KPSI (Komunitas Peduli Skizofrenia Indonesia) is an Indonesian community focused on caring for people with schizophrenia. Indonesia has a high rate of mental illness but limited treatment options, especially in rural areas where people are treated traditionally through religious institutions like pesantren or foundations without proper medication or care. KPSI was founded in 2001 to provide support and share knowledge between caregivers, medical professionals, and people with mental illness to help address issues like discrimination, lack of proper treatment, and high rates of suicide and homelessness among the mentally ill in Indonesia.

1. Contributions of KPSI on Mental
illness Treatments in Indonesia
KPSI
(Aria Suud, Miza Rahmatika Aini,
Haryati)

2. • indonesia has broad religion-belief systems and
cultural diversities
• one of five major religions in indonesia is
moslem
• about 50 million (22%) of total population is
having a mental issue or being a consumer
(2009) (*)
• less knowledge of mental issues, the treatments
may vary traditionally, especially in rural areas
preface

3. there are two way major treatments conducted by civil
society:
• through Pesantren (a moslem’s ground for purity, but
sometimes is used for rehabilitation for drugs addict
survivors ─without boundaries of other religions and
beliefs─ where People with Mental Health [PwMI]
stayed for months.)
• through Yayasan (foundation. For an example, Yayasan
Galuh. This yayasan helps psychotic homeless --either
being rejected by their desperate families or captured by
satpol pp (a police unit for homeless and other social
affairs)-- and then treats them traditionally without
proper medications, protection, and less caring )
the consequences...

4.  caregivers can afford them cheaper (sometimes
free) than a mental ward or any other mental
institutions in the nearest city.
 those are owned for charity and philanthropy
activities. The religious leader of Pesantren,
called as kyai-s (similar to christian’s
evangelists), or the founder of Yayasan are the
ones who in charge for consumers as to remain
safe within their prayers/ways.
why?

5. Inside the yayasan

6. inside the yayasan

7. Inside the yayasan

8. Inside the yayasan

9. • video
other testimonials

10. 1. socio-economic caregiver’s conditions
2. less information about mental illness and its
treatments, and less mental
facilities/institutions whereas are too expensive
in rural
3. there is no law governing about mental health
the reasons explicit into three
major :

11. • discrimination and rejection --(negative)
stigma-- because of lesser knowledge
• no law governing about mental health, thus the
national budget allocation for mental health is
<1%
• mental health is not prioritized and this may
cause domino effect on every consumers
issues

12. • there are increasing suicidal tendencies on PWMI cases
• many psychotic homeless die abandoned and be
stigmatized as a societies scum
• many consumers in rehabilitation centers are being
treated without proper caring and medications
• many consumers and survivors may have lost their right
to live like normal people do --stigmatized– including
from their own (desperate) caregivers.
• we, komunitas peduli skizofrenia/kpsi (indonesia
community care for schizophrenia/iccs), are there to
take a part
issues

13. • started in 2001 with bagus utomo shared his
brother's illness. tried to share virtually and got
massive responses
• with tika prasetyawati in 2009, they moved to
facebook and created a diy based community
both virtually and offline catch-ups
• until now, we are trying to make kpsi become a
legal foundation
our history

14. • As a portal between caregivers, practitioners (doctors,
pharmacists, psychologists, psychiatrists, social
workers, etc.), academics, sufferers, and survivors, to
share their knowledge (medications taken) and learning
based (coping mechanism).
• Offering some kind of family treatment, education, and
art publications for sufferer’s self actualization virtually
or even offline.
• Liasing between communities, governments, and other
related institutions concerning mental health. The
campaign is to promote free (negative stigma) on
mental illness.
our objectives

15. • video
jakarta biennale #14
on media publication

16. virtual posting

17. offline catch-ups (kopi darat)

18. offline catch-ups

19. offline catch-ups

20. • Indonesia has its own perspectives and different
approaches to address the voice hearing phenomenon
• trditional approaches commonly are not supported by
the sufficient understanding about psychiatric
explanation and psycothic drugs.
• those consequences rally it treatments, which tend to
ignore the humanity side. Most people interpret it as
violating the human rights.
• the (negative) stigma about mental illness issues don’t
seem to get wiped out or even minimized timely.
• The KPSI takes important role to fill the void.
conclusion

21. END