Dr Miranda Davies, Research Analyst at the Nuffield Trust, presents on stroke survivor and carer outcomes using a self-report questionnaire.

1. © Nuffield Trust06 July 2015
Evaluating stroke survivor and carer
outcomes using a self-report questionnaire
Miranda Davies
Holly Dorning
Cono Ariti
Holly Holder
Martin Bardsley

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What is the peer support project?
- Training for volunteers and carers
- Training for stroke association staff
- Resources
- Growth and improvement in voluntary groups

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What were the outcomes of interest?
- Expected outcomes for stroke survivors and carers:
- Reduced social isolation
- Improved mental-wellbeing
- Increased self-management of stroke
- Increased confidence to participate in their local
community

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Why use a self-report questionnaire as an evaluation tool?
- Capture how the service has impacted on users health and
well-being
- Advantages compared to other evaluation approaches
- Evidence for commissioners to fund services

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Choosing the questionnaire measures
- Content: Is the measure specific to the outcome of interest?
- Validation: Is the measure well validated?
- Practical issues for use: e.g. length
- Use in context: Has the measure been used previously with
stroke survivors and carers?
- Contact with experts in the field: What is the experience of
experts in stroke research about the use of the specific measures
under consideration?

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The questionnaire measures
COutcome Questionnaire measure
Social isolation
The Stroke Impact scale -
‘Participation’ sub-scale
Mental wellbeing
The Short Warwick Edinburgh Mental
Wellbeing Scale (SWEMWBS)
Self-management
Southampton Stroke Self-Management
questionnaire (SSSMQ) - ‘Capacity’
and ‘Strategies’ sub-scales.
Confidence
Capturing the experience of carers
Adult Carer Quality of Life
Questionnaire (AC-QoL) - ‘Support for
Caring’, ‘Caring Stress’ and ‘Carer
Satisfaction’

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Design
- Questionnaire completed at two time points, 3-months apart
- n=100 at each time-point
- Capturing new beneficiaries across sites in the evaluation
areas and surveying existing users

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Evaluation design consideration
- Accessibility
• Images to support text
• Keep text minimal
• Keep text to the point
• Non-patronising
- Supporting resources: NIHR Clinical research network: Stroke
Resources for stroke researchers

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Accessible design example
You will complete two
questionnaires, one now and
one in three months
The second questionnaire is so we
can see if things change over time
The questionnaire will be sent in
the post to your home address

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Learning lessons
- Time taken to design the materials and pilot them
- Administration of questionnaire distribution
- Findings from early stages of data collection
- Response rate

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Summary and conclusions
- Data collection started in May. Final report due June 2016.
- Project legacy
- More information about the wider project on the
nuffieldtrust.org.uk ‘Project finder’

17. © Nuffield Trust06 July 2015
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© Nuffield Trust
miranda.davies@nuffieldtrust.org.uk
holly.dorning@nuffieldtrust.org.uk
cono.ariti@nuffieldtrust.org.uk
holly.holder@nuffieldtrust.org.uk
martin.bardsley@nuffieldtrust.org.uk