Northern NSW (NNSW) LHD was awarded a $20,000 grant from the Cancer Institute NSW to increase breast and cervical cancer screening in Aboriginal women and cancer screening in Aboriginal men in the Northern NSW region.
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Improving Aboriginal and Torres Strait Islander cancer screening rates in NNSW LHD through community information and organised screening events
1.
2. Prepared by Teena Binge
Senior Aboriginal Health Education Officer
Richmond Network – NNSW Local Health District
October 2015
Improving Aboriginal andImproving Aboriginal and
Torres Strait IslanderTorres Strait Islander
Cancer Screening Rates in NNSW LHDCancer Screening Rates in NNSW LHD
through Community Information andthrough Community Information and
Organised Screening eventsOrganised Screening events
3. THE TEAMTHE TEAM
NNSW Local Health District Senior Aboriginal Health
Education Officers (SAHEO’s)
Aboriginal Health Education Officers (AHEO’s)
Other clinicians in cancer and other health services from
NNSW LHD, Aboriginal Medical Services, BreastScreen NSW
North Coast, Men's and Women's Health, Community
Members, Cancer Institute and Primary Care Network
6. BackgroundBackground
In our NNSW LHD the data shows that we have low participation in
screening rates for Breast and Cervical Cancer in Aboriginal
Women and Cancer’s in Aboriginal Men in our region.
As a result, Aboriginal Health, NNSW Local Health District applied
for and was granted $20,000 from Cancer Institute NSW to
increase our regions participation in screenings and access to
services.
This was to be approached by providing culturally relevant
Community Education and Cancer Awareness Workshops and
Screening days.
8. Table 1: NNSW LHD 2011 Aboriginal
population by LGA3 LGA
Aboriginal population % of LGA population
Tweed 2,939 3.5%
Byron 516 1.8%
Lismore 1,915 4.5%
Kyogle 488 5.3%
Ballina 1,224 3.1%
Richmond Valley 1,453 6.6%
Clarence Valley 2,845 5.7%
Urbenville 14 3.1%
Factsheet 3
Page 1 of 6
April 2013
North Coast Public Health Unit
Enquires: 1300 066 055
Figure 1: Aboriginal population as a proportion of
Local Government Area total population, 2011
9. Figure 2: Population by age, Aboriginality and Sex, Northern NSW LHD 2011
Factsheet 3
Page 2 of 6
April 2013
North Coast Public Health Unit
Enquires: 1300 066 055
Northern NSW Local Health District:
Aboriginal Population Health
10. Varying performances in participation within the NNSW LHD
Reporting for Better
Outcomes (RBCO) data on
ATSI women, 50-69 yo. 2013-
14
11.
12. AimsAims
To increase the access and attendance of our local
Aboriginal community across NNSW LHD to cancer
care treatment and screening services.
Create a culturally safe environment for
information and education about cancer services
13. MethodMethod
Develop targeted and specific models of care to increase access of
Aboriginal Women and Men to culturally appropriate screening services.
Public education through Cancer Care Yarn-up days/Information forums
at Tweed Heads, Lismore and Grafton. These days provide our mob with
culturally relevant education about cancer types and the local
treatments and Cancer Services available, and will help improve
community awareness.
Conduct open days at cancer treatment centres for community to
attend.
Improve collaboration between specialise cancer services and Aboriginal
community events.
14.
15. RESULTSRESULTS
Richmond and Clarence Networks held yarn up and screening days.
BreastScreen van used in communities when available or appointments
made when van wasn’t
Women and men who did not undertake screenings on day were offered
appointments at BreastScreen, local GP’s or AMS’s
Recommendations made to develop regular education/screening days,
strategies for improved early detection and local resources for Cancer Care.
Provide group leader facilitator training through the Cancer Council
Community members and Health Workers attended an open day at Lismore
Cancer Centre to see and learn about this service.
16. RESULTSRESULTS
In rural settings there were many community members who
received cervical and/or breast screening for the first time.
Although the project focused on Women’s Cancer, it was a
surprising outcome to find that significant men in the community
were encouraging family members to attend the screening days and
thus break the cycle of fear in accessing mainstream health services.
Some of our elder community (over 40 years) had never had any
screening before and knew little about the cancer story, but were
keen to share their new found knowledge.
Aboriginal people/Staffs time and involvement = program works.
17. PRE AND POST– EVALUATIONSPRE AND POST– EVALUATIONS
Lismore Yarn up and Screening DayLismore Yarn up and Screening Day
18.
19. LESSONS LEARNTLESSONS LEARNT
Many communities have transportation challenges and these need to be
identified early to optimise attendance.
Historical Beliefs of community and family have a major impact on
Aboriginal people and their access and feelings regarding cancer and
cancer care services.
Information for Aboriginal community needs to be relevant and available in
various formats.
Workforce – Aboriginal Health staff and Cancer services staff need to
collaborate and advocate for improved focus on screening issues.
Data is important to assess the success of projects and inform future
directions.
20. PROJECT SUSTAINABILITYPROJECT SUSTAINABILITY
That LHD AHEOs knowledge and skills be utilised by all Service
Providers in developing partnerships and strategies to increase the
number of screenings achieved in all area’s of health and wellbeing
Each region has recommended that there be establishment of local
Aboriginal Cancer support groups, who regularly meet.
That Men’s and Women’s groups be established that look at all
aspects of health, including cancer.
Establish our own local benchmarks within the Aboriginal Health
Unit in not only Cancer but all specific health conditions.
21. IMPLICATIONSIMPLICATIONS
Across the district it was observed that community members were more
comfortable in discussing cancer diagnosis and treatment.
Following on from the project we are developing localised “Cancer Services
booklets”, that describes the various staff, support services and treatments
available for them and their families.
Provide support and assistance to encourage culturally appropriate and
sensitive service delivery to our Aboriginal community.
Lobby for available Aboriginal staff who are able to put the amount of time
and effort in to making this program work.
The overall aim is to improve relative cancer outcomes for the Aboriginal
community in our region.
Acknowledgement to Country – I would like to acknowledge Gadigal people of The "Eora nation" who are the traditional owners of the land on which we meet today. I would also like to acknowledge all Aboriginal and Torres Strait Islander people who are here today, our elders of past and present and those of our future, who are our future.
My name is Teena Binge and I am a Senior AHEO of the Richmond network, located within the NNSWLHD and I have been asked by our team to present to you today about our project……’
Throughout this presentation I will be referring to Aboriginal And Torres Strait Islander peoples as ‘Aboriginal’.
Partnerships are important to having a very productive and positive impact, as well as utilising what resources are available through such services and community.
It all assists with better service delivery.
Logo’s page (shout out to partners)
This slide highlights the diverse range of Aboriginal people who live and work here, we all come in different colours, shapes and sizes
It also shows that when we do anything we do it with ALL community and try to make it fun and inclusive
Why did we do this project
Aboriginal NNSW LHD. Different nations, people, cultures, traditions within a LHD
Aboriginal Population in LGA, Breakdown for our area as per each community
Population by Age, Sex and Aboriginality
Highlights that we have a high % of population between 0 and 30 yrs, after 30yrs we have a dramatic decline in our population due to disease and chronic illness and lifestyles
This graphic from the ‘Reporting for Better C Outcomes’ data shows the varying performances/participation rates in BreastScreening within the NNSW LHD Aboriginal women aged 50-69 yo. Doesn’t show 40-5-y/o age grp.
Highlights how well Tweed has performed in comparison with NNSW LHD
The is a comparator against NNSW LHD (top bar on graph) and the NSW average (black line).
As part of negotiated with a GP clinic, it was highlighted they needed to review their recall systems for screenings and follow-ups as a lot of Women in relation to BreastScreening were not coming back for follow-ups or subsequent screenings/visits
Negotiate with screening services and GP Clinics/AMS’s to establish and provide block bookings, referral pathways and recall systems
Worked in partnership with Aboriginal Medical Services, BreastScreen NSW, Local Cancer Care Services, other Aboriginal Services and local Aboriginal Community Members to assist appropriate
Provide health screening to community, particularly in the area of Breast, Cervical, Prostate and Bowel cancer.
Where possible AHEOs to follow-up with clients to ensure presentation at screening events (cannot be a long term solution, but complimentary support role)
Community and Health Workers attended an open day at Lismore Cancer Centre to see and learn about this service.
Richmond Day 1 - Casino Men's and Women’s day was held, 15 community members attending. Mammograms/cervical screening provided. Nine mammograms undertaken.
Richmond Day 2 – Bonalbo, held in partnership with the BreastScreen van. Ten community members attended and were screened.
Richmond Day 3 - Lismore Men’s and Women’s groups held at difference locations. Ten mammograms and Seven cervical screenings undertaken. Men provided bowel cancer kits through Rotary.
Grafton held a day in collaboration with the local Bulgarr Ngaru Aboriginal Medical service. Breast screening was not able to be undertaken as bus not available, appointments were made for interested Community members. Cervical screening was conducted through clinics provided by the local AMS.
Men's discussion with local GP about male related cancers and screening appointments made. Men’s Groups initiatives ie: support group, screenings and partnerships with many services
Recommendations made, ie: establishing regular cancer education and screening days, develop local strategies for improved early detection (such as young women and young men etc.)
Develop local resources. Yaegal Womens Group developed breast screen book, developing Clarence/Yaegal Cancer Care Booklet
Worker involvement in BreastScreening/Women’s Health, Access and follow-up.
Already have Support Group running since August 2014. The group met three times with one person who attended. A recent discussion between facilitator’s has changed the direction of the support group to work on a one on one basis with individuals and families, and if support members want to meet together then that is arranged. It is believed the initial impact of learning about cancer would be more effective to work one on one and provide practical support to individuals/families.
Workforce – ALL service providers need to lobby for Specialist Aboriginal staff
This slide shows that even though this program only went for around four hours, there was a significant shift in attitudes and knowledge of participants
AHEO’s are unable to do EVERY role that needs to be covered, Specialist services need specialist ATSI staff. WORKFORCE
Getting people to give up their stats data. Acknowledge how stats are gathered.
Investigate possibility of developing a Nat/State Database for stats re: ATSI health/community, Investigate how current data is stored. Data for under 50’s difficult to source
Refer to http://canceraustralia.gov.au/publications-and-resources/cancer-australia-publications/national-aboriginal-and-torres-strait-islander-cancer-framework
This could be done under the auspice of the Local Health District Aboriginal Health unit for about 12 months (such as Tweed), until such time as the group can sustain itself as a community group with assistance from the LHDs staff and other organisations
Each region has recommended that there be establishment of local Aboriginal Cancer support groups, who regularly meet/That Men’s and Women’s groups be established that look at all aspects of health, including cancer. EG: Age groups/genders
Some younger community members find it uncomfortable to attend same clinics as their older community members due to shame, confidentiality and Stigma of them as a person (eg: papsmears/sexual health-activity, prostate, bowel)
A need to discuss and lobby for involvement and employment of Aboriginal people in cancer care services and organisations to assist with the better access and utilisation of such places.