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Pcori ambassador regina greer smith mph fache


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Pcori ambassador regina greer smith mph fache

  1. 1. PCORI Ambassador Regina Greer-Smith MPH FACHE Member- PCORI Advisory Panel on Patient Engagement PCORI Ambassadors are volunteers, not members or representatives or agents of PCORI. They do not speak on behalf of PCORI but are partners aligned with the principles of PCORI. Opinions expressed by Ambassadors are their own and not necessarily those of PCORI Patient-Centered Outcomes Research Institute 1
  2. 2. OVERVIEW • About the Patient-Centered Outcomes Research Institute (PCORI) • My experience as a Patient/Caregiver Advocate and Board-Certified Healthcare Professional and what inspires my involvement with PCORI • Getting involved with PCORI has provided me with the mission to share the opportunity for communities of color to become engaged in the selection of topics and questions that are important to them, then develop, participate and disseminate the findings. 2
  3. 3. PCORI 101 • An independent non-profit research organization authorized by Congress as part of the 2010 Patient Protection and Affordable Care Act (PPACA). • Committed to continuously seeking input from patients and a broad range of stakeholders to guide our work. • Mission: The Patient-Centered Outcomes Research Institute (PCORI) helps people make informed healthcare decisions, and improves healthcare delivery and outcomes, by producing and promoting high integrity, evidence-based information that comes from research guided by patients, caregivers and the broader healthcare community. Video: PCORI’s First Patient Engagement WorkshopOctober 26-28, 2012 3
  4. 4. PATIENT-CENTERED OUTCOMES RESEARCH DEFINED Patient-centered outcomes research (PCOR) helps people and their caregivers communicate and make informed health care decisions, allowing their voices to be heard in assessing the value of health care options. “Given my personal characteristics, conditions and preferences, what should I expect will happen to me?” “What are my options and what are the potential benefits and harms of those options?” “What can I do to improve the outcomes that are most important to me?” “How can clinicians and the care delivery systems they work in help me make the best decisions about my health and healthcare?” 4
  5. 5. MY EXPERIENCE WITH PCORI PCORI- SPONSORED EVENTS • National Workshop to Advance Use of Electronic Data: July 23, 2012 Facilitating creation of a National Data Infrastructure to support PCOR Palo alto, CA • As a member of the Working Group for Transforming PatientCentered Research: Building Partnerships and Promising Models October 26-28, 2012, in Washington, DC 5
  6. 6. MY EXPERIENCE WITH PCORI PCORI-SPONSORED EVENTS • The Power of Partnerships In Research: Improving Healthcare Outcomes In Rural Communities, Wichita, KS, March 9, 2013 • As a member of the PCORIs Advisory Panel on Patient Engagement April, 2013 6
  7. 7. MY EXPERIENCE WITH PCORI • • COMMUNITY ACTIVITIES, OUTREACH, & ENGAGEMENT Received an Honorable Mention in The PCORI Challenge for developing the S.T.A.R. Initiative – Strategically targeting Appropriate Researchers, an innovative patient/researcher matching program focused on communities of color engagement using mobile apps. Partnered in several PCORI PFAs , presentations & workshops with researchers, patients, and numerous stakeholders 7
  8. 8. GET INVOLVED AT WWW.PCORI.ORG Learn about PCORI’s research portfolio...some 200 projects totaling more than $300 million – and counting! Apply to be an Advisory Panel member? Build a multi-stakeholder partnership and apply for an Engagement Award. Attend a PCORI sponsored regional event, webinar and/or training. 8