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AAFP PANEL: CHRONIC DISEASE
MANAGEMENT AND FAMILY
CAREGIVERS
Rhonda Richards
Federal Health and Family Team
Government Affairs
AARP
Chronic Disease Management and Family Caregivers
Who are family caregivers?
• About 42 million family caregivers provide
unpaid care to an adult with limitations in daily
activities
• 3.9 million family caregivers provide care to a
child under age 18 because of a medical,
behavioral, or other condition or disability
• The average family caregiver is a 49-year-old
female taking care of her mother for nearly 20
hours/week, but family caregivers are also
incredibly diverse
Who are family caregivers?
• Over seven in ten caregivers were employed at
some time when they were caregiving
• Forty-two percent of U.S. workers have provided
care for an aging relative or friend in the past
five years
• About half (49 percent) of the workforce expects
to be providing eldercare in the coming five
years
What do family caregivers do?
• Family caregivers provide services including:
• Bathing
• Dressing
• Transportation
• Managing finances
• Grocery shopping, meal preparation, housework
• Care coordination
• Emotional support
• Medical/nursing tasks – almost half of family caregivers
perform these complex tasks
What is the economic impact of
family caregiving?
6
• About 42 million family caregivers provide $450
billion annually in unpaid care
• More than total Medicaid spending in 2012
• Over 40 billion hours of care annually
Family Caregivers
7
• Backbone of services and supports in the US
• Help older adults and people with disabilities
live in independently in their homes and
communities where they want to be
• Saving taxpayer dollars by helping to delay or
prevent more costly nursing home care &
unnecessary hospitalizations
• Play an important role in health care
Family Caregivers
8
• Many family caregivers take on care willingly
• But they can also face physical, emotional, and
financial challenges
Caregiving Challenges
9
• Commonly experience emotional strain and
mental health problems, especially depression
• May neglect own health due to caring for a loved
one
Caregiving Challenges
10
• Juggling work and family responsibilities
• Fewer family caregivers in the future when more
people will need care
Caregiving Challenges
11
• Family caregivers of people 50 and older spend
on average over 10% of their annual income on
caregiving expenses, an average of $5,531 out-
of-pocket in 2007; long-distance caregivers
averaged $8,728 in annual expenses
• Family caregivers (age 50 plus) who leave the
workforce to care for a parent lose nearly
$304,000 in wages and benefits over their
lifetime ($283,716 for men to $324,044 for
women)
Chronic Disease Management and Family Caregivers
Resources & Learn More
13
• AARP Caregiving Resource Center:
www.aarp.org/caregiving
• Eldercare Locator: www.eldercare.gov
• Next Step in Care:
http://www.nextstepincare.org/
• AARP’s I Heart Caregivers: If you’re a caregiver,
share your story: www.aarp.org/iheartcaregivers
Rhonda Richards
rrichards@aarp.org
202-434-3770

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Chronic Disease Management and Family Caregivers

  • 1. AAFP PANEL: CHRONIC DISEASE MANAGEMENT AND FAMILY CAREGIVERS Rhonda Richards Federal Health and Family Team Government Affairs AARP
  • 3. Who are family caregivers? • About 42 million family caregivers provide unpaid care to an adult with limitations in daily activities • 3.9 million family caregivers provide care to a child under age 18 because of a medical, behavioral, or other condition or disability • The average family caregiver is a 49-year-old female taking care of her mother for nearly 20 hours/week, but family caregivers are also incredibly diverse
  • 4. Who are family caregivers? • Over seven in ten caregivers were employed at some time when they were caregiving • Forty-two percent of U.S. workers have provided care for an aging relative or friend in the past five years • About half (49 percent) of the workforce expects to be providing eldercare in the coming five years
  • 5. What do family caregivers do? • Family caregivers provide services including: • Bathing • Dressing • Transportation • Managing finances • Grocery shopping, meal preparation, housework • Care coordination • Emotional support • Medical/nursing tasks – almost half of family caregivers perform these complex tasks
  • 6. What is the economic impact of family caregiving? 6 • About 42 million family caregivers provide $450 billion annually in unpaid care • More than total Medicaid spending in 2012 • Over 40 billion hours of care annually
  • 7. Family Caregivers 7 • Backbone of services and supports in the US • Help older adults and people with disabilities live in independently in their homes and communities where they want to be • Saving taxpayer dollars by helping to delay or prevent more costly nursing home care & unnecessary hospitalizations • Play an important role in health care
  • 8. Family Caregivers 8 • Many family caregivers take on care willingly • But they can also face physical, emotional, and financial challenges
  • 9. Caregiving Challenges 9 • Commonly experience emotional strain and mental health problems, especially depression • May neglect own health due to caring for a loved one
  • 10. Caregiving Challenges 10 • Juggling work and family responsibilities • Fewer family caregivers in the future when more people will need care
  • 11. Caregiving Challenges 11 • Family caregivers of people 50 and older spend on average over 10% of their annual income on caregiving expenses, an average of $5,531 out- of-pocket in 2007; long-distance caregivers averaged $8,728 in annual expenses • Family caregivers (age 50 plus) who leave the workforce to care for a parent lose nearly $304,000 in wages and benefits over their lifetime ($283,716 for men to $324,044 for women)
  • 13. Resources & Learn More 13 • AARP Caregiving Resource Center: www.aarp.org/caregiving • Eldercare Locator: www.eldercare.gov • Next Step in Care: http://www.nextstepincare.org/ • AARP’s I Heart Caregivers: If you’re a caregiver, share your story: www.aarp.org/iheartcaregivers