Patient Centered Care

1. Patient – Centered Care
Unit 4: Supporting Patient – Driven Care Coordination
Lecture b – Patient Preferences for Information Sharing
This material (Comp 25 Unit 4) was developed by Columbia University, funded by the U.S. Department of Health
and Human Services, Office of the National Coordinator for Health Information Technology under Award
Number 90WT0004.
This work is licensed under the Creative Commons Attribution-NonCommercial-ShareAlike 4.0 International
License. To view a copy of this license, visit http://creativecommons.org/licenses/by-nc-sa/4.0/.

2. Supporting Patient – Driven Care
Coordination Learning Objectives
• Objective 1: Explain the importance of
patient – driven care coordination
• Objective 2: List ways a patient can use
technology to drive care decisions
• Objective 3: Describe the concept of
patient – initiated information exchange
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3. The need for information sharing
• How can patients be supported to share
health information with health care providers?
• Technology must be designed to match
patient needs, wants, and abilities
– Patient preferences are essential to flow of
patient – initiated information sharing
– Patient preferences guide the type of tools that
are developed and implemented by health care
providers
– Preferences guide how information is shared with
patients
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4. Tools used for information sharing
• Most people use technology in their daily
lives for banking, shopping, communication,
learning, and managing life’s details
• Technology for information sharing:
– Mobile health apps
o 60% of U.S. adults track at least one health metric
o Patients are willing to share data to aid in diagnosing
and treating themselves or to aid others
– Email
– Web – based patient portals
o Secure text messaging
– Patient – initiated registries
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5. Organizations
• Organizations formed to inform and
support patient participation in their health
information sharing
– The Society for Participatory Medicine
– Patient Safety and Quality Healthcare
– Office of the National Coordinator for Health
Information Technology
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6. Current state
• A 2015 national survey shows that a
majority of patients would use personal
monitoring devices and 57 percent of the
respondents would share that information
with their health care professionals
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7. Patient – provider partnership
11.1 Figure (Society for Participatory Medicine, 2016). Used with permission.
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8. Demographic considerations
• The use of a patient portal and other health
information sharing technology allows the
patient to choose who and how to share
information with family and friends
• Although race and financial status had an
insignificant impact on information sharing,
there were differences in information sharing
preferences by age
• When developing strategies to support
patient information sharing, the age of the
patient must be considered
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9. Sharing preferences: the elderly
• The elderly often share their information with
family and caregivers
• The elderly wish to retain control of their health
care as much as possible
• Sharing of information can lead to control
struggles
• The information sharing process must be fluid as
self – care capabilities change in the elderly
• Current technology does not allow for a granular
level of information sharing, often an all or nothing
approach to sharing
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10. Sharing preferences: adults
• Adults are more engaged with health
information technology
• Adults are comfortable with tracking and
sharing information with their health care
team
• Adults prefer not to share health details
with family and friends
• Adults will share health goals publicly
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11. Sharing preferences: teens
• Over 84 percent of teens research health
concerns using the Internet
• Reluctant to share health information with
family and friends due to fear of being judged
• Less comfortable sharing health information
publicly
• Most (88 percent) do not feel comfortable
sharing health concerns or health information
with others using social media
• Not comfortable sharing health goals with the
public
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12. Challenges
• Provider
– Need reimbursement for
time needed to review
information that has been
shared
– Undergo culture change
from information
disseminator to care
partner
– Current perception that
sharing information and
asking questions is a
challenge to provider
knowledge and authority
• Patient
– Culture change to feel
free to research and ask
questions
– Feeling safe to express
thoughts and opinions
– Changing view from
passive patient to
partner in health care
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13. Unit 4: Supporting Patient – Driven Care
Coordination, Summary – Lecture b,
Patient Preferences for Information Sharing
• Although tools are emerging that support easier
access to information sharing, there are technical
and cultural barriers yet to be addressed
• Patient preferences for information sharing are
influenced by the age and demographics of the
patient and family
• Age and demographics must be taken into
consideration when developing tools and processes
for information sharing
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14. Supporting Patient – Driven Care
Coordination References – Lecture b
References
Crotty, B, Walker, J, Dierks, M, Lipsitz, L, O’Brien, J, Fischer, S, Slack, WV, & Safran, C.
(2015). Information sharing preferences of older patients and their families. JAMA
Internal Medicine. 175(9):1492.
Northwestern University. (2015). Teens turn to Internet to cope with health challenges
ScienceDaily. Available from:
https://www.sciencedaily.com/releases/2015/06/150602075750.htm
Physician’s Weekly. (2016). Examining information sharing preferences Available from:
http://www.physiciansweekly.com/examining-information-sharing-preferences/
Prasad, A, Sorber, J, Stablein, T, Anthony, D, & Kotz, D. (2012). Understanding sharing
preferences and behavior for mHealth devices. WPES'12. 2012;:117-128.
Charts, Tables, Figures
11.1 Figure: Society for Participatory Medicine. (2016). Patients overwhelmingly believe
in partnership with their clinicians to improve overall health. Used with permission.
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15. Unit 4: Supporting Patient – Driven
Care Coordination, Lecture b –
Preferences for Information Sharing
This material was developed by Columbia
University, funded by the Department of
Health and Human Services, Office of the
National Coordinator for Health Information
Technology under Award Number
90WT0004.
15