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PSYCHOSOCIAL NEEDS IN
PATIENTS WITH ESRD
INTRODUCTION
• End-stage renal disease (ESRD) is a
debilitating, chronic condition whereby the
kidney failure requires artificial means of
excretion for survival. Such restrictions can
impact on patients’ illness beliefs, sense of
personal control leading to anxiety and
depression, inhibiting coping, and adjustment
PREVELENCE OF DEPRESSION
• Kimmel et al, investigated the impact of psychosocial
factors on behavioural compliance and survival in
urban haemodialysis patients.. Depression is strongly
recognized as a common psychological problem in
haemodialysis patients . The rate of psychiatric
disorders in a population of ESRD patients was
considerably higher than in a population with other
chronic medical conditions .
• Chilcot et al. reported that 20–30% of ESRD patients
have significant depressive symptoms compared to the
lifetime prevalence of depression in the general
population of approximately 16%
IMPACT OF DEPRESSION
• Depression can complicate long-term
conditions, potentially becoming more
resistant to treatment over time . Depressed
patients are found to be three-times as likely
to be noncompliant with treatment
recommendations as nondepressed patients .
STRESSORS ASSOCIATED WITH ESRD
• Additional stressors associated with ESRD
include
• biochemical imbalance,
• physiological changes,
• neurological disturbances,
• cognitive impairment, and
• sexual dysfunction.
All can potentially play a role in depression
PHYSICAL IMPACT OF ESRD
• (i)The impact of treatment, that is, on
activities of daily living
• (ii)Psychological impact (loss of control,
anxiety and depression).
• (iii)Coping responses and the role of
religion/spiritual beliefs.
• (iv)Impact on relationships
PHYSICAL IMPACT OF ESRD
• Fatigue and decreased energy levels
significantly impact patients’ lives. The quote
below illustrates how dialysis-related fatigue
has compromised social interactions and
family life.
THE IMPACT OF TREATMENT
• Many patients reported their ambivalence
towards dependence on dialysis treatment;
although essential, they were troubled by its
burden on time, quality of life, and sense of
control
IMPACT ON ADLs
• All of the patients mentioned that the
restrictions to fluids, diet, and leisure activities
were significant losses. Strict daily restrictions
to diet and fluid have to be contended with as
constant reminder of the impact of ESRD. Such
restrictions also significantly affected social
interactions and leisure activities, causing
difficulty
SOCIAL ACTIVITIES AND LEISURE
• Dialysis treatment is intensive physically and
emotionally. Patients often dedicate up to three
days a week to treatment, and sometimes
including the weekend. Treatment sessions can
last for several hours at a time, requiring patients
to travel to hospital/dialysis satellite unit. The
combination of regular travel and lengthy
treatment time impacted on personal freedom.
PSYCHOLOGICAL IMPACT
• It appeared that some stages of the disease were
more traumatic than others.
• Some patients experienced psychological trauma
around diagnosis or commencement of
treatment if they were not well informed about
what to expect.
• These traumas had an impact on their ability to
cope with the illness and treatment. A lack of
adequate preparation about haemodialysis
treatment resulted in a strong psychological
response for this patient
IMPACT ON RELATIONSHIPS
• Personal relationships were also transformed by the
symptoms of ESRD.
• Fatigue, infertility, low energy, and mood, physical
changes to the body, for example, catheter, weight
gain, and scarring, all played a role in undermining
confidence and self-esteem.
• Sexual activity and intimacy was also reported as
significantly compromised requiring adjustment for
both patients and their partners. Changes in
perceptions of roles within the relationship were also
evident
COPING RESPONSES
• Faith and religion was discussed as a means of
coping and adjusting to ESRD. Some described
how their faith linked them into a religious
community, offering a support network. Many
said their faith enabled them to keep an
existential perspective over their condition.
The patient below talked about faith as having
a protective effect
DEATH AND MORTALITY
• Thoughts about dying and death featured in
many interviews. Mortality was discussed in
relation to withdrawing from treatment. This
patient contemplated the idea of withdrawing
from dialysis as a “relief” from suffering
STUDY FINDINGS
• The majority of patients in this study reported
negative feelings experienced as a result ESRD.
• Anxiety, depression, and in some cases,
suicidal ideation were discussed by the
patients in this sample.
• Some patients also spoke about experiencing
grief for the loss of their kidney. This was
particularly obvious for those whose
transplants had failed
PATIENT AND FAMILY TEACHING
• Education is key in relieving anxiety
• Education need to be delivered in small doses
and several different formats to encourage
retention of material
• Improve pt’s awareness on diet
modification,s/s of infection,appropriate fluid
vol daily
• Preserve access funtion
REFERNCES
1.The Psychosocial Experience of Patients with
End-Stage Renal Disease and Its Impact on
Quality of Life: Findings from a Needs
Assessment to Shape a Service
Jennifer Finnegan-John1 and Veronica J. Thomas

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Psychosocial Needs in Patients with ESRD

  • 2. INTRODUCTION • End-stage renal disease (ESRD) is a debilitating, chronic condition whereby the kidney failure requires artificial means of excretion for survival. Such restrictions can impact on patients’ illness beliefs, sense of personal control leading to anxiety and depression, inhibiting coping, and adjustment
  • 3. PREVELENCE OF DEPRESSION • Kimmel et al, investigated the impact of psychosocial factors on behavioural compliance and survival in urban haemodialysis patients.. Depression is strongly recognized as a common psychological problem in haemodialysis patients . The rate of psychiatric disorders in a population of ESRD patients was considerably higher than in a population with other chronic medical conditions . • Chilcot et al. reported that 20–30% of ESRD patients have significant depressive symptoms compared to the lifetime prevalence of depression in the general population of approximately 16%
  • 4. IMPACT OF DEPRESSION • Depression can complicate long-term conditions, potentially becoming more resistant to treatment over time . Depressed patients are found to be three-times as likely to be noncompliant with treatment recommendations as nondepressed patients .
  • 5. STRESSORS ASSOCIATED WITH ESRD • Additional stressors associated with ESRD include • biochemical imbalance, • physiological changes, • neurological disturbances, • cognitive impairment, and • sexual dysfunction. All can potentially play a role in depression
  • 6. PHYSICAL IMPACT OF ESRD • (i)The impact of treatment, that is, on activities of daily living • (ii)Psychological impact (loss of control, anxiety and depression). • (iii)Coping responses and the role of religion/spiritual beliefs. • (iv)Impact on relationships
  • 7. PHYSICAL IMPACT OF ESRD • Fatigue and decreased energy levels significantly impact patients’ lives. The quote below illustrates how dialysis-related fatigue has compromised social interactions and family life.
  • 8. THE IMPACT OF TREATMENT • Many patients reported their ambivalence towards dependence on dialysis treatment; although essential, they were troubled by its burden on time, quality of life, and sense of control
  • 9. IMPACT ON ADLs • All of the patients mentioned that the restrictions to fluids, diet, and leisure activities were significant losses. Strict daily restrictions to diet and fluid have to be contended with as constant reminder of the impact of ESRD. Such restrictions also significantly affected social interactions and leisure activities, causing difficulty
  • 10. SOCIAL ACTIVITIES AND LEISURE • Dialysis treatment is intensive physically and emotionally. Patients often dedicate up to three days a week to treatment, and sometimes including the weekend. Treatment sessions can last for several hours at a time, requiring patients to travel to hospital/dialysis satellite unit. The combination of regular travel and lengthy treatment time impacted on personal freedom.
  • 11. PSYCHOLOGICAL IMPACT • It appeared that some stages of the disease were more traumatic than others. • Some patients experienced psychological trauma around diagnosis or commencement of treatment if they were not well informed about what to expect. • These traumas had an impact on their ability to cope with the illness and treatment. A lack of adequate preparation about haemodialysis treatment resulted in a strong psychological response for this patient
  • 12. IMPACT ON RELATIONSHIPS • Personal relationships were also transformed by the symptoms of ESRD. • Fatigue, infertility, low energy, and mood, physical changes to the body, for example, catheter, weight gain, and scarring, all played a role in undermining confidence and self-esteem. • Sexual activity and intimacy was also reported as significantly compromised requiring adjustment for both patients and their partners. Changes in perceptions of roles within the relationship were also evident
  • 13. COPING RESPONSES • Faith and religion was discussed as a means of coping and adjusting to ESRD. Some described how their faith linked them into a religious community, offering a support network. Many said their faith enabled them to keep an existential perspective over their condition. The patient below talked about faith as having a protective effect
  • 14. DEATH AND MORTALITY • Thoughts about dying and death featured in many interviews. Mortality was discussed in relation to withdrawing from treatment. This patient contemplated the idea of withdrawing from dialysis as a “relief” from suffering
  • 15. STUDY FINDINGS • The majority of patients in this study reported negative feelings experienced as a result ESRD. • Anxiety, depression, and in some cases, suicidal ideation were discussed by the patients in this sample. • Some patients also spoke about experiencing grief for the loss of their kidney. This was particularly obvious for those whose transplants had failed
  • 16. PATIENT AND FAMILY TEACHING • Education is key in relieving anxiety • Education need to be delivered in small doses and several different formats to encourage retention of material • Improve pt’s awareness on diet modification,s/s of infection,appropriate fluid vol daily • Preserve access funtion
  • 17. REFERNCES 1.The Psychosocial Experience of Patients with End-Stage Renal Disease and Its Impact on Quality of Life: Findings from a Needs Assessment to Shape a Service Jennifer Finnegan-John1 and Veronica J. Thomas