The communicator’s art
Giulia Annovi
YOUNG ONCOLOGISTS: Specialists in the Science and Art of Patient
Care – Bologna 29,30 March 2017
Cancer speakers
Patient
Colleagues
Media
Public
Relatives
Social
Media
Cancer speakers
The communication landscape
Reuters Institute for the Study of Journalism. Digital News Report
2016

Blog - therapy

Online self-diagnosis

Virtual communities

Online Physicians

Well-being app
The communication landscape
Smith, Katherine C., et al. "Advancing cancer control research in an emerging news media environment." J Natl Cancer Inst Monogr 2013.47 (2013): 175-
81.
Health is currently the eighth most common news topic overall
Cancer ranks first among disease-specific news coverage
Millions: Italian people searching health information online
The communication landscape
D Gareth R Evans et al. The Angelina Jolie effect: how high celebrity profile can have a major impact on provision of cancer related services
Breast Cancer Research201416:442
Biancovilli, Priscila, Gabriel de Oliveira Cardoso Machado, and Claudia Jurberg. "Celebrity and health promotion: how media can play an active role in
cancer prevention and early detection." Journal of Media and Communication Studies 7.3 (2015): 41.
75% of Americans were aware of Angelina Jolie’s double mastectomy,
fewer than 10% of respondents had the information necessary to accurately interpret her risk
However, 9% of women were motivated to do something about their health, such as seeing a
doctor,
having a mammogram or seeing a genetic counselor.
The communication landscape
Smith, Katherine C., et al. "Advancing cancer control research in an emerging news media environment." J Natl Cancer Inst Monogr 2013.47 (2013): 175-
81.
More focused on treatment than prevention*
Emphasizing individual-level behavioural*
Personal stories aren’t evidence based
A single issue or event often receives conflicting coverage from multiple
media outlets.
News coverage of research is frequently criticized for neglecting appropriate
caveats, limitations, or acknowledgement of ambiguity*
BUT
Media Evolution
Going into the MEDIA
Listen
More than examining
the scientific
accuracy of messages
Communication, what does it mean?

Recall information

Satisfied

Supported

Physicians are in-line
F. Stiefel, C. Bourquin; Communication in oncology: now we train - but how well?. Ann Oncol 2016; 27 (9): 1660-1663. doi: 10.1093/annonc/mdw229
IT’S BETTER TO REACH
EVERYONE
The individual side of communication
The power of the World Wide Web

Database, repository, data collection

Sharing a lot of information and
knowledge

Linking documents

Different languages and media
Speed and dynamism

Rapid (and precise) responses

Availability

Digital press kit

Quick tracking

Podcast/video/Multimedia

Shareable

Data repositories

Surveillance
Specialized audience

Tailored contents

Respect of diversities

Targeting stories

Pros and cons
Focus on the audience
Broadcast your
information
Advice
Seize the
moment
Be useful
Comparison
Learning
Sharing
Scholarly
selfie
Speaking with journalists

Preparedness

Help them

I don’t have time….

Framework

Questions

Brief, precise, clear

Play down
Participation
A participative audience
Peer – to – peer dialogue*
Shared decision
Positive relationship
Increased adherence to therapies
Personal choice
Less medical authority*
Can I tell you….?
David W. Kissane,Barry D. Bultz,Phyllis N. Butow,Carma L. Bylund,Simon Noble,Susie Wilkinson. Oxford
Textbook
of Communication in Oncology and Palliative Care. Oxford University Press, 23 feb 2017
The patient writer
∼63% of users acquire
their news from social
media
Evitate errori online
Blogs and social media are undoubtedly an important component of the online information
environment, and they challenge traditional structures of news creation and delivery
Are them useful for us?
Xu, Songhua et al. “Leveraging Social Media to Promote Public Health Knowledge: Example of Cancer Awareness via Twitter.” Ed. Gunther Eysenb
JMIR Public Health and Surveillance 2.1 (2016): e17. PMC. Web. 26 Mar. 2017.
200 platforms
Overdrive Interactive
http://www.ovrdrv.com
Medical platforms
Italian Social Network URL
DottNet https://www.dottnet.it/articolo
Esanum http://www.esanum.it/
Inderma http://www.inderma.it/
Camici in rete http://www.camiciinrete.it/
Nuto http://www.nuto.it/
Different audience
What social needs are being satisfied via the use
of social media?
Community dimension
Learning dimension → CONSTRUCTIVISM and CONNECTIVISM
Information dimension → not active;
People respond to information by seeking more information, but also by:
IGNOR
E
MAKE
SMALLE
R
BUILD A
BRIDG
E
Natalya Godbold. Beyond information seeking: towards a general model of information behaviour. Information Researh
Vol. 11 No. 4, July 2006
sharing or spreading information, creating documents, telling other people
taking mental note (non specific goal or goal not imagined yet)
avoiding or ignoring information
disputing or disbelieving information
hiding and / or destroying information
The post – truth era
The more active a user is, the more the
user tends to focus on a small number
of news sources*
Listening and empathy*
Creation of languages and figure of
speech
Give sense
The patient writer
Emotions
Storytelling
Expertise
Potentially
misleading
What about physicians?
Lefebvre C, Mesner J, Stopyra J, et al. Social Media in Professional Medicine: New Resident Perceptions and Practices. Eysenbach G, ed.
Journal
of Medical Internet Research. 2016;18(6):e119. doi:10.2196/jmir.5612.
So why should I….?
Amanda Clark, MD, and Avital O’Glasser, MD, FACP. Vox Popularis: Social Media and
PARTICIPATION / NETWORK
Social media tips
Social media tips...to be a leader
Very good listener
Technically expert
Expert
Available on social
media
Attentive
Respectful of rules
Conclusions
Mean
Contents (and don’t forget the
privacy)
Select your audience
No personal advertisement
No personal life
No Service Alerts
No pictures
No comments
Conclusions
Feedback
No opinion is better
Curiosity
Questions
References
CROARI, Giuseppe et al. Comunicazione sanitaria e social media: rischi e opportunità. Pratica Medica & Aspetti Legali, [S.l.], v. 10, n. 3, aug. 2016.
ISSN 2283-4044.
Reuters Institute for the Study of Journalism. Digital News Report 2016
Smith, Katherine C., et al. "Advancing cancer control research in an emerging news media environment." J Natl Cancer Inst Monogr 2013.47
(2013): 175-81.
D Gareth R Evans et al. The Angelina Jolie effect: how high celebrity profile can have a major impact on provision of cancer related services
Breast Cancer Research2014 16:442
Biancovilli, Priscila, Gabriel de Oliveira Cardoso Machado, and Claudia Jurberg. "Celebrity and health promotion: how media can play an active
role in cancer prevention and early detection." Journal of Media and Communication Studies 7.3 (2015): 41.
F. Stiefel, C. Bourquin; Communication in oncology: now we train - but how well?. Ann Oncol 2016; 27 (9): 1660-1663. doi:
10.1093/annonc/mdw229
Sedrak MS, Cohen RB, Merchant RM, Schapira MM. Cancer Communication in the Social Media Age. JAMA Oncol. 2016;2(6):822-823.
doi:10.1001/jamaoncol.2015.5475
David W. Kissane,Barry D. Bultz,Phyllis N. Butow,Carma L. Bylund,Simon Noble,Susie Wilkinson. Oxford Textbook
of Communication in Oncology and Palliative Care. Oxford University Press, 23 feb 2017
Natalya Godbold. Beyond information seeking: towards a general model of information behaviour. Information Researh
References
Pinto C and Annovi G. Nelle reti. L’oncologo ha un sistema complesso di comunicazione e relazioni. Il Pensiero
Scientifico Editore, 2016
Affinito L and Ricciardi W. E-patients and social media. Come sviluppare una strategia di comunicazione per
Migliorare salute e sanità. Il Pensiero Scientifico Editore, 2016
Amanda Clark, MD, and Avital O’Glasser, MD, FACP. Vox Popularis: Social Media and Medicine
Lefebvre C, Mesner J, Stopyra J, et al. Social Media in Professional Medicine: New Resident Perceptions and Practices. Eysenbach G, ed. Journal
of Medical Internet Research. 2016;18(6):e119. doi:10.2196/jmir.5612.
Ana Lucía Schmidt, Fabiana Zollo, Michela Del Vicario, Alessandro Bessi, Antonio Scala, Guido Caldarelli, H Eugene Stanley, Walter
Quattrociocchi Anatomy of news consumption on Facebook. Proceedings of the National Academy of Sciences, 2017

The communicator's art

  • 1.
    The communicator’s art GiuliaAnnovi YOUNG ONCOLOGISTS: Specialists in the Science and Art of Patient Care – Bologna 29,30 March 2017
  • 2.
  • 3.
  • 4.
    The communication landscape ReutersInstitute for the Study of Journalism. Digital News Report 2016  Blog - therapy  Online self-diagnosis  Virtual communities  Online Physicians  Well-being app
  • 5.
    The communication landscape Smith,Katherine C., et al. "Advancing cancer control research in an emerging news media environment." J Natl Cancer Inst Monogr 2013.47 (2013): 175- 81. Health is currently the eighth most common news topic overall Cancer ranks first among disease-specific news coverage Millions: Italian people searching health information online
  • 6.
    The communication landscape DGareth R Evans et al. The Angelina Jolie effect: how high celebrity profile can have a major impact on provision of cancer related services Breast Cancer Research201416:442 Biancovilli, Priscila, Gabriel de Oliveira Cardoso Machado, and Claudia Jurberg. "Celebrity and health promotion: how media can play an active role in cancer prevention and early detection." Journal of Media and Communication Studies 7.3 (2015): 41. 75% of Americans were aware of Angelina Jolie’s double mastectomy, fewer than 10% of respondents had the information necessary to accurately interpret her risk However, 9% of women were motivated to do something about their health, such as seeing a doctor, having a mammogram or seeing a genetic counselor.
  • 7.
    The communication landscape Smith,Katherine C., et al. "Advancing cancer control research in an emerging news media environment." J Natl Cancer Inst Monogr 2013.47 (2013): 175- 81. More focused on treatment than prevention* Emphasizing individual-level behavioural* Personal stories aren’t evidence based A single issue or event often receives conflicting coverage from multiple media outlets. News coverage of research is frequently criticized for neglecting appropriate caveats, limitations, or acknowledgement of ambiguity* BUT
  • 8.
  • 9.
  • 10.
    Listen More than examining thescientific accuracy of messages
  • 11.
    Communication, what doesit mean?  Recall information  Satisfied  Supported  Physicians are in-line F. Stiefel, C. Bourquin; Communication in oncology: now we train - but how well?. Ann Oncol 2016; 27 (9): 1660-1663. doi: 10.1093/annonc/mdw229 IT’S BETTER TO REACH EVERYONE
  • 12.
    The individual sideof communication
  • 13.
    The power ofthe World Wide Web  Database, repository, data collection  Sharing a lot of information and knowledge  Linking documents  Different languages and media
  • 14.
    Speed and dynamism  Rapid(and precise) responses  Availability  Digital press kit  Quick tracking  Podcast/video/Multimedia  Shareable  Data repositories  Surveillance
  • 15.
    Specialized audience  Tailored contents  Respectof diversities  Targeting stories  Pros and cons
  • 16.
    Focus on theaudience Broadcast your information Advice Seize the moment Be useful Comparison Learning Sharing Scholarly selfie
  • 17.
    Speaking with journalists  Preparedness  Helpthem  I don’t have time….  Framework  Questions  Brief, precise, clear  Play down
  • 18.
  • 19.
    A participative audience Peer– to – peer dialogue* Shared decision Positive relationship Increased adherence to therapies Personal choice Less medical authority*
  • 20.
    Can I tellyou….? David W. Kissane,Barry D. Bultz,Phyllis N. Butow,Carma L. Bylund,Simon Noble,Susie Wilkinson. Oxford Textbook of Communication in Oncology and Palliative Care. Oxford University Press, 23 feb 2017
  • 21.
    The patient writer ∼63%of users acquire their news from social media
  • 22.
    Evitate errori online Blogsand social media are undoubtedly an important component of the online information environment, and they challenge traditional structures of news creation and delivery
  • 23.
    Are them usefulfor us? Xu, Songhua et al. “Leveraging Social Media to Promote Public Health Knowledge: Example of Cancer Awareness via Twitter.” Ed. Gunther Eysenb JMIR Public Health and Surveillance 2.1 (2016): e17. PMC. Web. 26 Mar. 2017.
  • 24.
  • 25.
    Medical platforms Italian SocialNetwork URL DottNet https://www.dottnet.it/articolo Esanum http://www.esanum.it/ Inderma http://www.inderma.it/ Camici in rete http://www.camiciinrete.it/ Nuto http://www.nuto.it/
  • 26.
  • 27.
    What social needsare being satisfied via the use of social media? Community dimension Learning dimension → CONSTRUCTIVISM and CONNECTIVISM Information dimension → not active; People respond to information by seeking more information, but also by: IGNOR E MAKE SMALLE R BUILD A BRIDG E Natalya Godbold. Beyond information seeking: towards a general model of information behaviour. Information Researh Vol. 11 No. 4, July 2006 sharing or spreading information, creating documents, telling other people taking mental note (non specific goal or goal not imagined yet) avoiding or ignoring information disputing or disbelieving information hiding and / or destroying information
  • 28.
    The post –truth era The more active a user is, the more the user tends to focus on a small number of news sources* Listening and empathy* Creation of languages and figure of speech Give sense
  • 29.
  • 30.
    What about physicians? LefebvreC, Mesner J, Stopyra J, et al. Social Media in Professional Medicine: New Resident Perceptions and Practices. Eysenbach G, ed. Journal of Medical Internet Research. 2016;18(6):e119. doi:10.2196/jmir.5612.
  • 31.
    So why shouldI….? Amanda Clark, MD, and Avital O’Glasser, MD, FACP. Vox Popularis: Social Media and PARTICIPATION / NETWORK
  • 32.
  • 33.
    Social media tips...tobe a leader Very good listener Technically expert Expert Available on social media Attentive Respectful of rules
  • 34.
    Conclusions Mean Contents (and don’tforget the privacy) Select your audience No personal advertisement No personal life No Service Alerts No pictures No comments
  • 35.
    Conclusions Feedback No opinion isbetter Curiosity Questions
  • 36.
    References CROARI, Giuseppe etal. Comunicazione sanitaria e social media: rischi e opportunità. Pratica Medica & Aspetti Legali, [S.l.], v. 10, n. 3, aug. 2016. ISSN 2283-4044. Reuters Institute for the Study of Journalism. Digital News Report 2016 Smith, Katherine C., et al. "Advancing cancer control research in an emerging news media environment." J Natl Cancer Inst Monogr 2013.47 (2013): 175-81. D Gareth R Evans et al. The Angelina Jolie effect: how high celebrity profile can have a major impact on provision of cancer related services Breast Cancer Research2014 16:442 Biancovilli, Priscila, Gabriel de Oliveira Cardoso Machado, and Claudia Jurberg. "Celebrity and health promotion: how media can play an active role in cancer prevention and early detection." Journal of Media and Communication Studies 7.3 (2015): 41. F. Stiefel, C. Bourquin; Communication in oncology: now we train - but how well?. Ann Oncol 2016; 27 (9): 1660-1663. doi: 10.1093/annonc/mdw229 Sedrak MS, Cohen RB, Merchant RM, Schapira MM. Cancer Communication in the Social Media Age. JAMA Oncol. 2016;2(6):822-823. doi:10.1001/jamaoncol.2015.5475 David W. Kissane,Barry D. Bultz,Phyllis N. Butow,Carma L. Bylund,Simon Noble,Susie Wilkinson. Oxford Textbook of Communication in Oncology and Palliative Care. Oxford University Press, 23 feb 2017 Natalya Godbold. Beyond information seeking: towards a general model of information behaviour. Information Researh
  • 37.
    References Pinto C andAnnovi G. Nelle reti. L’oncologo ha un sistema complesso di comunicazione e relazioni. Il Pensiero Scientifico Editore, 2016 Affinito L and Ricciardi W. E-patients and social media. Come sviluppare una strategia di comunicazione per Migliorare salute e sanità. Il Pensiero Scientifico Editore, 2016 Amanda Clark, MD, and Avital O’Glasser, MD, FACP. Vox Popularis: Social Media and Medicine Lefebvre C, Mesner J, Stopyra J, et al. Social Media in Professional Medicine: New Resident Perceptions and Practices. Eysenbach G, ed. Journal of Medical Internet Research. 2016;18(6):e119. doi:10.2196/jmir.5612. Ana Lucía Schmidt, Fabiana Zollo, Michela Del Vicario, Alessandro Bessi, Antonio Scala, Guido Caldarelli, H Eugene Stanley, Walter Quattrociocchi Anatomy of news consumption on Facebook. Proceedings of the National Academy of Sciences, 2017