Tech, Health, Privacy: Can You Have It All?

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Technology is great for many things, including searching for and tracking health information. But one thing it is not always great for is keeping information private. Hackers, corporations, schools, and others too often gain illegitimate access to sensitive information. But does it have to be that way? This talk will look at some of the legal and policy approaches to ensuring that health technology respects privacy. We'll look at the kind of information that these services may generate or collect, and the various ways this information is currently protected. We will also look at the gaps in this protection, and talk about what we each can do to push for better protection, so that we don't have to choose between health, technology, and privacy.

Health & Medicine

YOUR TECH,
YOUR HEALTH,
YOUR PRIVACY RIGHTS
Chris Conley
Policy Attorney, ACLU of Northern California
YTH Live 2017

REDEFINING PRIVACY
Which of the following are potentially sensitive pieces of
information about you?

REDEFINING PRIVACY
Which of the following is sensitive information?
• You visited the Planned Parenthood website yesterday

REDEFINING PRIVACY
Which of the following is sensitive information?
• You visited the Planned Parenthood website yesterday
• You hit a LGBT karaoke club last night

REDEFINING PRIVACY
• Not just about “sensitive” information

REDEFINING PRIVACY
• Not just about “sensitive” information
• Not just about “secrets” or “private” places

REDEFINING PRIVACY
• Not just about “sensitive” information
• Not just about “secrets” or “private” places
• Putting you in control of all your information – and thus
your options, choices and life

PROTECTING PRIVACY
What threats are we addressing?
• Government surveillance

PROTECTING PRIVACY
What threats are we addressing?

PROTECTING PRIVACY
What threats are we addressing?
• Government surveillance
• Corporate data collection

PROTECTING PRIVACY
What threats are we addressing?
• Government surveillance
• Corporate data collection
• School searches

PROTECTING PRIVACY IN SCHOOLS
Can your school look through your phone without your
permission?

PROTECTING PRIVACY IN SCHOOLS
Can your school look through your phone without your
permission?
NO, UNLESS they have a WARRANT or it is an
EMERGENCY

PROTECTING PRIVACY IN SCHOOLS
We are pushing back against a proposed bill to roll back
school privacy rights

PROTECTING PRIVACY IN SCHOOLS
We are pushing back against a proposed bill to roll back
school privacy rights
We need to know more about what’s really happening to fight
effectively

PROTECTING PRIVACY IN SCHOOLS
You can help by:
• Signing our petition
• Filling out our online survey
• Contacting us if your rights have been violated
https://aclunc.org/tech || @manconley

THANK YOU!
@manconley | cconley@aclunc.org

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