Ask Deliberate Questions, Act More Meaningful
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Powerpoint Presentation #1 at the Transform EHDI Now Conference 2018 in Colorado Convention Center on March 18, 2018. To see video, go to https://youtu.be/CW44PVsUrxw
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Ask Deliberate Questions, Act More Meaningful
- 1. Ask Deliberate Questions, Act More Meaningful Ella Mae Lentz & Ryan Commerson Transform E.H.D.I. March 18, 2018
- 2. "an unexamined life isn't worth living" 2 Socrates
- 4. e Birth of Modern “deafness”Re-Presenting D-E-A-F by Ryan Commerson, a Masters thesis. https://vimeo.com/12817361
- 5. Deafhood • Total sum of all positive meanings of “Deaf” past, present and future. • Lifelong search to explain our existence • Internal/external dialogue re: what being a Deaf person in a Deaf community and the world may mean • Becoming and maintaining largest “Deaf” self possible
- 6. We believe… • The emergence of each Deaf child is a cause for celebration for their family and the Deaf world.
- 7. ~Marilyn Cassidy, Hearing Mother and Grandmother of Deaf Children~ “Every Deaf baby is born to two sets of parents – biological/adoptive parents and the Deaf community.” (paraphrased)
- 8. We believe… • Every Deaf child born provides the world with a deeper appreciation of language and humanity.
- 10. We believe… • Being Deaf is just another way to access a language naturally.
- 11. “The human brain does not discriminate between the hands and the tongue. People discriminate but not our biological human brain.” Ladd P. (2003). Understanding Deaf Culture: In Search of Deafhood. Clevedon, England: Multilingual Matters Ltd., p. 129. Laura Petitto 2012
- 12. We believe… • A worldview embracing Deaf people, traditions, languages, gifts and capacities create a healthy environment for the Deaf child with themselves, their families, education and those different than themselves.
- 13. We grieve with a heavy heart because… • The current practices of “early detection and intervention” systematically deprives the child from being joyfully, unashamedly Deaf and from acquiring an awesomely natural language and instead obsesses negatively on their tiny ears and mouth.
- 14. "I admit the ease with which a deaf child acquires sign language and its perfect adaptability for the purpose of developing his mind; but after all it is not the language of the million of people among who his lot is cast." Ladd P. (2003). Understanding Deaf Culture: In Search of Deafhood. Clevedon, England: Multilingual Matters Ltd., p. 129. Alexander Graham Bell 1884
- 15. “The deaf believe that they are our equals in all respects. We should be generous and not destroy that illusion. But whatever they believe, deafness is an infirmity and we should repair it whether the person who has it is disturbed by it or not.” Prosper Meniere 1855
- 17. We grieve with a heavy heart because… • The Deaf child is taught to forget they are Deaf, and those responsible for their well-being believe they must try to forget the child is Deaf.
- 18. "We should try ourselves to forget that they are deaf. We should try to teach them to forget that they are deaf." Ladd P. (2003). Understanding Deaf Culture: In Search of Deafhood. Clevedon, England: Multilingual Matters Ltd., p. 129. Alexander Graham Bell 1884
- 19. We grieve with a heavy heart because… • The massive “hearing loss” industry masks power, greed and financial benefits in name of benevolence.
- 20. Unpeeling the Mask • Since 1880’s- Oralism dominated • Oralism “all-encompassing set of policies & discourses aimed at preventing [ASL]” • control framing “helping poor deaf & dumb”
- 21. Unpeeling the Mask • Really? Actually help those folks? Nope. • Since 1980’s recognition of signed languages increased, hearing lay people more open • But still get mixed and contradictory messages about the Deaf experience • Importance of REFRAMING
- 22. Unpeeling the Mask • Important to understand “culture” & its importance for identity and political unity • no culture, difficult to resist oppression • Search for meanings of Deafhood could be mankind’s final frontier. (9)
- 23. We demand… • A total TRANSFORMATION of the Early Hearing Detection and Intervention system to one that utilizes the Early Healthy Deaf Identity framework.
- 24. © 2008, Eberwein, Gertz & Lentz deafness deficit thinking unexamined Deafhood possibility thinking examined Paradigm Shift Ladd P. (2003). Understanding Deaf Culture: In Search of Deafhood. Clevedon, England: Multilingual Matters Ltd.
- 25. We demand… • EHDI commit to an audism-free* environment, be led by a majority of Deaf people, and use signed language, i.e. American Sign Language, as the most accessible language in all EHDI activities. *Audism is the attitudes and practices based on the assumption that behaving in the ways of those who speak and hear is desired and best. It produces a system of privilege, thus resulting in stigma, bias, discrimination and prejudice—in overt or covert ways— against Deaf culture, Sign Language, i.e. ASL, and Deaf people from all walks of life. (credit: Audism Free America)
- 26. ACADEMICALLY INVALID! Suppose… • Anti-feminist male PhDs conducted research on women’s leadership styles? • Monolingual English speaking PhDs interviewed Japanese-speaking students’ reasoning abilities? • Racist white PhDs studied African-Americans’ employment skills? • Knee surgeons advised car mechanics?
- 27. Deaf Research? • If the culturo-linguistic center, with… •Historical •Psychological •Sociological •And so on… • …dimensions… • …is not used = ACADEMICALLY INVALID!
- 28. Deaf Research? • Funding determined by non-Deaf or audists • Non-Deaf and/or audists refereeing deafness issues • The entire research superstructure (priorities, power, values, etc.)ACADEMICALLY INVALID!
- 29. We demand… • EHDI promote equitable resources, funds and Deaf professionals to expand innovative Deaf and ASL- centered materials for families and other professionals working with Deaf babies.
- 30. Profitability of Deaf Babies (i.e. cochlear implants) Deaf Babies a year = 10,950
- 31. 90% born to hearing families = 9,855 Profitability of Deaf Babies (i.e. cochlear implants)
- 32. 80% implanted = 7,884 Profitability of Deaf Babies (i.e. cochlear implants)
- 33. $60,000 per implant = $473,040,000 Profitability of Deaf Babies (i.e. cochlear implants)
- 34. implants likely to last 10-15 years Profitability of Deaf Babies (i.e. cochlear implants)
- 35. Building the mountain Paddy Ladd http://youtu.be/Ov1QiMetrSQ
- 36. May this begin the transformation for the sake of, not only Deaf babies, but our own HUMANITY.