Big Data in Cancer Control

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A talk given to NIH and invited scientists to set the stage of data visualization in cancer control.

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Big Data in Cancer Control

  1. 1. “Big Data” in Cancer Control & Prevention Bradford W. Hesse, PhD Chief, Health Communication & Informatics Research Thursday, February 9, 2012
  2. 2. Thursday, February 9, 2012
  3. 3. Thursday, February 9, 2012
  4. 4. Unravelling the complex gene x environment interactions in cancer may be the “emperor” of all science problems Thursday, February 9, 2012
  5. 5. The Network I.T. solutions must include patients, practitioners” PCAST Thursday, February 9, 2012
  6. 6. Cost of data production is plummeting Thursday, February 9, 2012
  7. 7. We need data discovery tools Thursday, February 9, 2012
  8. 8. Clinical data from multiple sources Thursday, February 9, 2012
  9. 9. Visualization at bedside Thursday, February 9, 2012
  10. 10. NCI Investments in Data Presentation Educate Inform Thursday, February 9, 2012 Persuade Support Decisions
  11. 11. Perceptual Basics SOURCE: http://alleydog.com/topics/sensation_and_perception.php Thursday, February 9, 2012
  12. 12. Cognitive / Perceptual Research • • Constructive process • Contiguous labels for meaning • Left to right tendency in western culture • Perceptual rules guide meaning Gaze goes to center for pattern source: Carpenter PA, Shah P. A model of the perceptual and conceptual processes in graph comprehension. J Educ Psychol. 1999, 91(4): 690-702. Thursday, February 9, 2012
  13. 13. Visualizing Long Term Change • • Constructive process • Contiguous labels for meaning • Left to right tendency in western culture • Perceptual rules guide meaning Gaze goes to center for pattern source: Carpenter PA, Shah P. A model of the perceptual and conceptual processes in graph comprehension. J Educ Psychol. 1999, 91(4): 690-702. Thursday, February 9, 2012
  14. 14. Overcome Cognitive Biases Thursday, February 9, 2012
  15. 15. Overcome Cognitive Biases Fallacy of small numbers; Tversky & Kahneman, 1971 Exceptional Case Thursday, February 9, 2012
  16. 16. Clinical / Personal Decision-making Centers of Excellence in Cancer Communication Research: p-50 See: Fagerlin, A., Ubel, P. A., Smith, D. M., & Zikmund-Fisher, B. J. (2007). Making numbers matter: present and future research in risk communication. Am J Health Behav, 31 Suppl 1, S47-56. Thursday, February 9, 2012
  17. 17. Using Interface Opportunities in EHR Thursday, February 9, 2012
  18. 18. Dissolving Barriers between Clinical & Public Health Added User Controls 14 datasets spanning 6 years NSF, NIH Collaboration Thursday, February 9, 2012
  19. 19. Dissolving Barriers between Clinical & Public Health Added User Controls 14 datasets spanning 6 years NSF, NIH Collaboration Thursday, February 9, 2012
  20. 20. Data-based Interfaces for Policy BLS Thursday, February 9, 2012 USDA CDC
  21. 21. Data-based Interfaces for Policy BLS Thursday, February 9, 2012 USDA CDC
  22. 22. Old question: How do we communicate in such a way and in such frequency so as to change behavior? Dose > Response Thursday, February 9, 2012
  23. 23. New question: How do we structure the communication environment to support self-determined pathways of health for individuals, loved ones, and communities? Safety, Quality Improvement Institute of Medicine’s Crossing the Quality Chasm series Patient Engagement “Meaningful Use” Continuity of Care Population Health * Hesse, B. W., & Shneiderman, B. (2007). eHealth research from the user's perspective. Am J Prev Med, 32(5 Suppl), S97-103. Thursday, February 9, 2012 Privacy, Security TRUST

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