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Patient Centered Care | Unit 4c Lecture
1. Patient – Centered Care
Unit 4: Supporting Patient – Driven Care Coordination
Lecture c – Information – Driven Patient Education
This material (Comp 25 Unit 4) was developed by Columbia University, funded by the Department of Health and
Human Services, Office of the National Coordinator for Health Information Technology under Award
Number 90WT0004.
This work is licensed under the Creative Commons Attribution-NonCommercial-ShareAlike 4.0 International
License. To view a copy of this license, visit http://creativecommons.org/licenses/by-nc-sa/4.0/.
2. Supporting Patient – Driven Care
Coordination Learning Objectives
• Objective 1: Explain the importance of
patient – driven care coordination
• Objective 2: List ways a patient can use
technology to drive care decisions
• Objective 3: Describe the concept of
patient – initiated information exchange
2
3. Definition
• Patient education includes materials and
activities that provide information to
patients to improve their health behaviors
and health status. An educated patient is
better prepared to participate in their care,
prevent errors, improve their outcomes,
and impact the length of health care
interventions.
3
4. Introduction
• How can we help patients to be full partners in
their health care?
• A knowledgeable and educated patient is better
prepared to participate in shared decision –
making
– For more information on shared decision – making,
see component 25 unit 7
• Patient education delivered during a hospital stay
or a clinic visit is not retained
• Patients who understand their hospital discharge
instructions are 30% less likely to be readmitted to
the hospital
4
5. What do patients want?
• Information available on demand
• Information that is sent proactively
• Information that is personal
• Information that is interactive
• Emotional support that is available along
with the information
5
6. Vision
• Patient empowerment through knowledge
• Interactive technology that allows the
patient to control acquisition of knowledge
• Education and information that is delivered
at a place and time when patient is ready
to learn
6
8. Television
• Patient information delivered by television
is found in many inpatient settings
• These systems allow patients and families
to select and view health education of their
choosing during an inpatient stay
8
9. Television (Cont’d – 1)
• Patient – driven; learn when ready and
able
• May not absorb information due to health
status
• May not include all topics needed
• Information is not customized to the
patient
• Relies on memory
9
10. Video / DVD
• Flexible use:
– Hospital, clinic, or home – based
– View and review information when patient is
ready to learn
– Relies on memory
– Minimally interactive
– Not customized to patient needs
– Must have video or DVD player technology
10
11. Internet
• There is a wealth of health information on
the Internet
• Information can be used either
independently by the patient to research
their health condition or the patient can be
linked or directed to health information on
the Internet by their health care provider
11
12. Internet (Cont’d – 1)
• Patient can view and review when they are
ready to learn
• Web sites may be interactive and can
measure and reinforce learning
• Must have Internet access and viewing
device
12
13. Email
• Vendors are working on email – based
products that will allow care providers to send
health information or links to resources to
patients based on specified criteria
• Can be automated
• Patient can view when they are ready to learn
• Greater personalization of information
• Provider can track patient learning activity
• Patient must have email address and device
to view information
13
14. Health education apps and games
• More physicians and health care providers
are prescribing or recommending health apps
to patients as an educational and behavioral
change technology
– Mobile technology; patient can learn at any time
or place
– Interactive elements to measure, reinforce, and
practice learning
– Not yet widely adopted by physicians, but use is
growing
– Patient must have mobile technology and Internet
connection to use
14
15. EHR – driven education
• Education is ordered in EHR and sent to
patient viewing device in hospital
• Patient views when they are ready to learn
• Completion of education flows back into
EHR, where caregivers can assess
understanding and reinforce education
• Requires specific vendor technology, but is
not offered by all vendors
15
16. Patient portals
• Episode – specific information is available
when the patient is ready to learn
• Information can be shared with family and
friends
• Portal may provide links to large health
information databases
• Patients and family can browse and
research health information
16
17. Barriers
• Many technologies exist or are emerging to
support the goal of interactive and on – demand
patient education
• There are barriers that decrease the ability of the
patient to manage their own health education
needs
– Health literacy
– Language
– Culture
o Health care culture
o Environmental culture
– Technology
17
18. Health literacy
• “The degree to which individuals have the
capacity to obtain, process, and understand
basic health information and services needed
to make appropriate health decisions”
– (Institute of Medicine, 2004)
• Skills to navigate the health care system
• Skills to communicate with health care
providers
• Majority of U.S. population possesses
intermediate level of health literacy
18
19. Language
• Limited English proficiency impacts
comprehension of patient health
information
• Lower English literacy correlates with
decreased adherence to health promotion
behaviors from providers
19
20. Culture
• Information – driven patient education can
only be successful if cultural factors support
acquisition and use of health information
– Health care
o Transition to partnership – based care model
o Empowered patient
– Environment
o Technology must be present
o Technology must support the patient in health behavior
change efforts
20
21. Technology
• Equipment needed to view videos, DVD,
and TV – based interventions
• Internet connection is needed for
emerging patient education tools
• Email address is required for interaction
with health care providers
• Patients need to be able to understand
and use technology
21
22. Unit 4: Supporting Patient – Driven Care Coordination,
Summary – Lecture c, Information – Driven Patient
Education
• A knowledgeable and educated patient is better
prepared to participate in shared decision – making
• Technology can be used to improve the delivery of
health information so that the patient can view
information at the time and place where they are
readiest to learn
• Although barriers such as health literacy, limited
English proficiency, and culture exist, there are
many types of technology that have been designed
to empower the patient to gain the knowledge
needed to successfully manage their own health
22
23. Supporting Patient – Driven Care
Coordination References – Lecture c
References
Armenakis, A, & Kiefer, C. Social and cultural factors related to health, Part A:
recognizing the impact. Presentation presented at Global Health Education
Consortium; 2007.
The Beryl Institute. (2011). Patient satisfaction and patient education increase when
hospitals offer interactive technology. Enhancing the Patient Experience through the
Use of Interactive Technology. Available at:
http://www.theberylinstitute.org/news/60203/Patient-Satisfaction-and-Patient-
Education-Increase-When-Hospitals-Offer-Interactive-Technology.htm.
Cassano, C. (2015). Technology and patient education. Available from:
http://nursing.advanceweb.com/Features/Articles/Technology-Patient-Education.aspx
Frydman, G. (2014). Some underlying principles of patient-driven healthcare. Patient-
Driven Care. Available from: http://www.patientdriven.org/2014/03/some-underlying-
principles-of-patient-driven-healthcare/
Institute of Medicine. (2004). Health literacy: a prescription to end confusion. Available
from: http://nationalacademies.org/hmd/reports/2004/health-literacy-a-prescription-to-
end-confusion.aspx
23
24. Supporting Patient – Driven Care
Coordination References – Lecture c
(Cont’d – 1)
References
U.S. Department of Health and Human Services. Health literacy - fact sheet: health
literacy basics. Available from:
http://health.gov/communication/literacy/quickguide/factsbasic.htm
U.S. Department of Health and Human Services. Health literacy - fact sheet: health
literacy and health outcomes. Available from:
http://health.gov/communication/literacy/quickguide/factsliteracy.htm
24
25. Unit 4: Supporting Patient – Driven
Care Coordination, Lecture c –
Information-Driven Patient Education
This material was developed by Columbia
University, funded by the Department of
Health and Human Services, Office of the
National Coordinator for Health Information
Technology under Award Number
90WT0004.
25
Editor's Notes
Welcome to Patient-Centered Care, Supporting Patient-Driven Care Coordination. This is Lecture c, which will cover information-driven patient education.
This unit will cover the following learning objectives: 1) explain the importance of patient-driven care coordination; 2) list ways a patient can use technology to drive care decisions; and 3) describe the concept of patient-initiated information exchange. This unit will explore the use of technology to support and enable patient driven coordinated care.
To make informed health care decisions, the patient must have access to information. Patient education includes materials and activities that provide information to patients to improve their health behaviors and health status. An educated patient is better prepared to participate in their care, prevent errors, improve their outcomes, and impact the length of health care interventions.
How can we help patients to be full partners in their health care? A knowledgeable and educated patient is better prepared to participate in shared decision-making. For more information on shared decision-making, please see component 25 unit 7. Historically, patient education has been delivered during a hospital stay or at the end of a clinic visit. Patients have difficulty retaining information that is delivered in this way. Patients who understand their hospital discharge instructions are 30% less likely to be readmitted to the hospital.
What do patients tell us about their health education wants and needs? Patients want information on demand. They want information that is proactive, personal, and interactive. And, patients want to have emotional support available to them along with education.
Based on patient feedback and research, we need to provide education that empowers patients. Patient empowerment allows for treatment decisions that are supported with information gained from the use of interactive technology. Interactive technology allows the patient to determine and meet their educational needs at the place and time where they can best learn.
We have enough research to know that pages and pages of paper handouts given to the patient when they are least likely to retain information do not empower self-directed health care. How can technology be used to improve patient education, retention of information, and empowerment? Technology used for patient education includes the television, videos, the Internet, email, health education apps, EHR-driven education, and patient portals.
Interactive television systems are used in many inpatient settings. These systems allow patients to select and view health education of their choice during their inpatient stay.
While convenient and widely used, there are downsides to this method of education. The patient may not be able to absorb and understand health information when they are in a state of decreased health. Information topics may be limited and are not customized to each patient’s needs. And, patient education delivered by television relies on the patient’s memory to make changes in their health behaviors based on what they viewed earlier in time.
Video or DVD technology can be presented during an inpatient stay or as a part of a package of information provided to the patient with a new diagnosis or treatment plan. Video technology allows the patient to view and review information when they are ready to learn, but the technology relies on patient memory to initiate and sustain behavior change. The information delivered by video or DVD is not customized to the patient needs. In addition, the patient must possess the video or DVD technology so they can view information.
There is a wealth of health information on the Internet. This information can be used either independently by the patient to research their health condition, or the patient can be linked or directed to health information on the Internet by their health care provider.
As with video-based patient education, Internet-based patient education allows the patient to view and review information when they are ready to learn. Internet patient education may also contain interactivity that measures and reinforces learning, comprehension, and intention to act. In order to use Internet-based patient education, the patient must have access to the Internet and possess a device that can connect to the Internet and allow for viewing and interaction.
Vendors are working on email-based products that will allow care providers to send health information or links to resources to patients based on specific criteria. An example of this would be sending regular, scheduled emails to a newly diagnosed diabetic with helpful information that can be viewed when the patient is ready to learn. This technology provides a greater degree of personalization and may allow the health care provider to see what the patient has viewed. In order to use this technology, the patient must have an email address and a device that allows them to receive email.
More physicians and health care providers are prescribing or recommending health apps to patients as an educational and behavioral change technology. Health apps are mobile technology, allowing the patient to learn at any place or time. Health apps can contain interactive elements that allow the patient to measure their own understanding of information, reinforce learning, and provide opportunities for repeated practice. Less than 25% of physicians currently prescribe mobile health apps, but it is estimated that many physicians will incorporate this technology into their practice within the next five years. Again, the patient must possess mobile technology that facilitates use of mobile health apps and may need some assistance to understand how to use these apps.
Cutting edge EHR technology now enables nurses and physicians to order patient education topics within the EHR that is then sent to an associated patient entertainment system in the hospital room. The health topics are listed on the individual patient television or viewing device, where they can view the information when they are able. Completed educational topics are reflected in the patient EHR, signaling the nurse or other health care provider to further discuss the topic with the patient to assess and reinforce learning. This technology is fairly new and requires specific technology, set-up, and equipment to initiate.
Many patient portals are designed so that specific education relevant to an inpatient or ambulatory care episode is available through the portal when the patient is ready to view or share with others. In addition, many patient portals provide links to an extensive list of health care topics so that patients and families can browse and research health information.
Many technologies exist or are emerging to support the goal of interactive and on-demand patient education. However, there are barriers that decrease the ability of the patient to manage their own health education needs. Barriers include patient health literacy, language, culture, and technology.
Health literacy is defined within the Institute of Medicine report as “the degree to which individuals have the capacity to obtain, process, and understand basic health information and services needed to make appropriate health decisions.” This can include the skills that are necessary to navigate within health systems in the United States and to communicate adequately with health care providers. The majority of the population in the United States possesses an intermediate level of health literacy, including the ability to locate and utilize eHealth resources.
Language poses an additional barrier to delivery and consumption of patient health information. Limited English proficiency impacts the patient and family’s comprehension of patient education delivered through technology. Studies have shown a statistically significant difference in adherence to provider-supplied health promotion behaviors based on the level of English proficiency. Those with lower levels of English proficiency demonstrated less adherence to recommended health behaviors.
Information-driven patient education can only be successful if cultural factors support acquisition and use of health information. The health care culture must align with a partnership-based care model so that the patient is empowered to locate, view, and implement new knowledge into their behaviors. The environmental culture must support both the presence of technology that can be used to obtain health information and then support the patient in their efforts to use health information to make changes in their health behaviors.
Technology presents an additional barrier to acquisition, comprehension, and utilization of health information. At the minimum, a patient needs access to the Internet, an email address, and mobile technology to increase the options for obtaining, retaining, and using health information to change behaviors and improve health status.
This concludes lecture c of Supporting Patient-Driven Care Coordination. To summarize, a knowledgeable and educated patient is better prepared to participate in shared decision-making. Technology can be used to improve the delivery of health information so that the patient can view information at the time and place where they are readiest to learn. Although barriers such as health literacy, limited English proficiency, and culture exist, there are many types of technology that have been designed to empower patients to gain the knowledge needed to successfully manage their own health.