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Bereavement Care
ISSN: 0268-2621 (Print) 1944-8279 (Online) Journal homepage: https://www.tandfonline.com/loi/rber20
Bereavement theory: recent developments in our
understanding of grief and bereavement
Christopher Hall (Director)
To cite this article: Christopher Hall (Director) (2014) Bereavement theory: recent developments
in our understanding of grief and bereavement, Bereavement Care, 33:1, 7-12, DOI:
10.1080/02682621.2014.902610
To link to this article: https://doi.org/10.1080/02682621.2014.902610
Published online: 09 May 2014.
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ARTIcLES 7Volume 33 No 1
©2014 Cruse Bereavement Care DOI: 10.1080/02682621.2014.902610
Introduction
T
he field of grief and bereavement has undergone a
transformational change in terms of how the human
experience of loss is understood and how the goals
and outcomes of grief therapy are conceptualised. Long-
held views about the grief experience have been discarded,
with research evidence failing to support popular notions
which construe grief as the navigation of a predictable
emotional trajectory, leading from distress to ‘recovery’.
We have also witnessed a shift away from the idea that
successful grieving requires ‘letting go’ of the deceased, and
a move towards a recognition of the potentially healthy
role of maintaining continued bonds with the deceased.
Recent research evidence has also failed to support
popular notions that grieving is necessarily associated with
depression, anxiety and PTSD or that a complex process
of ‘working through’ or engagement with ‘grief work’ is
critical to recovery. The absence of grief is no longer seen,
by definition, as pathological.
Loss and grief are fundamental to human life. Grief can
be defined as the response to the loss in all of its totality
– including its physical, emotional, cognitive, behavioural
and spiritual manifestations – and as a natural and normal
reaction to loss. Put simply, grief is the price we pay for
love, and a natural consequence of forming emotional
bonds to people, projects and possessions. All that we value
we will someday lose. Life’s most grievous losses disconnect
us from our sense of who we are and can set in train an
effortful process of not only re-learning ourselves but also
the world. For many the desire to ‘make sense’ and ‘find
meaning’ in the wake of loss is central. Neimeyer and Sands
(2011) have emphasised that the reconstruction of meaning
represents a critical issue, if not the critical issue in grief.
In recent decades we have seen a broadening of attention
from a traditional focus on emotional consequences, to one
that also considers cognitive, social, cultural and spiritual
dimensions to the study of grief. There is also a growing
awareness that losses can also provide the possibility of
life-enhancing ‘post-traumatic growth’ as one integrates the
lessons of loss and resilience. Personal growth following
even seismic experiences of loss is common.
How we adapt to these deprivations shapes who
we become. While recognising that grief reactions are
Bereavement theory: Recent
developments in our understanding
of grief and bereavement
Christopher Hall MA, BEd, Cert IV TAE,
Grad Dip Add & Child Psych, MAPS, FAIM
Director, Australian Centre for Grief and Bereavement
c.hall@grief.org.au
Abstract: In recent decades research evidence on the experience of grief has led to a broadening of attention from the
traditional focus on an emotional journey from distress to ‘recovery’. This article looks at how early stage theories of grief
came to be rejected and examines more recent theories which also consider the cognitive, social, cultural and spiritual
dimensions of grief and loss. It goes on to highlight emerging trends in bereavement theory, potential complications of
grief, and the evidence for the efficacy of grief interventions.
Keywords: bereavement theory, stages of grief, complicated grief, grief interventions
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universal, they are shaped by the reciprocal impact of loss
on families, organisations and broader cultural groups.
This article examines a number of elements common to a
new approach to our understanding of grief and loss and
highlights emerging trends.
The rejection of stages and phases of grief
The first major theoretical contribution on grief was
provided by Freud in his paper Mourning and melancholia
(1917/1957), and profoundly shaped professional
intervention for nearly half a century. For Freud, ‘grief
work’ involved a process of breaking the ties that bound
the survivor to the deceased. This psychic rearrangement
involved three elements: (1) freeing the bereaved from
bondage to the deceased; (2) readjustment to new life
circumstances without the deceased; and (3) building of
new relationships. Freud believed that this separation
required the energetic process of acknowledging and
expressing painful emotions such as guilt and anger. The
view was held that if the bereaved failed to engage with
or complete their grief work, the grief process would
become complicated and increase the risk of mental and
physical illness and compromise recovery. The grief work
model stresses the importance of ‘moving on’ as quickly
as possible to return to a ‘normal’ level of functioning. It
is ironic that Freud maintained that mourning ends within
a relatively short time; however, as a bereaved father he
wrote about his strong attachment to his daughter some 30
years after her death. In his private correspondence he was
acutely aware of the long-term nature of grief and a parent’s
ongoing connection to the dead child (Shapiro, 2001).
Put simply, grief is the price we
pay for love
Several later grief theorists conceptualised grief as proceeding
along a series of predictable stages, phases and tasks (Kübler-
Ross, 1969; Bowlby, 1980; Parkes & Weiss, 1983). Perhaps
the best-known model is that postulated by Kübler-Ross in
her text On death and dying. Based upon her clinical work
with the dying, her model was one of anticipatory grief;
how an individual responds to a terminal diagnosis. Over
time this model transformed into the five stages of grief –
(1) shock and denial; (2) anger, resentment and guilt; (3)
bargaining; (4) depression; and (5) acceptance – and was
subsequently applied to both the bereavement experience and
many other forms of change. The model implied that failure
to complete any of these stages would result in a variety of
complications. Kübler-Ross’s perspective, although capturing
the imagination of both lay and professional communities,
has been widely criticised for suggesting that individuals must
move through these stages, and has been empirically rejected.
Stage theories have a certain seductive appeal – they
bring a sense of conceptual order to a complex process
and offer the emotional promised land of ‘recovery’ and
‘closure’. However they are incapable of capturing the
complexity, diversity and idiosyncratic quality of the
grieving experience. Stage models do not address the
multiplicity of physical, psychological, social and spiritual
needs experienced by bereaved people, their families and
intimate networks. Since the birth of these theories, the
notion of stages of grief has become deeply ingrained in our
cultural and professional beliefs about loss. These models
of grieving, albeit without any credible evidence base, have
been routinely taught as part of the curriculum in medical
schools and nursing programs (Downe-Wamboldt &
Tamlyn, 1997).
Stage models do not address
the multiplicity of physical,
psychological, social and spiritual
needs experienced by bereaved
people
Multiple trajectories through grief
A more recent prospective study of spousal bereavement
identified the most common trajectories of adjustment to
loss (Bonanno et al, 2002) and made the compelling finding
that resilience is the most common pattern and that delayed
grief reactions are rare. Five distinct trajectories covered the
outcome patterns of most participants: (1) common grief or
recovery (11%); (2) stable low distress or resilience (46%);
(3) depression followed by improvement (10%); (4) chronic
grief (16%); and (5) chronic depression (8%). Bonanno
identified, within the ‘depression followed by improvement’
group, individuals who improved in functioning after the
death of their spouse. This was most prevalent in those
who experienced relief following a period of considerable
caregiver burden or who suffered oppressive relationships
(Bonanno et al, 2004).
In Bonanno’s research, those who experienced the
highest levels of distress tended to exhibit high levels of
personal dependency prior to the death of their spouse. For
those not depressed before the loss, dependency was an
important predictor of grief reactions. A lack of expectation
or psychological preparation for the loss also contributed
strongly to increased distress. The distinction between
chronic grief and chronic depression, which this study
illuminates, is of critical importance. Relationship conflict
was predictive of chronic depression but not chronic grief.
Chronic grievers reported greater processing of the loss and
searching for meaning compared to chronically depressed
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individuals. Both groups evidenced elevated pre-loss
dependency. What is clear is that there is no single set of
stages or tasks in adapting to loss, but instead qualitatively
distinct paths through bereavement, which calls for a
closer understanding of both patterns of complication and
resilience.
The early stage theories of grief became unpopular
because they were considered to be too rigid. There are,
however, new models that succeed in identifying definite
patterns and relations in the complex and idiosyncratic grief
experience. Phasal conceptualisations have been enormously
influential. Two of the most comprehensive and influential
grief theories are the Dual-Process Model of Stroebe and
Schut (1999) and the Task-Based Model developed by
Worden (2008). These models serve both counsellors and
clients by offering frameworks that guide interventions and
enhance clients’ self-awareness and self-efficacy.
The Dual Process Model of Grief (Stroebe & Schut,
1999), developed from a cognitive stress perspective,
describes grief as a process of oscillation between two
contrasting modes of functioning. In the ‘loss orientation’
the griever engages in emotion-focussed coping, exploring
and expressing the range of emotional responses
associated with the loss. At other times, in the ‘restoration
orientation’, the griever engages with problem-focussed
coping and is required to focus on the many external
adjustments required by the loss, including diversion from it
and attention to ongoing life demands. The model suggests
that the focus of coping may differ from one moment to
another, from one individual to another, and from one
cultural group to another.
Worden (2008) suggests that grieving should be
considered as an active process that involves engagement
wwith four tasks: (1) to accept the reality of the loss; (2) to
process the pain of grief; (3) to adjust to a world without
the deceased (including both internal, external and spiritual
adjustments); and (4) to find an enduring connection with
the deceased in the midst of embarking on a new life.
Worden also identifies seven determining factors that
are critical to appreciate in order to understand the client’s
experience. These include: (1) who the person who died was;
(2) the nature of the attachment to the deceased; (3) how
the person died; (4) historical antecedents; (5) personality
variables; (6) social mediators; and (7) concurrent stressors.
These determinants include many of the risk and protective
factors identified by the research literature and provide an
important context for appreciating the idiosyncratic nature
of the grief experience. Issues such as the strength and nature
of the attachment to the deceased, the survivor’s attachment
style and the degree of conflict and ambivalence with the
deceased are important considerations. Death-related factors,
such as physical proximity, levels of violence or trauma, or a
death where a body is not recovered, all can pose significant
challenges for the bereaved.
A stigmatising death, such as that by suicide or as a
result of autoerotic asphyxiation, can ‘disenfranchise’ the
griever (Doka, 2002) and complicate the bereavement
experience. Disenfranchised grief refers to grief that persons
experience when they incur a loss that is not or cannot
be openly acknowledged, publicly mourned or socially
supported. The concept of disenfranchised grief recognises
that societies have sets of norms – in effect, ‘grieving rules’
– that attempt to specify who, when, where, how, how long
and for whom people should grieve. Disenfranchised grief
can be a result of the circumstances of the death, but can
also extend to the relationship not being socially recognised,
the griever being excluded (such as a child), or the way the
individual expresses their grief, particularly with regard to
the level of emotional distress which is publicly displayed.
Those who help bereaved people must recognise the
unique reactions, needs and challenges as individuals and
their families cope with loss. Subscription to a stage theory
can lead to a failure of empathy, where we fail to listen to
and address the needs of bereaved people.
continuing bonds
There has been a movement away from the idea that
successful grieving requires ‘letting go’, with writers such
as Klass, Silverman and Nickman (1996) offering an
alternate approach where they argue that after a death
bonds with the deceased do not necessarily have to be
severed, and that there is a potentially healthy role for
maintaining continuing bonds with the deceased. This idea
represents recognition that death ends a life, not necessarily
a relationship. Rather than ‘saying goodbye’ or seeking
closure, there exists the possibility of the deceased being
both present and absent.
There has been a movement
away from the idea that
successful grieving requires
‘letting go’
The development of this bond is conscious, dynamic
and changing. The expression of this continuing bond can
be found in a variety of forms. The deceased may be seen
as a role model and the bereaved may turn to the deceased
for guidance or to assist them in clarifying values. The
relationship with the deceased may be developed by talking
to the deceased or by re-locating the deceased in heaven,
inside themselves or joined with others whom they pre-
deceased. The bereaved may experience the deceased in
their dreams, by visiting the grave, feeling the presence of
the deceased or through participating in rituals or linking
objects. Many people build the connection out of the fabric
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of daily life. Frequently this continuing bond can be co-
created with others. A number of studies have found that
approximately half of the bereaved population experience
the sense of presence of the deceased (Datson & Marwit,
1997) although the true incidence is thought to be much
higher, given a great reluctance among the bereaved to
disclose its occurrence to clinicians for fear of ridicule or
being thought of as ‘mad or stupid’.
Ongoing research is still examining when continuing
bonds are helpful, and when they are not. Continuing
bonds must always be considered within a cultural context
and there needs to be assessment of the ways the bond
influences adaptation to the loss. Recent literature has
attempted to distinguish the conditions under which
it is adaptive from those where it is maladaptive. Field
(2006) identifies a type of continuing bonds expression
that represents failure to integrate the loss due to extreme
avoidance in processing the implications of the loss. In
keeping with Bowlby’s (1980) early work, growing evidence
suggests that individuals who experience insecure styles
of attachment are more prone to chronic grief trajectories
(Bonanno, Wortman & Nesse, 2004), contributing to
maladaptive rather than adaptive forms of continuing
bonds with the deceased.
In essence, continuing bonds expressions that are
indicative of unresolved loss imply disbelief that the other
is dead. An important factor distinguishing adaptive versus
maladaptive continuing bonds expression is whether the
given expression reflects an attempt to maintain a more
concrete tie that entails failure to relinquish the goal to
regain physical proximity to the deceased. This can be
compared to a more internalised, symbolically-based
connection, which suggests a greater acceptance of the
death.
Meaning reconstruction following loss
In stark contrast to earlier modernist or positivist views
which focus on breaking bonds and universal symptoms
and stages of adaptation to loss, the postmodern social
constructionist approach views continuing bonds as
resources for enriched functioning and the oscillation
between avoiding and engaging with grief work as
fundamental to grieving (Neimeyer, 2001). These later
models see grieving as a process of reconstructing a world
of meaning that has been challenged by loss. The experience
of loss, particularly if it is sudden and unexpected, can
interfere with a bereaved person’s ability to rebuild his
or her assumptive world, particularly when the death
assaults the survivor’s notion world that life is predictable
or that the universe is benign. A bereaved individual
may have no mental constructions to help them with the
meaning-making process to incorporate the loss into a new
worldview. When people indicated that they could not
make sense of the loss they often indicated that the death
seemed unfair, unjust or random. If the loss is consistent
with existing worldviews then making sense does not
appear to represent a significant coping issue.
Across a variety of different losses, a body of research
indicates that the failure to find meaning following the
loss, especially in terms of ‘making sense’ of the death
itself, is associated with higher levels of complicated grief
symptoms. An intense and protracted search for meaning
is likely to accompany losses that are unexpected and
premature, as in the death of a child, and that a ruminative
preoccupation with the loss is an indicator of long-term
depression, anxiety, anger and grief. A failure to find
spiritual or secular meaning in the loss accounts for nearly
all of the heightened symptoms of complicated grief
following suicide, homicide and fatal accident, as opposed
to natural anticipated deaths (eg. cancer) and even natural
sudden deaths (eg. heart attack).
Most definitions of meaning encompass two concepts:
(1) making sense of the loss (eg. the death had been
predictable in some way; it was consistent with the
caregiver’s perspective on life; or religious or spiritual
beliefs provide meaning); and (2) finding benefits from the
loss (eg. it led to a growth in character, a gain in perspective
and strengthening of relationships). Data suggests that
sense-making and benefit-finding are two distinct processes
and represent two distinguishable psychological issues for
the bereaved person. It is not so much making sense of the
loss that alleviates distress, as it is becoming less interested
in the issue. The finding of benefit on the other hand grows
stronger with time (Davis, Nolen-Hoeksema & Larson,
1998).
Meaning-making is a highly iterative and interactive
process and the significance of a loss can be affirmed or
disconfirmed, congruent or discrepant, and supported
or contested within families and other reference groups
(Nadeau, 1998).
complications of bereavement
Nearly a century ago, Freud (1917/1957) wrote:
Although mourning involves grave departures from
the normal attitude toward life, it never occurs to us to
regard it as a pathological condition and to refer it to a
medical treatment. We rely on its being overcome after a
certain lapse of time, and we look upon any interference
with it as useless or even harmful. (p 243)
Research has proved Freud largely correct, although not
completely. It is now clear that grief, at least for a subset
of 10 to 15% of bereaved people, can be intense and
chronic for many months or years. Individuals bereaved as
a result of deaths that are unexpected, violent or untimely
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(eg. the death of a child) tend to be over-represented in
this cohort. This condition, termed complicated grief (CG)
or more recently prolonged grief disorder (PGD), has
received increasing attention in both the psychiatric and
psychological literatures over the past decade.
Most people ultimately adapt well to bereavement,
typically regaining their psychological equilibrium after
some weeks or months of acute mourning, although they
frequently will continue to miss their loved one for a
considerably longer period of time (Bonanno et al, 2002).
Studies show that for most people grief intensity is fairly
low after a period of about six months. This does not imply
that grief is completed or resolved, but rather that it has
become better integrated, and no longer stands in the way
of ongoing life. Acute grief is a normal response to loss,
with symptoms that should not be pathologised.
Prolonged grief disorder and the DSM-V
In the late 1990s two research teams independently
published a set of diagnostic criteria to assess CG
(Horowitz et al, 1997; Prigerson et al, 1999). Recently,
these two diagnostic entities were integrated and the
concept of CG was renamed as prolonged grief disorder
(PGD). This incapacitating disorder is defined as a
combination of separation distress and cognitive, emotional
and behavioural symptoms that can develop after the death
of a significant other. The symptoms must last for at least
six months and cause significant impairment in social,
occupational and other important areas of functioning.
There was significant support for including the disorder
of complicated grief or prolonged grief disorder in the fifth
edition of The Diagnostic and Statistical Manual of Mental
Disorders, the American Psychiatric Association’s (APA)
classification and diagnostic tool (widely referred to as an
authority for psychiatric diagnosis) (APA, 2013). Recent
findings confirm the proposition that professional assistance
is indicated for only this subgroup of the bereaved – those
who show CG or PGD reactions. PGD symptoms have been
shown to be different from other symptoms and disorders,
such as normal grief reactions, mood disorders, and
anxiety disorders including posttraumatic stress disorder.
PGD is associated with several mental and physical health
problems, such as sleep disruption, substance abuse,
depression, compromised immune function, hypertension,
cardiac problems, cancer, suicide, and work and social
impairment. Bereaved individuals in this cohort report
higher utilisation of medical services and more frequent
hospitalisation than people with similar losses whose grief
is less profound and extended, and these effects have been
observed for as long as four to nine years after the death.
These negative outcomes emerge even when levels of
depression and anxiety are taken into account, and support
the distinctiveness of a prolonged grief diagnosis.
Although prolonged grief disorder failed to be included
in the DSM-5 the most recent edition has included
Persistent Complex Bereavement Disorder (PCBD) as a
condition that merits further study. The criteria for PCBD
has been established to encourage future research and is not
designed for clinical use.
It is essential that we do not consider bereavement
complications simply as a re-labelling of conventional
psychiatric conditions. Bereavement is a severe stressor that
can trigger the onset of both physical and mental disorders
such as major depression, posttraumatic stress disorder,
anxiety and sleep disorders. These co-morbidities require
identification, clinical attention and treatment.
grief interventions
There is sufficient evidence to show that intervention is
not effective for the bereaved in general, but is effective for
those at high risk or for those who are already experiencing
complications in their grief. Unsolicited help based on
routine referral and delivered shortly after loss is not likely
to be effective. Schut and Stroebe (2005) summarise their
review of the literature with the conclusion that:
Routine intervention for bereavement has not
received support from quantitative evaluations of its
effectiveness and is therefore not empirically based.
Outreach strategies are not advised, and even provision
of intervention for those who believe that they need
it and who request it should be carefully evaluated.
Intervention soon after bereavement may interfere
with ‘natural’ grieving processes. Intervention is more
effective for those with more complicated forms of grief.
(p. 140)
The general pattern emerging from this, and other reviews,
is that the more complicated the grief process, the better the
chances of bereavement interventions leading to positive
results.
Recent research indicates that a specially designed
complicated grief therapy outperformed a more general
psychotherapy for carefully diagnosed bereaved people,
and was particularly helpful for those whose losses were
traumatic (Shear, 2006). Another study found that a series
of tailored writing assignments delivered over the internet
that helped people express and explore their stories of loss
significantly reduced symptoms of complicated grief relative
to a no-treatment control group (Wagner, Knaevelsrud
& Maercker, 2006). On the other hand, it appears that
antidepressant medication does little to address the core
symptoms of bereavement complication, even when it
usefully reduces symptoms of depression (Pasternak et
al, 1991). Recent treatment interventions for CG have
been designed more adequately and have proved to be
efficacious.
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A large body of research has supported the value of
grief counselling as long as clinicians undertake careful
assessment and interventions are carefully tailored.
Because grief is a highly individualised experience, the
most effective grief support offers a range of options
including online support, bibliotherapy, individual
counselling, group support, community support, rituals
and psycho-educational programs. There are a wide
range of publications which provide detailed information
on clinical interventions from constructivist (Neimeyer,
2001), cognitive (Malkinson, 2007) and family systems
perspectives (Nadeau, 1998; Kissane & Bloch, 2002
Kissane & Parnes, 2014). Neimeyer (2013) provides
comprehensive details on a range of bereavement
interventions that are drawn from a range of theoretical
perspectives.
conclusion
It is clear that clinical research has expanded our
understanding of the distinctive symptoms, risk factors,
psychological processes and outcomes of bereavement,
which has contributed to more appropriate interventions
for the bereaved. No ‘one-size-fits-all’ model or approach to
grief is justifiable. Any interventions must be tailored to the
uniqueness of the person, relationship and circumstances
that characterise a client at a particular point in time as
they grieve a specific loss. If we define grief in a broader
perspective, and move beyond the experience of death, it is
clear that grief is the substrate for much of what confronts
practitioners in the field of the helping professions. 
This article is an updated version of Beyond Kübler-
Ross: Recent developments in our understanding of grief
and bereavement published in InPsych, December 2011.
It appears here with the permission of the Australian
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REcENT DEvELOPMENTS IN OuR uNDERSTANDINg OF gRIEF AND bEREAvEMENT
rBER Issue 33_1 TEXT.indd 12 02/05/2014 09:50:33

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Bereavement Theory Recent Developments in our understanding of grief and bereavement

  • 1. Full Terms & Conditions of access and use can be found at https://www.tandfonline.com/action/journalInformation?journalCode=rber20 Bereavement Care ISSN: 0268-2621 (Print) 1944-8279 (Online) Journal homepage: https://www.tandfonline.com/loi/rber20 Bereavement theory: recent developments in our understanding of grief and bereavement Christopher Hall (Director) To cite this article: Christopher Hall (Director) (2014) Bereavement theory: recent developments in our understanding of grief and bereavement, Bereavement Care, 33:1, 7-12, DOI: 10.1080/02682621.2014.902610 To link to this article: https://doi.org/10.1080/02682621.2014.902610 Published online: 09 May 2014. Submit your article to this journal Article views: 11794 View related articles View Crossmark data Citing articles: 21 View citing articles
  • 2. ARTIcLES 7Volume 33 No 1 ©2014 Cruse Bereavement Care DOI: 10.1080/02682621.2014.902610 Introduction T he field of grief and bereavement has undergone a transformational change in terms of how the human experience of loss is understood and how the goals and outcomes of grief therapy are conceptualised. Long- held views about the grief experience have been discarded, with research evidence failing to support popular notions which construe grief as the navigation of a predictable emotional trajectory, leading from distress to ‘recovery’. We have also witnessed a shift away from the idea that successful grieving requires ‘letting go’ of the deceased, and a move towards a recognition of the potentially healthy role of maintaining continued bonds with the deceased. Recent research evidence has also failed to support popular notions that grieving is necessarily associated with depression, anxiety and PTSD or that a complex process of ‘working through’ or engagement with ‘grief work’ is critical to recovery. The absence of grief is no longer seen, by definition, as pathological. Loss and grief are fundamental to human life. Grief can be defined as the response to the loss in all of its totality – including its physical, emotional, cognitive, behavioural and spiritual manifestations – and as a natural and normal reaction to loss. Put simply, grief is the price we pay for love, and a natural consequence of forming emotional bonds to people, projects and possessions. All that we value we will someday lose. Life’s most grievous losses disconnect us from our sense of who we are and can set in train an effortful process of not only re-learning ourselves but also the world. For many the desire to ‘make sense’ and ‘find meaning’ in the wake of loss is central. Neimeyer and Sands (2011) have emphasised that the reconstruction of meaning represents a critical issue, if not the critical issue in grief. In recent decades we have seen a broadening of attention from a traditional focus on emotional consequences, to one that also considers cognitive, social, cultural and spiritual dimensions to the study of grief. There is also a growing awareness that losses can also provide the possibility of life-enhancing ‘post-traumatic growth’ as one integrates the lessons of loss and resilience. Personal growth following even seismic experiences of loss is common. How we adapt to these deprivations shapes who we become. While recognising that grief reactions are Bereavement theory: Recent developments in our understanding of grief and bereavement Christopher Hall MA, BEd, Cert IV TAE, Grad Dip Add & Child Psych, MAPS, FAIM Director, Australian Centre for Grief and Bereavement c.hall@grief.org.au Abstract: In recent decades research evidence on the experience of grief has led to a broadening of attention from the traditional focus on an emotional journey from distress to ‘recovery’. This article looks at how early stage theories of grief came to be rejected and examines more recent theories which also consider the cognitive, social, cultural and spiritual dimensions of grief and loss. It goes on to highlight emerging trends in bereavement theory, potential complications of grief, and the evidence for the efficacy of grief interventions. Keywords: bereavement theory, stages of grief, complicated grief, grief interventions rBER Issue 33_1 TEXT.indd 7 02/05/2014 09:50:32
  • 3. 8 BereavementCareREcENT DEvELOPMENTS IN OuR uNDERSTANDINg OF gRIEF AND bEREAvEMENT ©2014 Cruse Bereavement Care universal, they are shaped by the reciprocal impact of loss on families, organisations and broader cultural groups. This article examines a number of elements common to a new approach to our understanding of grief and loss and highlights emerging trends. The rejection of stages and phases of grief The first major theoretical contribution on grief was provided by Freud in his paper Mourning and melancholia (1917/1957), and profoundly shaped professional intervention for nearly half a century. For Freud, ‘grief work’ involved a process of breaking the ties that bound the survivor to the deceased. This psychic rearrangement involved three elements: (1) freeing the bereaved from bondage to the deceased; (2) readjustment to new life circumstances without the deceased; and (3) building of new relationships. Freud believed that this separation required the energetic process of acknowledging and expressing painful emotions such as guilt and anger. The view was held that if the bereaved failed to engage with or complete their grief work, the grief process would become complicated and increase the risk of mental and physical illness and compromise recovery. The grief work model stresses the importance of ‘moving on’ as quickly as possible to return to a ‘normal’ level of functioning. It is ironic that Freud maintained that mourning ends within a relatively short time; however, as a bereaved father he wrote about his strong attachment to his daughter some 30 years after her death. In his private correspondence he was acutely aware of the long-term nature of grief and a parent’s ongoing connection to the dead child (Shapiro, 2001). Put simply, grief is the price we pay for love Several later grief theorists conceptualised grief as proceeding along a series of predictable stages, phases and tasks (Kübler- Ross, 1969; Bowlby, 1980; Parkes & Weiss, 1983). Perhaps the best-known model is that postulated by Kübler-Ross in her text On death and dying. Based upon her clinical work with the dying, her model was one of anticipatory grief; how an individual responds to a terminal diagnosis. Over time this model transformed into the five stages of grief – (1) shock and denial; (2) anger, resentment and guilt; (3) bargaining; (4) depression; and (5) acceptance – and was subsequently applied to both the bereavement experience and many other forms of change. The model implied that failure to complete any of these stages would result in a variety of complications. Kübler-Ross’s perspective, although capturing the imagination of both lay and professional communities, has been widely criticised for suggesting that individuals must move through these stages, and has been empirically rejected. Stage theories have a certain seductive appeal – they bring a sense of conceptual order to a complex process and offer the emotional promised land of ‘recovery’ and ‘closure’. However they are incapable of capturing the complexity, diversity and idiosyncratic quality of the grieving experience. Stage models do not address the multiplicity of physical, psychological, social and spiritual needs experienced by bereaved people, their families and intimate networks. Since the birth of these theories, the notion of stages of grief has become deeply ingrained in our cultural and professional beliefs about loss. These models of grieving, albeit without any credible evidence base, have been routinely taught as part of the curriculum in medical schools and nursing programs (Downe-Wamboldt & Tamlyn, 1997). Stage models do not address the multiplicity of physical, psychological, social and spiritual needs experienced by bereaved people Multiple trajectories through grief A more recent prospective study of spousal bereavement identified the most common trajectories of adjustment to loss (Bonanno et al, 2002) and made the compelling finding that resilience is the most common pattern and that delayed grief reactions are rare. Five distinct trajectories covered the outcome patterns of most participants: (1) common grief or recovery (11%); (2) stable low distress or resilience (46%); (3) depression followed by improvement (10%); (4) chronic grief (16%); and (5) chronic depression (8%). Bonanno identified, within the ‘depression followed by improvement’ group, individuals who improved in functioning after the death of their spouse. This was most prevalent in those who experienced relief following a period of considerable caregiver burden or who suffered oppressive relationships (Bonanno et al, 2004). In Bonanno’s research, those who experienced the highest levels of distress tended to exhibit high levels of personal dependency prior to the death of their spouse. For those not depressed before the loss, dependency was an important predictor of grief reactions. A lack of expectation or psychological preparation for the loss also contributed strongly to increased distress. The distinction between chronic grief and chronic depression, which this study illuminates, is of critical importance. Relationship conflict was predictive of chronic depression but not chronic grief. 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  • 4. 9Volume 33 No 1 ©2014 Cruse Bereavement Care individuals. Both groups evidenced elevated pre-loss dependency. What is clear is that there is no single set of stages or tasks in adapting to loss, but instead qualitatively distinct paths through bereavement, which calls for a closer understanding of both patterns of complication and resilience. The early stage theories of grief became unpopular because they were considered to be too rigid. There are, however, new models that succeed in identifying definite patterns and relations in the complex and idiosyncratic grief experience. Phasal conceptualisations have been enormously influential. Two of the most comprehensive and influential grief theories are the Dual-Process Model of Stroebe and Schut (1999) and the Task-Based Model developed by Worden (2008). These models serve both counsellors and clients by offering frameworks that guide interventions and enhance clients’ self-awareness and self-efficacy. The Dual Process Model of Grief (Stroebe & Schut, 1999), developed from a cognitive stress perspective, describes grief as a process of oscillation between two contrasting modes of functioning. In the ‘loss orientation’ the griever engages in emotion-focussed coping, exploring and expressing the range of emotional responses associated with the loss. At other times, in the ‘restoration orientation’, the griever engages with problem-focussed coping and is required to focus on the many external adjustments required by the loss, including diversion from it and attention to ongoing life demands. The model suggests that the focus of coping may differ from one moment to another, from one individual to another, and from one cultural group to another. Worden (2008) suggests that grieving should be considered as an active process that involves engagement wwith four tasks: (1) to accept the reality of the loss; (2) to process the pain of grief; (3) to adjust to a world without the deceased (including both internal, external and spiritual adjustments); and (4) to find an enduring connection with the deceased in the midst of embarking on a new life. Worden also identifies seven determining factors that are critical to appreciate in order to understand the client’s experience. These include: (1) who the person who died was; (2) the nature of the attachment to the deceased; (3) how the person died; (4) historical antecedents; (5) personality variables; (6) social mediators; and (7) concurrent stressors. These determinants include many of the risk and protective factors identified by the research literature and provide an important context for appreciating the idiosyncratic nature of the grief experience. Issues such as the strength and nature of the attachment to the deceased, the survivor’s attachment style and the degree of conflict and ambivalence with the deceased are important considerations. Death-related factors, such as physical proximity, levels of violence or trauma, or a death where a body is not recovered, all can pose significant challenges for the bereaved. A stigmatising death, such as that by suicide or as a result of autoerotic asphyxiation, can ‘disenfranchise’ the griever (Doka, 2002) and complicate the bereavement experience. Disenfranchised grief refers to grief that persons experience when they incur a loss that is not or cannot be openly acknowledged, publicly mourned or socially supported. The concept of disenfranchised grief recognises that societies have sets of norms – in effect, ‘grieving rules’ – that attempt to specify who, when, where, how, how long and for whom people should grieve. Disenfranchised grief can be a result of the circumstances of the death, but can also extend to the relationship not being socially recognised, the griever being excluded (such as a child), or the way the individual expresses their grief, particularly with regard to the level of emotional distress which is publicly displayed. Those who help bereaved people must recognise the unique reactions, needs and challenges as individuals and their families cope with loss. Subscription to a stage theory can lead to a failure of empathy, where we fail to listen to and address the needs of bereaved people. continuing bonds There has been a movement away from the idea that successful grieving requires ‘letting go’, with writers such as Klass, Silverman and Nickman (1996) offering an alternate approach where they argue that after a death bonds with the deceased do not necessarily have to be severed, and that there is a potentially healthy role for maintaining continuing bonds with the deceased. This idea represents recognition that death ends a life, not necessarily a relationship. Rather than ‘saying goodbye’ or seeking closure, there exists the possibility of the deceased being both present and absent. There has been a movement away from the idea that successful grieving requires ‘letting go’ The development of this bond is conscious, dynamic and changing. The expression of this continuing bond can be found in a variety of forms. The deceased may be seen as a role model and the bereaved may turn to the deceased for guidance or to assist them in clarifying values. The relationship with the deceased may be developed by talking to the deceased or by re-locating the deceased in heaven, inside themselves or joined with others whom they pre- deceased. The bereaved may experience the deceased in their dreams, by visiting the grave, feeling the presence of the deceased or through participating in rituals or linking objects. 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  • 5. BereavementCareREcENT DEvELOPMENTS IN OuR uNDERSTANDINg OF gRIEF AND bEREAvEMENT10 ©2014 Cruse Bereavement Care of daily life. Frequently this continuing bond can be co- created with others. A number of studies have found that approximately half of the bereaved population experience the sense of presence of the deceased (Datson & Marwit, 1997) although the true incidence is thought to be much higher, given a great reluctance among the bereaved to disclose its occurrence to clinicians for fear of ridicule or being thought of as ‘mad or stupid’. Ongoing research is still examining when continuing bonds are helpful, and when they are not. Continuing bonds must always be considered within a cultural context and there needs to be assessment of the ways the bond influences adaptation to the loss. Recent literature has attempted to distinguish the conditions under which it is adaptive from those where it is maladaptive. Field (2006) identifies a type of continuing bonds expression that represents failure to integrate the loss due to extreme avoidance in processing the implications of the loss. In keeping with Bowlby’s (1980) early work, growing evidence suggests that individuals who experience insecure styles of attachment are more prone to chronic grief trajectories (Bonanno, Wortman & Nesse, 2004), contributing to maladaptive rather than adaptive forms of continuing bonds with the deceased. In essence, continuing bonds expressions that are indicative of unresolved loss imply disbelief that the other is dead. An important factor distinguishing adaptive versus maladaptive continuing bonds expression is whether the given expression reflects an attempt to maintain a more concrete tie that entails failure to relinquish the goal to regain physical proximity to the deceased. This can be compared to a more internalised, symbolically-based connection, which suggests a greater acceptance of the death. Meaning reconstruction following loss In stark contrast to earlier modernist or positivist views which focus on breaking bonds and universal symptoms and stages of adaptation to loss, the postmodern social constructionist approach views continuing bonds as resources for enriched functioning and the oscillation between avoiding and engaging with grief work as fundamental to grieving (Neimeyer, 2001). These later models see grieving as a process of reconstructing a world of meaning that has been challenged by loss. The experience of loss, particularly if it is sudden and unexpected, can interfere with a bereaved person’s ability to rebuild his or her assumptive world, particularly when the death assaults the survivor’s notion world that life is predictable or that the universe is benign. A bereaved individual may have no mental constructions to help them with the meaning-making process to incorporate the loss into a new worldview. When people indicated that they could not make sense of the loss they often indicated that the death seemed unfair, unjust or random. If the loss is consistent with existing worldviews then making sense does not appear to represent a significant coping issue. Across a variety of different losses, a body of research indicates that the failure to find meaning following the loss, especially in terms of ‘making sense’ of the death itself, is associated with higher levels of complicated grief symptoms. An intense and protracted search for meaning is likely to accompany losses that are unexpected and premature, as in the death of a child, and that a ruminative preoccupation with the loss is an indicator of long-term depression, anxiety, anger and grief. A failure to find spiritual or secular meaning in the loss accounts for nearly all of the heightened symptoms of complicated grief following suicide, homicide and fatal accident, as opposed to natural anticipated deaths (eg. cancer) and even natural sudden deaths (eg. heart attack). Most definitions of meaning encompass two concepts: (1) making sense of the loss (eg. the death had been predictable in some way; it was consistent with the caregiver’s perspective on life; or religious or spiritual beliefs provide meaning); and (2) finding benefits from the loss (eg. it led to a growth in character, a gain in perspective and strengthening of relationships). Data suggests that sense-making and benefit-finding are two distinct processes and represent two distinguishable psychological issues for the bereaved person. It is not so much making sense of the loss that alleviates distress, as it is becoming less interested in the issue. The finding of benefit on the other hand grows stronger with time (Davis, Nolen-Hoeksema & Larson, 1998). Meaning-making is a highly iterative and interactive process and the significance of a loss can be affirmed or disconfirmed, congruent or discrepant, and supported or contested within families and other reference groups (Nadeau, 1998). complications of bereavement Nearly a century ago, Freud (1917/1957) wrote: Although mourning involves grave departures from the normal attitude toward life, it never occurs to us to regard it as a pathological condition and to refer it to a medical treatment. We rely on its being overcome after a certain lapse of time, and we look upon any interference with it as useless or even harmful. (p 243) Research has proved Freud largely correct, although not completely. It is now clear that grief, at least for a subset of 10 to 15% of bereaved people, can be intense and chronic for many months or years. 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  • 6. 11Volume 33 No 1 REcENT DEvELOPMENTS IN OuR uNDERSTANDINg OF gRIEF AND bEREAvEMENT ©2014 Cruse Bereavement Care (eg. the death of a child) tend to be over-represented in this cohort. This condition, termed complicated grief (CG) or more recently prolonged grief disorder (PGD), has received increasing attention in both the psychiatric and psychological literatures over the past decade. Most people ultimately adapt well to bereavement, typically regaining their psychological equilibrium after some weeks or months of acute mourning, although they frequently will continue to miss their loved one for a considerably longer period of time (Bonanno et al, 2002). Studies show that for most people grief intensity is fairly low after a period of about six months. This does not imply that grief is completed or resolved, but rather that it has become better integrated, and no longer stands in the way of ongoing life. Acute grief is a normal response to loss, with symptoms that should not be pathologised. Prolonged grief disorder and the DSM-V In the late 1990s two research teams independently published a set of diagnostic criteria to assess CG (Horowitz et al, 1997; Prigerson et al, 1999). Recently, these two diagnostic entities were integrated and the concept of CG was renamed as prolonged grief disorder (PGD). This incapacitating disorder is defined as a combination of separation distress and cognitive, emotional and behavioural symptoms that can develop after the death of a significant other. The symptoms must last for at least six months and cause significant impairment in social, occupational and other important areas of functioning. There was significant support for including the disorder of complicated grief or prolonged grief disorder in the fifth edition of The Diagnostic and Statistical Manual of Mental Disorders, the American Psychiatric Association’s (APA) classification and diagnostic tool (widely referred to as an authority for psychiatric diagnosis) (APA, 2013). Recent findings confirm the proposition that professional assistance is indicated for only this subgroup of the bereaved – those who show CG or PGD reactions. PGD symptoms have been shown to be different from other symptoms and disorders, such as normal grief reactions, mood disorders, and anxiety disorders including posttraumatic stress disorder. PGD is associated with several mental and physical health problems, such as sleep disruption, substance abuse, depression, compromised immune function, hypertension, cardiac problems, cancer, suicide, and work and social impairment. Bereaved individuals in this cohort report higher utilisation of medical services and more frequent hospitalisation than people with similar losses whose grief is less profound and extended, and these effects have been observed for as long as four to nine years after the death. These negative outcomes emerge even when levels of depression and anxiety are taken into account, and support the distinctiveness of a prolonged grief diagnosis. Although prolonged grief disorder failed to be included in the DSM-5 the most recent edition has included Persistent Complex Bereavement Disorder (PCBD) as a condition that merits further study. The criteria for PCBD has been established to encourage future research and is not designed for clinical use. It is essential that we do not consider bereavement complications simply as a re-labelling of conventional psychiatric conditions. Bereavement is a severe stressor that can trigger the onset of both physical and mental disorders such as major depression, posttraumatic stress disorder, anxiety and sleep disorders. These co-morbidities require identification, clinical attention and treatment. grief interventions There is sufficient evidence to show that intervention is not effective for the bereaved in general, but is effective for those at high risk or for those who are already experiencing complications in their grief. Unsolicited help based on routine referral and delivered shortly after loss is not likely to be effective. Schut and Stroebe (2005) summarise their review of the literature with the conclusion that: Routine intervention for bereavement has not received support from quantitative evaluations of its effectiveness and is therefore not empirically based. Outreach strategies are not advised, and even provision of intervention for those who believe that they need it and who request it should be carefully evaluated. Intervention soon after bereavement may interfere with ‘natural’ grieving processes. Intervention is more effective for those with more complicated forms of grief. (p. 140) The general pattern emerging from this, and other reviews, is that the more complicated the grief process, the better the chances of bereavement interventions leading to positive results. Recent research indicates that a specially designed complicated grief therapy outperformed a more general psychotherapy for carefully diagnosed bereaved people, and was particularly helpful for those whose losses were traumatic (Shear, 2006). Another study found that a series of tailored writing assignments delivered over the internet that helped people express and explore their stories of loss significantly reduced symptoms of complicated grief relative to a no-treatment control group (Wagner, Knaevelsrud & Maercker, 2006). On the other hand, it appears that antidepressant medication does little to address the core symptoms of bereavement complication, even when it usefully reduces symptoms of depression (Pasternak et al, 1991). Recent treatment interventions for CG have been designed more adequately and have proved to be efficacious. rBER Issue 33_1 TEXT.indd 11 02/05/2014 09:50:33
  • 7. 12 BereavementCare ©2014 Cruse Bereavement Care A large body of research has supported the value of grief counselling as long as clinicians undertake careful assessment and interventions are carefully tailored. Because grief is a highly individualised experience, the most effective grief support offers a range of options including online support, bibliotherapy, individual counselling, group support, community support, rituals and psycho-educational programs. There are a wide range of publications which provide detailed information on clinical interventions from constructivist (Neimeyer, 2001), cognitive (Malkinson, 2007) and family systems perspectives (Nadeau, 1998; Kissane & Bloch, 2002 Kissane & Parnes, 2014). Neimeyer (2013) provides comprehensive details on a range of bereavement interventions that are drawn from a range of theoretical perspectives. conclusion It is clear that clinical research has expanded our understanding of the distinctive symptoms, risk factors, psychological processes and outcomes of bereavement, which has contributed to more appropriate interventions for the bereaved. No ‘one-size-fits-all’ model or approach to grief is justifiable. Any interventions must be tailored to the uniqueness of the person, relationship and circumstances that characterise a client at a particular point in time as they grieve a specific loss. If we define grief in a broader perspective, and move beyond the experience of death, it is clear that grief is the substrate for much of what confronts practitioners in the field of the helping professions.  This article is an updated version of Beyond Kübler- Ross: Recent developments in our understanding of grief and bereavement published in InPsych, December 2011. It appears here with the permission of the Australian Psychological Society. American Psychiatric Association (2013). Diagnostic and Statistical Manual of Mental Disorders (Fifth ed). Arlington, VA: American Psychiatric Publishing. Bonanno GA, Wortman CB, Lehman DR, et al (2002). Resilience to loss and chronic grief: a prospective study from pre-loss to 18 months post-loss. Journal of Personality and Social Psychology 83 1150-1164. Bonanno GA, Wortman CB, Nesse RM (2004). Prospective patterns of resilience and maladjustment during widowhood. Psychology and Aging 19 260-271. Bowlby J (1980). Attachment and loss: Vol. 3. Loss: sadness and depression. New York: Basic Books. Davis CG, Nolen-Hoeksema S, Larson J (1998). Making sense of loss and benefiting from the experience: two construals of meaning. Journal of Personality and Social Psychology 75(2) 561-574. Datson SL, Marwit SJ (1997). Personality constructs and perceived presence of deceased loved ones. Death Studies 21 131-146. Doka KJ (ed) (2002). Disenfranchised grief: new directions, challenges, and strategies for practice. Champaign, IL.: Research Press. Downe Wamboldt B, Tamlyn D (1997). An international survey of death education trends in faculties of nursing and medicine. Death Studies 21(2) 177-188. Field NP (2006). Unresolved grief and continuing bonds: an attachment perspective. Death Studies 30 739-756. Freud S (1957). Mourning and melancholia. In J Strachey (ed & trans), The standard edition of the complete psychological works of Sigmund Freud (Vol. 14, 152-170). London: Hogarth Press. (Original work published 1917) Horowitz MJ, Siegel B, Holen A, Bonanno GA, et al (1997). Diagnostic criteria for complicated grief disorder. The American Journal of Psychiatry 154 904-910. Kissane DW, Bloch S (2002). Family focused grief therapy. Buckingham, UK: Open University Press. Kissane DW, Parnes F (eds) (2014). Bereavement care for families. New York: Routledge. Klass D, Silverman PR, Nickman SL (eds) (1996). Continuing bonds: new understandings of grief. Washington: Taylor and Francis. Kübler-Ross, E. (1969). On death and dying. New York: Macmillan. Malkinson R (2007). Cognitive grief therapy: constructing a rational meaning to life following loss. New York: Norton. Nadeau JW (1998). Families making sense of death. Thousand Oaks, CA: Sage. Neimeyer RA (ed) (2001). Meaning reconstruction and the experience of loss. Washington: American Psychological Association. Neimeyer RA (ed) (2013). Techniques of grief therapy: creative practices for counseling the bereaved. New York: Routledge. Neimeyer RA, Sands DC (2011). Meaning reconstruction in bereavement: from principles to practice. In: RA Neimeyer, DL Harris, HR Winokuer, Gordon F Thornton (eds). Grief and bereavement in contemporary society: bridging research and practice (9-22). New York: Routledge. Parkes CM, Weiss RS (1983). Recovery from bereavement. New York: Basic Books. Pasternak RE, Reynolds CF 3rd, Schlernitzauer M, et al (1991). Acute open-trial nortriptyline therapy of bereavement-related depression in late life. Journal of Clinical Psychiatry 57(7) 307-10. Prigerson HG, Shear MK, Jacobs SC, et al (1999). Consensus criteria for traumatic grief: a preliminary empirical test. British Journal of Psychiatry 174 67-73. Shapiro ER (2001). Grief in interpersonal perspective: theories and their implications. In MS Stroebe, RO Hansson, W Stroebe, H Schut (eds). New handbook of bereavement: consequences, coping and care. Washington: American Psychological Association. 301-327 Schut H, Stroebe MS (2005). Interventions to enhance adaptation to bereavement. Journal of Palliative Medicine 8 140-147. Shear MK (2006). The treatment of complicated grief. Grief Matters: The Australian journal of grief and bereavement 9(2) 39-42. Stroebe MS, Schut H (1999). The dual process model of coping with bereavement: rationale and description. Death Studies 23(3) 197-224. Wagner B, Knaevelsrud C, Maercker A (2006). Internet-based cognitive-behavioral therapy for complicated grief: a randomized controlled trial. Death Studies 30 429-453. Worden JW (2008). Grief counseling and grief therapy: a handbook for the mental health practitioner (4th ed.). New York: Springer. REcENT DEvELOPMENTS IN OuR uNDERSTANDINg OF gRIEF AND bEREAvEMENT rBER Issue 33_1 TEXT.indd 12 02/05/2014 09:50:33