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The Health & Social Market Place
The Health & Social Market Place
The Health & Social Market Place
The Health & Social Market Place
The Health & Social Market Place
The Health & Social Market Place
The Health & Social Market Place
The Health & Social Market Place
The Health & Social Market Place
The Health & Social Market Place
The Health & Social Market Place
The Health & Social Market Place
The Health & Social Market Place
The Health & Social Market Place
The Health & Social Market Place
The Health & Social Market Place
The Health & Social Market Place
The Health & Social Market Place
The Health & Social Market Place
The Health & Social Market Place
The Health & Social Market Place
The Health & Social Market Place
The Health & Social Market Place
The Health & Social Market Place
The Health & Social Market Place
The Health & Social Market Place
The Health & Social Market Place
The Health & Social Market Place
The Health & Social Market Place
The Health & Social Market Place
The Health & Social Market Place
The Health & Social Market Place
The Health & Social Market Place
The Health & Social Market Place
The Health & Social Market Place
The Health & Social Market Place
The Health & Social Market Place
The Health & Social Market Place
The Health & Social Market Place
The Health & Social Market Place
The Health & Social Market Place
The Health & Social Market Place
The Health & Social Market Place
The Health & Social Market Place
The Health & Social Market Place
The Health & Social Market Place
The Health & Social Market Place
The Health & Social Market Place
The Health & Social Market Place
The Health & Social Market Place
The Health & Social Market Place
The Health & Social Market Place
The Health & Social Market Place
The Health & Social Market Place
The Health & Social Market Place
The Health & Social Market Place
The Health & Social Market Place
The Health & Social Market Place
The Health & Social Market Place
The Health & Social Market Place
The Health & Social Market Place
The Health & Social Market Place
The Health & Social Market Place
The Health & Social Market Place
The Health & Social Market Place
The Health & Social Market Place
The Health & Social Market Place
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The Health & Social Market Place

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Don Derrett gives an overview of the ups and downs of personalisation and self-directed support as it is developing in the UK. He explores some possible new directions.

Don Derrett gives an overview of the ups and downs of personalisation and self-directed support as it is developing in the UK. He explores some possible new directions.

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  • Transcript

    • 1. The health and social ‘Market-place’
    • 2. Outline history of thedevelopment of SelfDirection in the UK by Person Centred Planning Social Role 1980’s Valorisation Normalisation Government Author and copyright Don Derrett, Legislation and self direct
    • 3. Outline history of thedevelopment of SelfDirection in the UK by Care in the 1990 Person Centred Community Planning Social Role 1980’s Valorisation Normalisation Government Author and copyright Don Derrett, Legislation and self direct
    • 4. Outline history of thedevelopment of SelfDirection in the UK by Direct 1996 Payments Care in the 1990 Person Centred Community Planning Social Role 1980’s Valorisation Normalisation Government Author and copyright Don Derrett, Legislation and self direct
    • 5. Outline history of thedevelopment of SelfDirection in the UK by Valuing People 2001 Direct 1996 Payments Care in the 1990 Person Centred Community Planning Social Role 1980’s Valorisation Normalisation Government Author and copyright Don Derrett, Legislation and self direct
    • 6. Outline history of thedevelopment of SelfDirection in the UK by Individual Service Valuing People 2001 Funds Inclusion Direct 1996 Glasgow Payments Care in the 1990 Person Centred Community Planning Social Role 1980’s Valorisation Normalisation Government Author and copyright Don Derrett, Legislation and self direct
    • 7. Outline history of thedevelopment of SelfDirection in the UK by in Control 2003 Individual Service Valuing People 2001 Funds Inclusion Direct 1996 Glasgow Payments Care in the 1990 Person Centred Community Planning Social Role 1980’s Valorisation Normalisation Government Author and copyright Don Derrett, Legislation and self direct
    • 8. Outline history of thedevelopment of SelfDirection in the UK by in Control 2003 Individual Service Valuing People 2001 Funds Inclusion Direct 1996 Glasgow Payments Care in the 1990 Person Centred Community Planning Social Role 1980’s Valorisation Normalisation Government Author and copyright Don Derrett, Legislation and self direct
    • 9. Outline history of thedevelopment of SelfDirection in the UK by Individual Budgets in Control 2003 Individual Service Valuing People 2001 Funds Inclusion Direct 1996 Glasgow Payments Care in the 1990 Person Centred Community Planning Social Role 1980’s Valorisation Normalisation Government Author and copyright Don Derrett, Legislation and self direct
    • 10. Outline history of thedevelopment of SelfDirection in the UK by Self Directed Support Individual Budgets in Control 2003 Individual Service Valuing People 2001 Funds Inclusion Direct 1996 Glasgow Payments Care in the 1990 Person Centred Community Planning Social Role 1980’s Valorisation Normalisation Government Author and copyright Don Derrett, Legislation and self direct
    • 11. Outline history of thedevelopment of SelfDirection in the UK by Personal Budgets Self Directed Support Individual Budgets in Control 2003 Individual Service Valuing People 2001 Funds Inclusion Direct 1996 Glasgow Payments Care in the 1990 Person Centred Community Planning Social Role 1980’s Valorisation Normalisation Government Author and copyright Don Derrett, Legislation and self direct
    • 12. Outline history of thedevelopment of SelfDirection in the UK by Resource Allocation System Personal Budgets Self Directed Support Individual Budgets in Control 2003 Individual Service Valuing People 2001 Funds Inclusion Direct 1996 Glasgow Payments Care in the 1990 Person Centred Community Planning Social Role 1980’s Valorisation Normalisation Government Author and copyright Don Derrett, Legislation and self direct
    • 13. Outline history of thedevelopment of SelfDirection in the UK by Resource Allocation System Personal Budgets Self Directed Phase 1 in Control Support Individual Budgets 2005 Report in Control 2003 Individual Service Valuing People 2001 Funds Inclusion Direct 1996 Glasgow Payments Care in the 1990 Person Centred Community Planning Social Role 1980’s Valorisation Normalisation Government Author and copyright Don Derrett, Legislation and self direct
    • 14. Outline history of thedevelopment of SelfDirection in the UK by Resource Allocation System Personal Individual Budget Budgets Self Directed Phase 1 Pilots in Control Support Individual Budgets 2005 Report in Control 2003 Individual Service Valuing People 2001 Funds Inclusion Direct 1996 Glasgow Payments Care in the 1990 Person Centred Community Planning Social Role 1980’s Valorisation Normalisation Government Author and copyright Don Derrett, Legislation and self direct
    • 15. Outline history of thedevelopment of SelfDirection in the UK by Resource Allocation System Personal Individual Budget 2006 Budgets Self Directed Phase 1 Pilots in Control Support Individual Budgets 2005 Report in Control 2003 Individual Service Valuing People 2001 Funds Inclusion Direct 1996 Glasgow Payments Care in the 1990 Person Centred Community Planning Social Role 1980’s Valorisation Normalisation Government Author and copyright Don Derrett, Legislation and self direct
    • 16. Outline history of thedevelopment of SelfDirection in the UK by Resource Allocation System Independent Living Personal Strategy Individual Budget 2006 Budgets Self Directed Phase 1 Pilots in Control Support Individual Budgets 2005 Report in Control 2003 Individual Service Valuing People 2001 Funds Inclusion Direct 1996 Glasgow Payments Care in the 1990 Person Centred Community Planning Social Role 1980’s Valorisation Normalisation Government Author and copyright Don Derrett, Legislation and self direct
    • 17. Outline history of thedevelopment of SelfDirection in the UK by Resource Allocation System 2007 Independent Living Personal Strategy Individual Budget 2006 Budgets Self Directed Phase 1 Pilots in Control Support Individual Budgets 2005 Report in Control 2003 Individual Service Valuing People 2001 Funds Inclusion Direct 1996 Glasgow Payments Care in the 1990 Person Centred Community Planning Social Role 1980’s Valorisation Normalisation Government Author and copyright Don Derrett, Legislation and self direct
    • 18. Outline history of thedevelopment of SelfDirection in the UK by Resource Allocation Putting People System First 2007 Independent Living Personal Strategy Individual Budget 2006 Budgets Self Directed Phase 1 Pilots in Control Support Individual Budgets 2005 Report in Control 2003 Individual Service Valuing People 2001 Funds Inclusion Direct 1996 Glasgow Payments Care in the 1990 Person Centred Community Planning Social Role 1980’s Valorisation Normalisation Government Author and copyright Don Derrett, Legislation and self direct
    • 19. Outline history of thedevelopment of SelfDirection in the UK by Resource 2008 Allocation Putting People System First 2007 Independent Living Personal Strategy Individual Budget 2006 Budgets Self Directed Phase 1 Pilots in Control Support Individual Budgets 2005 Report in Control 2003 Individual Service Valuing People 2001 Funds Inclusion Direct 1996 Glasgow Payments Care in the 1990 Person Centred Community Planning Social Role 1980’s Valorisation Normalisation Government Author and copyright Don Derrett, Legislation and self direct
    • 20. Outline history of thedevelopment of SelfDirection in the UK by Wales Alliance for Citizen Directed Support Scotland in Control Resource Personalisation 2008 Allocation Putting People System First 2007 Independent Living Personal Strategy Individual Budget 2006 Budgets Self Directed Phase 1 Pilots in Control Support Individual Budgets 2005 Report in Control 2003 Individual Service Valuing People 2001 Funds Inclusion Direct 1996 Glasgow Payments Care in the 1990 Person Centred Community Planning Social Role 1980’s Valorisation Normalisation Government Author and copyright Don Derrett, Legislation and self direct
    • 21. Outline history of thedevelopment of SelfDirection in the UK by Wales Alliance for Citizen Directed Support Scotland in Control Change to Direct Payments 2009 Resource rules Personalisation 2008 Allocation Putting People System First 2007 Independent Living Personal Strategy Individual Budget 2006 Budgets Self Directed Phase 1 Pilots in Control Support Individual Budgets 2005 Report in Control 2003 Individual Service Valuing People 2001 Funds Inclusion Direct 1996 Glasgow Payments Care in the 1990 Person Centred Community Planning Social Role 1980’s Valorisation Normalisation Government Author and copyright Don Derrett, Legislation and self direct
    • 22. Outline history of thedevelopment of SelfDirection in the UK by Wales Alliance for Citizen Directed Support Personal Health Budget 2010 Scotland Pilots in Control Change to Direct Payments 2009 Resource rules Personalisation 2008 Allocation Putting People System First 2007 Independent Living Personal Strategy Individual Budget 2006 Budgets Self Directed Phase 1 Pilots in Control Support Individual Budgets 2005 Report in Control 2003 Individual Service Valuing People 2001 Funds Inclusion Direct 1996 Glasgow Payments Care in the 1990 Person Centred Community Planning Social Role 1980’s Valorisation Normalisation Government Author and copyright Don Derrett, Legislation and self direct
    • 23. Outline history of thedevelopment of SelfDirection in the UK by Personal Budgets for 30% Eligible for Social 2011 Wales Alliance for Care Citizen Directed Support Personal Health Budget 2010 Scotland Pilots in Control Change to Direct Payments 2009 Resource rules Personalisation 2008 Allocation Putting People System First 2007 Independent Living Personal Strategy Individual Budget 2006 Budgets Self Directed Phase 1 Pilots in Control Support Individual Budgets 2005 Report in Control 2003 Individual Service Valuing People 2001 Funds Inclusion Direct 1996 Glasgow Payments Care in the 1990 Person Centred Community Planning Social Role 1980’s Valorisation Normalisation Government Author and copyright Don Derrett, Legislation and self direct
    • 24. Outline history of thedevelopment of SelfDirection in the UK by Think Local Act Personal Budgets for 30% Eligible for Social 2011 Personal Wales Alliance for Care Citizen Directed Support Personal Health Budget 2010 Scotland Pilots in Control Change to Direct Payments 2009 Resource rules Personalisation 2008 Allocation Putting People System First 2007 Independent Living Personal Strategy Individual Budget 2006 Budgets Self Directed Phase 1 Pilots in Control Support Individual Budgets 2005 Report in Control 2003 Individual Service Valuing People 2001 Funds Inclusion Direct 1996 Glasgow Payments Care in the 1990 Person Centred Community Planning Social Role 1980’s Valorisation Normalisation Government Author and copyright Don Derrett, Legislation and self direct
    • 25. Outline history of thedevelopment of Self 2013Direction in the UK by Think Local Act Personal Budgets for 30% Eligible for Social 2011 Personal Wales Alliance for Care Citizen Directed Support Personal Health Budget 2010 Scotland Pilots in Control Change to Direct Payments 2009 Resource rules Personalisation 2008 Allocation Putting People System First 2007 Independent Living Personal Strategy Individual Budget 2006 Budgets Self Directed Phase 1 Pilots in Control Support Individual Budgets 2005 Report in Control 2003 Individual Service Valuing People 2001 Funds Inclusion Direct 1996 Glasgow Payments Care in the 1990 Person Centred Community Planning Social Role 1980’s Valorisation Normalisation Government Author and copyright Don Derrett, Legislation and self direct
    • 26. Outline history of thedevelopment of Self Personal Budgets for 100% Eligible for 2013Direction in the UK by Social Care Think Local Act Personal Budgets for 30% Eligible for Social Personal 2011 Wales Alliance for Care Citizen Directed Support Personal Health Budget 2010 Scotland Pilots in Control Change to Direct Payments 2009 Resource rules Personalisation 2008 Allocation Putting People System First 2007 Independent Living Personal Strategy Individual Budget 2006 Budgets Self Directed Phase 1 Pilots in Control Support Individual Budgets 2005 Report in Control 2003 Individual Service Valuing People 2001 Funds Inclusion Direct 1996 Glasgow Payments Care in the 1990 Person Centred Community Planning Social Role 1980’s Valorisation Normalisation Government Author and copyright Don Derrett, Legislation and self direct
    • 27. Helping Providers to
    • 28. Sarah and AdamPhoto from theself directpublication‘Helpingproviders tochange’reproduced withkind permissionof GarethBuddho
    • 29. Model of Self-Directed SupportAuthor / copyright, Simon Duffy, Centre for Welfare Reform
    • 30. The 7 Ethical Principles of Self-Directed SupportPrinciples of Self-Directed Support © Don Derrett and Simon Duffy 2012
    • 31. • 1. Independent living - we have the right to be a citizen with full access to ordinary lives“I have a right to live my life in a way that makes sense to me.”• 2. Entitlement - we are each entitled to enough support to achieve citizenship“I have a right to enough support and a right not to be over supported.” Principles of Self-Directed Support © Don Derrett and Simon Duffy 2012
    • 32. • 3. Self-determination - we should be in control of our own lives“I have a right to make decisions about how I live my life and, if needed, I have a right to be supported by people who know me and love me to make those decisions for and with me.”• 4. Openness - we should be clear about any rules or systems“I have a right to be told clearly and simply how the system of entitlement works and how the rules affect me; including how much money I am entitled to for my support.” Principles of Self-Directed Support © Don Derrett and Simon Duffy 2012
    • 33. • 5. Flexibility - we should be free to use our own entitlements as we see fit“I have a right to use my money in any way that helps me to live my life; including the freedom to take risks, make mistakes and learn from them.” Principles of Self-Directed Support © Don Derrett and Simon Duffy 2012
    • 34. • 6. Learning - we should share what we are learning to help everyone “I have a responsibility to share with others what I have learnt works for me and what doesn’t work for me.”• 7. Contribution - we have a responsibility to contribute and to build stronger communities“I have a right and a responsibility to use my skills, talents and knowledge to play a full part as a citizen in my Principles of Self-Directed Support © Don Derrett and Simon Duffy 2012
    • 35. Users of Social Care PersonalBudgetsIpsos MORI report for the National AuditOffice study on the Department ofHealth’s regulatory oversight of caremarkets29 July 2011
    • 36. Summary of Findings Choice and Personal BudgetsNot all budget holders interviewed were offered thechoice between a direct payment, a managedaccount, or a combination of the two.When a choice was offered, managed budgets werechosen when the benefit of a direct payment wasoutweighed by the added responsibility and workinvolved. Users of Social Care Personal Budgets Ipsos MORI report for the National Audit Office study on the Department of Health’s regulatory oversight of care markets 29 July 2011
    • 37. Summary of Findings Choosing, managing and switching providersManaged budget holders were generally unawarethat they could choose providers, and were notoffered any choice of providers.Participants wanted to see lists of potentialproviders with feedback from other users to helpthem choose. Users of Social Care Personal Budgets Ipsos MORI report for the National Audit Office study on the Department of Health’s regulatory oversight of care markets 29 July 2011
    • 38. Summary of Findings Choosing, managing and switching providersSupport to manage and switch providers wascrucial to ensure all users were able to exercisechoice and get the most out of their personal budget,but it was not always available, or not always of theright quality. Users of Social Care Personal Budgets Ipsos MORI report for the National Audit Office study on the Department of Health’s regulatory oversight of care markets 29 July 2011
    • 39. Summary of Findings Managing RisksAs budget holders move away from traditionalservices to use a wider range of suppliers, and inparticular venture further into mainstream services,the screening and accreditation of suppliers becomemore difficult for local authorities. Their response tothis seems to be focused around informationprovision and collating user feedback, to helpbudget holders make informed decisions. Users of Social Care Personal Budgets Ipsos MORI report for the National Audit Office study on the Department of Health’s regulatory oversight of care markets 29 July 2011
    • 40. Outcome FocusedSupport PlanningCalderdale MBCFacilitated by
    • 41. PATH (Planning Alternative Tomorrows with Hope) • Power with NOT • Power over
    • 42. Training Personal Assistants, Helpyour PA support you betterPavilionPublicationBookletCDDVD
    • 43. Personal Health Budgets“Health Secretary Andrew Lansley has announced that by April 2014, subject to the evaluation, people eligible for NHS Continuing Healthcare will have the right to ask for a personal health budget – including a direct payment.”
    • 44. Australia
    • 45. Julie Simpson Family Carer, self direct Australiawww.selfdirect.org.au
    • 46. Ethical Principle 1. Right to Independent Living Scenario Di’s experience of living an ‘Independent life’ in the community was a nightmare of discriminatory hate crime, she wanted to live Issue Do you take action when people say they want to move on from your service, or live somewhere else or change who they live with or who supports them?Identify aperson whouses yourservice and afamily memberwho you wouldinvolve inthinking aboutthis. Howwould yousupport them?Example: Culture – “Listening to what people say about how they want to live”
    • 47. Ethical Principle 1. Right to Independent Living Scenario Di’s experience of living an ‘Independent life’ in the community was a nightmare of discriminatory hate crime, she wanted to live Issue Do you take action when people say they want to move on from your service, or live somewhere else or change who they live with or who supports them?Identify a What cultureperson who change needsuses your to take place inservice and a thefamily member organisationwho you would and how doinvolve in you go aboutthinking about this?this. Howwould yousupport them?Example: Culture – “Listening to what people say about how they want to live”
    • 48. Ethical Principle 1. Right to Independent Living Scenario Di’s experience of living an ‘Independent life’ in the community was a nightmare of discriminatory hate crime, she wanted to live Issue Do you take action when people say they want to move on from your service, or live somewhere else or change who they live with or who supports them?Identify a What culture What policy /person who change needs procedureuses your to take place in needs toservice and a the change or befamily member organisation created inwho you would and how do order toinvolve in you go about support thatthinking about this? culture changethis. How and how dowould you you go aboutsupport them? this?Example: Culture – “Listening to what people say about how they want to live”
    • 49. Ethical Principle 1. Right to Independent Living Scenario Di’s experience of living an ‘Independent life’ in the community was a nightmare of discriminatory hate crime, she wanted to live Issue Do you take action when people say they want to move on from your service, or live somewhere else or change who they live with or who supports them?Identify a What culture What policy / What, were orperson who change needs procedure would be theuses your to take place in needs to outcomes forservice and a the change or be the individual?family member organisation created inwho you would and how do order toinvolve in you go about support thatthinking about this? culture changethis. How and how dowould you you go aboutsupport them? this?Example: Culture – “Listening to what people say about how they want to live”
    • 50. What next for self direct?• Raising expectations• Get information directly to people• Develop new products to support people to maintain and take control of their lives• Work with the membership
    • 51. Achievement
    • 52. What’s holding people back
    • 53. Challenge and ‘campaign’
    • 54. Things that make your heart sing
    • 55. Connections and relationships
    • 56. Don’t neglect what hasalready been achieved
    • 57. Moving on with the changes
    • 58. Newboo
    • 59. Thanksfor
    • 60. Don DerrettChiefExecutive, selfdirect &Fellow of TheCentre forWelfareReform www.selfdirect.org

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