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Utah’s All Payer Claims Dataset: A
  vital resource for health reform


             Keely Cofrin Allen, Ph.D.
   Director, Office of Health Care Statistics
                 Utah Department of Health

                  TennCare Annual Meeting
                          January19, 2011
Overview

• History
  – Introduction to Utah
  – Office of Health Care Statistics
• All Payer Claims Database
  – History
  – Data issues
  – Analytic capabilities
• On going APCD Projects
BACKGROUND & HISTORY
Facts about Utah

• 2.75 million residents
  – 1.85 commercial insured
  – 300k each Medicaid, Medicare, Uninsured
• 70% live along the Wasatch Front
• Youngest average age & highest birth rate
• Among top 5 in state
  health rankings
• 5 health plans cover the
  majority of the population
Health Data Committee

• 14 member board of stakeholders
  – Payers
  – Public health
  – Providers (doctors & hospitals)
  – Business
  – Consumers
• Meets bi-monthly to set priorities
• Granted rule making authority
Office of Health Care Statistics

• 9 staff housed in Utah Dept. of Health
• Facility databases
    – Inpatient, ED, and ambulatory surgery
•   HEDIS & CAHPS
•   All Payer Claims Database
•   10 major reports per year
•   Ad-hoc analysis and projects

                                              7
UTAH APCD: HISTORY
What is an APCD?

• Database of health plan “modified
  outbound 837” claim data
  – Enrollment
  – Pharmacy
  – Medical
• Organized into care episodes across time
  and care settings
• Includes diagnosis & payment information
State Progress Map
Utah Timeline

• 2006
  – Initial plan for Utah’s APCD
  – $1.2 million cost
  – Failed in legislative vote
• 2007
  – Bill to plan an APCD
  – No cost
  – Creation of task force to write guideline
    document
APCD Data Plan (HB09)

• Report on statewide costs for episodes of
  care
  – Made identified data necessary
• Standards for data submission
  – Modified outbound 837
  – Use existing Utah Health Information Network
• Modified Utah Health Data Authority Act
Utah Timeline (con’t)

• 2008
  – APCD building block
  – Funded through health reform
  – Meetings with health plan technical staff
  – Policy and legal planning
  – Administrative rule draft
  – RFPs for data management and analysis
    vendors
APCD Vendors
• Provides episode of care grouping
  software (CRGs)
• No cost to state entities
• On-going support and collaboration
• RP Navigator software
• Web-based tool for APCD analysis
• Easily build tables by any variable in the
  database
• Build and save queries
• Efficient use of resources
• X-12 translation services
• Data submission services
• Standards maintenance
• Linking software
• Key to building episodes
Utah Timeline (con’t)

• 2009
  – Rule in effect
  – Testing files & submission processes
  – LIVE: September 13
  – 4 plans in production
  – Preliminary analyses
  – Reporting efforts
Utah Timeline (con’t)

• 2010
  – Initial presentations to the Legislature
  – First two APCD reports
  – Outreach to data partners
     • Beacon Community Grant
     • Utah Health Insurance Exchange
health.utah.gov/utahatlas
  January 20, 2012          21
Utah Timeline (con’t)

• 2011
  – House Bill 128
    • Statewide quality measures
    • Preparing for clinic-level reporting
  – Medicaid data – a big challenge
  – Medicare data – an even bigger challenge
APCD HEDIS measures

          HbA1c      LDL-C      Nephrophathy Breast      5+ Well-
          Screenings Screenings Screening    Cancer      Child Visits
                     for                     Screening
                     Diabetics




APCD        59%        46%          30%         43%         50%
Average




State       83%        73%          70%         60%         19%
HEDIS
Average
APCD Awards 2011
Utah’s APCD Covered Lives

• 19 plans engaged with the APCD:
  – 8 in full production
  – 2 enrollment and pharmacy only (Medicaid)
  – 6 enrollment only
  – 3 in testing phase (no data)
• 2.1 million covered lives representing 93%
  of the commercially insured market
Creating a Unique Person


                                Demographics
Primary
Care

                                  Laboratory

Radiology




                               Pharmacy
          Hospital   Surgery
APD Architecture
3 Levels of Data Security

• Physical
• Electronic
• Legal
Data Security
          Physical

• Data housed in locked & monitored server
  room at state Capitol
• Servers are limited access with no means
  of offloading data
• Server moved under armed security
Data Security
         Electronic

• Submission of encrypted and compressed
  files
  – Secure FTP
  – SSL with 256 bit encryption
• PHI protected with PGP algorithm’s 2048
  bit key
Data Security
           Legal

• Limited number of people with access to
  primary data warehouse
• Signed confidentiality agreements with
  termination and criminal charges
• HIPAA laws regarding PHI
Disease      Percent of Total   Percent of   No. of People
                                 Health Care Costs         Total      w/Disease
                                                      Population
                                                        Studied
 1                   Diabetes              11.07 %       3.31 %          31,213

 2               Hypertension               5.94 %       4.22 %          39,767

 3                    Asthma                4.62 %       2.50 %          23,606

 4    Coronary Artery Disease               3.27 %       0.60 %           5,680

 5              Breast Cancer               1.89 %       0.21 %           2,007

 6                Depression                1.69 %       2.48 %          23,382

 7   End Stage Renal Disease                1.69 %       0.13 %           1,237

 8   Cerebrovascular Accident               1.51 %       0.15 %           1,377
                      (Stroke)

 9    Congestive Heart Failure              0.97 %       0.12 %           1,106

10        Chronic Obstructive               0.72 %       0.12 %            1,116
          Pulmonary Disease
Top Ten Therapeutic Class Classes byUtilizing
        Therapeutic Total Cost Cost                  Cost Per    Average    Percent
                                          Members    Utilizing      Cost    Generic
                                                     Member          Per
                                                                   Script
 1          ULCER DRUGS     $22,198,987     71,613     $1,136        $79      76 %

 2         ANTIDIABETICS    $19,249,166     33,623     $1,445        $87      53 %

 3     ANTIDEPRESSANTS      $18,338,790     94,876       $531        $35      80 %

 4   ANTIHYPERLIPIDEMICS    $15,201,559     62,289       $658        $47      63 %

 5    ANTIASTHMATIC AND     $14,187,136     52,501     $1,360        $81       8%
       BRONCHODILATOR
                AGENTS
 6    ANALGESICS - OPIOID   $11,508,735    129,968       $469        $26      96 %
 7           ADHD / ANTI    $11,245,893     29,251     $1,187        $84      38 %
           NARCOLEPSY /
           ANTI-OBESITY /
           ANOREXIANTS
 8     ANTICONVULSANTS      $11,111,165     34,016       $990        $63      86 %

 9     DERMATOLOGICALS      $10,904,253     99,052       $864        $57      69 %

10      ANTIPSYCHOTICS /     $9,880,361     10,620     $3,018       $188      31 %
       ANTIMANIC AGENTS
3M Clinical Risk Groups

• A clinical model that assigns individuals to
  a single risk group
• CRG classification is based on clinical
  history and demographics
• Projects the amount of healthcare
  resources the individual will consume in
  the future
• Nine groups each with its own severity
  levels
Each person is put into one
of the blue boxes
Uses of CRGs

• Classification into CRGs can be used to
  examine the data categorically
• CRGs provide a framework to understand
  how healthcare resources are allocated
• Can be used to risk adjust within an
  exchange
Where are Utah Healthcare
               Dollars Going?
                                                                                 Chronic Disease
                  Catastrophic Conditions
                                                                                  Among 21.1%
                                                                                     Utahns
                  Metastatic Malignancies                                          Represent
                                                                                  53.3% of the
Three or More Significant Chronic Diseases                                         Healthcare
                                                                                     Costs
         Two Significant Chronic Diseases


        Single Significant Chronic Disease


          Multiple Minor Chronic Diseases
                                                                                Percent of
                                                                                Healthcare Dollars
             Single Minor Chronic Disease                                       Spent in Category
                                                                                Percent of Utah
                 Significant Acute Disease                                      Residents Falling in
                                                                                Category

     Routine & Preventive Care/Non-Users


                                             0%   10%   20%   30%   40%   50%   60%          70%
Diabetes EOCs, BOI, and costs

     Outliers?




                                                                              Number of Episodes Evaluated
                 * Cost for just the diabetes portion of care – medical and        Burdon Of Illness
                   pharmaceutical (does not include co-payments)                 EOC Cost (Medical)*
                                                                                   EOC Cost (Rx) *
Darker color = Higher
Burden of Illness (BOI)

• A single number assigned to each person
• Represents the disease burden as a
  continuous variable from 0 to ∞
• BOI is adjusted by age and sex
• Average BOI in the Utah population: 1.01
• Measure has been verified by analyses
  by the Society of Actuaries
Diabetes: BOI by CRG &
            Severity
25


20


15

                                         CRG 5
10                                       CRG 6


 5


 0
      1     2         3          4   5
                Severity Level
Diabetes: Episode Cost by
          CRG & Severity
$17,000

$15,000

$13,000

$11,000

 $9,000
                                              CRG 5
 $7,000                                       CRG 6

 $5,000

 $3,000

 $1,000
          1      2         3          4   5
                     Severity Level
Copyright 2009-2011 APCD             46

            Council, NAHDO, UNH
         APCD Meeting May 6, 2009              46
Copyright 2009-2011 APCD Council, NAHDO, UNH
Thank you!


  Keely Cofrin Allen
kcofrinallen@utah.gov
    801-538-6551
www.apcdcouncil.org

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Utah's APCD Provides Insight into Health Costs and Disease Burden

  • 1. Utah’s All Payer Claims Dataset: A vital resource for health reform Keely Cofrin Allen, Ph.D. Director, Office of Health Care Statistics Utah Department of Health TennCare Annual Meeting January19, 2011
  • 2. Overview • History – Introduction to Utah – Office of Health Care Statistics • All Payer Claims Database – History – Data issues – Analytic capabilities • On going APCD Projects
  • 4. Facts about Utah • 2.75 million residents – 1.85 commercial insured – 300k each Medicaid, Medicare, Uninsured • 70% live along the Wasatch Front • Youngest average age & highest birth rate • Among top 5 in state health rankings • 5 health plans cover the majority of the population
  • 5.
  • 6. Health Data Committee • 14 member board of stakeholders – Payers – Public health – Providers (doctors & hospitals) – Business – Consumers • Meets bi-monthly to set priorities • Granted rule making authority
  • 7. Office of Health Care Statistics • 9 staff housed in Utah Dept. of Health • Facility databases – Inpatient, ED, and ambulatory surgery • HEDIS & CAHPS • All Payer Claims Database • 10 major reports per year • Ad-hoc analysis and projects 7
  • 9. What is an APCD? • Database of health plan “modified outbound 837” claim data – Enrollment – Pharmacy – Medical • Organized into care episodes across time and care settings • Includes diagnosis & payment information
  • 11. Utah Timeline • 2006 – Initial plan for Utah’s APCD – $1.2 million cost – Failed in legislative vote • 2007 – Bill to plan an APCD – No cost – Creation of task force to write guideline document
  • 12. APCD Data Plan (HB09) • Report on statewide costs for episodes of care – Made identified data necessary • Standards for data submission – Modified outbound 837 – Use existing Utah Health Information Network • Modified Utah Health Data Authority Act
  • 13. Utah Timeline (con’t) • 2008 – APCD building block – Funded through health reform – Meetings with health plan technical staff – Policy and legal planning – Administrative rule draft – RFPs for data management and analysis vendors
  • 15. • Provides episode of care grouping software (CRGs) • No cost to state entities • On-going support and collaboration
  • 16. • RP Navigator software • Web-based tool for APCD analysis • Easily build tables by any variable in the database • Build and save queries • Efficient use of resources
  • 17. • X-12 translation services • Data submission services • Standards maintenance
  • 18. • Linking software • Key to building episodes
  • 19. Utah Timeline (con’t) • 2009 – Rule in effect – Testing files & submission processes – LIVE: September 13 – 4 plans in production – Preliminary analyses – Reporting efforts
  • 20. Utah Timeline (con’t) • 2010 – Initial presentations to the Legislature – First two APCD reports – Outreach to data partners • Beacon Community Grant • Utah Health Insurance Exchange
  • 22. Utah Timeline (con’t) • 2011 – House Bill 128 • Statewide quality measures • Preparing for clinic-level reporting – Medicaid data – a big challenge – Medicare data – an even bigger challenge
  • 23. APCD HEDIS measures HbA1c LDL-C Nephrophathy Breast 5+ Well- Screenings Screenings Screening Cancer Child Visits for Screening Diabetics APCD 59% 46% 30% 43% 50% Average State 83% 73% 70% 60% 19% HEDIS Average
  • 25. Utah’s APCD Covered Lives • 19 plans engaged with the APCD: – 8 in full production – 2 enrollment and pharmacy only (Medicaid) – 6 enrollment only – 3 in testing phase (no data) • 2.1 million covered lives representing 93% of the commercially insured market
  • 26. Creating a Unique Person Demographics Primary Care Laboratory Radiology Pharmacy Hospital Surgery
  • 28. 3 Levels of Data Security • Physical • Electronic • Legal
  • 29. Data Security Physical • Data housed in locked & monitored server room at state Capitol • Servers are limited access with no means of offloading data • Server moved under armed security
  • 30. Data Security Electronic • Submission of encrypted and compressed files – Secure FTP – SSL with 256 bit encryption • PHI protected with PGP algorithm’s 2048 bit key
  • 31. Data Security Legal • Limited number of people with access to primary data warehouse • Signed confidentiality agreements with termination and criminal charges • HIPAA laws regarding PHI
  • 32. Disease Percent of Total Percent of No. of People Health Care Costs Total w/Disease Population Studied 1 Diabetes 11.07 % 3.31 % 31,213 2 Hypertension 5.94 % 4.22 % 39,767 3 Asthma 4.62 % 2.50 % 23,606 4 Coronary Artery Disease 3.27 % 0.60 % 5,680 5 Breast Cancer 1.89 % 0.21 % 2,007 6 Depression 1.69 % 2.48 % 23,382 7 End Stage Renal Disease 1.69 % 0.13 % 1,237 8 Cerebrovascular Accident 1.51 % 0.15 % 1,377 (Stroke) 9 Congestive Heart Failure 0.97 % 0.12 % 1,106 10 Chronic Obstructive 0.72 % 0.12 % 1,116 Pulmonary Disease
  • 33. Top Ten Therapeutic Class Classes byUtilizing Therapeutic Total Cost Cost Cost Per Average Percent Members Utilizing Cost Generic Member Per Script 1 ULCER DRUGS $22,198,987 71,613 $1,136 $79 76 % 2 ANTIDIABETICS $19,249,166 33,623 $1,445 $87 53 % 3 ANTIDEPRESSANTS $18,338,790 94,876 $531 $35 80 % 4 ANTIHYPERLIPIDEMICS $15,201,559 62,289 $658 $47 63 % 5 ANTIASTHMATIC AND $14,187,136 52,501 $1,360 $81 8% BRONCHODILATOR AGENTS 6 ANALGESICS - OPIOID $11,508,735 129,968 $469 $26 96 % 7 ADHD / ANTI $11,245,893 29,251 $1,187 $84 38 % NARCOLEPSY / ANTI-OBESITY / ANOREXIANTS 8 ANTICONVULSANTS $11,111,165 34,016 $990 $63 86 % 9 DERMATOLOGICALS $10,904,253 99,052 $864 $57 69 % 10 ANTIPSYCHOTICS / $9,880,361 10,620 $3,018 $188 31 % ANTIMANIC AGENTS
  • 34.
  • 35. 3M Clinical Risk Groups • A clinical model that assigns individuals to a single risk group • CRG classification is based on clinical history and demographics • Projects the amount of healthcare resources the individual will consume in the future • Nine groups each with its own severity levels
  • 36.
  • 37. Each person is put into one of the blue boxes
  • 38. Uses of CRGs • Classification into CRGs can be used to examine the data categorically • CRGs provide a framework to understand how healthcare resources are allocated • Can be used to risk adjust within an exchange
  • 39. Where are Utah Healthcare Dollars Going? Chronic Disease Catastrophic Conditions Among 21.1% Utahns Metastatic Malignancies Represent 53.3% of the Three or More Significant Chronic Diseases Healthcare Costs Two Significant Chronic Diseases Single Significant Chronic Disease Multiple Minor Chronic Diseases Percent of Healthcare Dollars Single Minor Chronic Disease Spent in Category Percent of Utah Significant Acute Disease Residents Falling in Category Routine & Preventive Care/Non-Users 0% 10% 20% 30% 40% 50% 60% 70%
  • 40. Diabetes EOCs, BOI, and costs Outliers? Number of Episodes Evaluated * Cost for just the diabetes portion of care – medical and Burdon Of Illness pharmaceutical (does not include co-payments) EOC Cost (Medical)* EOC Cost (Rx) *
  • 41. Darker color = Higher
  • 42. Burden of Illness (BOI) • A single number assigned to each person • Represents the disease burden as a continuous variable from 0 to ∞ • BOI is adjusted by age and sex • Average BOI in the Utah population: 1.01 • Measure has been verified by analyses by the Society of Actuaries
  • 43.
  • 44. Diabetes: BOI by CRG & Severity 25 20 15 CRG 5 10 CRG 6 5 0 1 2 3 4 5 Severity Level
  • 45. Diabetes: Episode Cost by CRG & Severity $17,000 $15,000 $13,000 $11,000 $9,000 CRG 5 $7,000 CRG 6 $5,000 $3,000 $1,000 1 2 3 4 5 Severity Level
  • 46. Copyright 2009-2011 APCD 46 Council, NAHDO, UNH APCD Meeting May 6, 2009 46 Copyright 2009-2011 APCD Council, NAHDO, UNH
  • 47.
  • 48. Thank you! Keely Cofrin Allen kcofrinallen@utah.gov 801-538-6551 www.apcdcouncil.org