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Training away the barriers: mental health service users’, carers’ and academics’ experiences of a research course
Training away the barriers: mental health service users’, carers’ and academics’ experiences of a research course
Training away the barriers: mental health service users’, carers’ and academics’ experiences of a research course
Training away the barriers: mental health service users’, carers’ and academics’ experiences of a research course
Training away the barriers: mental health service users’, carers’ and academics’ experiences of a research course
Training away the barriers: mental health service users’, carers’ and academics’ experiences of a research course
Training away the barriers: mental health service users’, carers’ and academics’ experiences of a research course
Training away the barriers: mental health service users’, carers’ and academics’ experiences of a research course
Training away the barriers: mental health service users’, carers’ and academics’ experiences of a research course
Training away the barriers: mental health service users’, carers’ and academics’ experiences of a research course
Training away the barriers: mental health service users’, carers’ and academics’ experiences of a research course
Training away the barriers: mental health service users’, carers’ and academics’ experiences of a research course
Training away the barriers: mental health service users’, carers’ and academics’ experiences of a research course
Training away the barriers: mental health service users’, carers’ and academics’ experiences of a research course
Training away the barriers: mental health service users’, carers’ and academics’ experiences of a research course
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Training away the barriers: mental health service users’, carers’ and academics’ experiences of a research course

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Presentation by Toby Brandon and Caroline Kemp at the fourth ESRC funded seminar on participatory research with people with learning disabilities

Presentation by Toby Brandon and Caroline Kemp at the fourth ESRC funded seminar on participatory research with people with learning disabilities

Published in: Education, Health & Medicine
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  • 1. ‘Training away the barriers’: mental health service users, carers and academics experience of a research course. Toby Brandon and Caroline Kemp ESRC Conference:2014
  • 2. 2 This presentation presents independent research funded by the National Institute for Health Research (NIHR) under its Research for Patient Benefit Programme (Grant Reference Number RfPB PB-PG-0808-17269). The views expressed are those of the authors and not necessarily those of the NHS, the NIHR or the Department of Health. The research team are grateful for the ongoing support of the NIHR ESRC OU 2014
  • 3. Introduction  Work based on a research project funded by the NHS.  The question: Is there a pathway to mental health recovery through care coordination?  Mental health service users and carers became the researchers designing the project and the tools to be used, conducting the interviews, analysing the findings and disseminating the conclusions.  A short course was designed to help them gain the skills and knowledge needed to be able to take an active and meaningful role in the research.  Move from service users and carers being ‘involved’ in the project to ‘leading’ the project ‘mad people interviewing mad people’!  In this presentation we consider the impact of the training for all. ESRC OU 2014
  • 4. Training and support Rigorous process Learning together Valuing each other Service User and Carer Led Research: Principles for Good Practice ESRC OU 2014
  • 5. Barriers to Training  Coming to a university can make people nervous.  People may have bad memories.  People often think research is something other people to do.  Their own experience of being researched ‘on’ may not have been good.  They may not have confidence around reading and writing.  People may be concerned about having to work with others. ESRC OU 2014
  • 6. ESRC OU 2014
  • 7. Breaking Barriers  Value people through providing a quality course.  We all have research skills.  Present the university as a ‘community resource’.  Support people to learn how to learn.  Support each other/buddy systems and mentors.  Instil that everyone is an expert on something.  Build in a creative writing session. ESRC OU 2014
  • 8. Training Course in Mental Health Research  What’s so good about research anyway?  Values in research: doing research, ‘on’, ‘with’, or ‘for’ people. ‘Nothing about us without us!’.  How to find information?  How to spot good and poor quality research?  Measuring ‘things’ and listening to people.  Doing research responsibly and safely. ESRC OU 2014
  • 9. The Course Routes 10 Weeks 4 Weeks Researcher Finish Finish Certificate of attendance Informal Interview 10 University Credits Level 4 Part 1 (core) Education Part 2 (optional) Training Ongoing Call Back Day Training (session 4 hrs. a week) Course Handbook ESRC OU 2014
  • 10. Runaway Training!  Original content of course was designed by the steering group then it evolved under the influence of the research group.  Call back days.  Invitation went out to other researchers and experts to present around Risk, Service Provision, Recovery (WRAP).  Learning took place at a level and practical detail beyond that required by PhD students. ESRC OU 2014
  • 11. ESRC OU 2014
  • 12. Impact of Training: beyond education and study  Developing a research community  Becoming trainers themselves (e.g. informed consent)  Joining steering group.  Gain confidence.  Peoples personal recovery journey.  People getting jobs. ESRC OU 2014
  • 13. Conclusion  Changing identities – service user and carer to student to researcher  Responsiveness and flexibility are key.  Breaking down barriers between mental health service users and carers and the university is a two way learning process.  Giving up some control is vital.  Ultimately our work concerns blurring the boundaries between participants in research and researchers.  Moving to more co production. ESRC OU 2014
  • 14. POEM? THANK YOU ANY QUESTIONS? ESRC OU 2014
  • 15. The project received the Best Service User Involvement Plan Award at the National Institute for Health Research, Mental Health Research Network, Scientific Research Conference on the 21st April 2010. Contact email: toby.brandon@northumbria.ac.uk Steering/Research Group: Helen Atkin, Deb Helme, Nicola Armstrong, Alison Flaherty, Caroline Kemp, Lisa Matthews, Shula Ramon, Jan Wallcraft, Louise Thomson, Mick Hill, Oliver Wood, Nicola Armstrong, Liz Bowman, Alasdair Cameron, Paula Edwards and Simon Douglas ESRC OU 2014

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