How we launched the Health Datapalooza under Todd Park and Aneesh Chopra. We used the open data and open gov mandate to release data and use that to fuel entrepreneurship and innovation in healthcare.
Anomaly detection and data imputation within time series
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The health datapalooza story building an open data ecosystem for health
1. Mobilizing Communities for Health:
the Health Data Initiative
Aman Bhandari, US Govt
amanbhandari@gmail.com / @Ghideas
2. Context: HHS Health Data
Policy + Platform: Open Gov
Case Study: Health Data Palooza
3. â˘â Prescription drug recall info
â˘â Hospital comparisons
â˘â Clinic and facility location
â˘â Use of preventive services
â˘â Summary measures of health
â˘â Risk factors and access to care
â˘â Measures of birth and death
â˘â Food atlases
â˘â Community health indicators
â˘â Scientific publications
HHS Data: 80K Employees, $1B
+ Problem: Large amounts of data but little use or creative application
7. 7
Harnessing the power of (health) data
Opportunity: Build innovative data driven applications, democratize data
access & mobilize a community of users outside of government
Supply Downloadable Data to the Market (NOAA of health data): http://www.cdc.gov/nchs/
data_access/chdi.htm
8. Problem: Large amounts of data but with little use or creative application
Opportunity: Build innovative data driven applications & a community of users
9. 1.â Publish
 brand
 new
 HHS
 data
 for
 public
 access
 â
 while
 rigorously
Â
protec0ng
 privacy
 and
 conďŹden0ality
Â
2.â Make
 exis=ng
 HHS
 data
 much
 more
 accessible
 -Ââ-Ââ
 âmachine-Ââ
readable,â
 accessible
 via
 applica0on
 programming
 interfaces
Â
(APIs),
 free,
 much
 easier
 to
 ďŹnd
Â
3.â Energe=cally
 publicize
 our
 data
 to
 innovators
 -Ââ-Ââ
 who
 can
 use
 it
Â
as
 raw
 material
 to
 develop
 applica0ons
 and
 services
 that
 help
Â
improve
 health
 and
 health
 care
Â
Health Data Initiative core activities:
liberate data and catalyze innovation
10. @Steven_InSites #cm48
Buzz volume
Brainstorming: Harnessing the Power of Data to Improve Health
One Day: 50 health policy & tech developer experts !brainstorm, be inspired and drive action:
â˘â Brainstorm most powerful and innovative ideas
â˘â Form teams & commit to activating the best ideas within 90 days
â˘â What started as a 1 day event has turned into a much broader effort
Health Policy Experts Tech Developers & Innovators
+
Mission: Harness the power of community health data for the benefit of all Americansâ. CHDI
was launched on March 11th 2010 as an experiment in understanding how people might use
the data being released.
12. brainstorm ! commit ! implement & build
Examples of innovative applications
developed in 90 days
13. How do you bring data to the fingertips of consumers?
Microsoft Bing announced its latest effort to bring CHDI to the public by
incorporating Hospital Compare data into its search functionality
14. Challenge Example: How do you make raw data useful?
â˘âWinner of Blue Button challenge (www.health2challenge.org)
â˘âContest funded through partnership between RWJF and Markle Foundation
15. @Steven_InSites #cm48
Buzz volume
â˘ââMaking community health info as useful as weather dataâ
â˘ââMaking Health Data Singâ
â˘âOver 15 new or enhanced apps; 400 people in person, 300 online
â˘âCross sector teams formed; Innovation Expo
Product Launch: June 2nd HHS + IOM âHere Come the Health Apps!â
Showcased best âappsâ with a tremendous response:
16. The goal: a self-propelled, open âecosystem of
innovationâ using data to improve health
â˘âHelp
 consumers
 take
 control
 of
Â
their
 health
 and
 health
 care
Â
â˘âHelp
 employers
 promote
 health
Â
and
 wellness
Â
â˘âHelp
 care
 providers
 deliver
 beEer
Â
care
Â
â˘âHelp
 journalists
 shed
 light
Â
â˘âHelp
 local
 leaders
 make
 beEer-Ââ
informed
 decisions
Â
â˘âSupport
 all
 of
 the
 above
 through
Â
âdata
 intermediaryâ
 services
Â
â˘âAnd
 much
 more
Â
A
 Rapidly
 Growing
 Array
 of
 Innova=ve
Â
Products
 and
 Services
 That:
Â
Health-Related Data
from
FUELS
17. Publicizing our data to innovators across America
â˘âChallenges
 and
 âcode-Ââa-Ââthonsâ
 (health2challenge.org)
Â
Â
â˘âMany
 innovator
 âmeetupsâ
 and
 conferences
Â
â˘âAnnual
 âhealth
 datapaloozasâ
Â
18. Health Issues + Developers + Designers + Experts + 8 hours =
Awesome
Form Teams ! Active Coding ! Prototype
21. @Steven_InSites #cm48
Buzz volume
How and where do you build community?
Launching an External Innovation Platform: www.health2challenge.org
â˘âPartnered with Health 2.0 to launch a website to host challenges, innovation gallery and more
â˘âLaunched with over 12 challenges sponsored by: the Robert Wood Johnson Foundation,
Markle Foundation, California Health Care Foundation, HHS, Practice Fusion, West Wireless
Health Institute and others.
â˘âLeverages power of prizes and challenges and team competitions
â˘âCreates a âhomeâ for a network of developers, government agencies, community
organizations, foundations, and companies
â˘âCreates an environment where events become âresults enginesâ
â˘âOver 12 challenges launched, 83 teams
â˘â5 in person code-a-thons with average of 120+ people, dozens of teams formed
22. â˘â Release Data:
HHS, USG, Private Sector (Gallup, First DataBank)
â˘â Brainstorming (March 11th, 2010):
Prestigious host: Institute of Medicine (IOM)
Teams: mixture of start-ups, major companies, non-profits, individual
innovators
â˘â Build Applications (June 2nd, 2010):
IOM as host, HHS and White House as convener
â˘â Catalyze & Build Community:
PPP with Health 2.0, IOM. Health 2.0 Developer Challenge launched 12
challenges with many partners; Code-a-thon partners include Google,
HealthTap, Georgetown, Microsoft NERD, Make Magazine, others.
Design Framework (partnerships key to success):
23. Essential Ingredients of Success
â˘â Team:
ââ Dedicated team of 3 people with senior leadership support and vision
ââ Strong project management skills and ability to connect across sectors
â˘â Brainstorming:
ââ Partnerships from the beginning with outside non-profits to help convene, network and create a
lightweight consortium and get people vested from the start
ââ Create mashups of experts and non-traditionalists who can build something
ââ Open Framework: ask people to make a commitment and contribution to the public good
â˘â Building the Ecosystem and Community:
ââ Welcome everyone (the small guy: start-ups, non-profits, solo entrepreneurs)
ââ Provide a âhomeâ: hhs.gov/open AND health2challenge.org
ââ Use âPrizes and Challengesâ to drive results and action and give new partners a channel to do
something concrete (health2challenge.org)
ââ Find a nimble/agile external group with a strong network (e.g. Health 2.0)
ââ Use events to engage people (health innovation week, conferences) and create results (code-a-
thons)
ââ Find champions and create ambassadors (data and community ambassadors)
ââ Tap into social media (twitter) and blogger/journalist leaders
24. What was the timeline?
CHDI data landing page March 2010
Brainstorming session (experts + innovators) March 2010
Product launch June 2010
Health2challenge.org July 2010
Code-a-thon at HealthTap Sept 2010
Code-a-thon at Google Oct 2010
Health Innovation Week: Announce challenge winners Oct 2010
HealthData.gov launch Jan 2011
Code-a-thon at Georgetown Feb 2011
25. What did we accomplish?
â˘â Created dozens of health applications
â˘â Created a diverse community of data suppliers & data users
ââ Private sector has come forward to contribute data
â˘â Created partnerships
ââ HHS and Institute of Medicine (IOM)
ââ HHS and Health 2.0
ââ Foundations and private sector companies and Health 2.0
â˘â Created Challenge Platform (with Health 2.0): www.health2challenge.org
ââ Platform to launch online challenges (over 12 challenges including Blue Button)
ââ Network of developers
ââ Network of funders, teams, innovators
ââ In person code-a-thons
â˘â Created www.HealthData.gov
26. How did CHDI work?
Community
Building
4
Product
Launch
3
21
Challenge: Agencies are putting out large amounts of data. How to
translate this raw information into useful knowledge and tools?
Solution: Convene the data-savvy community with passion for the topic.
Elements of CHDI
â˘â STEP 1: Publish raw data online in one place
â˘â STEP 2: Convene subject matter and data rock stars along with technology
experts and innovators to brainstorm creative uses
â˘â STEP 3: Commit to a major event (in front of the Secretary) to showcase the
tools built using the data
â˘â STEP 4: Partner from the beginning, build an external platform, host smaller
future events (code-a-thons) to build a movement