Person-centred care: slides for a presentation to health and care leaders in Manchester on 12 March 2014 on implementation of the "Better Care Fund" for more integrated care. How to keep the focus on people.
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National Voices on person centred care
1. Patient power and voice in the
new health and social care world
Health and care as if people matter
Jeremy Taylor, 12 March 2014
2.
3. What matters to us?
• Access
• Information
• Communication
• Involvement
• Family and friends
• Privacy, confidentiality and dignity
• Support for self-care and independence
• Personalised service, coordination and continuity
• Practical support
• Emotional support
4. What matters to us?
• I want to see a doctor
• I want a service I can trust
• I want to know what’s going on
• I want to be treated as a person
• I want a say
• I don’t want to be passed from pillar to post
• I don’t want to repeat my story every time
• I want to be in control
• I want to be looked after
• I’m in pain. I’m exhausted
• I’m not happy about the care my Mum is getting
6. Out-of-
Hours
Doctors
GP
District
Nurses
Social
Worker
Malcolm &
Barbara
Consultant
Continence
Adviser
Speech &
Language Adviser
Dietician
Community
Dentist
Occupational
Therapist
Equipment
Service
Physiotherapist
Alternating
Mattress technician
Wheelchair
Service
Oxygen
serviceDirect
Payments
Team;
Rowan
Org.
Alzheimer’s
Soc outreach
worker
Care team
2 live-in carers
(alternating weekly)
Replacement carer
[Some night nursing
– Health]
Emergency carers
& Barbara
The Web of
Care
(Last 7 yrs)
Dementia
Advisory
Nurse?
8. Person centred coordinated care
“I can plan my care with people who
work together to understand me and my
carer(s), allow me control,
and bring together services
to achieve the outcomes important to
me.”
Informatio
n
Informatio
n
My
goals/outcomes
My
goals/outcomes
CommunicationCommunication Decision makingDecision making
Care planningCare planning
TransitionsTransitions
8
10. “More than medicine”
• Self-management
• Family
• Friends
• Neighbours
• Peer-supporters
• Befrienders
• Advocates
• Community health champions
• Patient and lay leaders
• Voluntary sector organisations
11. You can’t do this alone!
• The world is too complex*
• The duties too onerous
• The money insufficient
• The health and care workforce too stretched
• The needs go beyond narrowly clinical
• Statutory agencies can’t do this alone!
* Many to Many: how the relational state will transform public
services, Muir and Parker, IPPR, Feb 2014
12. Changing models of care
From: To:
Patients as recipients People as partners and
managers of their health
Primarily medical Increasingly social
Professionals designing
services
Co-design of services
Mobilising doctors, nurses
and drugs
Mobilising citizens and
communities
Treatment plans Participative care and
support planning
Clinical outcomes Quality of life outcomes
Hospital focus Out of hospital focus
14. A care system in which people
matter
• We have rights
• We define success
• We are partners
• We are managers
• We are leaders
• We are all part of the workforce
• No decisions about us without us
15. • Thanks for listening
• www.nationalvoices.org.uk
• Follow us on Twitter
• @NVTweeting
• @JeremyTaylorNV
Editor's Notes
Builds on current skills of helath and social care professioanls
(Lindsay / Laura – I have to redo the formatting here)
Care planning is about taking a systematic approach to that conversation – something that medics here will be familiar with; in this case starting with information gathering , sharing and unpacking and then through a process of discussion and debate identifying the person’s own goals and action plans as well as any clinical work and then recording this.
What makes it different from a usual clinical consultation is not just the mutual goal setting and action planning but what goes on up here (refer to person's story) . To enable this to be a true meeting between experts the consultation needs to be prepared for properly; a way must be found not just to identify the professional story, the usual tests and information in the clinical record but the persons story , what life’s like and how its different since the mother in law with dementia came to stay.
The YOC care pilot sites realized that it was not just what when on in the consultation that was important – but what went on around this to make it possible.