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Reija Heinola
   National Institute for Health and Welfare, Finland
                        Support for informal care
- shared responsibility between local municipalities and informal carers
Support for Informal Care in Finland
• Statutory social service (The Act on Support for Informal Care 937/2005)
• Can be granted if a person needs care at home because of reduced
  capability, illness or disability
• Consists of
   • Necessary services to support care recipient and caregiver
   • Care allowance and 3 days leave/month for caregiver
• Commission agreement is made between care giver and the municipality
  (not employment)
• Minimum fee from the 1st of January 2010 is
   – 347,41 euro/month
   – 694,83 euro/month during transitional period when heavy caring is
      needed
• Number of 65+ care receivers 23 474 (2009)
Service Structure for Older People 1995-2009
                                                               Targets of National
Clients % 75+                                                  Framework by 2012
                       1995    2001    2005    2008    2009

Regular home care       13,8    12,1    11,5    11,2    11,4         13-14

Support for informal    2,7     3,2     3,7     4,1     4,1           5-6
care

Sheltered housing        -      2,2     3,4     4,6     5,1           5-6
with 24-hour
assistance
Residential home        6,5     5,1     4,3     3,8     3,5
                                                                       3
Long-term care at       3,7     3,0     2,5     2,1
health centre wards
Allocating statutory support for families caring for
                       close relatives
Research question:
  Are there some distinguishing characteristics in life situations
  and needs of older persons applying for support for informal
  care, compared to those applying for other services?
Data:
  - a sample of older persons (N= 502), living in Southern
  Finland (Helsinki and Vantaa), who applied for social services
  in 2008-2009
  - those who expressed their need for support for informal
  care (N=181)
  - all were assessed using Resident Assessment Instrument
  (RAI), accompanied by questions about psycho-social
  circumstances and capabilities in home environment
Source: Anni Vilkko & Reija Heinola & Harriet Finne-Soveri & Maarit Rautio & Tarja Helameri & Arja Peiponen
              The National Institute for Health and Welfare and The City of Helsinki
Allocating statutory support for families caring for
                           close relatives
Profile:
• A great majority were married and received care from their
   spouses (70 %)
• Sex distribution was significantly more even, compared to
   those applying for other services who were predominantly
   women
• They had a more sustainable socio-economic situation
• Their ability in almost all IADL activities and ADL activities
   were substantially lower than in the other group
• Their cognitive disability was an essential reason for applying
   for support for family care (compared to other group)
• The burden of caring was evident in 28 % of caregivers
Source: Anni Vilkko & Reija Heinola & Harriet Finne-Soveri & Maarit Rautio & Tarja Helameri & Arja Peiponen
              The National Institute for Health and Welfare and The City of Helsinki
Allocating statutory support for families caring for
                    close relatives
Services:
• A great majority (72 %) of the family carers,
applying for support for informal care, entered into
a care contract and received caregiver’s fee
• The families were given substantially less support
services at home than those who did not apply for
informal care support
Source: Anni Vilkko & Reija Heinola & Harriet Finne-Soveri & Maarit Rautio & Tarja Helameri & Arja
Peiponen
The National Institute for Health and Welfare and The City of Helsinki
Allocating statutory support for families caring for
                            close relatives
Discussion:
• A more sustainable socio-economic situation and marital
   status were empowering and safety creating resources for the
   care receivers
• However, the burden of caring was evident in 28 % of
   caregivers (e. g. compared to those about 12 % getting
   regular home care, RAI home care –data 2009)
• We have a good reason to ask whether official system for
   support has recognized well enough the needs of family
   carers in actual care situations as well as their needs for
   preventive support?
Source: Anni Vilkko & Reija Heinola & Harriet Finne-Soveri & Maarit Rautio & Tarja Helameri & Arja Peiponen
           The National Institute for Health and Welfare and The City of Helsinki

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Jose María Alonso Seco
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Ana Lite Mateo
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Ruth Vallejo
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Cinzia Alitto
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Christiana Weidel
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María Angeles Martínez Mingueza
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Marie Pierre Le Breton
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Reija Heinola

  • 1. Reija Heinola National Institute for Health and Welfare, Finland Support for informal care - shared responsibility between local municipalities and informal carers
  • 2. Support for Informal Care in Finland • Statutory social service (The Act on Support for Informal Care 937/2005) • Can be granted if a person needs care at home because of reduced capability, illness or disability • Consists of • Necessary services to support care recipient and caregiver • Care allowance and 3 days leave/month for caregiver • Commission agreement is made between care giver and the municipality (not employment) • Minimum fee from the 1st of January 2010 is – 347,41 euro/month – 694,83 euro/month during transitional period when heavy caring is needed • Number of 65+ care receivers 23 474 (2009)
  • 3. Service Structure for Older People 1995-2009 Targets of National Clients % 75+ Framework by 2012 1995 2001 2005 2008 2009 Regular home care 13,8 12,1 11,5 11,2 11,4 13-14 Support for informal 2,7 3,2 3,7 4,1 4,1 5-6 care Sheltered housing - 2,2 3,4 4,6 5,1 5-6 with 24-hour assistance Residential home 6,5 5,1 4,3 3,8 3,5 3 Long-term care at 3,7 3,0 2,5 2,1 health centre wards
  • 4. Allocating statutory support for families caring for close relatives Research question: Are there some distinguishing characteristics in life situations and needs of older persons applying for support for informal care, compared to those applying for other services? Data: - a sample of older persons (N= 502), living in Southern Finland (Helsinki and Vantaa), who applied for social services in 2008-2009 - those who expressed their need for support for informal care (N=181) - all were assessed using Resident Assessment Instrument (RAI), accompanied by questions about psycho-social circumstances and capabilities in home environment Source: Anni Vilkko & Reija Heinola & Harriet Finne-Soveri & Maarit Rautio & Tarja Helameri & Arja Peiponen The National Institute for Health and Welfare and The City of Helsinki
  • 5. Allocating statutory support for families caring for close relatives Profile: • A great majority were married and received care from their spouses (70 %) • Sex distribution was significantly more even, compared to those applying for other services who were predominantly women • They had a more sustainable socio-economic situation • Their ability in almost all IADL activities and ADL activities were substantially lower than in the other group • Their cognitive disability was an essential reason for applying for support for family care (compared to other group) • The burden of caring was evident in 28 % of caregivers Source: Anni Vilkko & Reija Heinola & Harriet Finne-Soveri & Maarit Rautio & Tarja Helameri & Arja Peiponen The National Institute for Health and Welfare and The City of Helsinki
  • 6. Allocating statutory support for families caring for close relatives Services: • A great majority (72 %) of the family carers, applying for support for informal care, entered into a care contract and received caregiver’s fee • The families were given substantially less support services at home than those who did not apply for informal care support Source: Anni Vilkko & Reija Heinola & Harriet Finne-Soveri & Maarit Rautio & Tarja Helameri & Arja Peiponen The National Institute for Health and Welfare and The City of Helsinki
  • 7. Allocating statutory support for families caring for close relatives Discussion: • A more sustainable socio-economic situation and marital status were empowering and safety creating resources for the care receivers • However, the burden of caring was evident in 28 % of caregivers (e. g. compared to those about 12 % getting regular home care, RAI home care –data 2009) • We have a good reason to ask whether official system for support has recognized well enough the needs of family carers in actual care situations as well as their needs for preventive support? Source: Anni Vilkko & Reija Heinola & Harriet Finne-Soveri & Maarit Rautio & Tarja Helameri & Arja Peiponen The National Institute for Health and Welfare and The City of Helsinki