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From Quantified Self to Quality of Life

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Reference/Citation to a book chapter: Katarzyna Wac, From Quantified Self to Quality of Life, Book Chapter in "Digital Health - Scaling Healthcare to the World", Health Informatics, Springer Nature, Dordrecht, The Netherlands, 2017

Note: The chapter has been presented along the following seminar:
Katarzyna Wac, From Quantified Self to Quality of Life, Research Seminar: Tracking Experience – Enhancing Lives?, University of Copenhagen, Denmark, Apr 2017.
http://ccc.ku.dk/calendar/2017/tracking-experience-enhancing-lives/

Published in: Health & Medicine
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From Quantified Self to Quality of Life

  1. 1. r r enhed vn” og ”: jen, ” > g dato” o og vn” i From Quantified Self to Quality of Life 1,2 Assoc. Prof. Katarzyna Wac 1 Human-Centric Computing, University of Copenhagen, Denmark 2 Quality of Life Technologies lab, University of Geneva, Switzerland www.qol.unige.ch @katewac DIKU KU Seminar, Tracking Experience – Enhancing Lives?, April 2017
  2. 2. uden g t- forøg tre- den g, k vn” og ”: jen, ” > g dato” o og vn” i Tracking Experience – Enhancing Lives? Yes, but… DIKU Sted og dato Dias 2
  3. 3. uden g t- forøg tre- den g, k vn” og ”: jen, ” > g dato” o og vn” i Machines That Sent Man To The Moon (’60s)
  4. 4. uden g t- forøg tre- den g, k vn” og ”: jen, ” > g dato” o og vn” i Smartwatch Vision (’80s)
  5. 5. uden g t- forøg tre- den g, k vn” og ”: jen, ” > g dato” o og vn” i Today…
  6. 6. uden g t- forøg tre- den g, k vn” og ”: jen, ” > g dato” o og vn” i Wearable, anybody? DIKU Sted og dato Dias 6
  7. 7. uden g t- forøg tre- den g, k vn” og ”: jen, ” > g dato” o og vn” i Causes of Premature Deaths: Behavioral Cost of ‘behavioural’ diseases: 47 trillion USD for the next 20 years (US) [McGinnis JM, Williams-Russo P, Knickman JR. The case for more active policy attention to health promotion. Health Aff 2002;21:78-93] [Mokdad AH, Marks JS, Stroup JS, Gerberding JL. Actual causes of death in the United States, 2000. JAMA 2004;291:1238-1245]
  8. 8. uden g t- forøg tre- den g, k vn” og ”: jen, ” > g dato” o og vn” i QS: “Self-knowledge through numbers” A movement to leverage ICT to accumulate data on the individual's behavior, health status, medical conditions and overall well- being By the individuals themselves •  Personal insights •  N-in-1 experimentation Large number of devices (SMEs) •  ‘Colonization phase’ •  Immature market [Gary Wolf and Kevin Kelly, Wired, 2007]
  9. 9. uden g t- forøg tre- den g, k vn” og ”: jen, ” > g dato” o og vn” i QS: Design Principles & Trends Design Principles •  Miniaturized energy-efficient sensors •  Mobile apps •  Big data •  Data visualization •  Gamification Trends •  50% of US population tracks something, 21% via ICT •  7 bill mobile subscriptions (2014), 10 bill in 2017 •  17 mill wearable bands shipped in 2014, 23 mill by 2015, 45 mill by 2017 •  Internet of Things (IoT) economic impact of 2.7-6.2 trill USD in 2025 [Pew Research Center, McKinsey Global Institute, Cisco, Canalys, 2016 - 2017]
  10. 10. uden g t- forøg tre- den g, k vn” og ”: jen, ” > g dato” o og vn” i QS Practice Types •  Private Voluntary, intrinsically motivated •  Pushed Voluntary, extrinsically motivated (by a person in power) •  Communal Voluntary competition, social comparison •  Imposed Consented, e.g., for workplace compliance, law compliance •  Exploited Involuntary, non-consented tracking of data DIKU [Lupton, 2016] ß our research
  11. 11. uden g t- forøg tre- den g, k vn” og ”: jen, ” > g dato” o og vn” i Enhancing Lives: Quality of Life DIKU Sted og dato Dias 11
  12. 12. uden g t- forøg tre- den g, k vn” og ”: jen, ” > g dato” o og vn” i 159 instruments [Gill and Feinstein, 1994 ]
  13. 13. [WHOQOL group, 1995] Quality of Life: “individuals’ perception of their position in life in the context of the culture and value systems in which they live and in relation to their goals, expectations, standards and concerns” Quality of Life by ?%error
  14. 14. DIKU Dias 14 Homero Rivas, Katarzyna Wac, (Eds) Digital Health - Scaling Healthcare to the World (Book), Health Informatics, Springer Nature, Dordrecht, The Netherlands, 2017 (forthcoming).
  15. 15. uden g t- forøg tre- den g, k vn” og ”: jen, ” > g dato” o og vn” i Research Approach •  Quantified Self •  What do people track: 609 Videos •  What can people track: 438 mobile/wearable devices/apps (/! weight scales) •  Coded behaviors •  into category •  “nutrition”, “sleep”, etc. •  192 unique behaviors •  Into QoL domains/facets DIKU QoL Domain Facets incorporated within QoL domains CODE Physical Health Activities of daily living Dependence on medicinal substances, medical aids Energy and fatigue Mobility Pain and discomfort Sleep and rest Work capacity phy-adl phy-meds phy-energy phy-mobility phy-pain phy-sleep phy-work Psychological Health Bodily image and appearance Negative feelings Positive feelings Self-esteem Spirituality/religion/personal beliefs Thinking, learning, memory and concentration psy-bodyimage psy-negativefeel psy-positivefeel psy-selfesteem psy-beliefs psy-thinking Social relation. Personal relationships Social support Sexual activity soc-relationships soc-support soc-sex Environment Financial resources Freedom, physical safety and security Health and social care: accessibility and quality Home environment Opportunities for acquiring new information and skills Participation in/opportunities for recreation/leisure Physical environ. (pollution / noise / traffic / climate) Transport env-finances env-freedom env-healthcare env-home env-info env-leisure env-environ env-transport
  16. 16. uden g t- forøg tre- den g, k vn” og ”: jen, ” > g dato” o og vn” i What do people track? From QuantifiedSelf community Vinemo channel From 1006 available videos: 609 videos coded – had some meaningful title/ Description and presented Individual self-tracking Experience (other videos: commercial Product presentation, ethics, Visionary, summarizing trends, Intro to some meetup etc.) Years: 2008-2016 [http://quantifiedself.com/topics/videos/]
  17. 17. uden g t- forøg tre- den g, k vn” og ”: jen, ” > g dato” o og vn” i What can people track? Wearable list from Vandrico.com website From 438 available wearables 438 wearables coded – All have meaningful Description Years: 2001-2017 (forthcoming) 90% after 2008 [http://vandrico.com/wearables/]
  18. 18. uden g t- forøg tre- den g, k vn” og ”: jen, ” > g dato” o og vn” i QS Talks: What do people track? Behavior Self-tracking Projects Focus physical activity (97 talks) and nutrition (72), weight (47), sleep (47), productivity (31), emotions (28) …flossing teeth, exposure to light, odd events, lying or flying (1) DIKU Sted og dato Dias 18
  19. 19. uden g t- forøg tre- den g, k vn” og ”: jen, ” > g dato” o og vn” i QS Talks: What do people track? Behavior Self-tracking Projects Focus Change in Time DIKU Sted og dato Dias 19
  20. 20. uden g t- forøg tre- den g, k vn” og ”: jen, ” > g dato” o og vn” i QS Technologies: What can people track? Embedded Sensors/Interaction Elements accelerometer (209), gyroscope (83), some type of button-based interface (116), touch interface (73), kinesthetic interface (vibrator, 71) or LCD-based display (70), digital clock (100), heart rate monitor (82), GPS (78), including microphone (64) and audio speaker (78) DIKU Sted og dato Dias 20
  21. 21. uden g t- forøg tre- den g, k vn” og ”: jen, ” > g dato” o og vn” i QS Technologies: What can people track? Behaviors Tracked/Enabled physical activity (207), sleep (47), geo-localization (20), phone notifications (57) and phone controls (44), as well as enable behaviors or novel form of interactions (e.g., gesture) with connected objects (29) and/or communications (17) … eating, foot pressure, urinary infections and dreaming DIKU Sted og dato Dias 21
  22. 22. uden g t- forøg tre- den g, k vn” og ”: jen, ” > g dato” o og vn” i QS Technologies: What can people track? Positioning on the Body DIKU Sted og dato Dias 22
  23. 23. uden g t- forøg tre- den g, k vn” og ”: jen, ” > g dato” o og vn” i QS Technologies: What can people track? Timeline for the Diversity of Sensors & Behaviors & Positioning on the Body DIKU Sted og dato Dias 23 ≤2010 2011 2012 2013 2014 2015 2017 2016 positioning on a bodyraw sensors tracked/enabled behavior
  24. 24. uden g t- forøg tre- den g, k vn” og ”: jen, ” > g dato” o og vn” i QS Technologies: What can people track? Positioning on the Body & Behaviors DIKU Sted og dato Dias 24
  25. 25. uden g t- forøg tre- den g, k vn” og ”: jen, ” > g dato” o og vn” i QoL Coding DIKU Sted og dato Dias 25 QoL Domain Facets incorporated within QoL domains CODE Physical Health Activities of daily living Dependence on medicinal substances, medical aids Energy and fatigue Mobility Pain and discomfort Sleep and rest Work capacity phy-adl phy-meds phy-energy phy-mobility phy-pain phy-sleep phy-work Psychological Health Bodily image and appearance Negative feelings Positive feelings Self-esteem Spirituality/religion/personal beliefs Thinking, learning, memory and concentration psy-bodyimage psy-negativefeel psy-positivefeel psy-selfesteem psy-beliefs psy-thinking Social relation. Personal relationships Social support Sexual activity soc-relationships soc-support soc-sex Environment Financial resources Freedom, physical safety and security Health and social care: accessibility and quality Home environment Opportunities for acquiring new information and skills Participation in/opportunities for recreation/leisure Physical environ. (pollution / noise / traffic / climate) Transport env-finances env-freedom env-healthcare env-home env-info env-leisure env-environ env-transport
  26. 26. uden g t- forøg tre- den g, k vn” og ”: jen, ” > g dato” o og vn” i QS Talks and Technologies vs. QoL QS Talks: What do people track? QS Technologies: What can people track? DIKU Sted og dato Dias 26
  27. 27. DIKU
  28. 28. uden g t- forøg tre- den g, k vn” og ”: jen, ” > g dato” o og vn” i QS à QoL improvements ? DIKU Sted og dato Dias 28
  29. 29. uden g t- forøg tre- den g, k vn” og ”: jen, ” > g dato” o og vn” i Causes of Premature Deaths: Behavioral Cost of ‘behavioural’ diseases: 47 trillion USD for the next 20 years (US) [McGinnis JM, Williams-Russo P, Knickman JR. The case for more active policy attention to health promotion. Health Aff 2002;21:78-93] [Mokdad AH, Marks JS, Stroup JS, Gerberding JL. Actual causes of death in the United States, 2000. JAMA 2004;291:1238-1245]
  30. 30. uden g t- forøg tre- den g, k vn” og ”: jen, ” > g dato” o og vn” i evidence ? [G. Wolf and K. Kelly, Wired, 2007; Wac, IMIA 2012; Wac, SAA 2013; Wac, AAAI, 2014] %error [Wac, QuantifiedSelf for Quality of Life, “Digital Health” book 2017]

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