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Tarmsvigtsenheden 
Medicinsk Hepatologisk Gastroenterologisk Afdeling V 
Patientinddragende omgivelser 
- Fra outsider til insider 
Sygeplejerske, stud.cand.cur Gunvor Dichmann Thyssen
Patientinddragende omgivelser 
- Fra outsider til insider 
Tarmsvigtsenheden 
Medicinsk Hepatologisk Gastroenterologisk Afdeling V
Definition – intestinal failure 
Inability to maintain protein-energi, fluid, electrolyte, or 
micronutrient balance due to obstruction, dysmotility, surgical 
resection, congenital defect, or disease-related loss of 
absorption 
O’Keefe S et al, clin Gastreoenterol hepatol 2006: 4: 6-10 Tarmsvigtsenheden 
Medicinsk Hepatologisk Gastroenterologisk Afdeling V
Patientinddragende omgivelser 
- Fra outsider til insider 
Tarmsvigtsenheden 
Medicinsk Hepatologisk Gastroenterologisk Afdeling V
Patientinddragende omgivelser 
Inddragende rum og den inddragende patientstue 
! 
Patienternes oplevelse af omgivelserne i relation 
til patientinddragelse 
Tarmsvigtsenheden 
Medicinsk Hepatologisk Gastroenterologisk Afdeling V
Patientinddragende rum 
–Køkken 
–Vaskerum 
–Skyllerum 
–Dagligstue 
Tarmsvigtsenheden 
Medicinsk Hepatologisk Gastroenterologisk Afdeling V
Patientinddragende rum 
–Køkken 
Tarmsvigtsenheden 
Medicinsk Hepatologisk Gastroenterologisk Afdeling V
Patientinddragende rum 
–Køkken 
–Vaskerum 
Tarmsvigtsenheden 
Medicinsk Hepatologisk Gastroenterologisk Afdeling V
Patientinddragende rum 
–Køkken 
–Vaskerum 
–Skyllerum 
Tarmsvigtsenheden 
Medicinsk Hepatologisk Gastroenterologisk Afdeling V
Patientinddragende rum 
–Køkken 
–Vaskerum 
–Skyllerum 
–Dagligstue 
Tarmsvigtsenheden 
Medicinsk Hepatologisk Gastroenterologisk Afdeling V
Den patientinddragende stue 
- Patientens bog 
- Journal 
- Medicinskuffe 
- Tavler 
Tarmsvigtsenheden 
Medicinsk Hepatologisk Gastroenterologisk Afdeling V
Patientinddragende rum 
Tarmsvigtsenheden 
Medicinsk Hepatologisk Gastroenterologisk Afdeling V 
- Patientens bog 
- Journal
Patientinddragende rum 
Tarmsvigtsenheden 
Medicinsk Hepatologisk Gastroenterologisk Afdeling V 
- Patientens bog 
- Journal 
- Medicinskuffe
Patientinddragende rum 
Tarmsvigtsenheden 
Medicinsk Hepatologisk Gastroenterologisk Afdeling V 
- Patientens bog 
- Journal 
- Medicinskuffe 
- Tavler
Patient Preference and Adherence Dovepress 
open access to scientific and medical research 
Stor interesse for patientinddragelse 
Patient: Passiv modtager ! aktiv deltager 
Systematisk litteratursøgning ! 
–Manglende viden om IF-patienter og patientinddragelse 
–Manglende viden om patientinddragelse i forhold til 
omgivelserne 
ORI G INA L R E S E ARCH 
Open Access Full Text Article 
How patients experience the surroundings 
in relation to patient participation: a qualitative 
study of inpatients with intestinal failure 
Gunvor Dichmann Thyssen 
Anne Beck 
Department of Hepatology and 
Gastroenterology, Aarhus University 
Hospital, Aarhus, Denmark 
Introduction: Patient participation is known to improve patients’ motivation, compliance, 
treatment results, and satisfaction with the received care. It is well known that the physical 
environment is of great importance in supporting patient involvement. A systematic literature 
search has shown a lack of articles on the subject of “surroundings” in relation to patient par-ticipation, 
for all patient groups. 
Aim: We aimed to investigate how patients with intestinal failure experience their hospital 
surroundings in relation to patient participation. 
Methods: The study included eight patients admitted for at least 2 weeks at the Intestinal 
Failure Unit, H8, Salford Royal NHS Foundation Trust, Manchester, United Kingdom. Included 
patients had a good level of consciousness with no confusion. The included patients participated 
in a semistructured interview. The interviews were analyzed using Malterud’s principles of 
systematic text condensation. 
Results: The patients described that the surroundings enabled them to participate in their treat-ment 
and care. The surroundings made it possible for them and encouraged them to participate 
through: the possibility to seek and get information and the possibility to participate in daily 
activities. This led to a feeling of independence, reassurance, normality, control, responsibility, 
and confidence. 
Conclusion: The findings in this study indicate that the hospital surroundings are essential for 
the patients with respect to their ability to participate in their own care and treatment. The sur-roundings, 
in relation to patient participation, should be considered when planning and organizing 
nursing care. Further research is needed to increase the understanding of the surroundings in 
relation to patient participation 
 this research could, for eg, include the nurse’s perspective. 
Keyword: patient perspective, patient involvement, patient environment, emotional consequences 
Tarmsvigtsenheden 
Medicinsk Hepatologisk Gastroenterologisk Afdeling V
Patient Preference and Adherence Dovepress 
open access to scientific and medical research 
ORI G INA L R E S E ARCH 
Open Access Full Text Article 
How patients experience the surroundings 
in relation to patient participation: a qualitative 
study of inpatients with intestinal failure 
Kvalitativt studie 
Informanter: otte indlagte patienter (plus et testinterview) 
Interviewmetode: Semistruktureret interview 
Analysemetode: Maleruds tekstkondenseringsprincip 
Gunvor Dichmann Thyssen 
Anne Beck 
Department of Hepatology and 
Gastroenterology, Aarhus University 
Hospital, Aarhus, Denmark 
Introduction: Patient participation is known to improve patients’ motivation, compliance, 
treatment results, and satisfaction with the received care. It is well known that the physical 
environment is of great importance in supporting patient involvement. A systematic literature 
search has shown a lack of articles on the subject of “surroundings” in relation to patient par-ticipation, 
for all patient groups. 
Aim: We aimed to investigate how patients with intestinal failure experience their hospital 
surroundings in relation to patient participation. 
Methods: The study included eight patients admitted for at least 2 weeks at the Intestinal 
Failure Unit, H8, Salford Royal NHS Foundation Trust, Manchester, United Kingdom. Included 
patients had a good level of consciousness with no confusion. The included patients participated 
in a semistructured interview. The interviews were analyzed using Malterud’s principles of 
systematic text condensation. 
Results: The patients described that the surroundings enabled them to participate in their treat-ment 
and care. The surroundings made it possible for them and encouraged them to participate 
through: the possibility to seek and get information and the possibility to participate in daily 
activities. This led to a feeling of independence, reassurance, normality, control, responsibility, 
and confidence. 
Conclusion: The findings in this study indicate that the hospital surroundings are essential for 
the patients with respect to their ability to participate in their own care and treatment. The sur-roundings, 
in relation to patient participation, should be considered when planning and organizing 
nursing care. Further research is needed to increase the understanding of the surroundings in 
relation to patient participation 
 this research could, for eg, include the nurse’s perspective. 
Keyword: patient perspective, patient involvement, patient environment, emotional consequences 
Tarmsvigtsenheden 
Medicinsk Hepatologisk Gastroenterologisk Afdeling V
Patient Preference and Adherence Dovepress 
open access to scientific and medical research 
ORI G INA L R E S E ARCH 
Open Access Full Text Article 
How patients experience the surroundings 
in relation to patient participation: a qualitative 
study of inpatients with intestinal failure 
Gunvor Dichmann Thyssen 
Anne Beck 
Department of Hepatology and 
Gastroenterology, Aarhus University 
Hospital, Aarhus, Denmark 
Introduction: Patient participation is known to improve patients’ motivation, compliance, 
treatment results, and satisfaction with the received care. It is well known that the physical 
environment is of great importance in supporting patient involvement. A systematic literature 
search has shown a lack of articles on the subject of “surroundings” in relation to patient par-ticipation, 
for all patient groups. 
Aim: We aimed to investigate how patients with intestinal failure experience their hospital 
surroundings in relation to patient participation. 
Methods: The study included eight patients admitted for at least 2 weeks at the Intestinal 
Failure Unit, H8, Salford Royal NHS Foundation Trust, Manchester, United Kingdom. Included 
patients had a good level of consciousness with no confusion. The included patients participated 
in a semistructured interview. The interviews were analyzed using Malterud’s principles of 
systematic text condensation. 
Results: The patients described that the surroundings enabled them to participate in their treat-ment 
and care. The surroundings made it possible for them and encouraged them to participate 
through: the possibility to seek and get information and the possibility to participate in daily 
activities. This led to a feeling of independence, reassurance, normality, control, responsibility, 
and confidence. 
Conclusion: The findings in this study indicate that the hospital surroundings are essential for 
the patients with respect to their ability to participate in their own care and treatment. The sur-roundings, 
Patient Preference and Adherence 2014:8 submit your manuscript | www.dovepress.com 
in relation to patient participation, should be considered when planning and organizing 
nursing care. Further research is needed to increase the understanding of the surroundings in 
relation to patient participation 
 this research could, for eg, include the nurse’s perspective. 
Keyword: patient perspective, patient involvement, patient environment, emotional consequences 
587 
Tarmsvigtsenheden 
Dovepress 
Medicinsk Hepatologisk Gastroenterologisk Afdeling V 
These statements, descriptions, and opinions were selected 
to describe the surroundings as a phenomenon and the 
extent to which it was important to the patients in relation 
to patient participation. Furthermore, the investigators paid 
special attention to the aspects of surroundings in relation 
to patient participation that were repeated throughout the 
different interviews. 
The investigators collaborated throughout the whole 
analysis process and completed all steps together. 
activity room, the day room, and we encourage you to go 
and take part in things and get involved.” 
When talking about the surroundings, space was men-tioned 
as being important in relation to participation. By 
having ample space to move around and thereby, being able 
to carry out daily activities, increased participation: 
But just having the space to move around and make your 
bed and sit and … that makes a huge difference. 
Table 2 Analysis process 
Temporary theme Meaning unit Artificial quote Final theme/subtheme 
Peace of mind, reassurance, 
independence, to be able to 
“You just know that it is there [the 
medicine]. So, you do not get that 
anxious feeling when you are waiting 
to get your tablets from the nurses” 
The patients explained that the fact that 
they had a medicine cabinet next to their 
bed and that they had the opportunity to 
self-medicate reduced their anxiousness 
Reassurance
Tarmsvigtsenheden 
Medicinsk Hepatologisk Gastroenterologisk Afdeling V
Emotional experiences 
Confidence 
”… and I thought: ”Well, I am quite capable of doing this” and it was a 
test for me, how did I cope making my own bed, and I know now if I 
go home, I am quite confident I can do that..” 
Tarmsvigtsenheden 
Medicinsk Hepatologisk Gastroenterologisk Afdeling V
Emotional experiences 
Control 
”You could see exactly what you have got to come, you could plan 
your days because they try to balance it…. That I knew exactly what 
I was having when and where, and times and that… and that 
really… it is just knowing… It is back to being in control… You are 
not really in control, but you have that illusion of being in control, 
because you know what is happening…” 
Tarmsvigtsenheden 
Medicinsk Hepatologisk Gastroenterologisk Afdeling V
Emotional experiences 
Reassurance 
”You just know that they are there (the medicine red.). So, you 
have not got that anxious feeling when you are waiting for your 
tablets of the nurses.” 
! 
”It makes me feel happy that I can get it done (the laundry red.). 
Not anxious that it is going to be lying around smelling, you 
know… Makes me feel a lot more relaxed.” 
Tarmsvigtsenheden 
Medicinsk Hepatologisk Gastroenterologisk Afdeling V
Konklusion 
Omgivelserne kan fremme evnen til at deltage i egen pleje og behandling 
Fokus på omgivelser i relation til patientinddragelse 
Fremtidig forskning 
Tarmsvigtsenheden 
Medicinsk Hepatologisk Gastroenterologisk Afdeling V

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Patientinddragende omgivelser - Fra outsider til insider

  • 1. Tarmsvigtsenheden Medicinsk Hepatologisk Gastroenterologisk Afdeling V Patientinddragende omgivelser - Fra outsider til insider Sygeplejerske, stud.cand.cur Gunvor Dichmann Thyssen
  • 2. Patientinddragende omgivelser - Fra outsider til insider Tarmsvigtsenheden Medicinsk Hepatologisk Gastroenterologisk Afdeling V
  • 3. Definition – intestinal failure Inability to maintain protein-energi, fluid, electrolyte, or micronutrient balance due to obstruction, dysmotility, surgical resection, congenital defect, or disease-related loss of absorption O’Keefe S et al, clin Gastreoenterol hepatol 2006: 4: 6-10 Tarmsvigtsenheden Medicinsk Hepatologisk Gastroenterologisk Afdeling V
  • 4. Patientinddragende omgivelser - Fra outsider til insider Tarmsvigtsenheden Medicinsk Hepatologisk Gastroenterologisk Afdeling V
  • 5. Patientinddragende omgivelser Inddragende rum og den inddragende patientstue ! Patienternes oplevelse af omgivelserne i relation til patientinddragelse Tarmsvigtsenheden Medicinsk Hepatologisk Gastroenterologisk Afdeling V
  • 6. Patientinddragende rum –Køkken –Vaskerum –Skyllerum –Dagligstue Tarmsvigtsenheden Medicinsk Hepatologisk Gastroenterologisk Afdeling V
  • 7. Patientinddragende rum –Køkken Tarmsvigtsenheden Medicinsk Hepatologisk Gastroenterologisk Afdeling V
  • 8. Patientinddragende rum –Køkken –Vaskerum Tarmsvigtsenheden Medicinsk Hepatologisk Gastroenterologisk Afdeling V
  • 9. Patientinddragende rum –Køkken –Vaskerum –Skyllerum Tarmsvigtsenheden Medicinsk Hepatologisk Gastroenterologisk Afdeling V
  • 10. Patientinddragende rum –Køkken –Vaskerum –Skyllerum –Dagligstue Tarmsvigtsenheden Medicinsk Hepatologisk Gastroenterologisk Afdeling V
  • 11. Den patientinddragende stue - Patientens bog - Journal - Medicinskuffe - Tavler Tarmsvigtsenheden Medicinsk Hepatologisk Gastroenterologisk Afdeling V
  • 12. Patientinddragende rum Tarmsvigtsenheden Medicinsk Hepatologisk Gastroenterologisk Afdeling V - Patientens bog - Journal
  • 13. Patientinddragende rum Tarmsvigtsenheden Medicinsk Hepatologisk Gastroenterologisk Afdeling V - Patientens bog - Journal - Medicinskuffe
  • 14. Patientinddragende rum Tarmsvigtsenheden Medicinsk Hepatologisk Gastroenterologisk Afdeling V - Patientens bog - Journal - Medicinskuffe - Tavler
  • 15. Patient Preference and Adherence Dovepress open access to scientific and medical research Stor interesse for patientinddragelse Patient: Passiv modtager ! aktiv deltager Systematisk litteratursøgning ! –Manglende viden om IF-patienter og patientinddragelse –Manglende viden om patientinddragelse i forhold til omgivelserne ORI G INA L R E S E ARCH Open Access Full Text Article How patients experience the surroundings in relation to patient participation: a qualitative study of inpatients with intestinal failure Gunvor Dichmann Thyssen Anne Beck Department of Hepatology and Gastroenterology, Aarhus University Hospital, Aarhus, Denmark Introduction: Patient participation is known to improve patients’ motivation, compliance, treatment results, and satisfaction with the received care. It is well known that the physical environment is of great importance in supporting patient involvement. A systematic literature search has shown a lack of articles on the subject of “surroundings” in relation to patient par-ticipation, for all patient groups. Aim: We aimed to investigate how patients with intestinal failure experience their hospital surroundings in relation to patient participation. Methods: The study included eight patients admitted for at least 2 weeks at the Intestinal Failure Unit, H8, Salford Royal NHS Foundation Trust, Manchester, United Kingdom. Included patients had a good level of consciousness with no confusion. The included patients participated in a semistructured interview. The interviews were analyzed using Malterud’s principles of systematic text condensation. Results: The patients described that the surroundings enabled them to participate in their treat-ment and care. The surroundings made it possible for them and encouraged them to participate through: the possibility to seek and get information and the possibility to participate in daily activities. This led to a feeling of independence, reassurance, normality, control, responsibility, and confidence. Conclusion: The findings in this study indicate that the hospital surroundings are essential for the patients with respect to their ability to participate in their own care and treatment. The sur-roundings, in relation to patient participation, should be considered when planning and organizing nursing care. Further research is needed to increase the understanding of the surroundings in relation to patient participation this research could, for eg, include the nurse’s perspective. Keyword: patient perspective, patient involvement, patient environment, emotional consequences Tarmsvigtsenheden Medicinsk Hepatologisk Gastroenterologisk Afdeling V
  • 16. Patient Preference and Adherence Dovepress open access to scientific and medical research ORI G INA L R E S E ARCH Open Access Full Text Article How patients experience the surroundings in relation to patient participation: a qualitative study of inpatients with intestinal failure Kvalitativt studie Informanter: otte indlagte patienter (plus et testinterview) Interviewmetode: Semistruktureret interview Analysemetode: Maleruds tekstkondenseringsprincip Gunvor Dichmann Thyssen Anne Beck Department of Hepatology and Gastroenterology, Aarhus University Hospital, Aarhus, Denmark Introduction: Patient participation is known to improve patients’ motivation, compliance, treatment results, and satisfaction with the received care. It is well known that the physical environment is of great importance in supporting patient involvement. A systematic literature search has shown a lack of articles on the subject of “surroundings” in relation to patient par-ticipation, for all patient groups. Aim: We aimed to investigate how patients with intestinal failure experience their hospital surroundings in relation to patient participation. Methods: The study included eight patients admitted for at least 2 weeks at the Intestinal Failure Unit, H8, Salford Royal NHS Foundation Trust, Manchester, United Kingdom. Included patients had a good level of consciousness with no confusion. The included patients participated in a semistructured interview. The interviews were analyzed using Malterud’s principles of systematic text condensation. Results: The patients described that the surroundings enabled them to participate in their treat-ment and care. The surroundings made it possible for them and encouraged them to participate through: the possibility to seek and get information and the possibility to participate in daily activities. This led to a feeling of independence, reassurance, normality, control, responsibility, and confidence. Conclusion: The findings in this study indicate that the hospital surroundings are essential for the patients with respect to their ability to participate in their own care and treatment. The sur-roundings, in relation to patient participation, should be considered when planning and organizing nursing care. Further research is needed to increase the understanding of the surroundings in relation to patient participation this research could, for eg, include the nurse’s perspective. Keyword: patient perspective, patient involvement, patient environment, emotional consequences Tarmsvigtsenheden Medicinsk Hepatologisk Gastroenterologisk Afdeling V
  • 17. Patient Preference and Adherence Dovepress open access to scientific and medical research ORI G INA L R E S E ARCH Open Access Full Text Article How patients experience the surroundings in relation to patient participation: a qualitative study of inpatients with intestinal failure Gunvor Dichmann Thyssen Anne Beck Department of Hepatology and Gastroenterology, Aarhus University Hospital, Aarhus, Denmark Introduction: Patient participation is known to improve patients’ motivation, compliance, treatment results, and satisfaction with the received care. It is well known that the physical environment is of great importance in supporting patient involvement. A systematic literature search has shown a lack of articles on the subject of “surroundings” in relation to patient par-ticipation, for all patient groups. Aim: We aimed to investigate how patients with intestinal failure experience their hospital surroundings in relation to patient participation. Methods: The study included eight patients admitted for at least 2 weeks at the Intestinal Failure Unit, H8, Salford Royal NHS Foundation Trust, Manchester, United Kingdom. Included patients had a good level of consciousness with no confusion. The included patients participated in a semistructured interview. The interviews were analyzed using Malterud’s principles of systematic text condensation. Results: The patients described that the surroundings enabled them to participate in their treat-ment and care. The surroundings made it possible for them and encouraged them to participate through: the possibility to seek and get information and the possibility to participate in daily activities. This led to a feeling of independence, reassurance, normality, control, responsibility, and confidence. Conclusion: The findings in this study indicate that the hospital surroundings are essential for the patients with respect to their ability to participate in their own care and treatment. The sur-roundings, Patient Preference and Adherence 2014:8 submit your manuscript | www.dovepress.com in relation to patient participation, should be considered when planning and organizing nursing care. Further research is needed to increase the understanding of the surroundings in relation to patient participation this research could, for eg, include the nurse’s perspective. Keyword: patient perspective, patient involvement, patient environment, emotional consequences 587 Tarmsvigtsenheden Dovepress Medicinsk Hepatologisk Gastroenterologisk Afdeling V These statements, descriptions, and opinions were selected to describe the surroundings as a phenomenon and the extent to which it was important to the patients in relation to patient participation. Furthermore, the investigators paid special attention to the aspects of surroundings in relation to patient participation that were repeated throughout the different interviews. The investigators collaborated throughout the whole analysis process and completed all steps together. activity room, the day room, and we encourage you to go and take part in things and get involved.” When talking about the surroundings, space was men-tioned as being important in relation to participation. By having ample space to move around and thereby, being able to carry out daily activities, increased participation: But just having the space to move around and make your bed and sit and … that makes a huge difference. Table 2 Analysis process Temporary theme Meaning unit Artificial quote Final theme/subtheme Peace of mind, reassurance, independence, to be able to “You just know that it is there [the medicine]. So, you do not get that anxious feeling when you are waiting to get your tablets from the nurses” The patients explained that the fact that they had a medicine cabinet next to their bed and that they had the opportunity to self-medicate reduced their anxiousness Reassurance
  • 18. Tarmsvigtsenheden Medicinsk Hepatologisk Gastroenterologisk Afdeling V
  • 19. Emotional experiences Confidence ”… and I thought: ”Well, I am quite capable of doing this” and it was a test for me, how did I cope making my own bed, and I know now if I go home, I am quite confident I can do that..” Tarmsvigtsenheden Medicinsk Hepatologisk Gastroenterologisk Afdeling V
  • 20. Emotional experiences Control ”You could see exactly what you have got to come, you could plan your days because they try to balance it…. That I knew exactly what I was having when and where, and times and that… and that really… it is just knowing… It is back to being in control… You are not really in control, but you have that illusion of being in control, because you know what is happening…” Tarmsvigtsenheden Medicinsk Hepatologisk Gastroenterologisk Afdeling V
  • 21. Emotional experiences Reassurance ”You just know that they are there (the medicine red.). So, you have not got that anxious feeling when you are waiting for your tablets of the nurses.” ! ”It makes me feel happy that I can get it done (the laundry red.). Not anxious that it is going to be lying around smelling, you know… Makes me feel a lot more relaxed.” Tarmsvigtsenheden Medicinsk Hepatologisk Gastroenterologisk Afdeling V
  • 22. Konklusion Omgivelserne kan fremme evnen til at deltage i egen pleje og behandling Fokus på omgivelser i relation til patientinddragelse Fremtidig forskning Tarmsvigtsenheden Medicinsk Hepatologisk Gastroenterologisk Afdeling V