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Making dementia a European
priority
Edinburgh, 3 June 2016
Heike von Lützau-Hohlbein, Chairperson
@AlzheimerEurope
Glasgow Declaration
http://www.alzheimer-europe.org/Policy-in-
Practice2/Glasgow-Declaration-2014 2
Glasgow Declaration
AE and members adopt Glasgow Declaration calling for:
• a rights based approach to dementia,
• development of national dementia strategies in all European
countries,
• development of a European dementia strategy with increased
funding for dementia research and improved exchange of
good practices,
• greater global collaboration on dementia.
3
Our campaign was supported by
• 195 organisations from
32 countries
• 150 policy makers
from 25 European
countries
AND
• Over 11’600 European
citizens
4
National achievements
5
EU achievements - Research
• EUR 555 million funding on dementia under FP7
• EUR 170 million by Innovative Medicines Initiative
– (PharmaCog, EMIF, AETIONOMY & EPAD)
• JPND – Joint Programme Neurodegenerative Disease
Research
– 28 participating countries including Canada, Albania, Canada, Israel,
Norway, Switzerland, Turkey)
– 15 ongoing projects (2011-2014) for EUR 68.5 million
6
Luxembourg Presidency Conclusions 12/2015
• Call on European Commission and Member States
– Recognise Governmental expert group on dementia
– Intensify research on dementia
– Identify and exchange good practices on prevention, timely diagnosis,
post-diagnostic support, treatment and care, training of health
professionals
– Improve epidemiological information on dementia
– Support non-governmental organisations in the field of dementia
7
Dutch EU Presidency
• Presidency Conference (9-10
May 2016)
• Living well with(out) dementia
– Living well without dementia –
Prevention
– Living well with dementia at home
– Living well with dementia in care
homes
8
2nd Joint Action on Dementia
• Duration:
– 2016-2018
• Priority actions:
– Diagnosis and post-diagnostic support, crisis and care coordination,
residential care, dementia-friendly communities
• Countries involved:
– Lead: United Kingdom (Scottish Government)
– Partners: Bulgaria, France, Greece, Italy, Netherlands, Norway,
Portugal, Romania, Spain, United Kingdom (Department of Health) 9
10
For more information
www.alzheimer-europe.org

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Heike von Lutzau-Hohlbein

  • 1. Making dementia a European priority Edinburgh, 3 June 2016 Heike von Lützau-Hohlbein, Chairperson @AlzheimerEurope
  • 3. Glasgow Declaration AE and members adopt Glasgow Declaration calling for: • a rights based approach to dementia, • development of national dementia strategies in all European countries, • development of a European dementia strategy with increased funding for dementia research and improved exchange of good practices, • greater global collaboration on dementia. 3
  • 4. Our campaign was supported by • 195 organisations from 32 countries • 150 policy makers from 25 European countries AND • Over 11’600 European citizens 4
  • 6. EU achievements - Research • EUR 555 million funding on dementia under FP7 • EUR 170 million by Innovative Medicines Initiative – (PharmaCog, EMIF, AETIONOMY & EPAD) • JPND – Joint Programme Neurodegenerative Disease Research – 28 participating countries including Canada, Albania, Canada, Israel, Norway, Switzerland, Turkey) – 15 ongoing projects (2011-2014) for EUR 68.5 million 6
  • 7. Luxembourg Presidency Conclusions 12/2015 • Call on European Commission and Member States – Recognise Governmental expert group on dementia – Intensify research on dementia – Identify and exchange good practices on prevention, timely diagnosis, post-diagnostic support, treatment and care, training of health professionals – Improve epidemiological information on dementia – Support non-governmental organisations in the field of dementia 7
  • 8. Dutch EU Presidency • Presidency Conference (9-10 May 2016) • Living well with(out) dementia – Living well without dementia – Prevention – Living well with dementia at home – Living well with dementia in care homes 8
  • 9. 2nd Joint Action on Dementia • Duration: – 2016-2018 • Priority actions: – Diagnosis and post-diagnostic support, crisis and care coordination, residential care, dementia-friendly communities • Countries involved: – Lead: United Kingdom (Scottish Government) – Partners: Bulgaria, France, Greece, Italy, Netherlands, Norway, Portugal, Romania, Spain, United Kingdom (Department of Health) 9