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Black Women and HIV/AIDS:Findings from Southeast Regional Consumerand Provider Focus Group Interviews2011 National HIV Pre...
Session Agenda Review Goals and Objectives Overview of NASTAD NASTAD’s Black Women’s Portfolio View “Street Conversati...
Session Goals and ObjectivesGoal:Highlight the perspectives shared during focus groupdiscussion of HIV positive women and ...
NASTAD’s MissionNASTAD strengthens state and territory-basedleadership, expertise, and advocacy and bringsthem to bear in ...
Health Equity
Black Women’s Portfolio:                          Regional Forum Series Provide participating teams the opportunity to  e...
Black Women’s Portfolio:                         Additional Resources Women and Girls Sexual Health Summit Technical Ass...
Street Conversations   2009   Flip cameras   Four women in Southern region   Two questions:    – From your perspective...
Black women Issue Brief II:                      Southeast Focus Groups Summer 2009 Southeast region of the United State...
Black women Issue Brief II:                     Southeast Focus Groups cont.Methodology Semi-structured focus group inter...
Black women Issue Brief II:                    Southeast Focus Groups cont.Methodology Broad questions were used to facil...
Black women Issue Brief II:                     Southeast Focus Groups cont.Major Themes and Findings: Understanding The C...
Black women Issue Brief II:                                     ConsiderationsHolistic and Varied Support Groups Groups t...
Black women Issue Brief II:                      Southeast Focus Groups cont.Affordable Housing Accommodate women and fam...
Black women Issue Brief II:                    Southeast Focus Groups cont.Transportation Participants also expressed how...
Black women Issue Brief II:                        Southeast Focus Groups cont.Prevention Messages, Media and Social  Mark...
Black women Issue Brief II:                     Southeast Focus Groups cont.Comprehensive Sex Education for All Women For...
Black women Issue Brief II:                         Southeast Focus Groups cont.Clinician Education and Sensitivity Many ...
Black women Issue Brief II:                        Southeast Focus Groups cont.Interventions (including “Home-grown”) Spec...
Black women Issue Brief II:                   Southeast Focus Groups cont.Advocacy Black women policy issues and concerns...
Black women Issue Brief II:                       Southeast Focus Groups cont.Community Collaborations and Partnerships (i...
Black women Issue Brief II:                    Southeast Focus Groups cont.HIV Positive Black Women in Decision-Making En...
ACKNOWLEDGEMENTS Michelle Batchelor, M.A., Senior Manager, Health  Equity Joy Mbajah, M.A., Manager, Prevention Lynn Sh...
DiscussionWhat is currently being done to address some ofthe considerations that were presented?  – Holistic and Varied   ...
DiscussionHow can we better address some of theconsiderations presented?  – Holistic and Varied       – Clinician Educatio...
DiscussionWhat other issues do we need to consider tofully address HIV/AIDS among Black women?
Thank You!!!Michelle Batchelor, MA          Niasha A. Brown, MA.Senior Manager, Health Equity   UNC, NASTAD consultantmbat...
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Black Women and HIV/AIDS: Findings from Southeast Regional Consumer and Provider Focus Group Interviews

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Black Women and HIV/AIDS: Findings from Southeast Regional Consumer and Provider Focus Group Interviews

  1. 1. Black Women and HIV/AIDS:Findings from Southeast Regional Consumerand Provider Focus Group Interviews2011 National HIV Prevention Conference MICHELLE BATCHELOR, NASTAD NIASHA A. BROWN, UNC
  2. 2. Session Agenda Review Goals and Objectives Overview of NASTAD NASTAD’s Black Women’s Portfolio View “Street Conversations” video clip Black Women Issue Brief II – Recommendations and Considerations
  3. 3. Session Goals and ObjectivesGoal:Highlight the perspectives shared during focus groupdiscussion of HIV positive women and community providersfor consideration when designing, targeting andimplementing culturally relevant programs and interventionsfor black womenObjectives: Engage in meaningful discussion of existing resources to respond to the identified needs of black women Identify or provide suggestions to address the unmet needs of black women
  4. 4. NASTAD’s MissionNASTAD strengthens state and territory-basedleadership, expertise, and advocacy and bringsthem to bear in reducing the incidence of HIVand viral hepatitis infection and on providingcare and support to all who live with HIV/AIDSand viral hepatitis.
  5. 5. Health Equity
  6. 6. Black Women’s Portfolio: Regional Forum Series Provide participating teams the opportunity to examine and prioritize the barriers to providing programs and services targeting black women in their jurisdiction Support participating teams with the development of a year long action plan Provide technical assistance to jurisdictions on issues impacting the implementation of their action plans
  7. 7. Black Women’s Portfolio: Additional Resources Women and Girls Sexual Health Summit Technical Assistance/Capacity Building Assistance Program Profiles Webinars Listserv Black Women Issue Briefs I and II Street Conversations Video Toolkit www.NASTAD.org
  8. 8. Street Conversations 2009 Flip cameras Four women in Southern region Two questions: – From your perspective, why are Black women getting infected with HIV? – What should we do about it?
  9. 9. Black women Issue Brief II: Southeast Focus Groups Summer 2009 Southeast region of the United States: – Florida – Kentucky – Louisiana – Mississippi – North Carolina – South Carolina
  10. 10. Black women Issue Brief II: Southeast Focus Groups cont.Methodology Semi-structured focus group interviews Each state hosted a minimum of three separate focus groups Groups ranged in size from three to 18 participants – health department staff – community service providers – consumers of services Facilitators shared similar backgrounds, race and gender as participants
  11. 11. Black women Issue Brief II: Southeast Focus Groups cont.Methodology Broad questions were used to facilitate and guide discussions: – How would you describe the HIV epidemic among black women in your state? – How would you describe the specific issues and problems that put black women in your area at risk? – How would you describe access to prevention services for black women at risk for HIV? Probing questions were used to explore issues and salient points mentioned by participants
  12. 12. Black women Issue Brief II: Southeast Focus Groups cont.Major Themes and Findings: Understanding The Complexity of Black Women’s Lives History, Culture, Faith and the Black Family Sexuality and Sexual Communication Impact of Abuse and Violence Stigma and Disclosure Dependency Substance Use and Mental Health
  13. 13. Black women Issue Brief II: ConsiderationsHolistic and Varied Support Groups Groups that address a range of topics relevant to the “entire person” Provide information and resources regarding childcare, employment and healthcare Participation is dependent on the availability of childcare, transportation and flexible schedules Peer-to-Peer support
  14. 14. Black women Issue Brief II: Southeast Focus Groups cont.Affordable Housing Accommodate women and families living with HIV/AIDS Offer rent support that reflects the housing market in each community Establish terms and conditions that are in line with what landlords can provide Expand to include more units to accommodate the growing numbers of homeless and transient populations
  15. 15. Black women Issue Brief II: Southeast Focus Groups cont.Transportation Participants also expressed how the lack of reliable transportation, limited public transportation resources and infrequent [bus] routes make transportation options scarce and influence a woman’s ability to participate in programs
  16. 16. Black women Issue Brief II: Southeast Focus Groups cont.Prevention Messages, Media and Social Marketing Various literacy level and educational levels Images of black women Messaging campaigns which indicate that HIV/AIDS should be a concern for black women “If I was in charge, there would be more information on the internet, more information on the radio, commercials on television about HIV.” (Mississippi consumer)
  17. 17. Black women Issue Brief II: Southeast Focus Groups cont.Comprehensive Sex Education for All Women For women and girls of all ages Many adult women served by health departments have misconceptions about reproductive health, contraceptive methods, and HIV/STD prevention Misconceptions and/or silence is often passed on to children Targeted and comprehensive education could create opportunities for women to access prevention services and health care in their communities
  18. 18. Black women Issue Brief II: Southeast Focus Groups cont.Clinician Education and Sensitivity Many patients assume that if the doctor does not bring up sexual and reproductive health, then it is not important Participants noted that positive experiences communicating with their healthcare providers can produce sustained health-seeking behavior A participant shared that the presence of accurate information immediately following her HIV-positive diagnosis made a difference in her long-term health Other participants noted that some health care providers make a quick assessment of their patients’ risk based on the general characteristics of a patient’s gender, age, sexual orientation, marital status or history of reported substance use
  19. 19. Black women Issue Brief II: Southeast Focus Groups cont.Interventions (including “Home-grown”) Specific to Black Women Provide both group-level and individual-level interventions Cuts across the various aspects of a women’s identity Florida’s Sistas Organizing to Survive (SOS) – draws on black women’s common role of being gate keepers, nurturers, and spiritual leaders in their community – engages the existing social networks of black women to provide accurate HIV prevention information – allow flexibility in the approach and consider the time of the day or week that interventions are offered
  20. 20. Black women Issue Brief II: Southeast Focus Groups cont.Advocacy Black women policy issues and concerns addressed at the local, state and national levels Guidance to become their own advocates
  21. 21. Black women Issue Brief II: Southeast Focus Groups cont.Community Collaborations and Partnerships (including Faith) Facilitate awareness and support to meet the needs of black women Collaborate with faith leaders who were willing to integrate HIV/AIDS education, risk reduction, and testing into larger community health events Allow a platform for faith leaders to better respond to the realities and challenges of their parishioners
  22. 22. Black women Issue Brief II: Southeast Focus Groups cont.HIV Positive Black Women in Decision-Making Engage women who are living with HIV to become civically engaged in their local and regional community as both political advocates and community partners Improve recruitment and education to get a greater response and participation from people who represent the community the CPG is designed to serve
  23. 23. ACKNOWLEDGEMENTS Michelle Batchelor, M.A., Senior Manager, Health Equity Joy Mbajah, M.A., Manager, Prevention Lynn Shaull, M.A., Senior Associate, Prevention Sophia A. Nur, Ph.D., Fellow Niasha A. Brown, M.A., NASTAD consultant Jacqueline Coleman, M.Ed, MSM., NASTAD consultant NASTAD thanks all the health department and community stakeholders who participated in the focus group process for their honest and open participation
  24. 24. DiscussionWhat is currently being done to address some ofthe considerations that were presented? – Holistic and Varied – Clinician Education and Support Groups Sensitivity – Affordable Housing – Interventions Specific to – Transportation Black Women – Prevention Messages, – Advocacy Media and Social – Community Collaborations Marketing and Partnerships – Comprehensive Sex – HIV Positive Black Education for All Women Women in Decision- Making
  25. 25. DiscussionHow can we better address some of theconsiderations presented? – Holistic and Varied – Clinician Education and Support Groups Sensitivity – Affordable Housing – Interventions Specific to – Transportation Black Women – Prevention Messages, – Advocacy Media and Social – Community Collaborations Marketing and Partnerships – Comprehensive Sex – HIV Positive Black Education for All Women Women in Decision- Making
  26. 26. DiscussionWhat other issues do we need to consider tofully address HIV/AIDS among Black women?
  27. 27. Thank You!!!Michelle Batchelor, MA Niasha A. Brown, MA.Senior Manager, Health Equity UNC, NASTAD consultantmbatchelor@NASTAD.org nabrown@email.unc.edu For additional information on NASTAD’s resources for Black women visit: www.NASTAD.org

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