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Inclusion Health
&
Digital Health
Welcome and Introduction
Helen Rowntree
• Programme Director – NHS Choices and widening digital
participation,
1.John Brittain and Gbemi Babalola
• Principal Operational Researcher / EHI Analyst
2.Iman Rafatmah/Ruth Passman
• Co-Chair National Asylum Health Pilot NHS England,
• Equality Diversity Council Lived Experience Member,
• Digital Service User Council Board Member,
• Mind Equality Improvement Board Member,
Ruth Passman – Head of Equality and Health Inequalities, NHS
England
Inclusion Health & Digital Health
3. Helen Rowntree
• Programme Director – NHS Choices and widening digital
participation,
4.Caroline Humphreys
• Lead –Equality and Health Inequalities NHS England
Addressing equality and health inequalities
Health Inequalities Analysts NHS England
September 2016
4www.england.nhs.uk
Male Life Expectancy in Birmingham
People living in deprived areas have poorer health and shorter lives
1. The under 75 mortality rate from CVD, was almost five times higher in the most deprived compared to the least deprived areas
2. The under 75 mortality rate from cancer was over twice as high in the most deprived compared to the least deprived areas
3. The infant mortality rate was over twice as high in the most deprived compared to the least deprived areas
Outcomes framework inequality indicators latest data (2014)
What about equality?
African– Caribbean population stats:
 5 times more likely to develop type 2 diabetes
 More likely to have high blood pressure
 Disproportionate representation of men in mental
health services
 Harsher treatment from primary & secondary mental
health service
 More likely to be
diagnosed with a
serious mental
illness
 Black men are 30%
more likely to die
from prostate
cancer
 Females over 65
have a higher risk
of cervical cancer
Ethnic groups- England and Wales,
Office of National Statistics, 2011
5www.england.nhs.uk
University Cost of inequalities/Impact on longevity Source
Centre for Health Economics, York
University
• £4.8bn hospital costs
• Socioeconomic inequalities result in increased morbidity and
decreased life expectancy
• Interventions to reduce inequality/improve health in more deprived
areas have potential to save money for health systems not only
within years but across peoples’ entire lifetimes, despite increased
costs due to longer life expectancies
Asaria, M., Doran, T., & Cookson, R. (2016). The costs of
inequality: whole-population modelling study of lifetime
inpatient hospital costs in the English National Health Service
by level of neighbourhood deprivation. Journal of epidemiology
and community health, jech-2016.
Institute of Health Equity, University
College London
• £5.5bn NHS healthcare costs
• £31-33 bn productivity losses
• £28–32 bn lost taxes and welfare costs
• 1.3 to 2.5 million potential years of life lost
Marmot, M., Allen, J., Goldblatt, P., Boyce, T., McNeish, D.,
Grady, M., & Geddes, I. (2010). The Marmot review: Fair
society, healthy lives. The Strategic Review of Health
Inequalities in England Post-2010.
Cass Business School, City University,
London
• 5% of British men reaching age 30 live on average to 96 years-
33.3 years longer than the lowest 10%
• This gap grew by 1.7 years between 1993, when it was at its
narrowest, and 2009.
• The longest surviving women reach on average 98.2 years- 31
years more than the lowest
• The female gap reached its narrowest in 2005, but has since
levelled out.
Mayhew, L, Smith, D. (2016). An investigation into inequalities
in adult lifespan
Research findings
Research shows that health inequalities are associated with various costs, not only to the health system,
but to the wider society.
6www.england.nhs.uk
Indicators
106a. Inequality in unplanned hospitalisation for chronic ambulatory care sensitive conditions and 106b. Inequality in emergency admissions
for urgent care sensitive conditions. They are based on those developed by Richard Cookson and Miqdad Asaria from the University of
York, as part of the NIHR project (HS&DR: 11/2004/39 - Developing indicators of change in NHS equity performance).
Absolute Gradient of Inequality (AGI)
For each neighbourhood in the country, the rate of emergency admissions for certain conditions per 100,000 population can be calculated.
This rate is then standardised to ensure age and sex of the population do not affect the data, enabling national comparison. Computing the
differences between these standardised rates in the most and least deprived neighbourhoods provides the AGI for each CCG. This is also
referred to as the gradient of the line of best fit (regression line) where emergency admissions data are plotted against deprivation. The AGI
describes the difference in emergency admission rates that would be observed between the richest and poorest neighbourhoods in the
country if the whole country were as unequal as that CCG. As this measure uses the national range of deprivation, direct comparisons
between all CCGs are possible. The greater the AGI value (or the steeper the regression line), the greater the inequality.
Mean
Standardised rates of emergency admissions for each neighbourhood in the country are obtained using the above process. The rates for all
neighbourhoods within a CCG can then be summed and divided by the total CCG population to obtain a mean rate for the CCG. The higher
the mean, the greater the chance of having such a hospitalisation for people living in the neighbourhoods covered by that CCG.
CCG Improvement and Assessment Framework (IAF):
7www.england.nhs.uk
CCG IAF: Inequality in unplanned hospitalisation for chronic ambulatory care sensitive
conditions – Absolute Gradient
Key lines of enquiry
Larger differences of emergency admissions have been identified in the north. Have CCGs identified any local barriers that cause more
unplanned hospitalisation?
CCGs with large absolute gradient Region
Central Manchester CCG 2,133 North
Islington CCG 1,958 London
Canterbury and Coastal CCG 1,329 South
CCGs with small absolute gradient
City and Hackney CCG -102 London
Fareham and Gosport CCG 109 South
Wyre Forest CCG 341 Midlands
Click here to see interactive heat map online
Background
There are large inequalities in the rate of unplanned hospitalisation for chronic ambulatory care sensitive conditions when comparing the most
and least deprived areas nationally. A well performing system should minimise this rate. The absolute gradient can be used to measure within-
CCG variation and to compare socioeconomic inequalities between CCGs.
Sources: HES and population figures provided by NHS Digital
Re-used with the permission of NHS Digital. All rights reserved.
8www.england.nhs.uk
Right Care example: absolute gradient of inequality
South Manchester CCG Avoidable Emergency Admissions for
Cardiovascular Disease – bubble chart
Bubbles plotted represent Lower Super Output Areas (LSOAs). Bubbles vary in size in proportion to the population of LSOAs. Nationally there are
about 33k LSOAs with an average population of around 2k. Some LSOAs are split over more than one CCG.
The steeper the slope the greater the level of health inequality e.g. a steep slope might mean greater inequality in the rate of avoidable emergency
admissions.
The red line is a line of best fit for the CCG, the dotted red lines show 95% confidence intervals sloped lines, the black line shows the national slope.
If the shallowest dotted red line is steeper than the black line, inequality in the CCG is statistically significantly higher than the national level of
inequality.
If the shallowest dotted red line slopes upward, then inequality in the CCG is statistically significant.
For Cardiovascular disease in South Manchester there would seem to be a significant difference in rates of avoidable emergence admissions for the
most deprived compared with the least deprived.
9www.england.nhs.uk
To develop CCG level analysis / tools on health inequalities for the Autumn Right Care pack on
Long Term Conditions
On deprivation and avoidable emergency admissions
• For CCGs an LSOA absolute gradient of inequality for comparison with the national LSOA absolute
gradient of inequality.
• An LSOA level tool so that CCGs can identify LSOAs where there is high deprivation and high rates
of avoidable emergency admissions.
• National deciles applied at CCG level for the CCG Improvement and Assessment Framework (IAF)
and Outcomes Framework (OF) inequality indicators, comparing CCG rates of avoidable
emergency admissions with national rates for these deciles
On protected characteristics comparisons of rates of avoidable emergency admissions for CCG
IAF and OF inequality indicators at CCG level with rates at national levels
Where possible the above analyses by Long Term Condition
Right care might then be used to impact upon CCG IAF and OF national indicators of inequality
Right Care Proposed Analysis for Autumn
9
10www.england.nhs.uk
Annex: Other Key Analyses
11www.england.nhs.uk
-These are individuals’ characteristics protected by the Equality Act of 2010. Any of these
characteristics can increase the chance of health inequalities.
• Age e.g. those 70 and over make up half of diagnosed cancer cases
• Disability e.g. those with a LD have a greater chance of mortality from respiratory disease
• Gender e.g. men typically develop heart disease 10 years earlier than women
• Gender reassignment e.g. Poor access to health care services experienced by trans people
• Marriage and civil partnership e.g. Married people live longer than unmarried people
• Pregnancy and maternity e.g. Teenage pregnancy can affect education and employment
• Race e.g. South Asian and black minorities have a greater chance of type 2 diabetes
• Religion or belief e.g. increased discrimination in Muslims results in poorer overall health
• Sexual orientation e.g. higher prevalence of attempted suicide in the gay and lesbian population
Protected characteristics
12www.england.nhs.uk
UK ethnicity breakdown
Although White is the majority ethnicity group (86% reported), there are increasing numbers of people
identifying with minority ethnic groups
London is the most ethnically diverse area across English regions- above average proportions for most
ethnic minorities
Indian is the next largest ethnic group followed by Pakistani
Incidence
The HES database records ethnicity data, allowing a link between cancer registration and ethnicity to
be made
The white population have a greater incidence of various cancers than ethnic minority groups, although
there are some exceptions
Researchers put these differences to environmental, lifestyle and genetic factors
Access to services
Researchers suggest 2 main groups of factors that cause inequalities in access:
• Personal factors
• Cultural differences- response and attitude to health care services can differ
• Language and literacy
• Lack of knowledge on health services
• Organisational factors
• Differential need- risk profiles of different population groups need to be taken into account
• Location
• Staff training- staff may have skills in dealing with diversity appropriately which can create
barriers
Cancer and racial inequalities
Ethnic groups- England and Wales, Office of National Statistics, 2011
13www.england.nhs.uk
Patient experience
Access to culturally relevant information flagged
as an issue amongst BME groups
Ethnic minority patients report lower levels of
satisfaction and poor experiences with cancer
care
End of life care
Less awareness and uptake of palliative care and
at home services is an issue for minority groups
Could be due to a lack of referrals, knowledge,
poor communication and location
Those from BME minorities are less likely to
complete advance care planning documents and
more likely to want active treatment
Deprivation
Overall incidence and mortality are higher in the
more deprived area- this has not improved over
time
Exceptions include incidence of female breast
cancer highest in the least deprived decile- is this
related to age?
Challenges
There is limited evidence on the extent of cancer
inequalities
There are gaps in available data for analysis
Particularly poor data on prevalence and survival
Some cancer data is outdated
Ethnicity data is categorised in different ways
depending on the source- disparities between
HES and ONS
Cancer and racial inequalities contd.
14www.england.nhs.uk
Priorities and available data
NHSE Business Priorities Available Data Analysis
(1) Improving the quality of care and
access to cancer treatment
ŸŸ-Cancer waiting times (NHS England statistics) https://www.england.nhs.uk/statistics/statistical-
work-areas/cancer-waiting-times/
Ÿ-Cancer register (CCG, regional & national level, HSCIC)
http://www.hscic.gov.uk/searchcatalogue?productid=19196&q=cancer&sort=Relevance&size=10&
page=1#top
- Cancer survival rates
http://www.ons.gov.uk/peoplepopulationandcommunity/healthandsocialcare/conditionsanddise
ases/datasets/cancersurvivalratescancersurvivalinenglandadultsdiagnosed
-Which population groups are more prone to certain types of cancer and why
-After diagnosis how is treatment being followed up
- Difference in cancer survival rates between different population groups
(2) Upgrading the quality of care and
access to mental health and dementia
services
-Field tool available on HES
-Mental health statistics http://www.hscic.gov.uk/catalogue/PUB20943
-Bed days for different population groups i.e. variation by age or ethnicity
- Link between mental health and deprivation (using IMD)
(3) Transforming care for people with
learning disabilities
-Field tool available on HES
- Learning disability statistics (HSCIC) http://www.hscic.gov.uk/catalogue/PUB20824
-Bed days for different population groups i.e. variation by age or ethnicity
(4) Tackling obesity and preventing
diabetes
-HES avoidable emergency admissions data
-Diabetes register (HSCIC)
http://www.hscic.gov.uk/searchcatalogue?productid=19196&q=cancer&sort=Relevance&size=10&
page=1#top
-Avoidable emergency admissions for related conditions i.e. T2DM, CVD
- Which areas have higher relative registers- which inequalities could this relate to
(5) Strengthening primary care
services
-GP survey data (protected characteristics)
https://www.england.nhs.uk/statistics/category/statistics/gp-patient-survey /
QOF data (various conditions) http://www.hscic.gov.uk/catalogue/PUB18887
GP practices registered populations
http://www.hscic.gov.uk/searchcatalogue?productid=20718&topics=2%2fPrimary+care+services%
2fGeneral+practice%2fGP+registered+population&sort=Relevance&size=10&page=1#top
-HES avoidable emergency admissions data
-Looking at what causes inequality in patient experience; which groups have poor access to
primary care services
- The link between avoidable emergency admissions to poor access of primary care services,
due to protected characteristics/socio-economic factors
(6) Redesigning urgent and emergency
care services
-HES avoidable emergency admissions data -Find out what drives inequality based on patient charateristics and socio-economic status-
link admission condition to area deprivation sore
(7) Providing timely access to high
quality elective care
-Elective care waiting times (consultant-led referral, NHSE Statistics)
https://www.england.nhs.uk/statistics/statistical-work-areas/rtt-waiting-times/
- -Cancelled elective operations https://www.england.nhs.uk/statistics/statistical-work-
areas/cancelled-elective-operations/
- Look at population groups experience higher waiting times
- Access to maternity services based on population groups
(8) Ensuring high quality and
affordable specialised care
- Innovation scorecard data? http://www.hscic.gov.uk/article/7101/Innovation-Scorecard - Inequalities in access to medicines & specialised treatments between CCGs/LSOAs
- Comparison between like CCGs (Right care)
(9)Transforming commissioning
- maternity & breastfeeding data https://www.england.nhs.uk/statistics/statistical-work-
areas/maternity-and-breastfeeding/
- Maternity service statistics (HSCIC)
http://www.hscic.gov.uk/maternityandchildren/maternityreports
- Access to maternity services based on population groups
- Ties in analysis from previous priorities to reduce inequalities- look at health outcomes
across different CCGs for key disease areas
(10) Controlling costs and enabling
change
-HES avoidable emergency admissions data
- Innovation scorecard data?http://www.hscic.gov.uk/article/7101/Innovation-Scorecard
-GP survey data https://www.england.nhs.uk/statistics/category/statistics/gp-patient-survey/
- Friends and family test data https://www.england.nhs.uk/ourwork/pe/fft/friends-and-family-
test-data/
- NHS staff survey http://www.nhsstaffsurveys.com/Page/1010/Home/NHS-Staff-Survey-2015/
- Right care analysis supported with avoidable emergency admissions
- Uptake of innovation across the country (CCG, national, regional level)
-Analysis of patient experience from different population groups
-Workforce experience baesd on protected characteristics
15www.england.nhs.uk
Protected characteristics and NHS England priorities
Age Disability
Gender
reassignment
Marriage & civil
partnership
Pregnancy and
maternity
Race
Religion or
belief
Sex
Sexual
orientation
Inequality
Indicators from
outcomes
framework
1a.i, 1b.i,
1b.ii, 2,
2.3.i, 1.4,
4.4.i
4a.i 2.3.i, 4a.i, 4.4.i 3a 1.6i, 4.4i
1.1, 1.4, 2,
3a, 4a.i,
4.4.i
2
1a.i, 1b.i,
1b.ii, 1.4, 2
2, 3a, 4a.i, 4.4.i All indicators
1. Improving the quality of
care and access to cancer
treatment
1.4
2. Upgrading the quality of
care and access to mental
health and dementia services
2.3.i
3. Transforming care for
people with learning
disabilities
2.3i, 3a
4. Tackling obesity and
preventing diabetes
1.1, 2.3.i
5. Strengthening primary care
services
1.6.i, 2, 2.3.i,
4a.i, 4.4.i
6. Redesigning urgent and
emergency care services
2.3.i, 3a
7. Providing timely access to
high quality elective care
1.6.i
8. Ensuring high quality and
affordable specialised care
9. Transforming
commissioning
10. Controlling costs and
enabling change
3a
NHSBusinessPlanPriorities
Deprivation
Protected Characteristics
16www.england.nhs.uk
Indicators on Equality and Health Inequalities
New CCG Improvement and Assessment Framework Indicators – the aim is to increase these further in
the coming year
• 106a Inequality in unplanned hospitalisation for chronic ambulatory care sensitive conditions
• 106b Inequality in emergency admissions for urgent care sensitive conditions
Current outcomes framework indicators
Preventing people from dying prematurely
• 1a.i: Potential Years of Life Lost (PYLL) from causes considered amenable to healthcare
• 1bi Life expectancy at 75 males
• 1bii Life expectancy at 75 females
• 1.1 Under 75 mortality rate from cardiovascular disease
• 1.4 Under 75 mortality rate from cancer
• 1.6.i Infant mortality
Enhancing quality of life for people with long-term conditions
• 2 Health-related quality of life for people with long-term conditions
• 2.3.i Unplanned hospitalisation for chronic ambulatory care sensitive conditions
Helping people to recover from episodes of ill health or following injury
• 3a Emergency admissions for acute conditions that should not usually require hospital admission
Ensuring that people have a positive experience of care
17www.england.nhs.uk
Health inequalities: people living in deprived areas have poorer health
Outcomes framework inequality indicators latest data (2014) show
Preventing people from dying prematurely
• The under 75 mortality rate from CVD, was almost five times higher in the most deprived
compared to the least deprived areas
• The under 75 mortality rate from cancer was over twice as high in the most deprived compared
to the least deprived areas
• The infant mortality rate was over twice as high in the most deprived compared to the least
deprived areas
Enhancing quality of life for people with long-term conditions
• Unplanned hospitalisation for chronic ambulatory care sensitive conditions is four times as high
in the most deprived areas compared to the least deprived areas
Helping people to recover from episodes of ill health or following injury
• Emergency admissions for acute conditions that should not usually require hospital admission
are over twice as high in the most deprived areas compared to the least deprived areas
Ensuring that people have a positive experience of care
• For the proportion of people who report their experience of GP services as very good or fairly
good, there has been an increase in the gap between areas of high deprivation and low
deprivation
18www.england.nhs.uk
How are things changing?
• Infant mortality by deprivation has narrowed. The greatest gains in reducing infant mortality
have been seen amongst the most deprived cohort of the population.
• The under 75 mortality rate from CVD by area deprivation (NB since overall CVD mortality has
been reducing, the effect has been to increase the relative ratio)
• However, for people who report their experience of GP services as ‘very good’ or ‘fairly good’
there has been an increase in the gap (https://gp-patient.co.uk/):
• between areas of high and low deprivation,
• between white British people and other ethnic groups,
• between heterosexuals and people of other sexual orientation and
• between older and younger people
19www.england.nhs.uk
IAF: Comparison of Absolute Gradient and Mean for inequality in
unplanned hospitalisation for chronic ambulatory care sensitive
conditions
19
Absolute
Gradient
Mean
Ideally, a CCG will have both a low absolute gradient and a low mean. That is a low rate of avoidable emergency admissions for the CCG as a
whole with little variation by area of deprivation. Comparison of heat maps enables identification of areas where this is not the case; for example,
a low mean but large absolute gradient suggests a low rate of avoidable emergency admissions for the CCG as a whole but variation by area of
deprivation within the CCG.
20www.england.nhs.uk 20
Deciles represent a national list of 33k Lower Super Output Areas ranked by deprivation score split into10 groups. (the average
LSOA population is 2k). Some LSOAs are split over more than one CCG.
Similar deciles are used nationally in relation to monitoring OF Indicators for Health Inequality progress
This indicator is also in the CCG IAF, progress will be measured using the absolute gradient of inequality.
The above table shows national deciles applied to Aylesbry Vale CCG and compares rates of emergency admission for these
deciles in the CCG with rates for the same decile nationally.
Note there are very few people in the most deprived decile in Aylesbry Vale CCG
If all CCGs aim to address deciles where rates are high compared to national rates, Right Care could have impact on both CCG IAF
and national indicators
CCG Emergency
Admissions Population
IMD 2015 Decile CCG (IAS) National (IAS) % Difference
Most deprived decile 1 0 1,423 -100% 0 10
2 989 1,123 -12% 47 5,580
3 1,296 963 34% 113 10,925
4 1,042 836 25% 74 9,125
5 943 759 24% 81 11,217
6 635 681 -7% 77 11,668
7 476 623 -24% 133 30,191
8 467 582 -20% 154 29,765
9 479 525 -9% 205 40,247
Least deprived decile 10 356 458 -22% 233 59,289
All 531 773 -31% 1,117 208,017
2.3i Unplanned hospitalisation for chronic ambulatory care sensitive
conditions (all ages) (emergency admissions)
Emergency Admissions per 100k CCG
registered population
Select CCG
CCG Code 10Y
Aylesbury Vale
Right Care Inequality in unplanned hospitalisation for chronic ambulatory care
sensitive conditions (105a in IAF, 2.3i in OF IHIE)
21www.england.nhs.uk
Maidstone
Index of Multiple
Deprivation (IMD)
% of residents from each
English quintile
Professor Chris Bentley HINST Associates
National quintiles applied regionally and to an area
22www.england.nhs.uk
Logic Model on current work to further develop the NHS England Equality and
Health Inequalities (EHI) Capability building Programme
1.Aims: Strengthen good practice in promoting equality and reducing health inequalities across NHS England’s priority areas
• Build knowledge and understanding of the Public Sector Equality Duty and Health Inequalities Duties.
• Mainstream promoting equality and reducing health inequalities across NHS England’s priority area policies and programmes.
• Ensure Robust Equality and Health Inequalities Impact Analyses feed into the development of policies
• Develop EHI Champions network to share good practice and support others in EHIA work
2.Offer to NHS E
• Inputs: Staff time
• Activities: Advanced Capability Training delivered to circa 30 senior staff by March 2017; One day capability development sessions for
200 staff by March 2018, starting in July 2016; EHIA ‘surgeries’ and webinars July 2016- March 2020.
• Screening tool and EQIA template
• Outputs: Trained staff, EHIAs inform better policy formulation
3.Behaviour changes sought
• Changes: Cultural change in NHSE so that equalities and health inequalities are mainstreamed as a matter of course during policy
development
4.What is needed to help desired behaviour changes happen?
• Understand the baseline. Know what good looks like. Gain traction for improvement. NHSE, CCGs, Providers identify patterns in
inequality and make targeted interventions to address these
• E.g. Potentially through the CCG assessment framework and Right Care Programme. Through recruitment and performance
management
5.Impacts/Benefits: Reduced inequality, more equitable health service, more productive health service and economy
6.Tracking progress: CCG Assessment Framework Indicators, Outcomes Framework Indicators, NHSE staff surveys
7.Links: ?
22
Inclusion Health
&
Digital Health
Everyone has
Lived Experience….
• Our focus is upon the Lived Experience of people with protected characteristics
and / or with multiple disadvantage.
• We have personal experience of destitution, homelessness, asylum Seeking,
addiction, prison healthcare, gang and gun crime and recovery.
• We are working with Devolution Greater Manchester to ensure that ‘people like
us’ can find themselves more easily in local NHS strategies and in
commissioning proposals, including those with protected characteristics such
as BME, lesbian, gay and trans gender communities.
• We work with the EDC to ensure that those who are socially excluded and live in
challenged circumstances get a fair deal from the NHS.
Stark Inequalities
and
’Inclusion Health’ groups
Homeless people are over 9 x
more likely to commit suicide
than general population.
Gypsy and Traveller
communities have lowest
life expectancy of any ethnic
group in UK, high maternal
and infant mortality rates;
low child immunization
levels, high rates of mental
illness, suicides, diabetes and
heart disease.
The average age of
death of a rough
sleepers is
30 years earlier
than average
population.
Two-thirds of refugees &
asylum seekers
suffer on anxiety or depression
and PTSD is underdiagnosed.
(Sources: DH Ministerial working group 2012, Crisis 2012, Faculty of Public Health, 2008)
Inclusion Health
is about supporting those who are ‘excluded’ in society and ‘marginalised’
from mainstream services.
• ‘Inclusion Health Groups’ are not usually best served by healthcare services,
and have significantly poorer health outcomes.
• Traditional definitions cover people who are homeless, vulnerable migrants
(refugees and asylum seekers), sex workers, and those from the Traveller
community (including Gypsies and Roma)
• Our definition of those in scope is kept under constant and regular review.
Expo 2015
Quotations about Exclusion
It happens to us:
Invisibility , marginalisation , denial of access to care.
People with LIVED EXPERIENCE of social exclusion in healthcare,
“Nothing about us without us!”
• You can't design services for groups of people whose lives , needs , assets
and health issues are an ‘unknown’
• You can't speak in your own language and assume it's universal – whether
that be the language of professionals, the language of acronyms, or
the English language...
Expo 2015 Pledge
We will co-produce leaflets to tackle denial of access to healthcare for
Inclusion Health groups, commencing with a bespoke leaflet with and for
asylum seekers and refugees.
What is the NHS doing to tackle health
inequalities for Inclusion Health group?
Inclusion Health groups experience poorer health outcomes and worse health
care than the general population. These poorer health outcomes can
contribute to reduced life expectancy and reduced healthy life expectancy,
which directly translates to increased costs for the health and social care
sector and the wider public sector and impacts on the contribution these
groups can made to society.
Access to Primary care –new registration guidelines
Patient Standard Operating Principles for Primary Medical Care
(General Practice) November 2015
https://www.england.nhs.uk/commissioning/wp-content/uploads/sites/12/2015/11/pat-reg-sop-pmc-gp.pdf
Patient facing leaflets for all Inclusion Health groups under development, via the EDC
Inclusion Health quick wins programme.
Devolution Principles
that aim to Tackle Exclusion
1. A new relationship between public services and communities that enables shared decision
making, voice, genuine co-production and joint delivery of services. Do with, not to.
2. An asset based approach that recognises and builds on the strengths of individuals, families and
our communities rather than focussing on the deficits.
3. A Behaviour change in our communities that builds independence and supports residents to be
in control
4. A place-based approach that redefines services and places individuals, families, communities at
the heart
5. A stronger prioritisation of well being, prevention and early intervention
6. An approach that supports the development of new investment and resourcing models..
Working to tackle healthcare
and digital exclusion
• NHS England Digital Technology Strategy
• NHS England Asylum Health National pilot
• Devolution for Greater Manchester priorities
Working to ensure that patient voice, lived experience, co-production and co-
design are central to ensuring that those people facing the worst inequalities
are given particular support so they are not excluded from access to healthcare
and are not digitally excluded from NHS Choices and digital information about
NHS services.
Key Aims of the
NHS England National Asylum Health Pilot
in Greater Manchester
• Asylum seeker led –enabling positive change
• High quality, appropriate healthcare for asylum seekers
• Clear, accessible information about asylum health
• Implementation of the new registration guidelines - Help to register
• Good access to appropriate services - wrap around volunteer support- health
buddies, mentors, people to help us navigate the system, write letters
• Co-designing the service model and co designing training for staff including
GPs and receptionists
• Building and sharing learning - bringing the lived experience of asylum
seekers together with the expertise of the healthcare professionals to enhance
healthcare and tackle inequalities in asylum health
CONSULTATION SESSION
ASYLUM SEEKERS HEALTH
OPEN EVENT
Patient Facing Leaflets
Leaflet developed by and for asylum seekers explaining how to
register with a doctor (GP), your rights to registration with a note
to the GP Practice asking for them to assist in registering the
person in accordance with the new guidelines.
Further leaflets developed
by and for asylum seekers
How to use NHS services,
and
NHS Digital Programme
Helen Rowntree, Programme Director – NHS Choices and
widening digital participation
September 2016
• 12.6m adults (23%) in UK lack basic digital skills & 5.3m (11%) have never
used the internet,
• Those who lack digital skills or access are likely to be older, have disabilities,
lower income & education,
• Correlation between digital exclusion, wider social disadvantage & health
inequalities,
• Health & care services, information, & opportunities for participation are
increasingly delivered digitally,
• We need to take positive steps to ensure that those who most need health &
care services are not left behind in the digital revolution,
What’s the problem we need to solve?
What have we done already?
• Widening Digital Participation (WDP): three year NHS England programme 2013-16
• Worked with social enterprise Tinder Foundation to provide national digital skills
training programme
• Digitally excluded people engaged through local UK Online Centres in deprived
communities
• Evaluation over the three year programme using quantitative & qualitative
methods
• Good evidence of benefits realised for individuals & the health & care system
• Positive outcomes include increased confidence, more self care & greater
use of online health services
How successful have we been?
Next phase of the programme
Key objectives for the new programme will be to:
• Develop models for effective local partnerships for tackling digital exclusion
through supporting local pathfinders (16 areas – 4 per Region)
• Work with digital delivery teams to ensure that digital health services are
inclusive
• Create and communicate evidence on how best to support groups which are
currently digitally excluded
• Build partnerships with other digital engagement initiatives in government,
industry & voluntary sector
• Embed digital inclusion in NHS systems & processes eg. planning,
performance management & incentives
How will we prioritise our work?
• An evidence based approach
• Data-driven analysis to understand the cross over between digital exclusion and health
inequality
• Mapping of digital exclusion heatmaps against indicators of local health inequalities
• The needs of the most digitally excluded will be prioritised – reaching the furthest first
What will success look like?
The outcomes of the programme will include:
• Number of citizens engaged
• Digital skills improved (using GDS digital inclusion scale)
• Health & care organisations engaged
• Activation of individuals (including decision making & self care)
• Impact on frontline services (including increased use of digital services & reduced use
of primary or urgent care)
• Sustainability of digital inclusion activity at local level (embedding in health & social
care commissioning & provision)
Inspiring Change Manchester
• Inspiring Change Manchester is led by Shelter and is part of the Big Lottery
Fund Fulfilling Lives multiple complex needs programme.
• We are a learning programme, testing new ways of addressing multiple needs,
for us that means people with a combination of problems related to
homelessness, mental health, drugs and alcohol or committing crime.
• Empowering and involving people who have experienced multiple needs one
of the main elements of the programme. Along with finding new ways of
providing joined up, person centred support.
Expo 2016 Pledge
What are our next steps?
Can we co-produce leaflets and digital material to tackle denial of access to
healthcare for people who are homeless and vulnerably housed?
Can we work with Health watch to produce material to tackle denial of
access to healthcare for gypsy, travellers and Roma groups?
Inclusion Health & Digital Health
Q&A
Session

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Inclusion Health and Digital Health

  • 2. Welcome and Introduction Helen Rowntree • Programme Director – NHS Choices and widening digital participation, 1.John Brittain and Gbemi Babalola • Principal Operational Researcher / EHI Analyst 2.Iman Rafatmah/Ruth Passman • Co-Chair National Asylum Health Pilot NHS England, • Equality Diversity Council Lived Experience Member, • Digital Service User Council Board Member, • Mind Equality Improvement Board Member, Ruth Passman – Head of Equality and Health Inequalities, NHS England Inclusion Health & Digital Health 3. Helen Rowntree • Programme Director – NHS Choices and widening digital participation, 4.Caroline Humphreys • Lead –Equality and Health Inequalities NHS England
  • 3. Addressing equality and health inequalities Health Inequalities Analysts NHS England September 2016
  • 4. 4www.england.nhs.uk Male Life Expectancy in Birmingham People living in deprived areas have poorer health and shorter lives 1. The under 75 mortality rate from CVD, was almost five times higher in the most deprived compared to the least deprived areas 2. The under 75 mortality rate from cancer was over twice as high in the most deprived compared to the least deprived areas 3. The infant mortality rate was over twice as high in the most deprived compared to the least deprived areas Outcomes framework inequality indicators latest data (2014) What about equality? African– Caribbean population stats:  5 times more likely to develop type 2 diabetes  More likely to have high blood pressure  Disproportionate representation of men in mental health services  Harsher treatment from primary & secondary mental health service  More likely to be diagnosed with a serious mental illness  Black men are 30% more likely to die from prostate cancer  Females over 65 have a higher risk of cervical cancer Ethnic groups- England and Wales, Office of National Statistics, 2011
  • 5. 5www.england.nhs.uk University Cost of inequalities/Impact on longevity Source Centre for Health Economics, York University • £4.8bn hospital costs • Socioeconomic inequalities result in increased morbidity and decreased life expectancy • Interventions to reduce inequality/improve health in more deprived areas have potential to save money for health systems not only within years but across peoples’ entire lifetimes, despite increased costs due to longer life expectancies Asaria, M., Doran, T., & Cookson, R. (2016). The costs of inequality: whole-population modelling study of lifetime inpatient hospital costs in the English National Health Service by level of neighbourhood deprivation. Journal of epidemiology and community health, jech-2016. Institute of Health Equity, University College London • £5.5bn NHS healthcare costs • £31-33 bn productivity losses • £28–32 bn lost taxes and welfare costs • 1.3 to 2.5 million potential years of life lost Marmot, M., Allen, J., Goldblatt, P., Boyce, T., McNeish, D., Grady, M., & Geddes, I. (2010). The Marmot review: Fair society, healthy lives. The Strategic Review of Health Inequalities in England Post-2010. Cass Business School, City University, London • 5% of British men reaching age 30 live on average to 96 years- 33.3 years longer than the lowest 10% • This gap grew by 1.7 years between 1993, when it was at its narrowest, and 2009. • The longest surviving women reach on average 98.2 years- 31 years more than the lowest • The female gap reached its narrowest in 2005, but has since levelled out. Mayhew, L, Smith, D. (2016). An investigation into inequalities in adult lifespan Research findings Research shows that health inequalities are associated with various costs, not only to the health system, but to the wider society.
  • 6. 6www.england.nhs.uk Indicators 106a. Inequality in unplanned hospitalisation for chronic ambulatory care sensitive conditions and 106b. Inequality in emergency admissions for urgent care sensitive conditions. They are based on those developed by Richard Cookson and Miqdad Asaria from the University of York, as part of the NIHR project (HS&DR: 11/2004/39 - Developing indicators of change in NHS equity performance). Absolute Gradient of Inequality (AGI) For each neighbourhood in the country, the rate of emergency admissions for certain conditions per 100,000 population can be calculated. This rate is then standardised to ensure age and sex of the population do not affect the data, enabling national comparison. Computing the differences between these standardised rates in the most and least deprived neighbourhoods provides the AGI for each CCG. This is also referred to as the gradient of the line of best fit (regression line) where emergency admissions data are plotted against deprivation. The AGI describes the difference in emergency admission rates that would be observed between the richest and poorest neighbourhoods in the country if the whole country were as unequal as that CCG. As this measure uses the national range of deprivation, direct comparisons between all CCGs are possible. The greater the AGI value (or the steeper the regression line), the greater the inequality. Mean Standardised rates of emergency admissions for each neighbourhood in the country are obtained using the above process. The rates for all neighbourhoods within a CCG can then be summed and divided by the total CCG population to obtain a mean rate for the CCG. The higher the mean, the greater the chance of having such a hospitalisation for people living in the neighbourhoods covered by that CCG. CCG Improvement and Assessment Framework (IAF):
  • 7. 7www.england.nhs.uk CCG IAF: Inequality in unplanned hospitalisation for chronic ambulatory care sensitive conditions – Absolute Gradient Key lines of enquiry Larger differences of emergency admissions have been identified in the north. Have CCGs identified any local barriers that cause more unplanned hospitalisation? CCGs with large absolute gradient Region Central Manchester CCG 2,133 North Islington CCG 1,958 London Canterbury and Coastal CCG 1,329 South CCGs with small absolute gradient City and Hackney CCG -102 London Fareham and Gosport CCG 109 South Wyre Forest CCG 341 Midlands Click here to see interactive heat map online Background There are large inequalities in the rate of unplanned hospitalisation for chronic ambulatory care sensitive conditions when comparing the most and least deprived areas nationally. A well performing system should minimise this rate. The absolute gradient can be used to measure within- CCG variation and to compare socioeconomic inequalities between CCGs. Sources: HES and population figures provided by NHS Digital Re-used with the permission of NHS Digital. All rights reserved.
  • 8. 8www.england.nhs.uk Right Care example: absolute gradient of inequality South Manchester CCG Avoidable Emergency Admissions for Cardiovascular Disease – bubble chart Bubbles plotted represent Lower Super Output Areas (LSOAs). Bubbles vary in size in proportion to the population of LSOAs. Nationally there are about 33k LSOAs with an average population of around 2k. Some LSOAs are split over more than one CCG. The steeper the slope the greater the level of health inequality e.g. a steep slope might mean greater inequality in the rate of avoidable emergency admissions. The red line is a line of best fit for the CCG, the dotted red lines show 95% confidence intervals sloped lines, the black line shows the national slope. If the shallowest dotted red line is steeper than the black line, inequality in the CCG is statistically significantly higher than the national level of inequality. If the shallowest dotted red line slopes upward, then inequality in the CCG is statistically significant. For Cardiovascular disease in South Manchester there would seem to be a significant difference in rates of avoidable emergence admissions for the most deprived compared with the least deprived.
  • 9. 9www.england.nhs.uk To develop CCG level analysis / tools on health inequalities for the Autumn Right Care pack on Long Term Conditions On deprivation and avoidable emergency admissions • For CCGs an LSOA absolute gradient of inequality for comparison with the national LSOA absolute gradient of inequality. • An LSOA level tool so that CCGs can identify LSOAs where there is high deprivation and high rates of avoidable emergency admissions. • National deciles applied at CCG level for the CCG Improvement and Assessment Framework (IAF) and Outcomes Framework (OF) inequality indicators, comparing CCG rates of avoidable emergency admissions with national rates for these deciles On protected characteristics comparisons of rates of avoidable emergency admissions for CCG IAF and OF inequality indicators at CCG level with rates at national levels Where possible the above analyses by Long Term Condition Right care might then be used to impact upon CCG IAF and OF national indicators of inequality Right Care Proposed Analysis for Autumn 9
  • 11. 11www.england.nhs.uk -These are individuals’ characteristics protected by the Equality Act of 2010. Any of these characteristics can increase the chance of health inequalities. • Age e.g. those 70 and over make up half of diagnosed cancer cases • Disability e.g. those with a LD have a greater chance of mortality from respiratory disease • Gender e.g. men typically develop heart disease 10 years earlier than women • Gender reassignment e.g. Poor access to health care services experienced by trans people • Marriage and civil partnership e.g. Married people live longer than unmarried people • Pregnancy and maternity e.g. Teenage pregnancy can affect education and employment • Race e.g. South Asian and black minorities have a greater chance of type 2 diabetes • Religion or belief e.g. increased discrimination in Muslims results in poorer overall health • Sexual orientation e.g. higher prevalence of attempted suicide in the gay and lesbian population Protected characteristics
  • 12. 12www.england.nhs.uk UK ethnicity breakdown Although White is the majority ethnicity group (86% reported), there are increasing numbers of people identifying with minority ethnic groups London is the most ethnically diverse area across English regions- above average proportions for most ethnic minorities Indian is the next largest ethnic group followed by Pakistani Incidence The HES database records ethnicity data, allowing a link between cancer registration and ethnicity to be made The white population have a greater incidence of various cancers than ethnic minority groups, although there are some exceptions Researchers put these differences to environmental, lifestyle and genetic factors Access to services Researchers suggest 2 main groups of factors that cause inequalities in access: • Personal factors • Cultural differences- response and attitude to health care services can differ • Language and literacy • Lack of knowledge on health services • Organisational factors • Differential need- risk profiles of different population groups need to be taken into account • Location • Staff training- staff may have skills in dealing with diversity appropriately which can create barriers Cancer and racial inequalities Ethnic groups- England and Wales, Office of National Statistics, 2011
  • 13. 13www.england.nhs.uk Patient experience Access to culturally relevant information flagged as an issue amongst BME groups Ethnic minority patients report lower levels of satisfaction and poor experiences with cancer care End of life care Less awareness and uptake of palliative care and at home services is an issue for minority groups Could be due to a lack of referrals, knowledge, poor communication and location Those from BME minorities are less likely to complete advance care planning documents and more likely to want active treatment Deprivation Overall incidence and mortality are higher in the more deprived area- this has not improved over time Exceptions include incidence of female breast cancer highest in the least deprived decile- is this related to age? Challenges There is limited evidence on the extent of cancer inequalities There are gaps in available data for analysis Particularly poor data on prevalence and survival Some cancer data is outdated Ethnicity data is categorised in different ways depending on the source- disparities between HES and ONS Cancer and racial inequalities contd.
  • 14. 14www.england.nhs.uk Priorities and available data NHSE Business Priorities Available Data Analysis (1) Improving the quality of care and access to cancer treatment ŸŸ-Cancer waiting times (NHS England statistics) https://www.england.nhs.uk/statistics/statistical- work-areas/cancer-waiting-times/ Ÿ-Cancer register (CCG, regional & national level, HSCIC) http://www.hscic.gov.uk/searchcatalogue?productid=19196&q=cancer&sort=Relevance&size=10& page=1#top - Cancer survival rates http://www.ons.gov.uk/peoplepopulationandcommunity/healthandsocialcare/conditionsanddise ases/datasets/cancersurvivalratescancersurvivalinenglandadultsdiagnosed -Which population groups are more prone to certain types of cancer and why -After diagnosis how is treatment being followed up - Difference in cancer survival rates between different population groups (2) Upgrading the quality of care and access to mental health and dementia services -Field tool available on HES -Mental health statistics http://www.hscic.gov.uk/catalogue/PUB20943 -Bed days for different population groups i.e. variation by age or ethnicity - Link between mental health and deprivation (using IMD) (3) Transforming care for people with learning disabilities -Field tool available on HES - Learning disability statistics (HSCIC) http://www.hscic.gov.uk/catalogue/PUB20824 -Bed days for different population groups i.e. variation by age or ethnicity (4) Tackling obesity and preventing diabetes -HES avoidable emergency admissions data -Diabetes register (HSCIC) http://www.hscic.gov.uk/searchcatalogue?productid=19196&q=cancer&sort=Relevance&size=10& page=1#top -Avoidable emergency admissions for related conditions i.e. T2DM, CVD - Which areas have higher relative registers- which inequalities could this relate to (5) Strengthening primary care services -GP survey data (protected characteristics) https://www.england.nhs.uk/statistics/category/statistics/gp-patient-survey / QOF data (various conditions) http://www.hscic.gov.uk/catalogue/PUB18887 GP practices registered populations http://www.hscic.gov.uk/searchcatalogue?productid=20718&topics=2%2fPrimary+care+services% 2fGeneral+practice%2fGP+registered+population&sort=Relevance&size=10&page=1#top -HES avoidable emergency admissions data -Looking at what causes inequality in patient experience; which groups have poor access to primary care services - The link between avoidable emergency admissions to poor access of primary care services, due to protected characteristics/socio-economic factors (6) Redesigning urgent and emergency care services -HES avoidable emergency admissions data -Find out what drives inequality based on patient charateristics and socio-economic status- link admission condition to area deprivation sore (7) Providing timely access to high quality elective care -Elective care waiting times (consultant-led referral, NHSE Statistics) https://www.england.nhs.uk/statistics/statistical-work-areas/rtt-waiting-times/ - -Cancelled elective operations https://www.england.nhs.uk/statistics/statistical-work- areas/cancelled-elective-operations/ - Look at population groups experience higher waiting times - Access to maternity services based on population groups (8) Ensuring high quality and affordable specialised care - Innovation scorecard data? http://www.hscic.gov.uk/article/7101/Innovation-Scorecard - Inequalities in access to medicines & specialised treatments between CCGs/LSOAs - Comparison between like CCGs (Right care) (9)Transforming commissioning - maternity & breastfeeding data https://www.england.nhs.uk/statistics/statistical-work- areas/maternity-and-breastfeeding/ - Maternity service statistics (HSCIC) http://www.hscic.gov.uk/maternityandchildren/maternityreports - Access to maternity services based on population groups - Ties in analysis from previous priorities to reduce inequalities- look at health outcomes across different CCGs for key disease areas (10) Controlling costs and enabling change -HES avoidable emergency admissions data - Innovation scorecard data?http://www.hscic.gov.uk/article/7101/Innovation-Scorecard -GP survey data https://www.england.nhs.uk/statistics/category/statistics/gp-patient-survey/ - Friends and family test data https://www.england.nhs.uk/ourwork/pe/fft/friends-and-family- test-data/ - NHS staff survey http://www.nhsstaffsurveys.com/Page/1010/Home/NHS-Staff-Survey-2015/ - Right care analysis supported with avoidable emergency admissions - Uptake of innovation across the country (CCG, national, regional level) -Analysis of patient experience from different population groups -Workforce experience baesd on protected characteristics
  • 15. 15www.england.nhs.uk Protected characteristics and NHS England priorities Age Disability Gender reassignment Marriage & civil partnership Pregnancy and maternity Race Religion or belief Sex Sexual orientation Inequality Indicators from outcomes framework 1a.i, 1b.i, 1b.ii, 2, 2.3.i, 1.4, 4.4.i 4a.i 2.3.i, 4a.i, 4.4.i 3a 1.6i, 4.4i 1.1, 1.4, 2, 3a, 4a.i, 4.4.i 2 1a.i, 1b.i, 1b.ii, 1.4, 2 2, 3a, 4a.i, 4.4.i All indicators 1. Improving the quality of care and access to cancer treatment 1.4 2. Upgrading the quality of care and access to mental health and dementia services 2.3.i 3. Transforming care for people with learning disabilities 2.3i, 3a 4. Tackling obesity and preventing diabetes 1.1, 2.3.i 5. Strengthening primary care services 1.6.i, 2, 2.3.i, 4a.i, 4.4.i 6. Redesigning urgent and emergency care services 2.3.i, 3a 7. Providing timely access to high quality elective care 1.6.i 8. Ensuring high quality and affordable specialised care 9. Transforming commissioning 10. Controlling costs and enabling change 3a NHSBusinessPlanPriorities Deprivation Protected Characteristics
  • 16. 16www.england.nhs.uk Indicators on Equality and Health Inequalities New CCG Improvement and Assessment Framework Indicators – the aim is to increase these further in the coming year • 106a Inequality in unplanned hospitalisation for chronic ambulatory care sensitive conditions • 106b Inequality in emergency admissions for urgent care sensitive conditions Current outcomes framework indicators Preventing people from dying prematurely • 1a.i: Potential Years of Life Lost (PYLL) from causes considered amenable to healthcare • 1bi Life expectancy at 75 males • 1bii Life expectancy at 75 females • 1.1 Under 75 mortality rate from cardiovascular disease • 1.4 Under 75 mortality rate from cancer • 1.6.i Infant mortality Enhancing quality of life for people with long-term conditions • 2 Health-related quality of life for people with long-term conditions • 2.3.i Unplanned hospitalisation for chronic ambulatory care sensitive conditions Helping people to recover from episodes of ill health or following injury • 3a Emergency admissions for acute conditions that should not usually require hospital admission Ensuring that people have a positive experience of care
  • 17. 17www.england.nhs.uk Health inequalities: people living in deprived areas have poorer health Outcomes framework inequality indicators latest data (2014) show Preventing people from dying prematurely • The under 75 mortality rate from CVD, was almost five times higher in the most deprived compared to the least deprived areas • The under 75 mortality rate from cancer was over twice as high in the most deprived compared to the least deprived areas • The infant mortality rate was over twice as high in the most deprived compared to the least deprived areas Enhancing quality of life for people with long-term conditions • Unplanned hospitalisation for chronic ambulatory care sensitive conditions is four times as high in the most deprived areas compared to the least deprived areas Helping people to recover from episodes of ill health or following injury • Emergency admissions for acute conditions that should not usually require hospital admission are over twice as high in the most deprived areas compared to the least deprived areas Ensuring that people have a positive experience of care • For the proportion of people who report their experience of GP services as very good or fairly good, there has been an increase in the gap between areas of high deprivation and low deprivation
  • 18. 18www.england.nhs.uk How are things changing? • Infant mortality by deprivation has narrowed. The greatest gains in reducing infant mortality have been seen amongst the most deprived cohort of the population. • The under 75 mortality rate from CVD by area deprivation (NB since overall CVD mortality has been reducing, the effect has been to increase the relative ratio) • However, for people who report their experience of GP services as ‘very good’ or ‘fairly good’ there has been an increase in the gap (https://gp-patient.co.uk/): • between areas of high and low deprivation, • between white British people and other ethnic groups, • between heterosexuals and people of other sexual orientation and • between older and younger people
  • 19. 19www.england.nhs.uk IAF: Comparison of Absolute Gradient and Mean for inequality in unplanned hospitalisation for chronic ambulatory care sensitive conditions 19 Absolute Gradient Mean Ideally, a CCG will have both a low absolute gradient and a low mean. That is a low rate of avoidable emergency admissions for the CCG as a whole with little variation by area of deprivation. Comparison of heat maps enables identification of areas where this is not the case; for example, a low mean but large absolute gradient suggests a low rate of avoidable emergency admissions for the CCG as a whole but variation by area of deprivation within the CCG.
  • 20. 20www.england.nhs.uk 20 Deciles represent a national list of 33k Lower Super Output Areas ranked by deprivation score split into10 groups. (the average LSOA population is 2k). Some LSOAs are split over more than one CCG. Similar deciles are used nationally in relation to monitoring OF Indicators for Health Inequality progress This indicator is also in the CCG IAF, progress will be measured using the absolute gradient of inequality. The above table shows national deciles applied to Aylesbry Vale CCG and compares rates of emergency admission for these deciles in the CCG with rates for the same decile nationally. Note there are very few people in the most deprived decile in Aylesbry Vale CCG If all CCGs aim to address deciles where rates are high compared to national rates, Right Care could have impact on both CCG IAF and national indicators CCG Emergency Admissions Population IMD 2015 Decile CCG (IAS) National (IAS) % Difference Most deprived decile 1 0 1,423 -100% 0 10 2 989 1,123 -12% 47 5,580 3 1,296 963 34% 113 10,925 4 1,042 836 25% 74 9,125 5 943 759 24% 81 11,217 6 635 681 -7% 77 11,668 7 476 623 -24% 133 30,191 8 467 582 -20% 154 29,765 9 479 525 -9% 205 40,247 Least deprived decile 10 356 458 -22% 233 59,289 All 531 773 -31% 1,117 208,017 2.3i Unplanned hospitalisation for chronic ambulatory care sensitive conditions (all ages) (emergency admissions) Emergency Admissions per 100k CCG registered population Select CCG CCG Code 10Y Aylesbury Vale Right Care Inequality in unplanned hospitalisation for chronic ambulatory care sensitive conditions (105a in IAF, 2.3i in OF IHIE)
  • 21. 21www.england.nhs.uk Maidstone Index of Multiple Deprivation (IMD) % of residents from each English quintile Professor Chris Bentley HINST Associates National quintiles applied regionally and to an area
  • 22. 22www.england.nhs.uk Logic Model on current work to further develop the NHS England Equality and Health Inequalities (EHI) Capability building Programme 1.Aims: Strengthen good practice in promoting equality and reducing health inequalities across NHS England’s priority areas • Build knowledge and understanding of the Public Sector Equality Duty and Health Inequalities Duties. • Mainstream promoting equality and reducing health inequalities across NHS England’s priority area policies and programmes. • Ensure Robust Equality and Health Inequalities Impact Analyses feed into the development of policies • Develop EHI Champions network to share good practice and support others in EHIA work 2.Offer to NHS E • Inputs: Staff time • Activities: Advanced Capability Training delivered to circa 30 senior staff by March 2017; One day capability development sessions for 200 staff by March 2018, starting in July 2016; EHIA ‘surgeries’ and webinars July 2016- March 2020. • Screening tool and EQIA template • Outputs: Trained staff, EHIAs inform better policy formulation 3.Behaviour changes sought • Changes: Cultural change in NHSE so that equalities and health inequalities are mainstreamed as a matter of course during policy development 4.What is needed to help desired behaviour changes happen? • Understand the baseline. Know what good looks like. Gain traction for improvement. NHSE, CCGs, Providers identify patterns in inequality and make targeted interventions to address these • E.g. Potentially through the CCG assessment framework and Right Care Programme. Through recruitment and performance management 5.Impacts/Benefits: Reduced inequality, more equitable health service, more productive health service and economy 6.Tracking progress: CCG Assessment Framework Indicators, Outcomes Framework Indicators, NHSE staff surveys 7.Links: ? 22
  • 24. Everyone has Lived Experience…. • Our focus is upon the Lived Experience of people with protected characteristics and / or with multiple disadvantage. • We have personal experience of destitution, homelessness, asylum Seeking, addiction, prison healthcare, gang and gun crime and recovery. • We are working with Devolution Greater Manchester to ensure that ‘people like us’ can find themselves more easily in local NHS strategies and in commissioning proposals, including those with protected characteristics such as BME, lesbian, gay and trans gender communities. • We work with the EDC to ensure that those who are socially excluded and live in challenged circumstances get a fair deal from the NHS.
  • 25. Stark Inequalities and ’Inclusion Health’ groups Homeless people are over 9 x more likely to commit suicide than general population. Gypsy and Traveller communities have lowest life expectancy of any ethnic group in UK, high maternal and infant mortality rates; low child immunization levels, high rates of mental illness, suicides, diabetes and heart disease. The average age of death of a rough sleepers is 30 years earlier than average population. Two-thirds of refugees & asylum seekers suffer on anxiety or depression and PTSD is underdiagnosed. (Sources: DH Ministerial working group 2012, Crisis 2012, Faculty of Public Health, 2008)
  • 26. Inclusion Health is about supporting those who are ‘excluded’ in society and ‘marginalised’ from mainstream services. • ‘Inclusion Health Groups’ are not usually best served by healthcare services, and have significantly poorer health outcomes. • Traditional definitions cover people who are homeless, vulnerable migrants (refugees and asylum seekers), sex workers, and those from the Traveller community (including Gypsies and Roma) • Our definition of those in scope is kept under constant and regular review.
  • 27. Expo 2015 Quotations about Exclusion It happens to us: Invisibility , marginalisation , denial of access to care. People with LIVED EXPERIENCE of social exclusion in healthcare, “Nothing about us without us!” • You can't design services for groups of people whose lives , needs , assets and health issues are an ‘unknown’ • You can't speak in your own language and assume it's universal – whether that be the language of professionals, the language of acronyms, or the English language...
  • 28. Expo 2015 Pledge We will co-produce leaflets to tackle denial of access to healthcare for Inclusion Health groups, commencing with a bespoke leaflet with and for asylum seekers and refugees.
  • 29. What is the NHS doing to tackle health inequalities for Inclusion Health group? Inclusion Health groups experience poorer health outcomes and worse health care than the general population. These poorer health outcomes can contribute to reduced life expectancy and reduced healthy life expectancy, which directly translates to increased costs for the health and social care sector and the wider public sector and impacts on the contribution these groups can made to society. Access to Primary care –new registration guidelines Patient Standard Operating Principles for Primary Medical Care (General Practice) November 2015 https://www.england.nhs.uk/commissioning/wp-content/uploads/sites/12/2015/11/pat-reg-sop-pmc-gp.pdf Patient facing leaflets for all Inclusion Health groups under development, via the EDC Inclusion Health quick wins programme.
  • 30. Devolution Principles that aim to Tackle Exclusion 1. A new relationship between public services and communities that enables shared decision making, voice, genuine co-production and joint delivery of services. Do with, not to. 2. An asset based approach that recognises and builds on the strengths of individuals, families and our communities rather than focussing on the deficits. 3. A Behaviour change in our communities that builds independence and supports residents to be in control 4. A place-based approach that redefines services and places individuals, families, communities at the heart 5. A stronger prioritisation of well being, prevention and early intervention 6. An approach that supports the development of new investment and resourcing models..
  • 31. Working to tackle healthcare and digital exclusion • NHS England Digital Technology Strategy • NHS England Asylum Health National pilot • Devolution for Greater Manchester priorities Working to ensure that patient voice, lived experience, co-production and co- design are central to ensuring that those people facing the worst inequalities are given particular support so they are not excluded from access to healthcare and are not digitally excluded from NHS Choices and digital information about NHS services.
  • 32. Key Aims of the NHS England National Asylum Health Pilot in Greater Manchester • Asylum seeker led –enabling positive change • High quality, appropriate healthcare for asylum seekers • Clear, accessible information about asylum health • Implementation of the new registration guidelines - Help to register • Good access to appropriate services - wrap around volunteer support- health buddies, mentors, people to help us navigate the system, write letters • Co-designing the service model and co designing training for staff including GPs and receptionists • Building and sharing learning - bringing the lived experience of asylum seekers together with the expertise of the healthcare professionals to enhance healthcare and tackle inequalities in asylum health
  • 35. Patient Facing Leaflets Leaflet developed by and for asylum seekers explaining how to register with a doctor (GP), your rights to registration with a note to the GP Practice asking for them to assist in registering the person in accordance with the new guidelines.
  • 36.
  • 37.
  • 38. Further leaflets developed by and for asylum seekers How to use NHS services, and
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  • 40.
  • 41. NHS Digital Programme Helen Rowntree, Programme Director – NHS Choices and widening digital participation September 2016
  • 42. • 12.6m adults (23%) in UK lack basic digital skills & 5.3m (11%) have never used the internet, • Those who lack digital skills or access are likely to be older, have disabilities, lower income & education, • Correlation between digital exclusion, wider social disadvantage & health inequalities, • Health & care services, information, & opportunities for participation are increasingly delivered digitally, • We need to take positive steps to ensure that those who most need health & care services are not left behind in the digital revolution, What’s the problem we need to solve?
  • 43. What have we done already? • Widening Digital Participation (WDP): three year NHS England programme 2013-16 • Worked with social enterprise Tinder Foundation to provide national digital skills training programme • Digitally excluded people engaged through local UK Online Centres in deprived communities
  • 44. • Evaluation over the three year programme using quantitative & qualitative methods • Good evidence of benefits realised for individuals & the health & care system • Positive outcomes include increased confidence, more self care & greater use of online health services How successful have we been?
  • 45. Next phase of the programme Key objectives for the new programme will be to: • Develop models for effective local partnerships for tackling digital exclusion through supporting local pathfinders (16 areas – 4 per Region) • Work with digital delivery teams to ensure that digital health services are inclusive • Create and communicate evidence on how best to support groups which are currently digitally excluded • Build partnerships with other digital engagement initiatives in government, industry & voluntary sector • Embed digital inclusion in NHS systems & processes eg. planning, performance management & incentives
  • 46. How will we prioritise our work? • An evidence based approach • Data-driven analysis to understand the cross over between digital exclusion and health inequality • Mapping of digital exclusion heatmaps against indicators of local health inequalities • The needs of the most digitally excluded will be prioritised – reaching the furthest first
  • 47. What will success look like? The outcomes of the programme will include: • Number of citizens engaged • Digital skills improved (using GDS digital inclusion scale) • Health & care organisations engaged • Activation of individuals (including decision making & self care) • Impact on frontline services (including increased use of digital services & reduced use of primary or urgent care) • Sustainability of digital inclusion activity at local level (embedding in health & social care commissioning & provision)
  • 48. Inspiring Change Manchester • Inspiring Change Manchester is led by Shelter and is part of the Big Lottery Fund Fulfilling Lives multiple complex needs programme. • We are a learning programme, testing new ways of addressing multiple needs, for us that means people with a combination of problems related to homelessness, mental health, drugs and alcohol or committing crime. • Empowering and involving people who have experienced multiple needs one of the main elements of the programme. Along with finding new ways of providing joined up, person centred support.
  • 49. Expo 2016 Pledge What are our next steps? Can we co-produce leaflets and digital material to tackle denial of access to healthcare for people who are homeless and vulnerably housed? Can we work with Health watch to produce material to tackle denial of access to healthcare for gypsy, travellers and Roma groups?
  • 50. Inclusion Health & Digital Health Q&A Session

Editor's Notes

  1. RP
  2. RP
  3. Here are some statistics that may surprise you… Left shows those on the CHD register and the dotted areas are deprived Right shows deaths from CHD We can see that the most deprived have greater chance of death from CHD under 75, yet are not known to the services Equality encompasses access, patient experience amongst others these stats are just 1 example of equality issues experienced by those that have protected characteristics such as race The comparator is the white population- the chart shows that white groups make up 86% of the England population whereas black groups make up about 3.3%
  4. Research has been carried out from key institutions illustrating the impact of health inequalities Tackling health inequalities does not only benefit health, it also influences other sectors York university-it would be cheaper to reduce inequalities and have people live for longer than to have a bigger inequality gap where life expectancy is shorter Cass research shows that the gap between the oldest and shortest lived is widening for the first time since the 1870s
  5. 2 inequality indicators are part of the CCG improvement and assessment framework, based around hospital admissions that will help to monitor equity performance AGI: a tool that allows measurement of socioeconomic inequalities. Gives the difference in rate of emergency admissions between rich and poor that would be seen if the whole country were as unequal as a given CCG Greater value suggests higher inequality within the CCG Mean Average number of avoidable emergency admissions for all neighbourhoods within a CCG The higher the mean rate, the greater chance of hospitalisation for those in the neighbourhoods covered All numbers are standardised to ensure any differences in age and sex structure of the neighbourhoods do not affect the results
  6. Taken from our ‘challenging health inequalities report’ and shows one way of identifying variation in emergency admissions between the more and less deprived CCGs in England Conditions such as diabetes, asthma and hypertension Here we have examples of CCGs with a large or small AGI in their region Divided into quintiles based on AGI score Shows that variation in inequality can occur regardless of whether a CCG is in one of the most or least deprived areas City and Hackney is one of the most equal CCGs despite being one of the more deprived
  7. An example of the type of content we would hope to include in Right Care packs, focusing on condition (South Manchester & CVD) Chart shows the AGIs of neighbourhoods within a CCG ranked by their level of deprivation Trend shows the more deprived neighbourhoods have a greater rate of avoidable emergency admissions The upper boundary of the 95% confidence interval has a steeper line than the national average, showing that inequality in South Manchester is statistically significantly higher than the national level
  8. Here we have an extensive list of possible analysis that we hope to tackle one step at a time Focus around CCG level analysis for Right Care packs Take the analysis a step further and look at the inequality indicators in terms of protected characteristics
  9. RP
  10. IR to introduce himself and the lived experience angle. Introduce others with lived experience in the workshop We are looking at how we can improve health and reduce helth inequalities. How the NHS can support those who have lived experience and are marginalised or who are getting a raw deal from services.
  11. RP to introduce what does inclusion look like , make the link between inclusion health groups, large scale barriers to access and poor health outcomes –see capability training wording. Ick out average age odf death of homeless person. Inclusion Health groups experience poorer health outcomes and worse health care than the general population. These poorer health outcomes can contribute to reduced life expectancy and reduced healthy life expectancy, which directly translates to increased costs for the health and social care sector and the wider  public sector and impacts on the contribution these groups can made to society.
  12. RP refer to co production work with NHS Engand EHI Unit , EDC IH/LE sub group and GMVG at Expo in 2014 and 2015. Want to ensure all commisisoners and programme directors and health service managers can design and deliver inclusive services and tackle the digital divide. NHS England’s working definition also includes those undergoing or surviving Female Genital Mutilation (FGM) and Human Trafficking, those who define themselves as being part of a recovery movement, and the trans/non-binary community - an interim protocol for gender identity services is in place and the service specification is under review. 
  13. IR We have been holding workshops for the last 2 years- Expo 2014 nd Expo 2015. These have been attended by health profesionals and people of lived experience who have described some of the barriers they have experienced in accessing appropriate health care. We have worked with NHS England to highlight these issues and to start to address the problems. – these are some of the quotes. Nothing about us without us!
  14. IR Last year we pledged to produce some resources to help Inlcusion Heath groups and to come back and tell you how we have got on.
  15. RP –link to new registration guidelines Last couple of years we have identified that one of the major barriers that IH fgroups face is around GP Registration and we have worked with our collegaues in primary care to produce new guidelines. Barriers to registration linked with profof of address, utility bills, photo ID has impated negatively on homeless patients, people leaving the prison system, people in recovery and asylum seekers and refugees. New registration guidelines and accompanying patient facing leaflets.
  16. RP – link to devolution Much of the work underway has been supported by GM devolution health and care leaders and it aligns with the work underway to work with communities from a strength based perspective and tackle inequalities. Many of those invovled in designing this material are from GM. Alignment with values of devolution
  17. RP
  18. IR/plus Emma Hicklin I am co chair of the National Asylum Health Pilot – would like to introduce Emma Hickling, manager of … to say a few words about the work underway.
  19. IR/EH The asylum seekers have designed the leaftets and asylum health material themselves -working alongside health professionals
  20. IR/EH Through this pilot we have been asking asylum seekers what works well for them in terms of healthcare, what are the issues and barriers
  21. IR There are some draft copies of this leaflet that we have circulated. A recent report by DOTW found that 48% (?) of asylum seekers are denied registration by GP practices. This leaflet seeks to should help asylum seekers overcome some of these barriers. The leaflet asks the practice to register the patient even if they are not able to provide ID and if the practice is unable to register the asylum seeker, it asks the practice to record the reason for not registering. The leaflet provides some helpline info and in the worst case scenario, explains how to complain if you feel you have been denied regitsration unfairly
  22. IR
  23. IR
  24. IR The NHS is quite difficult to navigate and we realised that many asylum seekers are confused about which service they should use and when. We diesgned this leaflet with asylum seekers to explain how to use NHS services night and day.
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  27. HR
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  32. RP As Iman explained, the asylum health leaflet is the first of a series of leafets that is beig co produced with NHS Englabd EHI Unit to address exclusion and barriers to healthcare. We have been in discussion with people with lived experience in GM about producing a leaflet to address the barriers to GP registration that homeless people face. This complements some exceleltn work underway producing digital resourcs and apps – Paul and x can tell you more
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