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Improving patient wellbeing:
how personal experiences
can drive real change
My unusual healthcare CV
• Journalist
• UK diplomat to the EU
• Foundation executive
• Fundraiser
• Patient
• Hospitalised in 3 countries
• Married
• Mother
Lydia
Dilated Cardiomyopathy
Inga
Ovarian Cancer
Harriet
Leukaemia
My not so unusual healthcare CV
EXPERIENCE
- as a patient
- as a loved one
- for 15 years
- in 4 countries
+PASSION
- to ‘make things right’
- to help others
=CHANGE
- Named projects
- Systemic
EXPERTS
- Doctors &nurses
- Executives
- Charities
- Insurance
+
Provide feedback on the ‘little/big’ things
• Talk to the duty nurse
• Say thank you and praise the good
• Complete the patient questionnaire
• Send follow-up email
Get involved/volunteer – Lydia’s Ludo: HUDERF
Sensory Garden: HUDERF: Opening June 2020
• Uncomfortable
• Undignified
• Loss of independence
• Loss of confidence
• De-humanising
• Stigmatising
• Isolating
• Encourages bedrest
• Awkward access
Be part of achieving real systemic change
Why does it matter?
There is an increased risk of:
- Falls - Incontinence - Lung infections
- Pressure sores - Thrombosis - Depression
Sources: ‘Kortebein et al, 2008 and ‘StayingActive While in Hospital’ report from Better Health, Victoria, Australia
10 days in bed ages muscles by 10 years for
those over 75 years old.
Up to 50% of older patients become
incontinent within 24 hours of admission.
!
!
Poorer clinical outcomes
Longer hospital stays
More care needed afterwards
Increased likelihood of re-hospitalisation
#endPJparalysis campaign Ann-Marie Riley RN
Deputy Chief Nurse
“We know that if patients stay in their
pyjamas or gowns for longer than they need
to, they have a higher risk of infection, lose
mobility, fitness and strength, and stay in
hospital longer.”
Professor Brian Dolan
RMN RGN
“Getting up, dressed and moving could
make the difference between going
home, or to a home.”
"But if we can help patients get back to their
normal routine as quickly as possible including
getting dressed, we can support a quicker
recovery, help patients maintain their
independence & get them home sooner.“
Developing our SolutionDESIGN
FUNCTIONEXPERIENCE
TECHNICAL
Comfortable and attractive clothing for patients
More than a patient; a person!
Owned by patients and worn as
personal clothing
Suitable for in- and out-patients &
home care
Won many awards.
Wonderful patient testimonials.
Available:
 online www.ingawellbeing.com
 selected patient-focused retailers
Media coverage
Real impact
Benefits of improved patient clothing
• Improved patient wellbeing –
mental; emotional and physical .
Early studies suggest patients go
home sooner.
• Enhanced reputation for high
quality patient care and experience.
• Improved nursing efficiency – less
time spent dressing patients; more
time available for other clinical and
patient care activities
• Faster and smoother medical
consultations
Together, we can improve the
patient experience!

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Improving patient wellbeing: how personal experiences can drive real change (EN)

  • 1. Improving patient wellbeing: how personal experiences can drive real change
  • 2. My unusual healthcare CV • Journalist • UK diplomat to the EU • Foundation executive • Fundraiser • Patient • Hospitalised in 3 countries • Married • Mother
  • 4.
  • 5. My not so unusual healthcare CV EXPERIENCE - as a patient - as a loved one - for 15 years - in 4 countries +PASSION - to ‘make things right’ - to help others =CHANGE - Named projects - Systemic EXPERTS - Doctors &nurses - Executives - Charities - Insurance +
  • 6. Provide feedback on the ‘little/big’ things • Talk to the duty nurse • Say thank you and praise the good • Complete the patient questionnaire • Send follow-up email
  • 7. Get involved/volunteer – Lydia’s Ludo: HUDERF
  • 8. Sensory Garden: HUDERF: Opening June 2020
  • 9. • Uncomfortable • Undignified • Loss of independence • Loss of confidence • De-humanising • Stigmatising • Isolating • Encourages bedrest • Awkward access Be part of achieving real systemic change
  • 10. Why does it matter? There is an increased risk of: - Falls - Incontinence - Lung infections - Pressure sores - Thrombosis - Depression Sources: ‘Kortebein et al, 2008 and ‘StayingActive While in Hospital’ report from Better Health, Victoria, Australia 10 days in bed ages muscles by 10 years for those over 75 years old. Up to 50% of older patients become incontinent within 24 hours of admission. ! ! Poorer clinical outcomes Longer hospital stays More care needed afterwards Increased likelihood of re-hospitalisation
  • 11. #endPJparalysis campaign Ann-Marie Riley RN Deputy Chief Nurse “We know that if patients stay in their pyjamas or gowns for longer than they need to, they have a higher risk of infection, lose mobility, fitness and strength, and stay in hospital longer.” Professor Brian Dolan RMN RGN “Getting up, dressed and moving could make the difference between going home, or to a home.” "But if we can help patients get back to their normal routine as quickly as possible including getting dressed, we can support a quicker recovery, help patients maintain their independence & get them home sooner.“
  • 13. Comfortable and attractive clothing for patients
  • 14.
  • 15. More than a patient; a person! Owned by patients and worn as personal clothing Suitable for in- and out-patients & home care Won many awards. Wonderful patient testimonials. Available:  online www.ingawellbeing.com  selected patient-focused retailers
  • 18. Benefits of improved patient clothing • Improved patient wellbeing – mental; emotional and physical . Early studies suggest patients go home sooner. • Enhanced reputation for high quality patient care and experience. • Improved nursing efficiency – less time spent dressing patients; more time available for other clinical and patient care activities • Faster and smoother medical consultations
  • 19. Together, we can improve the patient experience!

Editor's Notes

  1. INGA Wellbeing is named after my mother Inga. Diagnosed with ovarian cancer at 52 years old, I watched my proud, elegant mother lose not only her hair, but her dignity, self-confidence and enjoyment of others’ company. Cancer threatened to take her life, but the process of being treated for cancer was threatening to take everything that made her…well..her!
  2. Why does this matter? Too much Bedrest + Institutionalisation = De-conditioning Patients feel , behave, and become sicker! they move less eat less socialise less Become passive Lose confidence Feel depressed Well… if you feel exposed, are in your pyjamas, or it is awkward/uncomfortable to walk: you stay in bed! Patients who are hospitalised walk an average of fewer than 900 steps a day. And if you are over 75 and spend 10 days in hospital your muscles are aging by 10 years. Bedrest leads to decreased bone density, increased risk of bone fracture, greater risk of falling, more pressure sores and increased risk of infection, as well as reduced appetite. Patients’ breathing, bowel function, equilibrium are all negatively affected. And if you feel exposed/ in pyjamas: you decline visitors! An Australian Better health report about the effects of hospitalisation found that loneliness increases the likelihood of mortality by 26% But even if you want to get dressed in your own clothes – high street clothing – you find you need help …from nurses….strangers… and are not able to decide when you take a shower or go to bed, or to the loo. Again, the same report found that Up to 50% of older patients become incontinent within 24 hours of admission. So clothing…..the right clothing is vital! …
  3. Furthermore, we have found both the UK and Belgian media to be very receptive and have been delighted to get quite a bit of free coverage, including appearing on Kanaal Z news one evening.