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Well springboard ppt
- 1. A novel prototype to match crowd-‐ sourced ideas from the public with pa8ent-‐centered researchers. THE INNOVATION WellSpringboard is a crowd-‐sourced, online universe that champions meaningful and comprehensive public engagement in pa8ent-‐centered research, through which: • Individuals can propose ques8ons and problems for future research and invite other members of the public to endorse, financially support, and volunteer for the research to follow • Researchers can apply to receive funds raised through public support of research ideas; veDng of applica8ons will include review by scien8sts and the public in order to iden8fy pa8ent-‐ researcher ‘matches’ • Researchers funded through matches will be accountable to the public for their work, their findings, and ideas about next steps Public ideas. Pa5ent-‐focused researchers. Op5mal matches. Visible results.
- 2. Crowd-‐Sourced Research Ideas Members of the public are invited to submit videos about their ideas for pa8ent-‐oriented outcomes research; there is a Spanish-‐language side of the website to welcome input from the La8no community as well (not pictured here) People who submit also tag their ideas with specific aOributes, such as age and gender, so that visitors can search for ideas that fit their interests For each research idea, visitors to the website can view the brief explanatory video and browse the paired text descrip8on; they can share project ideas they like with their friends or with researchers who have posted profiles on WellSpringboard Visitors can also keep up with how the project is doing, in terms of raising funds, drawing researchers’ interest, and 8me frame remaining Visitors to WellSpringboard can jump in -‐-‐ by pledging to donate and/or offering to volunteer (as a research subject and/or a reviewer of applica8ons)
- 3. Researcher Profiles Engaging researchers who want to conduct pa8ent-‐oriented outcomes research based on crowd-‐sourced ideas is another key feature of the WellSpringboard plaVorm Researchers are invited to submit videos and accompanying text blurbs that describe their interests and prior work; they also list tags that can be used by visitors to find researchers with par8cular interests Researchers are encouraged to go to the “Explore and Support Ideas” page, in order to indicate their interest in crowd-‐sourced ideas; when an idea is fully funded, researchers can submit their applica8ons for funding
- 4. Matching Crowd-‐Sourced Ideas to Researchers Adults. Children. Seniors. Infants. Women. Men. African Americans. Hispanics/La8nos. Asian Americans. Non-‐Hispanic whites. Na8ve popula8ons. Hard-‐to-‐reach groups. No maOer the focus – if the crowd-‐sourced research idea is focused on pa8ent-‐oriented outcomes research, WellSpringboard is ready. The project team is prepared to help the public understand PCOR and shape their ideas accordingly. Once an idea has been funded by the public to its target level, applica8ons will be welcomed from par8cipa8ng researchers. A review commiOee including scien8sts and members of the public will review the applica8ons and decide on the op8mal match of idea and researcher. Researchers will then be responsible for upda8ng the public (on the WellSpringboard site) with their progress and findings. WellSpringboard will encourage the public to submit new ideas that follow-‐up on the findings from earlier funded projects.
- 5. WellSpringboard Funding: Op8ons The WellSpringboard team has developed 2 poten8al op8ons for project funding, subject to review by PCORI. The proposed inclusion of indirect funds from PCORI is designed to broaden and deepen the interest of the researcher community in this effort. The team welcomes input and sugges8ons for modifica8ons from PCORI staff. In each op8on below, “x” represents the funds raised through crowd-‐sourced dona8ons via the WellSpringboard site. Opera8ng costs of WellSpringboard would be financed directly from PCORI, under separate arrangements. Op5on A Project funding (direct) from WellSpringboard public dona8ons ($x) Indirect funding at 30% rate from PCORI (0.3*$x) Total funds per project = 1.3*$x Op5on B Project funding (direct) from WellSpringboard public dona8ons ($x) Matching funding (direct) from PCORI ($x) Indirect funding at 30% rate from PCORI (0.3*$x) Total funds per project = 2.3*$x