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Transforming end of life care:
Why we can’t afford not to
Katherine Sleeman
NIHR Clinician Scientist and honorary consultant
King’s College London, Cicely Saunders Institute
Median age at death
0
10
20
30
40
50
60
70
80
90
women
men1861
1871
1881
1891
1901
1911
1921
1931
1941
1951
1961
1971
1981
1991
2001
2011
Year
Functional decline towards end of life
Function
100%
Time
19th C
21st C
0%
value =
quality
cost
“The experiences of people
who are dying and their loved
ones of the care provided
by the NHS is a recurring
theme in complaints.”
Early Palliative Care: RCT evidence
Bakitas,
2009. JAMA
Temel, 2012
NEJM
Zimmermann
,2014. Lancet
Higginson, 2015.
Lancet Resp
Bakitas,
2015. JCO
Quality of life + + + = =
Physical
symptoms
= n/a + + =
Depression + + n/a = =
Patient
satisfaction
n/a n/a + n/a n/a
Carer outcome = burden n/a + satisfaction
= QoL
n/a + depression
= QoL
Aggressiveness = + n/a n/a =
value =
quality
cost
Curative treatment Palliative
Care
DeathDiagnosis
Curative treatment
Diagnosis Death
Palliative Care
Early Palliative Care: RCT evidence
Bakitas,
2009
Temel, 2012
NEJM
Zimmerman,20
14. Lancet
Higginson, 2015.
Lancet Resp
Bakitas,
2015. JCO
Quality of life + + + = =
Physical
symptoms
= n/a + + =
Depression + + n/a = =
Patient
satisfaction
n/a n/a + n/a n/a
Carer outcome = burden n/a + satisfaction
= QoL
n/a + depression
= QoL
Aggressiveness = + n/a n/a =
Survival = + n/a + +
value =
quality
cost
Katherine.sleeman@kcl.ac.uk
@kesleeman
All references available at
https://wordpress.com/post/katherinesleeman.wordpress.com/

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Transforming End of Life Care

  • 1. Transforming end of life care: Why we can’t afford not to Katherine Sleeman NIHR Clinician Scientist and honorary consultant King’s College London, Cicely Saunders Institute
  • 2.
  • 3.
  • 4.
  • 5. Median age at death 0 10 20 30 40 50 60 70 80 90 women men1861 1871 1881 1891 1901 1911 1921 1931 1941 1951 1961 1971 1981 1991 2001 2011 Year
  • 6. Functional decline towards end of life Function 100% Time 19th C 21st C 0%
  • 7.
  • 9.
  • 10. “The experiences of people who are dying and their loved ones of the care provided by the NHS is a recurring theme in complaints.”
  • 11.
  • 12. Early Palliative Care: RCT evidence Bakitas, 2009. JAMA Temel, 2012 NEJM Zimmermann ,2014. Lancet Higginson, 2015. Lancet Resp Bakitas, 2015. JCO Quality of life + + + = = Physical symptoms = n/a + + = Depression + + n/a = = Patient satisfaction n/a n/a + n/a n/a Carer outcome = burden n/a + satisfaction = QoL n/a + depression = QoL Aggressiveness = + n/a n/a =
  • 14. Curative treatment Palliative Care DeathDiagnosis Curative treatment Diagnosis Death Palliative Care
  • 15.
  • 16. Early Palliative Care: RCT evidence Bakitas, 2009 Temel, 2012 NEJM Zimmerman,20 14. Lancet Higginson, 2015. Lancet Resp Bakitas, 2015. JCO Quality of life + + + = = Physical symptoms = n/a + + = Depression + + n/a = = Patient satisfaction n/a n/a + n/a n/a Carer outcome = burden n/a + satisfaction = QoL n/a + depression = QoL Aggressiveness = + n/a n/a = Survival = + n/a + +
  • 18.
  • 19.
  • 20.
  • 21.
  • 22. Katherine.sleeman@kcl.ac.uk @kesleeman All references available at https://wordpress.com/post/katherinesleeman.wordpress.com/