
children with ID on a measure of global adaptive
functioning. Fifty-nine of the children were male
(83%) and 12 were female (17%). Children were
on average 13 years of age (SD 5 2.29, range 7 to
16) and had received their diagnosis on average
7 years previously (SD 5 2.68).
Measures
Participants completed a demographics question-
naire designed specifically for the current study to
gather the information described previously, along
with questionnaires measuring child behavior
problems, parental positive and negative well-being,
and mindfulness and acceptance. A telephone
interview was also conducted with the child’s
primary carer, to complete a measure of the child’s
adaptive functioning.
Child measures. The Strengths and Difficul-
ties Questionnaire (SDQ; Goodman, 1997) was
used as a measure of children’s behavioral and
emotional adjustment. Both mothers and fathers
completed the measure independently of each
other. The SDQ comprises 25 items measuring
five domains: a prosocial-behavior domain and
four problem-behavior domains (emotional symp-
toms, conduct problems, hyperactivity, and peer
problems). Respondents rate statements about
their child as not true, somewhat true, or certainly
true. Example items include ‘‘Often downhearted
and tearful’’ (emotional symptoms); ‘‘Often has
temper tantrums or a hot temper’’ (conduct
problems); ‘‘Easily distracted, concentration wan-
ders’’ (hyperactivity); ‘‘Has at least one good
friend’’ (reverse scored for peer problems); ‘‘Con-
siderate of other people’s feelings’’ (prosocial
behavior). A total difficulties score is generated
by summing the four problem domains, giving a
scale with a range of scores from 0 to 40. The total
difficulties score was used in the present study,
with maternal ratings used in maternal analyses
and paternal ratings used in paternal models. The
SDQ is a well-validated instrument proven to be
effective in identifying clinically significant levels
of behavioral disturbance in children (Goodman,
1997), with good levels of reliability maintained in
research with children with autism (Iizuka et al.,
2010). Internal consistency (Cronbach’s a) for the
total behavior-problems score in the current study
was .78 for mothers and .80 for fathers.
The Social Communication Questionnaire
(SCQ; Rutter, Bailey, Lord, & Berument, 2003)
was completed by the child’s primary carer to
measure the severity of the child’s autism symp-
toms. The SCQ is an autism-screening instrument
and outcome-measurement tool, based on interna-
tional diagnostic criteria (DSM-IV: American
Psychiatric Association, 2000; ICD-10: World
Health Organization, 2008, designed to measure
communication skills and social functioning. The
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L. Jones et al. 173
Current Form of the measure was used in the
present research, to assess the extent of the child’s
autistic behavior during the preceding 3-month
period (i.e., not as a diagnostic screening tool, but
to assess current severity of symptoms). The
measure consists of 40 items, and respondents
answer yes or no to statements such as ‘‘Does she/he
play any pretend or make-believe games?’’ and
‘‘Does she/he usually look at you directly in the
face when doing things with you or talking with
you?’’ Severity of autism symptoms has previously
been shown to be independently associated with
parental well-being (Tobing & Glenwick, 2002).
The SCQ was included as a control variable, and to
avoid unnecessary measurement we asked only that
the child’s primary caregiver complete the measure.
The SCQ displayed high internal consistency
(Kuder–Richardson coefficient for the present
sample 5 .81).
The Vineland Adaptive Behavior Scales—2nd
Edition (VABS II; Sparrow, Cicchetti, & Balla,
2005) was used as a measure of the child’s
adaptive functioning and was also included as a
potential control variable. The VABS II is
administered as a semistructured interview and
was conducted over the telephone, with parents
who identified themselves as the child’s primary
caregiver. The VABS II consists of items arranged
in developmental sequence, measuring behaviors
across four domains: socialization, communica-
tion, daily-living skills, and motor skills (motor-
skills domain only administered to children below
the age of 7). An overall adaptive-behavior
composite score was used in the current analyses.
Parental well-being measures. The Hospital
Anxiety and Depression Scale (HADS; Zigmond
& Snaith, 1983) was used to measure parental
distress. The 14-item instrument was originally
constructed to allow quick measurement of
anxiety and depression in hospital settings but
has since been used widely in community
research, including with parents of children with
autism (Hastings, 2003; Rydebrandt, 1991). Seven
items measure anxiety and seven measure depres-
sion, providing subscale scores, which were used
in the current research. Respondents rate state-
ments on a 4-point scale; for example, ‘‘I have lost
interest in my appearance’’ is rated as definitely, I
don’t take as much care as I should, sometimes, or not
at all; and ‘‘I can sit at ease and feel relaxed’’ is
rated as definitely, usually, not often, or not at all.
Internal consistency (Cronbach’s a) in the current
study was .85 for maternal anxiety, .78 for
maternal depression, .86 for paternal anxiety,
and .71 for paternal depression.
The Parent and Family Problems Subscale of
the Questionnaire on Resources and Stress—
Short Form (QRS-F; Friedrich, Greenberg, &
Crnic, 1983) was used to measure general
parenting stress associated with the child with
ASD. This 20-item measure includes five items
relating to depression (Glidden & Floyd, 1997),
which were excluded from analysis in the current
study to avoid measurement overlap, as depres-
sion was measured separately with the HADS.
Respondents rated the remaining 15 items as true
or false. Example items include ‘‘There is a lot of
anger and resentment in our family’’ and ‘‘In the
future, our family’s social life will suffer because of
increased responsibilities and financial stress.’’ The
QRS-F has previously been used in research with
parents of children with ASD, with good reliability
obtained (Honey, Hastings & McConachie, 2005).
Internal consistency (Kuder–Richardson coeffi-
cient) for the 15-item QRS-F scale in the current
sample was .89 for mothers and .92 for fathers.
The Positive Gain Scale (PGS; Pit-ten Cate,
2003) is a seven-item instrument measuring positive
perceptions related to parenting a child with
disability. Parents’ perceived benefits to themselves
personally and as a family are measured, with
respondents choosing strongly agree, agree, not sure,
disagree, or strongly disagree for statements such as
‘‘Since having this child I have a greater under-
standing of other people’’ and ‘‘Since having this
child, my family has become closer to one another.’’
Previous research has indicated good levels of
internal consistency for the PGS with mothers and
fathers of children with developmental disabilities
(Griffith et al., 2011; MacDonald et al., 2010). A
total positive-gain score was used in the current
study (lower scores indicate higher levels of positive
gain), with good internal consistency (Cronbach’s a)
at .86 for mothers and .87 for fathers.
Mindfulness and acceptance measures. In
the present research, we explored two different
measures of mindfulness. We developed a mindful-
parenting scale (situational measure of mindfulness)
for this research. We also included a well-estab-
lished general mindfulness measure for two main
reasons: (a) to provide some validity data on the
new mindful-parenting scale, and (b) to allow
mindfulness to be tested as a mediator using an
established scale as well as the new scale.
The Five Facet Mindfulness Questionnaire
(FFMQ; Baer, Smith, Hopkins, Krietemeyer, &
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174 Parental Well-Being, Mindfulness, and Acceptance
Toney, 2006) is a well-established 39-item instru-
ment, measuring a general tendency to be mindful in
day-to-day life (i.e., a dispositional measure of
mindfulness). The FFMQ measures five underlying
constructs of mindfulness, identified by Baer et al.
(2006): observing (noticing experiences), describing
(labeling experiences with words), acting with
awareness (deliberately attending to moment-to-
moment behaviors and activities), nonreactivity (to
inner experience), and accepting without judgment
(taking a nonevaluative stance toward inner experi-
ence). Respondents rate statements as never or very
rarely true, rarely true, sometimes true, often true, or very
often or always true. Example items include ‘‘When
I’m walking, I deliberately notice the sensations of
my body moving’’ (observing); ‘‘I can easily put my
beliefs, opinions, and expectations into words’’
(describing); ‘‘When I do things, my mind wanders
off and I’m easily distracted’’ (acting with awareness);
‘‘In difficult situations, I can pause without imme-
diately reacting’’ (nonreactivity); and ‘‘I tell myself I
shouldn’t be feeling the way I’m feeling’’ (nonjud-
ging). The FFMQ has shown good psychometric
properties when used with a variety of populations,
including meditating and nonmeditating samples
(Baer et al., 2008). Five subscale scores can be derived
from the scale, as can a total score, which was used in
the current study. Internal consistency (Cronbach’s
a) of the total score in the current sample was high
for mothers (.93) and fathers (.92).
The Bangor Mindful Parenting Scale (BMPS) is
a 15-item instrument first tested within the current
study, to measure mindfulness explicitly in the
parenting role. The BMPS is based on the FFMQ,
with three items representing each of the five
underlying constructs encompassing mindfulness
identified by Baer et al. (2006). Each item has been
modified to relate specifically to parenting. We did
not intend for the measure to be scored at a
subscale level at this stage. Rather, we used a total
score representing a general tendency to be mindful
in the parenting context. A full copy of the scale is
available in the Appendix. Internal consistency
(Cronbach’s a) for a total mindfulness-in-parenting
score obtained in the current study was .79 for
mothers and .78 for fathers. We also found
encouraging results for the construct validity of
the scale, with strong correlations between the
BMPS and FFMQ for fathers (r 5 .75) and mothers
(r 5 .77). The BMPS was also highly correlated with
the acceptance measure for mothers (r 5 .70) and
fathers (r 5 71), as were the FFMQ and acceptance
measure (r 5 .65 for mothers, r 5 .72 for fathers).
The Acceptance and Action Questionnaire—
Intellectual Disability Parent version (AAQ-ID;
MacDonald et al., 2010) was used in the current
study to measure psychological acceptance in
relation to parenting a child with ASD. The AAQ-
ID is an eight-item tool adapted from the Accep-
tance and Action Questionnaire—II (Bond et al.,
2011), with items reworded to refer specifically to
children with disability. For the current study, items
were reworded to refer to children with ASD but
otherwise the measure was unchanged. Respondents
rate statements on a 7-point scale, ranging from never
true to always true. Example items include ‘‘It’s OK if
I remember some of the difficult times I’ve had
parenting my child with ASD’’ and ‘‘It seems like
most people who have children with ASD are
handling their lives better than I am.’’ Good levels of
internal consistency for a total acceptance score were
obtained in the current study for mothers (.91) and
fathers (.92).
Procedure
The Research Ethics and Governance Committee
at Bangor University approved the study protocol.
Invitations to participate were sent to families who
had previously taken part in an ASD family-
research study focused on sibling well-being
(Petalas et al., 2012). Potential participants were
contacted once, by surface mail, and were asked to
return a reply slip if they were interested in
participating in the current study. When reply
slips were returned, a Participant Information
Sheet, Research Consent and Contact Form, and
Questionnaire Pack were mailed to participants, to
be returned in a prepaid envelope. Of the 215
invitations that were distributed, 71 families
(including 39 mother–father couples) provided
written informed consent and returned the com-
pleted questionnaires (overall response rate of
33%). Participants were then contacted by tele-
phone to complete the VABS II. In families where
both parents participated, parents who identified
themselves as being the child’s primary caregiver
completed the VABS II. In those 39 families where
both parents participated, two VABS II interviews
were conducted with a father and 37 with mothers.
Results
Data-Analysis Approach
Initial analysis involved examining Pearson corre-
lations (and t tests for dichotomous variables such
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L. Jones et al. 175
as marital status, whether or not the mother’s
partner participated in the research, and child
gender) between all demographic and child
variables (current severity of autism symptoms,
and adaptive behavior) and parental-outcome
measures, for mothers and fathers separately. This
step was used primarily to identify control
variables for the regression models. For model
parsimony, and to accommodate the sample size,
it was not possible to include all background
variables potentially related to the outcome
measures in the analyses. The inclusion in all
analyses of child behavior problems and psycho-
logical variables was guided by theory and
consistent with our research questions. However,
other variables were selected for inclusion using
empirical criteria only. Missing data were omitted
on a pairwise basis for the correlation analyses.
The main analyses employed hierarchical
linear regression, allowing initial examination of
the mediation hypothesis according to the causal-
steps criterion (Baron & Kenny, 1986). In the first
step of each regression model, the background
variables identified in the univariate analysis were
added to the models. Where a background
variable did not have a significant association
with a parental outcome variable as identified in
the initial univariate analyses, it was not included
in the regression models. In the second step of
each regression model, parental well-being was
regressed on child behavior problems (SDQ total
difficulties score, as rated by the mothers in
maternal regression models and by fathers in
paternal models), accounting for the control
variables included at Step 1. Eight models were
fitted, one for each parental outcome (anxiety,
stress, depression, and positive gain), separately
for mothers and fathers. In the third step of the
regression analyses, process variables were added
as predictors (separate models for each potential
mediator or process variable).
Evidence of a mediated effect was considered
present if child behavior problems were a
significant predictor of the outcome at Step 2 of
the regression analysis and became a nonsignifi-
cant predictor (or had a lower b weight) at Step 3,
with the potential mediator variable becoming a
significant predictor of the well-being outcome.
Where these criteria were satisfied, further analysis
was needed to assess whether any mediating
effects were statistically significant. The Aroian
version of the Sobel test was used in the current
analysis, as recommended by Baron and Kenny
(1986), to test whether the indirect (mediation)
effect of the process variable on the outcome
variable was significantly different from zero.
A listwise deletion approach to the mediation
analysis was adopted.
Regression Models and Analysis of
Mediation Effects
Bivariate correlations between parental outcome
measures and demographic and child variables are
shown in Table 1. Statistically significant associ-
ations, or those with a correlation coefficient
equal to or above .25, were selected for inclusion
at Step 1 of the regression analyses. We chose to
select variables based on statistical significance or
the strength of the correlation because of the
difference in sample size of mothers and fathers
and because the size of a correlation coefficient is
more meaningful than statistical significance.
Child gender was explored using an independent
samples t test and was only significantly associated
with paternal depression, t(35) 5 22.153, p 5
.038, with fathers of sons scoring significantly
higher than fathers of daughters on the depression
measure. No demographic or child variables were
significantly associated with maternal anxiety, and
so no control variables were included in the
analysis of those data.
A summary of the regression models for each
measure of parental well-being is displayed in
Table 2 for mothers and Table 3 for fathers.
Following the inclusion of control variables at
Step 1, the addition of behavior problems as
predictor at Step 2 improved the proportion of
variance explained for each dependent variable
except paternal positive gain. Child behavior
problems emerged as a significant independent
predictor of maternal anxiety, depression, and
stress, and of paternal depression and stress. Child
behavior problems were not significantly associ-
ated with paternal or maternal positive gain, nor
with paternal anxiety.
The addition of the process variables im-
proved the proportion of variance explained in
each model, except in relation to general mind-
fulness and paternal stress. For maternal models,
general mindfulness, mindful parenting, and
psychological acceptance significantly predicted
anxiety and depression; and mindful parenting
and acceptance significantly predicted stress. For
paternal outcomes, mindful parenting and accep-
tance significantly predicted depression; and
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176 Parental Well-Being, Mindfulness, and Acceptance
acceptance significantly predicted stress. At this
final stage of the regression analyses, child behavior
problems became a nonsignificant predictor of
depression and anxiety for mothers, for all process-
variable cases. Child behavior problems remained
a significant predictor of mothers’ stress, even
though regression coefficients and significance
values had reduced. For fathers, child behavior
problems became a nonsignificant predictor in
each depression model but remained significant in
each stress model (with reduction in regression
coefficients in all three cases).
The regression models suggest that disposi-
tional general mindfulness, situational mindful-
ness while parenting, and psychological accep-
tance in the parenting role mediate the
relationship between child behavior problems
and depression, anxiety, and stress (except for
general mindfulness and stress) in mothers. For
fathers, mindful parenting and acceptance appear
to mediate the relationship between child behav-
ior problems and depression, and acceptance
alone appears to mediate the relationship with
stress. To assess whether these mediating effects
were statistically significant, the Aroian version of
the Sobel test was administered. For mothers,
dispositional general mindfulness had significant
mediation effects in relation to depression (z 5
2.03, p 5 .04) and anxiety (z 5 2.49, p 5 .01);
mindful parenting also had significant mediating
effects in relation to depression (z 5 2.34, p 5 .02)
and anxiety (z 5 2.49, p 5 .01); and acceptance
had mediating effects in relation to depression (z
5 2.55, p 5 .01), anxiety (z 5 2.91, p , .001), and
stress (z 5 2.69, p , .001). For fathers, the only
significant mediation effect was found in relation
to acceptance and depression (z 5 2.10, p 5 .04).
These statistical tests of mediation effects were
only conducted when there was a prima facie case
for the presence of a mediated effect based on
Baron and Kenny’s (1986) criteria.
There was no evidence that acceptance or
mindfulness mediated the relationship between
child behavior problems and positive-gain scores
(in either parent). Child behavior problems were
unrelated to parental positive gain in the initial
stages of analyses. However, there were main-
effect relationships in that general mindfulness
and mindful parenting were significantly inde-
pendently associated with positive gain in moth-
ers, and general mindfulness and psychological
acceptance were significantly independently asso-
ciated with positive gain in fathers.T
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.
AMERICAN JOURNAL ON INTELLECTUAL AND
DEVELOPMENTAL DISABILITIES
2014, Vol. 119, No. 2, 171–185
EAAIDD
DOI: 10.1352/1944-7558-119.2.171
L. Jones et al. 177
T
ab
le
2
S
u
m
m
ar
y
of
R
eg
re
ss
io
n
R
es
u
lt
s
fo
r
M
at
er
n
al
O
u
tc
om
es
A
n
x
ie
ty
D
ep
re
ss
io
n
S
tr
es
s
P
o
si
ti
v
e
G
ai
n
P
re
d
ic
to
r
b
p
R
2
(N
in
an
al
y
si
s)
b
p
R
2
(N
in
an
al
y
si
s)
b
p
R
2
(N
in
an
al
y
si
s)
b
p
R
2
(N
in
an
al
y
si
s)
S
te
p
1
-
.0
8
1
(N
5
7
1
)
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5
8
(N
5
6
5
)
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5
(N
5
6
9
)
S
o
ci
o
ec
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n
o
m
ic
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8
5
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te
p
2
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(N
5
7
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)
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3
7
(N
5
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)
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(N
5
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)
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(N
5
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eh
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le
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,
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te
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(a
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te
p
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(b
)
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9
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(N
5
6
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)
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7
(N
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)
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(N
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)
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(N
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te
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(c
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(N
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)
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(N
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)
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(N
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(N
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eh
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N
ot
e.
C
o
n
tr
o
l
va
ri
ab
le
s
en
te
re
d
at
S
te
p
1
w
er
e
re
ta
in
ed
in
al
l
st
ag
es
o
f
an
al
ys
es
.
AMERICAN JOURNAL ON INTELLECTUAL AND
DEVELOPMENTAL DISABILITIES
2014, Vol. 119, No. 2, 171–185
EAAIDD
DOI: 10.1352/1944-7558-119.2.171
178 Parental Well-Being, Mindfulness, and Acceptance
T
ab
le
3
S
u
m
m
ar
y
of
R
eg
re
ss
io
n
R
es
u
lt
s
fo
r
P
at
er
n
al
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u
tc
om
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A
n
x
ie
ty
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ep
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ss
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n
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tr
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s
P
o
si
ti
v
e
G
ai
n
P
re
d
ic
to
r
b
p
R
2
(N
in
an
al
y
si
s)
b
p
R
2
(N
in
an
al
y
si
s)
b
p
R
2
(N
in
an
al
y
si
s)
b
p
R
2
(N
in
an
al
y
si
s)
S
te
p
1
.0
7
3
(N
5
3
4
)
.2
3
8
(N
5
3
6
)
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4
3
(N
5
3
6
)
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7
(N
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)
C
h
il
d
g
en
d
er
—
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5
7
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2
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ch
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re
n
—
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1
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at
h
er
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—
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9
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se
d
—
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—
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2
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d
ap
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eh
av
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—
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—
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te
p
2
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4
9
(N
5
3
4
)
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1
7
(N
5
3
6
)
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3
4
(N
5
3
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)
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1
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(N
5
3
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)
B
eh
av
io
r
p
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b
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m
s
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0
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8
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,
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0
1
.0
9
3
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9
6
S
te
p
3
(a
)
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7
2
(N
5
3
1
)
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6
2
(N
5
3
4
)
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7
7
(N
5
3
2
)
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9
1
(N
5
3
3
)
B
eh
av
io
r
p
ro
b
le
m
s
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8
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9
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9
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8
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8
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,
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5
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3
3
M
in
d
fu
ln
es
s
2
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7
2
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2
4
2
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7
4
.0
8
8
2
.0
9
5
.5
3
5
2
.4
3
6
.0
1
2
S
te
p
3
(b
)
.1
7
0
(N
5
3
3
)
.4
3
4
(N
5
3
5
)
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5
3
(N
5
3
5
)
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0
8
(N
5
3
5
)
B
eh
av
io
r
p
ro
b
le
m
s
.3
4
0
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7
3
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9
9
.1
7
4
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6
5
,
.0
0
1
2
.0
2
0
.9
0
6
M
in
d
fu
l
p
ar
en
ti
n
g
2
.0
9
7
.5
9
1
2
.3
6
0
.0
1
7
2
.1
8
2
.2
0
4
2
.4
8
3
.0
0
8
S
te
p
3
(c
)
.2
1
0
(N
5
3
3
)
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2
8
(N
5
3
2
)
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6
7
(N
5
3
4
)
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1
2
(N
5
3
4
)
B
eh
av
io
r
p
ro
b
le
m
s
.2
1
7
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0
4
.0
7
3
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4
8
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2
2
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1
0
2
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1
2
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2
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cc
ep
ta
n
ce
2
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7
1
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0
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2
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5
9
.0
0
7
2
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3
3
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3
8
2
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0
0
.0
6
4
N
ot
e.
C
o
n
tr
o
l
va
ri
ab
le
s
en
te
re
d
at
S
te
p
1
w
er
e
re
ta
in
ed
in
al
l
st
ag
es
o
f
an
al
ys
es
.
AMERICAN JOURNAL ON INTELLECTUAL AND
DEVELOPMENTAL DISABILITIES
2014, Vol. 119, No. 2, 171–185
EAAIDD
DOI: 10.1352/1944-7558-119.2.171
L. Jones et al. 179
Discussion
As hypothesized, and consistent with previous
research (MacDonald et al., 2010, J. A. Weiss
et al., 2012), we found that psychological
acceptance mediated the relationship between
child behavior problems and parental well-being.
Significant mediation effects were found in
relation to maternal anxiety, depression, and
stress, as well as paternal depression. To our
knowledge, this is the first study to investigate the
potential mediating effects of both dispositional
general mindfulness and situational mindfulness
when parenting in mothers and fathers of children
with ASD. We found that general mindfulness
and mindful parenting had significant mediation
effects in relation to maternal anxiety, depression,
and stress. Results were less robust in relation to
paternal well-being. The sample size was small for
fathers, and caution is needed when drawing
inferences from these data. However, previous
research has also suggested different patterns of
associations for maternal and paternal well-being
(e.g., Davis & Carter, 2008; Jones, Totsika,
Hastings, & Petalas, 2013). More research is
needed to address whether different mediation
processes are characteristic for mothers and
fathers.
Consistent with previous research, the level of
the child’s behavior problems was a significant
predictor of psychological distress for both
mothers and fathers, while being unrelated to
mothers’ and fathers’ positive perceptions (Hast-
ings & Taunt, 2002; Hastings et al., 2005; Jones
et al., 2013). For both mothers and fathers, child
behavior problems remained a significant predic-
tor of parental stress after the inclusion of all
potential mediator variables.
Although not performing a mediation func-
tion, mindfulness and acceptance were signifi-
cantly associated with positive gains for mothers
and fathers, with parents who reported increased
mindfulness and acceptance also reporting greater
levels of positivity in relation to their child with
ASD. A potential mechanism for this association
is that parents who are more mindful (i.e., less
judgmental of experiences, less reactive, and more
aware of internal processes) and more accepting of
distressing thoughts and feelings may be more
able to positively embrace their circumstances. A
recent intervention study by Benn et al. (2012)
found that parents (and teachers) of children with
developmental disabilities who participated in
mindfulness training showed greater self-compas-
sion and greater empathic concern and forgive-
ness for others, which the authors describe as ‘‘an
enhancement of positive psychological function-
ing’’ and ‘‘enhanced relational competence’’ (p. 7).
Previous research has highlighted the impor-
tance of measuring psychological process variables
specifically in relation to parenting a child with a
disability (Lloyd & Hastings, 2008). A measure of
psychological acceptance in this context was
already available (MacDonald et al., 2010). How-
ever, to measure mindfulness specifically in the
parenting role, a new measure was developed and
used for the first time in the current study (BMPS;
see Appendix). Initial pilot data for the new
measure are promising, with good levels of
reliability and some evidence of validity obtained
for mothers and fathers. Further research with this
scale is needed to examine additional psychometric
properties, especially test–retest reliability and
further aspects of validity.
In the current study, the measurement of
mindfulness both dispositionally and situationally
in the parenting context yielded similar results:
Both constructs mediated the impact of child
behavior problems on maternal negative out-
comes, while neither construct mediated the
impact on paternal outcomes. One explanation
for this is that both mindfulness measures were
highly correlated for mothers and fathers, indicat-
ing that parents who are generally mindful also
seem to be mindful in the parenting context. A
reasonable question is whether measurement at
both the situational and general level is needed. In
research relating to parenting, a situational measure
alone may be sufficient, and the measure devel-
oped in the current study is quick to administer
and has displayed good psychometric properties.
However, further theoretical development and
research is needed to more fully understand the
relationship between dispositional and situational
mindfulness, and whether the processes measured
in the current study are part of a latent mindfulness
construct. Most significantly, the present study was
cross-sectional and so we had no data on the
stability or otherwise of mindful parenting. Longi-
tudinal research designs are also needed to properly
establish whether mindfulness or acceptance pro-
cesses act as mediators of parent psychological
distress over time.
The current data have both theoretical and
practical implications. That mindfulness and
acceptance processes may act as mediator variables
AMERICAN JOURNAL ON INTELLECTUAL AND
DEVELOPMENTAL DISABILITIES
2014, Vol. 119, No. 2, 171–185
EAAIDD
DOI: 10.1352/1944-7558-119.2.171
180 Parental Well-Being, Mindfulness, and Acceptance
for parental (perhaps especially maternal) psycho-
logical distress contributes to an understanding of
how and why some parents adjust more effectively
than others. Coupled with the results of previous
research on acceptance and mindfulness processes,
these results support the potential utility of
mindfulness-based and acceptance-based interven-
tions for parents, particularly mothers, of children
with ASD. Evidence supporting such interventions
is already emerging (e.g., Benn et al., 2012;
Blackledge & Hayes, 2006; Ferraioli & Harris,
2013; Singh et al., 2006; Singh et al., 2007).
However, research on mindfulness and acceptance
interventions is in its infancy, and further,
controlled studies are needed. In addition, re-
searchers need to explore whether the process
variables targeted by these interventions do in fact
mediate intervention outcomes for parents. The
measures used in the current study may be useful is
this endeavor.
There are a number of limitations to the
current study. The sample size was modest,
particularly for fathers. Therefore, caution is
needed when interpreting these results, and
replication is needed with a larger sample size.
The response rate was low at 33%, and it is
questionable whether the sample was representa-
tive of families caring for a child with an ASD
living in the United Kingdom, given that parents
were originally recruited via an autism charity.
Therefore, the generalizability of the results may
be limited. ASD status was also not confirmed
with a diagnostic screening tool. Instead, parents
were asked to provide their child’s diagnostic label
and details regarding who made the diagnosis and
when it was given. That mothers alone completed
measures of the child’s autism symptoms and
level of adaptive functioning is a further weakness,
because maternal ratings may not accurately
represent fathers’ experiences of their child’s
behaviors. Finally, the study design was cross-
sectional, and causality cannot be inferred. At
present, it is unclear whether higher levels of
mindfulness and acceptance lead to greater
adjustment or whether better adjusted parents
have a greater tendency to be more mindful and
accepting (or both).
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Received 1/23/2013, accepted 6/9/2013.
Authors:
Leah Jones (e-mail: [email protected]),
Bangor University, School of Psychology, Adeilad
Brigantia, Ffordd Penrallt, Bangor, Gwynedd
LL572AS, Wales, UK; Richard Patrick Hastings,
University of Warwick, Coventry, England; Vasi-
liki Totsika, Lisa Keane, and Neisha Rhule,
Bangor University, Bangor, Wales.
AMERICAN JOURNAL ON INTELLECTUAL AND
DEVELOPMENTAL DISABILITIES
2014, Vol. 119, No. 2, 171–185
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184 Parental Well-Being, Mindfulness, and Acceptance
APPENDIX
Bangor Mindful Parenting Scale
The following statements describe different ways parents may
interact with their children. Please circle
the response that describes what is generally true for you when
parenting your child with an ASD.
Remember, there are no right or wrong answers, and please
answer according to what really reflects your
experience, not what you think you should be experiencing.
never
true
sometimes
true
often
true
always
true
1. I rush through activities with my child without being really
attentive
to him/her.
0 1 2 3
2. In difficult situations with my child I can pause without
reacting
straight away.
0 1 2 3
3. I tend to make judgments about whether I am being a good or
a
bad parent.
0 1 2 3
4. I pay attention to how my emotions affect the way I act
towards
my child.
0 1 2 3
5. I have trouble thinking of the right words to express how I
feel
about my child.
0 1 2 3
6. It seems I am ‘‘running on automatic’’ without really being
aware
of what I’m doing with my child.
0 1 2 3
7. When I have upsetting thoughts about my child, I am able to
just
notice them and let them go.
0 1 2 3
8. I think some of my emotions towards my child are bad and I
shouldn’t be feeling them.
0 1 2 3
9. I stay aware of my feelings towards my child. 0 1 2 3
10. Even when I’m feeling terribly upset with my child, I can
find a way
to put it into words.
0 1 2 3
11. I don’t pay attention to what I’m doing with my child
because I’m
daydreaming, worrying or distracted.
0 1 2 3
12. When I get upset with my child I am able to keep calm. 0 1
2 3
13. Some of the thoughts I have about my child are negative and
I say
to myself that I shouldn’t be thinking that way.
0 1 2 3
14. I am aware of how my moods affect the way I treat my
child. 0 1 2 3
15. I’m good at finding the words to describe my feelings about
my child. 0 1 2 3
Reverse score items: 1, 3, 5, 6, 8, 11, 13.
Items in five domains as reflected in the Five Facet Mindfulness
Questionnaire (not yet established as potential subscales):
Acting with awareness: items 1, 6, 11.
Nonreactivity: items 2, 7, 12.
Nonjudgment: items 3, 8, 13.
Observing: items 4, 9, 14.
Describing: items 5, 10, 15.
AMERICAN JOURNAL ON INTELLECTUAL AND
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2014, Vol. 119, No. 2, 171–185
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L. Jones et al. 185
mesure d’exprimer de façon fiable ce qu’ils
préfèrent le plus et le moins par des méthodes
d’évaluation directes. Les items préférés sont
généralement utilisés comme moyen de récom-
pense et peuvent faciliter l’acquisition de nouvelles
compétences et ainsi promouvoir l’engagement de
la personne envers la tâche. Un certain nombre de
méthodes d’évaluation des préférences sont dis-
ponibles. La sélection de la méthode la plus
appropriée est toutefois cruciale pour fournir des
résultats fiables et significatifs. Les auteurs ont
effectué une revue systématique des méthodes
d’évaluation des préférences et ont mis au point
un modèle de prise de décision guidant les
praticiens dans le choix des méthodes d’évaluation
les plus appropriées selon des scénarios d’évaluation
donnés. Le modèle de prise de décision proposé
pourrait être un outil utile afin d’accroı̂ tre l’utilisa-
tion et l’adoption d’une méthodologie d’évaluation
des préférences dans les pratiques professionnelles.
Les problèmes de comportement des enfants et
le bien-être parental dans les familles d’enfants
présentant de l’autisme: le rôle médiateur de la
présence attentive et de l’acceptation
Leah Jones, Richard Patrick Hastings, Vasiliki
Totsika, Lisa Keane et Neisha Rhule
Peu d’études ont exploré en quoi le niveau de
problèmes de comportement d’un enfant conduit
à la détresse psychologique chez les parents
d’enfants présentant un trouble du spectre de
l’autisme (TSA). Les auteurs ont étudié si
l’acceptation psychologique ainsi que la présence
attentive peuvent avoir un effet médiateur sur la
relation entre le comportement de l’enfant et la
détresse parentale. Soixante-dix mères et trente-
neuf pères d’enfants présentant un TSA ont
participé à l’étude en rapportant leur propre
bien-être psychologique ainsi que les problèmes
de comportement de leur enfant. Les résultats ont
révélé que l’acceptation psychologique agit à titre
de variable médiatrice chez les mères pour
l’anxiété, la dépression, et le stress, et chez les
pères pour la dépression. Ces résultats contribuent
à soutenir que la présence sélective et l’accepta-
tion seraient d’importants processus psychologi-
ques parentaux, ce qui a des implications pour le
soutien des parents.
L’adaptation et la santé psychologique de
parents vieillissants d’enfants adultes ayant une
déficience intellectuelle
Vivian E. Piazza, Frank J. Floyd, Marsha R.
Mailick et Jan S. Greenberg
Parmi les parents vieillissants (moyenne d’âge 5
65, N 5 139) d’adultes ayant une déficience
intellectuelle nous avons examiné l’efficacité de
multiples formes d’adaptation à la charge des
aidants naturels. Comme prévu, les stratégies
d’adaptation au stress (engagement secondaire),
fréquemment utilisées plus tard dans la vie,
atténuent l’impact de la charge des aidants
naturels, alors que les stratégies de désengagement
et de distraction exacerbent les effets de la charge
sur les symptômes dépressifs. La plupart des effets
étaient similaires pour les mères et les pères, et les
stratégies d’adaptation, y compris des stratégies
actives pour réduire le stress (engagement pri-
maire), ont eu des effets plus importants pour les
parents ayant d’autres enfants à la maison. La
vulnérabilité de l’aidant naturel était plus élevée
lorsque les parents vieillissants ayant d’autres
enfants vivant à la maison utilisaient le désen-
gagement et la distraction, tandis que ceux qui
utilisaient l’engagement étaient résilients.
The French translation of the abstracts has been
coordinated by «AAIDD-Québec» with the collabora-
tion of Marc-André Gagnon, Marie-Josée Leclerc,
Carole Légaré, Véronique Longtin, Julie Maltais, and
Diane Morin.
La traduction des résumés en français a été coordonnée
par «AAIDD-Québec» avec la collaboration de Marc-
André Gagnon, Marie-Josée Leclerc, Carole Légaré,
Véronique Longtin, Julie Maltais, et Diane Morin.
AMERICAN JOURNAL ON INTELLECTUAL AND
DEVELOPMENTAL DISABILITIES
2014, Vol. 119, No. 2, 199–200
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DOI: 10.1352/1944-7558-119.2.199
200 Résumés en Français
una evaluación de preferencias directa. Los ı́tems
preferidos tienden a funcionar como recompensa y
pueden por lo tanto, ser utilizados para facilitar la
adquisición de nuevas habilidades y promover la
dedicación a la tarea. Varios métodos de evaluación
de preferencias están disponibles, pero la selección
del método apropiado es crucial para conseguir
resultados confiables y significativos. Los autores
realizaron una revisión sistemática sobre la literatura
referida a evaluación de preferencias y desarrollaron
un modelo de toma de decisiones informado en
evidencias para guiar a los profesionales en la
selección de métodos de evaluación de preferencias
para una evaluación con un escenario determinado.
El modelo de toma de decisiones propuesto para
evaluar, podrı́a ser una herramienta muy útil para
incrementar el uso y aceptación de la metodologı́a de
evaluación de preferencias en contextos aplicados.
Problemas Conductuales en Niños y Bienestar de
los Padres en Familias con Niños con Autismo:
El Rol mediador de Mindfulness y Aceptación
Leah Jones, Richard Patrick Hastings, Vasiliki
Totsika, Lisa Keane, and Neisha Rhule
Pocos estudios de investigación han explorado
cómo el nivel de problemas conductuales de un
niño conduce a la angustia psicológica en los padres
de niños con autismo. Los autores exploraron si la
aceptación psicológica y concientización mediaba
esta relación entre el comportamiento del niño y la
angustia en los padres. Setenta y un madres (71) y
treinta (30) padres de niños con autismo partici-
paron exponiendo su bienestar psicológico positivo
y negativo y los problemas conductuales de sus
hijos. La aceptación psicológica actuó como una
variable mediadora para la ansiedad materna, la
depresión y el estrés, como también en la depresión
de los padres. La concientización general y la
paternidad conciente, tuvieron efectos mediadores sig-
nificativos para la ansiedad materna, la depresión y el
estrés. Los resultados contribuyen a evidenciar que
la concientización y aceptación podrı́an ser im-
portantes procesos psicológicos de los padres, con
implicancias para el apoyo de los padres.
Afrontamiento y Salud Psicológica de Padres
Adultos Mayores de Hijos Adultos con
Trastornos del Desarrollo
Vivian E. Piazza, Frank J. Floyd, Marsha R.
Mailick, and Jan S. Greenberg
Entre padres ancianos (edad promedio 5 65, N 5
139) de adultos con trastornos del desarrollo, se
examinó la efectividad de múltiples formas de
afrontar la carga que recae en ellos como cuida-
dores. Como es de esperar, estrategias flexibles de
adaptación al estrés (dedicación secundaria),
utilizadas frecuentemente en la tercera edad,
amortigua el impacto de la carga que recae en
los cuidadores, mientras que el cese de contacto y
la distracción, exacerban los efectos de esta carga
en sı́ntomas de depresión. La mayorı́a de los
efectos fueron similares para madres y padres y
todas las estrategias de afrontamiento, incluyendo
estrategias activas para reducir el estrés (dedica-
ción primaria), tuvieron mayores efectos en padres
con hijos co-residentes. La vulnerabilidad de los
cuidadores fue mayor cuando padres ancianos
con hijos co-residentes utilizaron estrategias de
afrontamiento basadas en una menor dedicación
y distracción, pero aquellos que utilizaron estra-
tegias de afrontamiento de mayor dedicación,
fueron resilientes.
AMERICAN JOURNAL ON INTELLECTUAL AND
DEVELOPMENTAL DISABILITIES
2014, Vol. 119, No. 2, 201–202
EAAIDD
DOI: 10.1352/1944-7558-119.2.201
202 Résumés en Español
Reproduced with permission of the copyright owner. Further
reproduction prohibited without
permission.
2
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Four “two-page” analyses: 10 points each – total 40 points . . .
NO DIRECT QUOTES . . . read the complete following in detail
for your success:
In place of the typical blogs and/or discussion questions that
you have had over the many semesters and courses, whether in
your masters or doctoral courses, I would like you to search for
scholarly and non-scholarly articles that align with our course
and possibly with your dissertation topic. If your dissertation is
not in line with our course topics, please email me so we can
discuss. You can also review the topics in the course textbook.
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classes require, you will be required to submit four separate
short two-full-page papers where you will give a brief analysis
of at least three scholarly articles (2010 to 2017/18) and one
non-scholarly article per paper. The reason for these four short-
page papers is for you to have a greater understanding of how to
synthesize the topics for our course and the ability to build
upon your literature review in Chapter 2 of your dissertation.
In addition, you will be able to add literature to your Chapter
5, and possibly some literature in your Chapter 3 regarding the
methodology and those researchers. Please note that your
Chapter 5 of your dissertation should have at least 10 to 15
scholarly articles supporting your findings from your Chapter
4. In the event you are not working on Chapter 5, this is just
relevant information for you to prepare as you reach that
benchmark.
The reason you must have at least three scholarly articles and
one non-scholarly article per short analysis, is so you have an
understanding of how to synthesize your information by adding
content to your dissertation. You are more than welcome to
have more than two pages per submission. The following
format is required:
1.At least two paragraphs, of the two-full pages, must have
more than 2 separate sources to synthesize your content (3
points for each synthesized paragraph),
2.Paper must be two FULL pages (2 points),
3. Make sure that your in-text citations align with your
references (2 points),
4. *Double-space your lines, left justify your paper, and use
Times New
Roman 12 pt.,
5. *Have a title page and reference page,
6. *DO NOT use any in-text citation or references from
websites such as “citation machine” as they are not always
correct,
7. *Must have level headings and page numbers,
8. *If the same errors are found within subsequent article
reviews, points will be deducted, especially after the professor
gives feedback,
9. No abbreviations, no acronyms, no contractions (academic
level writing),
10. No direct quotes and all reviews will be submitted through
Turnitin, and
11. Please submit all short papers in the drop box area under
“Article Reviews.”
The * listed above indicates that the grading is under the sole
discretion of the professor who can deduct points for not
following directions by using the template. The template will
be uploaded in the Article Review link.
****Please note that I will give you a template that you must
use, which has the title page, references page, level headings,
page numbers, and is formatted for proper 6th edition APA
format. If you choose not to use the template, 5 points will be
deducted from this assignment. If you use your own template, I
will grade on APA.
As I give detailed feedback, I expect to see an improvement in
my students’ next assignments/article reviews, therefore,
students should not repeat the same errors found within their
first assignment/article reviews (i.e., APA, grammar, etcetera).
Given that, I will deduct points if the same errors are noted
within the assignments/article reviews thereafter. Being that I
take the time and effort to grade your papers in detail, as I
previously stated, I expect my students within a doctoral level
class, to look at their errors and ameliorate in their following
assignments. Please note that there are 5 points allocated for
deduction based on not following the template and not fixing
feedback after the first assignment/article review. This is solely
under the discretion of the professor, not to include the points
for being late.
In addition, to stay current with student-to-student interaction,
after each Article Review is submitted, please contact any of
your peers via the blog discussion area if you wish to discuss
topics, resources, format, and etcetera. This will allow all of
you to have an idea of your peers’ topics and the ability to
connect with one another to share more information and make
your dissertations stronger; collaboration is a good thing.
Collaboration is important not just because it's a better way to
learn. The spirit of collaboration is penetrating every institution
and all of our lives. So learning to collaborate is part of
equipping yourself for effectiveness, problem solving,
innovation and life-long learning . . .
Don Tapscott
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Child Behavior Problems and Parental Well-Being inFamilies o.docx

  • 1. Child Behavior Problems and Parental Well-Being in Families of Children With Autism: The Mediating Role of Mindfulness and Acceptance Leah Jones, Richard Patrick Hastings, Vasiliki Totsika, Lisa Keane, and Neisha Rhule Abstract Few research studies have explored how the level of a child’s behavior problems leads to psychological distress in parents of children with autism. The authors explored whether psychological acceptance and mindfulness mediated this relationship between child behavior and parental distress. Seventy-one mothers and 39 fathers of children with autism participated, by reporting on their own positive and negative psychological well-being and their child’s behavior problems. Psychological acceptance was found to act as a mediator variable for maternal anxiety, depression, and stress, and for paternal depression. General mindfulness and mindful parenting had significant mediation effects for maternal anxiety, depression, and stress. These results contribute to evidence that mindfulness and acceptance may be important parental psychological processes, with implications for parent support. Key Words: autism spectrum disorder; parents; mindfulness; mindful parenting; psychological acceptance
  • 2. Parents, especially mothers, of children with an autism spectrum disorder (ASD) often report elevated psychological-distress profiles compared with parents of typically developing children (Eisenhower, Baker, & Blacher, 2005; Schieve, Blumberg, Rice, Visser, & Boyle, 2007; Totsika, Hastings, Emerson, Berridge, & Lancaster 2011) and compared with parents of children with other disabilities, including Down syndrome (Da- browska & Pisula, 2010; Olsson & Hwang, 2003), Fragile X syndrome (Abbeduto et al., 2004), cerebral palsy (Eisenhower et al., 2005), and intellectual disability (ID) alone (Blacher & McIntyre, 2006; Totsika et al., 2011). Within samples of parents of children with ASD, child behavior problems have regularly been associated with negative outcomes, in cross-sectional and longitudinal designs (Hastings et al., 2005; Herring et al., 2006; Lecavalier, Leone, & Wiltz, 2006; Lounds, Seltzer, Greenberg, & Shattuck, 2007; Totsika et al., 2011). Given the longitudinal design of some studies (e.g., Herring et al., 2006; Lecavalier et al., 2006), there is evidence to indicate that child behavior problems function as a risk factor for parental negative outcomes. With both theoretical and practical consider- ations in mind, it is important to ask how the behavior problems of children with ASD come to have an impact on parental well-being. ‘‘How’’ questions in this context relate to the identification of mediator variables, defined as the processes that intervene between a risk factor (e.g., child behavior problems) and outcomes (such as parental psycho-
  • 3. logical distress; see Baron & Kenny, 1986). Identification of mediator variables is theoretically important because we develop a better understand- ing of psychological distress in parents. At the practical level, mediator variables represent pro- cesses that might be targeted via intervention. Researchers have explored a range of psycho- logical process variables that may be related to well-being in parents of children with ASD. For example, negative correlations with parental negative outcomes (i.e., increased reporting of the process variable associated with lower levels of psychological distress) have been identified for AMERICAN JOURNAL ON INTELLECTUAL AND DEVELOPMENTAL DISABILITIES 2014, Vol. 119, No. 2, 171–185 EAAIDD DOI: 10.1352/1944-7558-119.2.171 L. Jones et al. 171 optimism (Greenberg, Seltzer, Krauss, Chou, & Hong, 2004), attributions of control (M. J. Weiss, 2002), and self-efficacy (Hastings & Brown, 2002). Only rarely have psychological process variables been examined statistically as potential mediators of the relationship between child behavior problems and parental well-being (Hastings & Brown, 2002; J. A. Weiss, Cappadocia, MacMul- lin, Viecili, & Lunsky, 2012). Therefore, more
  • 4. research is needed, specifically with a focus on mediation processes. A particular problem in the search for relevant psychological process variables is the starting point of which processes to examine. Our rationale for selection was to look to an emerging trend in intervention research with parents and other carers of children and adults with ASD and/or ID. Increasingly, the ‘‘third wave’’ therapies such as acceptance and commitment therapy (ACT; Hayes, Strosahl, & Wilson, 1999) and mindful- ness-based therapies (Chiesa & Serretti, 2011; Grossman, Nieman, Schmidt, & Walach, 2004) have been evaluated as intervention models to reduce psychological distress in carers of individ- uals with developmental disabilities. The results of these evaluations of acceptance-based (e.g., Black- ledge & Hayes, 2006; Noone & Hastings, 2009, 2010) and mindfulness-based (e.g., Benn, Akiva, Arel & Roeser, 2012; Ferraioli, & Harris, 2013; Singh et al., 2006; Singh et al., 2007) interventions are encouraging in terms of stress-reduction outcomes. However, theory-building research, such as evidence for the mediating role of acceptance and mindfulness processes in under- standing carer well-being, generally postdates these intervention-evaluation research developments. In the first research to explore mindfulness and acceptance in parents of children with developmen- tal disabilities, Lloyd and Hastings (2008) found evidence that increased psychological acceptance was associated both cross-sectionally and longitudi- nally with psychological distress in mothers of children with ID. Mindfulness was also measured in
  • 5. this research as a dispositional (trait) variable, but no significant associations with maternal well-being were found. The authors suggested using a situa- tional measure of mindfulness in the parenting context in future research. MacDonald, Hastings, and Fitzsimons (2010) found evidence, in a cross- sectional design, that acceptance measured in relation to parenting acted as a mediator of the relationship between child behavior problems and paternal well-being (stress, anxiety, and depression). In a partial replication study, J. A. Weiss et al. (2012) also found cross-sectional evidence of acceptance acting as a mediator variable for the well-being (nonspecific psychological distress) of mothers of children with ASD. The main aims of the current research were to (a) replicate the finding that psychological accep- tance may act as a mediator of the association between child behavior problems and psycholog- ical distress in mothers of children with ASD, (b) extend this exploration of acceptance to fathers of children with ASD, (c) explore the putative role of general mindfulness and mindfulness in the parenting context (using a new measure designed for the current study) as a mediator for both mothers and fathers, and (d) explore any mediated relationships for parental positive perceptions as opposed to psychological distress. In terms of the final aim, existing family-research findings indicate that positive well-being is distinct from an absence of psychological distress, and that positive and negative outcomes are associated with different variables (Hastings & Taunt, 2002). No associations between mindfulness or acceptance and parental
  • 6. positive perceptions have been found in previous research with parents of children with ID (Lloyd & Hastings, 2008; MacDonald et al., 2010). However, we are not aware of existing research addressing this question with both mothers and fathers of children with ASD. Based on previous research findings, we hypothesized that psychological acceptance would mediate the relationship between the behavior problems of children with ASD and their parents’ psychological distress, but not their parents’ positive perceptions. Although we also explored the putative mediating role of mindfulness, we had no directional hypotheses, given the lack of previous empirical findings. A secondary aim of the research was to report initial psychometric data on a mindful-parenting scale suitable for use with parents of children with disabilities. There is a lack of measures of mindful parenting, and our research on psychological acceptance suggested that it is important to measure these psychological processes in the context of the relationship with the child with disability. Method Participants Seventy-one mothers and 39 fathers (who were partners of the mothers) participated in the AMERICAN JOURNAL ON INTELLECTUAL AND DEVELOPMENTAL DISABILITIES 2014, Vol. 119, No. 2, 171–185
  • 7. EAAIDD DOI: 10.1352/1944-7558-119.2.171 172 Parental Well-Being, Mindfulness, and Acceptance research. The majority of parents were biological parents—one adoptive mother, one foster moth- er, one adoptive father, one foster father, and one stepfather also participated. All fathers and 59 of the mothers were either married or cohabiting, and 12 mothers were divorced, single, or wid- owed. Mothers were on average 45 years of age (SD 5 4.64), and fathers 46 years (SD 5 4.01). Thirty-eight mothers (54%) and 25 fathers (64%) were educated to university-degree level or higher, with 23 mothers (32%) and 35 fathers (90%) in employment at the time of the research. Modal household income for the current sample of 71 families was £25,000–£35,000 per year (British pounds sterling, approximately $40,000–$55,000 US dollars; median household income was £35,000–£45,000, approximately $55,000–$70,000 US dollars). Most participants (94%) described themselves as being of White British ethnicity, and the majority of families had two children living in the family home. Participants’ socioeconomic position (SEP) was computed by categorizing families in one of four possible groups, depending on whether at least one parent in the family was currently employed (if so, scoring 1), whether total annual household income was above the modal value for the sample
  • 8. (£35,000; if so, scoring 1), and whether the mother in the family was educated to university-degree level (if so, scoring 1). Seven families (10% of 71 families) comprised the lowest possible group (neither parent employed, family income below £35,000 annually, mother educated below univer- sity level); 19 families (27%) comprised the second lowest group; 17 families (24%) comprised the second highest group; and the highest possible group contained 28 families (39%). Parents reported on their children’s charac- teristics, including what diagnostic label their children had received, when the diagnosis was received, and who provided the diagnosis. Twen- ty-nine of the families’ children (41%) had a diagnosis of high-functioning autism or Asperger syndrome, 27 children (38%) had a diagnosis of autism, and 15 children (21%) had a diagnosis of autism spectrum disorder. Seventy-one percent of the children scored within the range typical of children with ID on a measure of global adaptive functioning. Fifty-nine of the children were male (83%) and 12 were female (17%). Children were on average 13 years of age (SD 5 2.29, range 7 to 16) and had received their diagnosis on average 7 years previously (SD 5 2.68). Measures Participants completed a demographics question- naire designed specifically for the current study to gather the information described previously, along with questionnaires measuring child behavior problems, parental positive and negative well-being, and mindfulness and acceptance. A telephone interview was also conducted with the child’s
  • 9. primary carer, to complete a measure of the child’s adaptive functioning. Child measures. The Strengths and Difficul- ties Questionnaire (SDQ; Goodman, 1997) was used as a measure of children’s behavioral and emotional adjustment. Both mothers and fathers completed the measure independently of each other. The SDQ comprises 25 items measuring five domains: a prosocial-behavior domain and four problem-behavior domains (emotional symp- toms, conduct problems, hyperactivity, and peer problems). Respondents rate statements about their child as not true, somewhat true, or certainly true. Example items include ‘‘Often downhearted and tearful’’ (emotional symptoms); ‘‘Often has temper tantrums or a hot temper’’ (conduct problems); ‘‘Easily distracted, concentration wan- ders’’ (hyperactivity); ‘‘Has at least one good friend’’ (reverse scored for peer problems); ‘‘Con- siderate of other people’s feelings’’ (prosocial behavior). A total difficulties score is generated by summing the four problem domains, giving a scale with a range of scores from 0 to 40. The total difficulties score was used in the present study, with maternal ratings used in maternal analyses and paternal ratings used in paternal models. The SDQ is a well-validated instrument proven to be effective in identifying clinically significant levels of behavioral disturbance in children (Goodman, 1997), with good levels of reliability maintained in research with children with autism (Iizuka et al., 2010). Internal consistency (Cronbach’s a) for the total behavior-problems score in the current study was .78 for mothers and .80 for fathers.
  • 10. The Social Communication Questionnaire (SCQ; Rutter, Bailey, Lord, & Berument, 2003) was completed by the child’s primary carer to measure the severity of the child’s autism symp- toms. The SCQ is an autism-screening instrument and outcome-measurement tool, based on interna- tional diagnostic criteria (DSM-IV: American Psychiatric Association, 2000; ICD-10: World Health Organization, 2008, designed to measure communication skills and social functioning. The AMERICAN JOURNAL ON INTELLECTUAL AND DEVELOPMENTAL DISABILITIES 2014, Vol. 119, No. 2, 171–185 EAAIDD DOI: 10.1352/1944-7558-119.2.171 L. Jones et al. 173 Current Form of the measure was used in the present research, to assess the extent of the child’s autistic behavior during the preceding 3-month period (i.e., not as a diagnostic screening tool, but to assess current severity of symptoms). The measure consists of 40 items, and respondents answer yes or no to statements such as ‘‘Does she/he play any pretend or make-believe games?’’ and ‘‘Does she/he usually look at you directly in the face when doing things with you or talking with you?’’ Severity of autism symptoms has previously been shown to be independently associated with parental well-being (Tobing & Glenwick, 2002).
  • 11. The SCQ was included as a control variable, and to avoid unnecessary measurement we asked only that the child’s primary caregiver complete the measure. The SCQ displayed high internal consistency (Kuder–Richardson coefficient for the present sample 5 .81). The Vineland Adaptive Behavior Scales—2nd Edition (VABS II; Sparrow, Cicchetti, & Balla, 2005) was used as a measure of the child’s adaptive functioning and was also included as a potential control variable. The VABS II is administered as a semistructured interview and was conducted over the telephone, with parents who identified themselves as the child’s primary caregiver. The VABS II consists of items arranged in developmental sequence, measuring behaviors across four domains: socialization, communica- tion, daily-living skills, and motor skills (motor- skills domain only administered to children below the age of 7). An overall adaptive-behavior composite score was used in the current analyses. Parental well-being measures. The Hospital Anxiety and Depression Scale (HADS; Zigmond & Snaith, 1983) was used to measure parental distress. The 14-item instrument was originally constructed to allow quick measurement of anxiety and depression in hospital settings but has since been used widely in community research, including with parents of children with autism (Hastings, 2003; Rydebrandt, 1991). Seven items measure anxiety and seven measure depres- sion, providing subscale scores, which were used in the current research. Respondents rate state- ments on a 4-point scale; for example, ‘‘I have lost
  • 12. interest in my appearance’’ is rated as definitely, I don’t take as much care as I should, sometimes, or not at all; and ‘‘I can sit at ease and feel relaxed’’ is rated as definitely, usually, not often, or not at all. Internal consistency (Cronbach’s a) in the current study was .85 for maternal anxiety, .78 for maternal depression, .86 for paternal anxiety, and .71 for paternal depression. The Parent and Family Problems Subscale of the Questionnaire on Resources and Stress— Short Form (QRS-F; Friedrich, Greenberg, & Crnic, 1983) was used to measure general parenting stress associated with the child with ASD. This 20-item measure includes five items relating to depression (Glidden & Floyd, 1997), which were excluded from analysis in the current study to avoid measurement overlap, as depres- sion was measured separately with the HADS. Respondents rated the remaining 15 items as true or false. Example items include ‘‘There is a lot of anger and resentment in our family’’ and ‘‘In the future, our family’s social life will suffer because of increased responsibilities and financial stress.’’ The QRS-F has previously been used in research with parents of children with ASD, with good reliability obtained (Honey, Hastings & McConachie, 2005). Internal consistency (Kuder–Richardson coeffi- cient) for the 15-item QRS-F scale in the current sample was .89 for mothers and .92 for fathers. The Positive Gain Scale (PGS; Pit-ten Cate, 2003) is a seven-item instrument measuring positive perceptions related to parenting a child with disability. Parents’ perceived benefits to themselves
  • 13. personally and as a family are measured, with respondents choosing strongly agree, agree, not sure, disagree, or strongly disagree for statements such as ‘‘Since having this child I have a greater under- standing of other people’’ and ‘‘Since having this child, my family has become closer to one another.’’ Previous research has indicated good levels of internal consistency for the PGS with mothers and fathers of children with developmental disabilities (Griffith et al., 2011; MacDonald et al., 2010). A total positive-gain score was used in the current study (lower scores indicate higher levels of positive gain), with good internal consistency (Cronbach’s a) at .86 for mothers and .87 for fathers. Mindfulness and acceptance measures. In the present research, we explored two different measures of mindfulness. We developed a mindful- parenting scale (situational measure of mindfulness) for this research. We also included a well-estab- lished general mindfulness measure for two main reasons: (a) to provide some validity data on the new mindful-parenting scale, and (b) to allow mindfulness to be tested as a mediator using an established scale as well as the new scale. The Five Facet Mindfulness Questionnaire (FFMQ; Baer, Smith, Hopkins, Krietemeyer, & AMERICAN JOURNAL ON INTELLECTUAL AND DEVELOPMENTAL DISABILITIES 2014, Vol. 119, No. 2, 171–185 EAAIDD DOI: 10.1352/1944-7558-119.2.171
  • 14. 174 Parental Well-Being, Mindfulness, and Acceptance Toney, 2006) is a well-established 39-item instru- ment, measuring a general tendency to be mindful in day-to-day life (i.e., a dispositional measure of mindfulness). The FFMQ measures five underlying constructs of mindfulness, identified by Baer et al. (2006): observing (noticing experiences), describing (labeling experiences with words), acting with awareness (deliberately attending to moment-to- moment behaviors and activities), nonreactivity (to inner experience), and accepting without judgment (taking a nonevaluative stance toward inner experi- ence). Respondents rate statements as never or very rarely true, rarely true, sometimes true, often true, or very often or always true. Example items include ‘‘When I’m walking, I deliberately notice the sensations of my body moving’’ (observing); ‘‘I can easily put my beliefs, opinions, and expectations into words’’ (describing); ‘‘When I do things, my mind wanders off and I’m easily distracted’’ (acting with awareness); ‘‘In difficult situations, I can pause without imme- diately reacting’’ (nonreactivity); and ‘‘I tell myself I shouldn’t be feeling the way I’m feeling’’ (nonjud- ging). The FFMQ has shown good psychometric properties when used with a variety of populations, including meditating and nonmeditating samples (Baer et al., 2008). Five subscale scores can be derived from the scale, as can a total score, which was used in the current study. Internal consistency (Cronbach’s a) of the total score in the current sample was high for mothers (.93) and fathers (.92).
  • 15. The Bangor Mindful Parenting Scale (BMPS) is a 15-item instrument first tested within the current study, to measure mindfulness explicitly in the parenting role. The BMPS is based on the FFMQ, with three items representing each of the five underlying constructs encompassing mindfulness identified by Baer et al. (2006). Each item has been modified to relate specifically to parenting. We did not intend for the measure to be scored at a subscale level at this stage. Rather, we used a total score representing a general tendency to be mindful in the parenting context. A full copy of the scale is available in the Appendix. Internal consistency (Cronbach’s a) for a total mindfulness-in-parenting score obtained in the current study was .79 for mothers and .78 for fathers. We also found encouraging results for the construct validity of the scale, with strong correlations between the BMPS and FFMQ for fathers (r 5 .75) and mothers (r 5 .77). The BMPS was also highly correlated with the acceptance measure for mothers (r 5 .70) and fathers (r 5 71), as were the FFMQ and acceptance measure (r 5 .65 for mothers, r 5 .72 for fathers). The Acceptance and Action Questionnaire— Intellectual Disability Parent version (AAQ-ID; MacDonald et al., 2010) was used in the current study to measure psychological acceptance in relation to parenting a child with ASD. The AAQ- ID is an eight-item tool adapted from the Accep- tance and Action Questionnaire—II (Bond et al., 2011), with items reworded to refer specifically to children with disability. For the current study, items were reworded to refer to children with ASD but otherwise the measure was unchanged. Respondents rate statements on a 7-point scale, ranging from never
  • 16. true to always true. Example items include ‘‘It’s OK if I remember some of the difficult times I’ve had parenting my child with ASD’’ and ‘‘It seems like most people who have children with ASD are handling their lives better than I am.’’ Good levels of internal consistency for a total acceptance score were obtained in the current study for mothers (.91) and fathers (.92). Procedure The Research Ethics and Governance Committee at Bangor University approved the study protocol. Invitations to participate were sent to families who had previously taken part in an ASD family- research study focused on sibling well-being (Petalas et al., 2012). Potential participants were contacted once, by surface mail, and were asked to return a reply slip if they were interested in participating in the current study. When reply slips were returned, a Participant Information Sheet, Research Consent and Contact Form, and Questionnaire Pack were mailed to participants, to be returned in a prepaid envelope. Of the 215 invitations that were distributed, 71 families (including 39 mother–father couples) provided written informed consent and returned the com- pleted questionnaires (overall response rate of 33%). Participants were then contacted by tele- phone to complete the VABS II. In families where both parents participated, parents who identified themselves as being the child’s primary caregiver completed the VABS II. In those 39 families where both parents participated, two VABS II interviews were conducted with a father and 37 with mothers. Results
  • 17. Data-Analysis Approach Initial analysis involved examining Pearson corre- lations (and t tests for dichotomous variables such AMERICAN JOURNAL ON INTELLECTUAL AND DEVELOPMENTAL DISABILITIES 2014, Vol. 119, No. 2, 171–185 EAAIDD DOI: 10.1352/1944-7558-119.2.171 L. Jones et al. 175 as marital status, whether or not the mother’s partner participated in the research, and child gender) between all demographic and child variables (current severity of autism symptoms, and adaptive behavior) and parental-outcome measures, for mothers and fathers separately. This step was used primarily to identify control variables for the regression models. For model parsimony, and to accommodate the sample size, it was not possible to include all background variables potentially related to the outcome measures in the analyses. The inclusion in all analyses of child behavior problems and psycho- logical variables was guided by theory and consistent with our research questions. However, other variables were selected for inclusion using empirical criteria only. Missing data were omitted on a pairwise basis for the correlation analyses.
  • 18. The main analyses employed hierarchical linear regression, allowing initial examination of the mediation hypothesis according to the causal- steps criterion (Baron & Kenny, 1986). In the first step of each regression model, the background variables identified in the univariate analysis were added to the models. Where a background variable did not have a significant association with a parental outcome variable as identified in the initial univariate analyses, it was not included in the regression models. In the second step of each regression model, parental well-being was regressed on child behavior problems (SDQ total difficulties score, as rated by the mothers in maternal regression models and by fathers in paternal models), accounting for the control variables included at Step 1. Eight models were fitted, one for each parental outcome (anxiety, stress, depression, and positive gain), separately for mothers and fathers. In the third step of the regression analyses, process variables were added as predictors (separate models for each potential mediator or process variable). Evidence of a mediated effect was considered present if child behavior problems were a significant predictor of the outcome at Step 2 of the regression analysis and became a nonsignifi- cant predictor (or had a lower b weight) at Step 3, with the potential mediator variable becoming a significant predictor of the well-being outcome. Where these criteria were satisfied, further analysis was needed to assess whether any mediating effects were statistically significant. The Aroian version of the Sobel test was used in the current analysis, as recommended by Baron and Kenny
  • 19. (1986), to test whether the indirect (mediation) effect of the process variable on the outcome variable was significantly different from zero. A listwise deletion approach to the mediation analysis was adopted. Regression Models and Analysis of Mediation Effects Bivariate correlations between parental outcome measures and demographic and child variables are shown in Table 1. Statistically significant associ- ations, or those with a correlation coefficient equal to or above .25, were selected for inclusion at Step 1 of the regression analyses. We chose to select variables based on statistical significance or the strength of the correlation because of the difference in sample size of mothers and fathers and because the size of a correlation coefficient is more meaningful than statistical significance. Child gender was explored using an independent samples t test and was only significantly associated with paternal depression, t(35) 5 22.153, p 5 .038, with fathers of sons scoring significantly higher than fathers of daughters on the depression measure. No demographic or child variables were significantly associated with maternal anxiety, and so no control variables were included in the analysis of those data. A summary of the regression models for each measure of parental well-being is displayed in Table 2 for mothers and Table 3 for fathers. Following the inclusion of control variables at Step 1, the addition of behavior problems as predictor at Step 2 improved the proportion of
  • 20. variance explained for each dependent variable except paternal positive gain. Child behavior problems emerged as a significant independent predictor of maternal anxiety, depression, and stress, and of paternal depression and stress. Child behavior problems were not significantly associ- ated with paternal or maternal positive gain, nor with paternal anxiety. The addition of the process variables im- proved the proportion of variance explained in each model, except in relation to general mind- fulness and paternal stress. For maternal models, general mindfulness, mindful parenting, and psychological acceptance significantly predicted anxiety and depression; and mindful parenting and acceptance significantly predicted stress. For paternal outcomes, mindful parenting and accep- tance significantly predicted depression; and AMERICAN JOURNAL ON INTELLECTUAL AND DEVELOPMENTAL DISABILITIES 2014, Vol. 119, No. 2, 171–185 EAAIDD DOI: 10.1352/1944-7558-119.2.171 176 Parental Well-Being, Mindfulness, and Acceptance acceptance significantly predicted stress. At this final stage of the regression analyses, child behavior problems became a nonsignificant predictor of depression and anxiety for mothers, for all process-
  • 21. variable cases. Child behavior problems remained a significant predictor of mothers’ stress, even though regression coefficients and significance values had reduced. For fathers, child behavior problems became a nonsignificant predictor in each depression model but remained significant in each stress model (with reduction in regression coefficients in all three cases). The regression models suggest that disposi- tional general mindfulness, situational mindful- ness while parenting, and psychological accep- tance in the parenting role mediate the relationship between child behavior problems and depression, anxiety, and stress (except for general mindfulness and stress) in mothers. For fathers, mindful parenting and acceptance appear to mediate the relationship between child behav- ior problems and depression, and acceptance alone appears to mediate the relationship with stress. To assess whether these mediating effects were statistically significant, the Aroian version of the Sobel test was administered. For mothers, dispositional general mindfulness had significant mediation effects in relation to depression (z 5 2.03, p 5 .04) and anxiety (z 5 2.49, p 5 .01); mindful parenting also had significant mediating effects in relation to depression (z 5 2.34, p 5 .02) and anxiety (z 5 2.49, p 5 .01); and acceptance had mediating effects in relation to depression (z 5 2.55, p 5 .01), anxiety (z 5 2.91, p , .001), and stress (z 5 2.69, p , .001). For fathers, the only significant mediation effect was found in relation to acceptance and depression (z 5 2.10, p 5 .04). These statistical tests of mediation effects were only conducted when there was a prima facie case
  • 22. for the presence of a mediated effect based on Baron and Kenny’s (1986) criteria. There was no evidence that acceptance or mindfulness mediated the relationship between child behavior problems and positive-gain scores (in either parent). Child behavior problems were unrelated to parental positive gain in the initial stages of analyses. However, there were main- effect relationships in that general mindfulness and mindful parenting were significantly inde- pendently associated with positive gain in moth- ers, and general mindfulness and psychological acceptance were significantly independently asso- ciated with positive gain in fathers.T ab le 1 C or re la ti on s B et w ee
  • 41. 1 . AMERICAN JOURNAL ON INTELLECTUAL AND DEVELOPMENTAL DISABILITIES 2014, Vol. 119, No. 2, 171–185 EAAIDD DOI: 10.1352/1944-7558-119.2.171 L. Jones et al. 177 T ab le 2 S u m m ar y of R eg re
  • 64. in ed in al l st ag es o f an al ys es . AMERICAN JOURNAL ON INTELLECTUAL AND DEVELOPMENTAL DISABILITIES 2014, Vol. 119, No. 2, 171–185 EAAIDD DOI: 10.1352/1944-7558-119.2.171 178 Parental Well-Being, Mindfulness, and Acceptance T
  • 91. o f an al ys es . AMERICAN JOURNAL ON INTELLECTUAL AND DEVELOPMENTAL DISABILITIES 2014, Vol. 119, No. 2, 171–185 EAAIDD DOI: 10.1352/1944-7558-119.2.171 L. Jones et al. 179 Discussion As hypothesized, and consistent with previous research (MacDonald et al., 2010, J. A. Weiss et al., 2012), we found that psychological acceptance mediated the relationship between child behavior problems and parental well-being. Significant mediation effects were found in relation to maternal anxiety, depression, and stress, as well as paternal depression. To our knowledge, this is the first study to investigate the potential mediating effects of both dispositional general mindfulness and situational mindfulness
  • 92. when parenting in mothers and fathers of children with ASD. We found that general mindfulness and mindful parenting had significant mediation effects in relation to maternal anxiety, depression, and stress. Results were less robust in relation to paternal well-being. The sample size was small for fathers, and caution is needed when drawing inferences from these data. However, previous research has also suggested different patterns of associations for maternal and paternal well-being (e.g., Davis & Carter, 2008; Jones, Totsika, Hastings, & Petalas, 2013). More research is needed to address whether different mediation processes are characteristic for mothers and fathers. Consistent with previous research, the level of the child’s behavior problems was a significant predictor of psychological distress for both mothers and fathers, while being unrelated to mothers’ and fathers’ positive perceptions (Hast- ings & Taunt, 2002; Hastings et al., 2005; Jones et al., 2013). For both mothers and fathers, child behavior problems remained a significant predic- tor of parental stress after the inclusion of all potential mediator variables. Although not performing a mediation func- tion, mindfulness and acceptance were signifi- cantly associated with positive gains for mothers and fathers, with parents who reported increased mindfulness and acceptance also reporting greater levels of positivity in relation to their child with ASD. A potential mechanism for this association is that parents who are more mindful (i.e., less judgmental of experiences, less reactive, and more
  • 93. aware of internal processes) and more accepting of distressing thoughts and feelings may be more able to positively embrace their circumstances. A recent intervention study by Benn et al. (2012) found that parents (and teachers) of children with developmental disabilities who participated in mindfulness training showed greater self-compas- sion and greater empathic concern and forgive- ness for others, which the authors describe as ‘‘an enhancement of positive psychological function- ing’’ and ‘‘enhanced relational competence’’ (p. 7). Previous research has highlighted the impor- tance of measuring psychological process variables specifically in relation to parenting a child with a disability (Lloyd & Hastings, 2008). A measure of psychological acceptance in this context was already available (MacDonald et al., 2010). How- ever, to measure mindfulness specifically in the parenting role, a new measure was developed and used for the first time in the current study (BMPS; see Appendix). Initial pilot data for the new measure are promising, with good levels of reliability and some evidence of validity obtained for mothers and fathers. Further research with this scale is needed to examine additional psychometric properties, especially test–retest reliability and further aspects of validity. In the current study, the measurement of mindfulness both dispositionally and situationally in the parenting context yielded similar results: Both constructs mediated the impact of child behavior problems on maternal negative out- comes, while neither construct mediated the
  • 94. impact on paternal outcomes. One explanation for this is that both mindfulness measures were highly correlated for mothers and fathers, indicat- ing that parents who are generally mindful also seem to be mindful in the parenting context. A reasonable question is whether measurement at both the situational and general level is needed. In research relating to parenting, a situational measure alone may be sufficient, and the measure devel- oped in the current study is quick to administer and has displayed good psychometric properties. However, further theoretical development and research is needed to more fully understand the relationship between dispositional and situational mindfulness, and whether the processes measured in the current study are part of a latent mindfulness construct. Most significantly, the present study was cross-sectional and so we had no data on the stability or otherwise of mindful parenting. Longi- tudinal research designs are also needed to properly establish whether mindfulness or acceptance pro- cesses act as mediators of parent psychological distress over time. The current data have both theoretical and practical implications. That mindfulness and acceptance processes may act as mediator variables AMERICAN JOURNAL ON INTELLECTUAL AND DEVELOPMENTAL DISABILITIES 2014, Vol. 119, No. 2, 171–185 EAAIDD DOI: 10.1352/1944-7558-119.2.171
  • 95. 180 Parental Well-Being, Mindfulness, and Acceptance for parental (perhaps especially maternal) psycho- logical distress contributes to an understanding of how and why some parents adjust more effectively than others. Coupled with the results of previous research on acceptance and mindfulness processes, these results support the potential utility of mindfulness-based and acceptance-based interven- tions for parents, particularly mothers, of children with ASD. Evidence supporting such interventions is already emerging (e.g., Benn et al., 2012; Blackledge & Hayes, 2006; Ferraioli & Harris, 2013; Singh et al., 2006; Singh et al., 2007). However, research on mindfulness and acceptance interventions is in its infancy, and further, controlled studies are needed. In addition, re- searchers need to explore whether the process variables targeted by these interventions do in fact mediate intervention outcomes for parents. The measures used in the current study may be useful is this endeavor. There are a number of limitations to the current study. The sample size was modest, particularly for fathers. Therefore, caution is needed when interpreting these results, and replication is needed with a larger sample size. The response rate was low at 33%, and it is questionable whether the sample was representa- tive of families caring for a child with an ASD living in the United Kingdom, given that parents were originally recruited via an autism charity. Therefore, the generalizability of the results may
  • 96. be limited. ASD status was also not confirmed with a diagnostic screening tool. Instead, parents were asked to provide their child’s diagnostic label and details regarding who made the diagnosis and when it was given. That mothers alone completed measures of the child’s autism symptoms and level of adaptive functioning is a further weakness, because maternal ratings may not accurately represent fathers’ experiences of their child’s behaviors. Finally, the study design was cross- sectional, and causality cannot be inferred. At present, it is unclear whether higher levels of mindfulness and acceptance lead to greater adjustment or whether better adjusted parents have a greater tendency to be more mindful and accepting (or both). References Abbeduto, L., Seltzer, M. M., Shattuck, P., Krauss, M. W., Orsmond, G., & Murphy, M. M. (2004). Psychological well-being and coping in mothers of youths with autism, Down syndrome, or fragile X syndrome. American Journal on Mental Retardation, 109(3), 237– 254. doi:10.1352/0895-8017(2004)109,237: PWACIM.2.0.CO;2 American Psychiatric Association. (2000). Diag- nostic and statistical manual of mental dis- orders (4th ed., text rev.). Washington, DC: Author. Baer, R. A., Smith, G. T., Hopkins, J., Kriete- meyer, J., & Toney, L. (2006). Using self-
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  • 107. Received 1/23/2013, accepted 6/9/2013. Authors: Leah Jones (e-mail: [email protected]), Bangor University, School of Psychology, Adeilad Brigantia, Ffordd Penrallt, Bangor, Gwynedd LL572AS, Wales, UK; Richard Patrick Hastings, University of Warwick, Coventry, England; Vasi- liki Totsika, Lisa Keane, and Neisha Rhule, Bangor University, Bangor, Wales. AMERICAN JOURNAL ON INTELLECTUAL AND DEVELOPMENTAL DISABILITIES 2014, Vol. 119, No. 2, 171–185 EAAIDD DOI: 10.1352/1944-7558-119.2.171 184 Parental Well-Being, Mindfulness, and Acceptance APPENDIX Bangor Mindful Parenting Scale The following statements describe different ways parents may interact with their children. Please circle the response that describes what is generally true for you when parenting your child with an ASD. Remember, there are no right or wrong answers, and please answer according to what really reflects your experience, not what you think you should be experiencing.
  • 108. never true sometimes true often true always true 1. I rush through activities with my child without being really attentive to him/her. 0 1 2 3 2. In difficult situations with my child I can pause without reacting straight away. 0 1 2 3 3. I tend to make judgments about whether I am being a good or a bad parent. 0 1 2 3 4. I pay attention to how my emotions affect the way I act towards my child. 0 1 2 3
  • 109. 5. I have trouble thinking of the right words to express how I feel about my child. 0 1 2 3 6. It seems I am ‘‘running on automatic’’ without really being aware of what I’m doing with my child. 0 1 2 3 7. When I have upsetting thoughts about my child, I am able to just notice them and let them go. 0 1 2 3 8. I think some of my emotions towards my child are bad and I shouldn’t be feeling them. 0 1 2 3 9. I stay aware of my feelings towards my child. 0 1 2 3 10. Even when I’m feeling terribly upset with my child, I can find a way to put it into words. 0 1 2 3 11. I don’t pay attention to what I’m doing with my child because I’m daydreaming, worrying or distracted. 0 1 2 3
  • 110. 12. When I get upset with my child I am able to keep calm. 0 1 2 3 13. Some of the thoughts I have about my child are negative and I say to myself that I shouldn’t be thinking that way. 0 1 2 3 14. I am aware of how my moods affect the way I treat my child. 0 1 2 3 15. I’m good at finding the words to describe my feelings about my child. 0 1 2 3 Reverse score items: 1, 3, 5, 6, 8, 11, 13. Items in five domains as reflected in the Five Facet Mindfulness Questionnaire (not yet established as potential subscales): Acting with awareness: items 1, 6, 11. Nonreactivity: items 2, 7, 12. Nonjudgment: items 3, 8, 13. Observing: items 4, 9, 14. Describing: items 5, 10, 15. AMERICAN JOURNAL ON INTELLECTUAL AND DEVELOPMENTAL DISABILITIES 2014, Vol. 119, No. 2, 171–185 EAAIDD DOI: 10.1352/1944-7558-119.2.171 L. Jones et al. 185 mesure d’exprimer de façon fiable ce qu’ils préfèrent le plus et le moins par des méthodes
  • 111. d’évaluation directes. Les items préférés sont généralement utilisés comme moyen de récom- pense et peuvent faciliter l’acquisition de nouvelles compétences et ainsi promouvoir l’engagement de la personne envers la tâche. Un certain nombre de méthodes d’évaluation des préférences sont dis- ponibles. La sélection de la méthode la plus appropriée est toutefois cruciale pour fournir des résultats fiables et significatifs. Les auteurs ont effectué une revue systématique des méthodes d’évaluation des préférences et ont mis au point un modèle de prise de décision guidant les praticiens dans le choix des méthodes d’évaluation les plus appropriées selon des scénarios d’évaluation donnés. Le modèle de prise de décision proposé pourrait être un outil utile afin d’accroı̂ tre l’utilisa- tion et l’adoption d’une méthodologie d’évaluation des préférences dans les pratiques professionnelles. Les problèmes de comportement des enfants et le bien-être parental dans les familles d’enfants présentant de l’autisme: le rôle médiateur de la présence attentive et de l’acceptation Leah Jones, Richard Patrick Hastings, Vasiliki Totsika, Lisa Keane et Neisha Rhule Peu d’études ont exploré en quoi le niveau de problèmes de comportement d’un enfant conduit à la détresse psychologique chez les parents d’enfants présentant un trouble du spectre de l’autisme (TSA). Les auteurs ont étudié si l’acceptation psychologique ainsi que la présence attentive peuvent avoir un effet médiateur sur la relation entre le comportement de l’enfant et la détresse parentale. Soixante-dix mères et trente-
  • 112. neuf pères d’enfants présentant un TSA ont participé à l’étude en rapportant leur propre bien-être psychologique ainsi que les problèmes de comportement de leur enfant. Les résultats ont révélé que l’acceptation psychologique agit à titre de variable médiatrice chez les mères pour l’anxiété, la dépression, et le stress, et chez les pères pour la dépression. Ces résultats contribuent à soutenir que la présence sélective et l’accepta- tion seraient d’importants processus psychologi- ques parentaux, ce qui a des implications pour le soutien des parents. L’adaptation et la santé psychologique de parents vieillissants d’enfants adultes ayant une déficience intellectuelle Vivian E. Piazza, Frank J. Floyd, Marsha R. Mailick et Jan S. Greenberg Parmi les parents vieillissants (moyenne d’âge 5 65, N 5 139) d’adultes ayant une déficience intellectuelle nous avons examiné l’efficacité de multiples formes d’adaptation à la charge des aidants naturels. Comme prévu, les stratégies d’adaptation au stress (engagement secondaire), fréquemment utilisées plus tard dans la vie, atténuent l’impact de la charge des aidants naturels, alors que les stratégies de désengagement et de distraction exacerbent les effets de la charge sur les symptômes dépressifs. La plupart des effets étaient similaires pour les mères et les pères, et les stratégies d’adaptation, y compris des stratégies actives pour réduire le stress (engagement pri- maire), ont eu des effets plus importants pour les
  • 113. parents ayant d’autres enfants à la maison. La vulnérabilité de l’aidant naturel était plus élevée lorsque les parents vieillissants ayant d’autres enfants vivant à la maison utilisaient le désen- gagement et la distraction, tandis que ceux qui utilisaient l’engagement étaient résilients. The French translation of the abstracts has been coordinated by «AAIDD-Québec» with the collabora- tion of Marc-André Gagnon, Marie-Josée Leclerc, Carole Légaré, Véronique Longtin, Julie Maltais, and Diane Morin. La traduction des résumés en français a été coordonnée par «AAIDD-Québec» avec la collaboration de Marc- André Gagnon, Marie-Josée Leclerc, Carole Légaré, Véronique Longtin, Julie Maltais, et Diane Morin. AMERICAN JOURNAL ON INTELLECTUAL AND DEVELOPMENTAL DISABILITIES 2014, Vol. 119, No. 2, 199–200 EAAIDD DOI: 10.1352/1944-7558-119.2.199 200 Résumés en Français una evaluación de preferencias directa. Los ı́tems preferidos tienden a funcionar como recompensa y pueden por lo tanto, ser utilizados para facilitar la adquisición de nuevas habilidades y promover la dedicación a la tarea. Varios métodos de evaluación de preferencias están disponibles, pero la selección
  • 114. del método apropiado es crucial para conseguir resultados confiables y significativos. Los autores realizaron una revisión sistemática sobre la literatura referida a evaluación de preferencias y desarrollaron un modelo de toma de decisiones informado en evidencias para guiar a los profesionales en la selección de métodos de evaluación de preferencias para una evaluación con un escenario determinado. El modelo de toma de decisiones propuesto para evaluar, podrı́a ser una herramienta muy útil para incrementar el uso y aceptación de la metodologı́a de evaluación de preferencias en contextos aplicados. Problemas Conductuales en Niños y Bienestar de los Padres en Familias con Niños con Autismo: El Rol mediador de Mindfulness y Aceptación Leah Jones, Richard Patrick Hastings, Vasiliki Totsika, Lisa Keane, and Neisha Rhule Pocos estudios de investigación han explorado cómo el nivel de problemas conductuales de un niño conduce a la angustia psicológica en los padres de niños con autismo. Los autores exploraron si la aceptación psicológica y concientización mediaba esta relación entre el comportamiento del niño y la angustia en los padres. Setenta y un madres (71) y treinta (30) padres de niños con autismo partici- paron exponiendo su bienestar psicológico positivo y negativo y los problemas conductuales de sus hijos. La aceptación psicológica actuó como una variable mediadora para la ansiedad materna, la depresión y el estrés, como también en la depresión de los padres. La concientización general y la paternidad conciente, tuvieron efectos mediadores sig-
  • 115. nificativos para la ansiedad materna, la depresión y el estrés. Los resultados contribuyen a evidenciar que la concientización y aceptación podrı́an ser im- portantes procesos psicológicos de los padres, con implicancias para el apoyo de los padres. Afrontamiento y Salud Psicológica de Padres Adultos Mayores de Hijos Adultos con Trastornos del Desarrollo Vivian E. Piazza, Frank J. Floyd, Marsha R. Mailick, and Jan S. Greenberg Entre padres ancianos (edad promedio 5 65, N 5 139) de adultos con trastornos del desarrollo, se examinó la efectividad de múltiples formas de afrontar la carga que recae en ellos como cuida- dores. Como es de esperar, estrategias flexibles de adaptación al estrés (dedicación secundaria), utilizadas frecuentemente en la tercera edad, amortigua el impacto de la carga que recae en los cuidadores, mientras que el cese de contacto y la distracción, exacerban los efectos de esta carga en sı́ntomas de depresión. La mayorı́a de los efectos fueron similares para madres y padres y todas las estrategias de afrontamiento, incluyendo estrategias activas para reducir el estrés (dedica- ción primaria), tuvieron mayores efectos en padres con hijos co-residentes. La vulnerabilidad de los cuidadores fue mayor cuando padres ancianos con hijos co-residentes utilizaron estrategias de afrontamiento basadas en una menor dedicación y distracción, pero aquellos que utilizaron estra- tegias de afrontamiento de mayor dedicación, fueron resilientes.
  • 116. AMERICAN JOURNAL ON INTELLECTUAL AND DEVELOPMENTAL DISABILITIES 2014, Vol. 119, No. 2, 201–202 EAAIDD DOI: 10.1352/1944-7558-119.2.201 202 Résumés en Español Reproduced with permission of the copyright owner. Further reproduction prohibited without permission. 2 Article Review #
  • 117. by Your Name Course Number and CRN Number Title of the Course Nova Southeastern University Month Day, 2017 Title of Your Topic Indent and start your paragraphs. Remember to have TWO FULL pages of content and TWO synthesized paragraphs. Review the rubric/scoring guide and review the actual requirements to succeed and have an understanding of this assignment.
  • 118. Please note that you will need to delete and add your information in all highlighted areas. References · Attached Files · Article Review Template Fall 2017.docx (14.919 KB) Four “two-page” analyses: 10 points each – total 40 points . . . NO DIRECT QUOTES . . . read the complete following in detail for your success: In place of the typical blogs and/or discussion questions that you have had over the many semesters and courses, whether in your masters or doctoral courses, I would like you to search for scholarly and non-scholarly articles that align with our course and possibly with your dissertation topic. If your dissertation is not in line with our course topics, please email me so we can discuss. You can also review the topics in the course textbook. Rather than the average 6 to 10 blogs/discussions that most classes require, you will be required to submit four separate short two-full-page papers where you will give a brief analysis of at least three scholarly articles (2010 to 2017/18) and one non-scholarly article per paper. The reason for these four short- page papers is for you to have a greater understanding of how to synthesize the topics for our course and the ability to build upon your literature review in Chapter 2 of your dissertation. In addition, you will be able to add literature to your Chapter 5, and possibly some literature in your Chapter 3 regarding the methodology and those researchers. Please note that your Chapter 5 of your dissertation should have at least 10 to 15 scholarly articles supporting your findings from your Chapter 4. In the event you are not working on Chapter 5, this is just relevant information for you to prepare as you reach that benchmark. The reason you must have at least three scholarly articles and
  • 119. one non-scholarly article per short analysis, is so you have an understanding of how to synthesize your information by adding content to your dissertation. You are more than welcome to have more than two pages per submission. The following format is required: 1.At least two paragraphs, of the two-full pages, must have more than 2 separate sources to synthesize your content (3 points for each synthesized paragraph), 2.Paper must be two FULL pages (2 points), 3. Make sure that your in-text citations align with your references (2 points), 4. *Double-space your lines, left justify your paper, and use Times New Roman 12 pt., 5. *Have a title page and reference page, 6. *DO NOT use any in-text citation or references from websites such as “citation machine” as they are not always correct, 7. *Must have level headings and page numbers, 8. *If the same errors are found within subsequent article reviews, points will be deducted, especially after the professor gives feedback, 9. No abbreviations, no acronyms, no contractions (academic level writing), 10. No direct quotes and all reviews will be submitted through Turnitin, and 11. Please submit all short papers in the drop box area under “Article Reviews.” The * listed above indicates that the grading is under the sole discretion of the professor who can deduct points for not following directions by using the template. The template will be uploaded in the Article Review link. ****Please note that I will give you a template that you must use, which has the title page, references page, level headings, page numbers, and is formatted for proper 6th edition APA format. If you choose not to use the template, 5 points will be
  • 120. deducted from this assignment. If you use your own template, I will grade on APA. As I give detailed feedback, I expect to see an improvement in my students’ next assignments/article reviews, therefore, students should not repeat the same errors found within their first assignment/article reviews (i.e., APA, grammar, etcetera). Given that, I will deduct points if the same errors are noted within the assignments/article reviews thereafter. Being that I take the time and effort to grade your papers in detail, as I previously stated, I expect my students within a doctoral level class, to look at their errors and ameliorate in their following assignments. Please note that there are 5 points allocated for deduction based on not following the template and not fixing feedback after the first assignment/article review. This is solely under the discretion of the professor, not to include the points for being late. In addition, to stay current with student-to-student interaction, after each Article Review is submitted, please contact any of your peers via the blog discussion area if you wish to discuss topics, resources, format, and etcetera. This will allow all of you to have an idea of your peers’ topics and the ability to connect with one another to share more information and make your dissertations stronger; collaboration is a good thing. Collaboration is important not just because it's a better way to learn. The spirit of collaboration is penetrating every institution and all of our lives. So learning to collaborate is part of equipping yourself for effectiveness, problem solving, innovation and life-long learning . . . Don Tapscott