Welcome session presentation from the National Osteoporosis Society's conference 2012.

1. National Osteoporosis Society
Update 2012
Claire Severgnini
Chief Executive
Professor Terry O’Neill
Chair of the Clinical and Scientific Committee

2. • The only UK-wide charity dedicated to improving
the prevention, diagnosis and treatment of
osteoporosis and fragility fractures.
• Our vision is a future without fragility
fractures.
• Dependent on financial support from individual
donations, legacies, and membership. We do not
receive statutory funding.

3. Governance Structure
Board of Trustees
Senior Management
Team
Finance, General Appointments and Members and Clinical and
Purposes and Audit Governance Volunteers Scientific
Committee Committee Committee Committee
Osteoporosis Bone Densitometry Working groups incl:
Research Grants Conference Nutrition and Review Editorial
Committee Committee Lifestyle Forum Training Advisory ORPC, Vit D, FLS
Board Panel Standards
Clinical and Scientific Advisory Community

4. What We Do
Influence Policy
Support Health
Professionals
Support
Individuals

5. Influencing Policy
 Government guidance on and support for
fracture prevention across the UK
 NHS health reforms: indicators for fracture
prevention are included
 Seven year campaign: osteoporosis incentives
for primary care (Quality and Outcomes
Framework - QOF)
 NICE management and treatment guidelines

6. Quality and Outcomes Framework
"Osteoporosis affects three
generations in my family –
more should be done to
prevent this devastating My GP doesn’t understand the
disease and to help future effects of fractures caused by
generations to build stronger osteoporosis. I have lost five
bones." inches in height, my body has
changed and it has knocked
"Osteoporosis deserves the same my confidence."
attention as other long-term
conditions. More and more people
are living with fragile bones and
the government needs to take
action."
Delivering our messages to 10 Downing Street. Lord Black, Claire Severgnini, members
Anthea Franks, Val Napier, patron Lynn Faulds Wood and member David Brookfield

7. Osteoporosis Resources for Primary Care
www.osteoporosis-resources.org.uk
Clear, concise information
on all aspects of
osteoporosis management
How to implement
QOF, and much more
Keep updated by joining
our email list
Supported by

8. Supporting Service Development
Fracture Liaison Services
• Support implementation of national public
policy
• Demonstrate cost-effectiveness and clinical
effectiveness.
• A series of regional education meetings
• On-line resources: www.nos.org.uk/FLS
• Developing FLS Standards

9. Supporting You
• Osteoporosis Review
- Online clinical and scientific journal
• e:Bulletin
• Practical Guides and Position Statements
• NEW Osteoporosis Resources for Primary
Care
• NEW Allied Health Professional Network
• Clinical and Scientific Advisory Structure
• Clinical Training
– Bone densitometry
– IRMER
– Study days
• Osteoporosis and Bone Conference 2012
Reviewing areas of activity to ensure we are
providing what you need.

10. The future of the
Osteoporosis Conference
• In 2012 joined with the BRS and the Paget’s
Association to deliver an Osteoporosis and Bone
Conference to diversify the programme to respond to
the evolution of osteoporosis and bone
health, maximise delegate attendance and
commercial sponsorship
• Climate in which we have marketed, funded and
delivered the conference in 2012 has been tough
• Reviewing the objectives of the conference
• We want your views – survey monkey

11. Update – Future plans
•Osteoporosis Review
•Research
•Influence
•Guidelines / Position statements
•Advice

12. Osteoporosis Review

14. www.nos.org.uk

16. Research
• To date £2.9m awarded to over 100 projects
• In 2011 Grants were awarded to:
- Develop method for quantification of mechanical
loading in pre-menopausal women
- Effects of Obesity on Bone Structure and Strength
- Bone turnover and Vitamin D status in South Asian
and Caucasian women
- Impact of nutrition on bone health

17. Research
• 2012 Round - £250,000
• 2013 Round
• Young Scientist Prize
• Bursary Scheme 10 recipients
• Research Grants Committee – New Members

18. Research
Research Priorities Research Strategy
• Current treatment and
patient care
• Diagnosis and risk
assessment
• Mechanisms of disease /
prevention

20. Influence
• Quality Outcomes Framework
• Clinical Guideline 124 - Management Hip Fracture
• NICE Quality Standard Hip fracture

21. Management of Hip Fracture in Adults
Clinical Guideline 124
• Surgery
Timing /Analgesia
• Multidisciplinary care
Orthogeriatrics
• Hip fracture program
• Rehabilitation

22. NICE Quality Standard
Hip Fracture
• Describe what a high-quality service looks like
so organisations can improve quality and
achieve excellence.
• Not mandatory
• Hip Fracture Standard
- Patients assessed to identify falls risk
- Offered a bone health assessment to identify
future fracture risk

23. Assessing the Risk of Fragility
Fracture : Short Clinical Guideline
• ‘To produce a clinical guideline on the
risk assessment of fragility fractures in
people with or at risk of osteoporosis’.
• Consultation / Expected Launch August 8th

25. Outcomes Framework – 2012/13
i) Rate of emergency admissions
for fractured neck of femur
in persons > 65 years
ii) Rate of emergency
admissions for falls or falls
Injuries in persons
aged 65 and over.

26. Guidelines

27. Position Statements

28. Densitometry - In Progress
• Guidelines for the provision of a clinical bone
densitometry service
• Bone densitometry : A structure for UK
clinicians reporting DXA scans at the hip and
spine

29. Vitamin D and Bone Health
• How do we assess for vitamin D status?
• How do we treat & how do we monitor
response?
• Vitamin D & Bone Health : A Practical
Clinical Guideline for Patient Management
• Consultation / End 2012

30. Fracture Liaison Standards
• One in three non-hip fractures
receive treatment
• Working group standards for
fracture liaison services

32. Advice
• Long term adverse effects of Bisphosphonates
Osteonecrosis of the Jaw
Atypical femoral fractures
• Duration of Drug therapy

36. Advice
• Evidence based
• Clear
• Balanced
• Consistent

37. Advisory Structure
• Clinical Scientific Committee
• Broader network

38. Influence Policy
Support Health
Professionals
Support
Individuals