2. Juvenile Diabetes Maturity-onset Diabetes
Insulin dependent Non-insulin dependent
Diabetes (IDD) Diabetes (NIDD)
Type I Diabetes Type II Diabetes
Type 1 Diabetes Type 2 Diabetes
Types of Diabetes
2
3. Types of Diabetes (DM)
Type 1 Ī²-cell destruction; autoimmune
disease; complete lack of insulin
5-10% of total patients
Type 2 Ī²-cell dysfunction and insulin
resistance
Gestational Ī²-cell dysfunction and insulin
resistance during pregnancy
3
4. There is no such thing as Borderline Diabetes
or a āTouch of Diabetes.ā
Pre-diabetes is a diagnosis.
4
5. There is no such thing as
Borderline Diabetes
or a āTouch of Diabetes.ā
5
Pre-diabetes
7. Diabetes is a cardiovascular disease.
The Burden of Diabetes in Delaware, 2009. Diabetes Prevention and Control Program
People with diabetes are
twice as likely
to suffer a heart attack
or stroke
compared to people without diabetes.
7
8. Natural history of Type 2 diabetes
Adapted from International Diabetes Center (IDC), Minneapolis, Minnesota.
Obesity Diabetes Uncontrolled
Hyperglycemia
50
100
150
200
250
300
350
50
100
150
200
250
Glucose
(mg/dL)
Relative
Function(%)
-10 -5 0
diagnosis
5 10 15 20 25 30
Years of Diabetes
Post-meal Glucose
Fasting Glucose
Insulin Resistance
Insulin Level
Ī²-cell Failure
Insulin ResistanceFamily
History
Prediabetes
18. Average $/person2 4,310 7,925 10,694
(2008)
11,093 6,745 1,834 466
Context: Exploding costs
12011 Digest of Educa*on Sta*s*cs, Table 28, h=p://nces.ed.gov/programs/digest/d11/tables/dt11_028.asp. Table reports costs in current dollars, so inļ¬aXon calculator used to bring up to 2010 values.
22011 Digest of Educa*on Sta*s*cs, Table 194, h=p://nces.ed.gov/programs/digest/d11/tables/dt11_194.asp
3 Dall et al.(2010). The economic burden of diabetes. Health Aļ¬airs, 29(2), exhibit 4. Used inļ¬aXon calculator to translate dollars from 2007 to 2010. h=p://www.usinļ¬aXoncalculator.com
4Huang et al. (2009) Using clinical informaXon to project federal health care spending. Health Aļ¬airs, 28(5), w978-990. Includes Type 2 only. Type 1 would be <5% of cases but higher per capita cost. Inļ¬aXon
calculator used to change costs from 2007 to 2010 dollars.
5 No 2020-2030 projecXons available for school expenditures, so just repeated % GDP from the prior 2 decades. Used Huang et al.ās total diabetes medical costs for 2007, together with 2007 GDP, to calculate
costs as % GDP in that year (1.1%). Then used their Exhibit 3 (projected real growth as mulXple of GDP) to esXmate % GDP in 2010, 2020, and 2030. No data prior to 2007, so just took line toward asymtope .
Students in public schools , K-12 Diabetes cases, diagnosed and undiagnosed
Total expenditures
(2010 dollars)
Medical costs only
(2010 dollars)
1970 1990 2010 20073 20204
Total $ (billions)1
270
415
673
Type 1
11
Type 2
111
Undiag
12
Pre-diab
27
Total
160
Type 2
237
0.0
5.0
10.0
15.0
1970 1980 1990 2000 2010 2020 2030
Costs as % of GDP1,5
Diabetes
Schools
18
20. 3,567
4,775
6,387
8,198
11,722
3,837 3,714
4,561
5,077 5,359
9,061
5,425
1,374
2,327 2,063
4,763
579
210 305 391 488 537 716
0
2,000
4,000
6,000
8,000
10,000
12,000
14,000
18ā34 35ā44 45ā54 55ā59 60ā64 65+
Type 1
Type 2
Undiagnosed
Pre-diabetes
Ages:
Average
35,365
Average
cost ($)
Average medical costs per person
by age & diabetes type, 2007
Dall et al.(2010). The economic burden of diabetes. Health Aļ¬airs, 29(2), exhibit 4. 2007 current dollars.
20
21. Context: InsXtuXonal resources
Public schools Diabetes self-management educa7on
Dedicated space Permanent buildings Varies; hospitals, medical oļ¬ces, community sites
Guaranteed funding 100% tax-supported1
(local, state, federal)
Varies by health plan; free community classes provided by
DPH/DPCP.
Mandatory a_endance 10-14 years None, all voluntary.
~ 24% of Medicare paXents a=ended DSMT class.
Teaching force:
Trained in content area
CerXļ¬ed to teach
Classroom teachers
All (N=3.1 million) 1
99%1
Many staļ¬ do DSME: medical (e.g., MD, RN, RD, NP, PA,
RPh); non-medical (e.g., CHW, CHES, peer educators).
DSMP classes given by lay trainers.
Trained in disease management: MD, RN, RPh, RD, NP, CDE.
Trained to educate: Only CDEs (N=8710), naXonal credenXal;
possible state licensure too.
Curriculum content
&
Teacher lesson plans
State naXonal
standards (CCSS2)
Always. Vary by teacher
common planning
Curriculum content: ADA and AADE cerXfy Recognized
Programs. DSMP has evidence-based curriculum.
Lesson plans: vary with ADA & AADE programs. Fidelity
agreement for DSMP.
12012 Condi*on of Educa*on, Tables A-19-1 (2008-2009), A-17-1 & A-17-2 (2007-2008)
2 h=p://www.corestandards.org/
= trend towards
21
More variable for DSME
22. 5 levels of diabetes educators*
oāÆ Level 1, non-healthcare professional,
oāÆ Level 2, healthcare professional non-diabetes educator,
oāÆ Level 3, non-credenXaled diabetes educator,
vāÆLevel 4, credenXaled diabetes educator, and
vāÆLevel 5, advanced level diabetes educator/clinical manager.
*American AssociaXon of Diabetes Educators (AADE) (2011). Scope of Prac*ce, Standards of Prac*ce, and
Standards of Professional Performance for Diabetes Educators, p. 4. h=p://www.diabeteseducator.org/export/
sites/aade/_resources/pdf/research/ScopeStandards_Final2_1_11.pdf 22
23. Context: InstrucXonal resources
op0 Public schools Diabetes self-management educa7on
Hours of instruc7on in content area
(average per year)
State/district-mandated
minimum hours:1
G1-4: 418 read/write
194 math
292 science
Varies greatly by health plan & site
- Classes: 10-15 hrs
- Individual DSME: varies
Instruc7onal strategies SystemaXc use of pedagogical
principles
For individual paXents: CDEās assessment of paXentās needs.
For groups: scripts for some non-medical educators (e.g., DSMP)
Pace, sequencing, Bloom level not always considered.
Special needs students
Established protocols?
Yes, legal obligaXon (IDEA)
Currently, no DSME materials or curricula speciļ¬cally for elderly or
persons with disabiliXes.
Age- and ability-diļ¬eren7ated
instruc7on & materials
Age grouping, preK-12
Elem: reading/math groups
within or between
classrooms, all with diļ¬erent
lessons
HS: Tracks
None.
Growing concern over low āhealth literacyā & age-related
cogniXve decline with PWDs, but
-Diabetes educaXon materials vary widely; content, but not
complexity, matched to PWDās learning needs.
- PWDs are given pre-determined meters and supplies,
regardless of their abiliXes.
1Data for 2003-2004. Source: āChanges in InstrucXonal Hours in Four Subjects by Public School Teachers of Grades 1 Through 4,ā May 2007, NCES report 2007-305
h=p://www.eric.ed.gov/PDFS/ED497041.pdf/
2h=p://www.cdc.gov/diabetes/staXsXcs/prevenXve/tNewDEduAgeTot.htmwww.eric.ed.gov/PDFS/ED497041.pdf
23
Li_le diļ¬eren7a7on
Limited 7me
Materials too complex
25. Our eļ¬orts
1.āÆ Describe job of self-care from pa7entās perspec7ve.
āāÆ Collabora7on with CDS: AUCD Conference
āāÆ AADE Conference: āCogni7ve Demands of DSMEā
āāÆ NACDD Teleconference: āCogni7ve Demands of DSMEā
āāÆ AADE Conference 2013: āPsychometrics of DSME in the Elderlyā
2.āÆ IdenXfy the jobās most criXcal tasks
3.āÆ Trace (and limit) cogniXve complexity of learning tasks
4.āÆ Diļ¬erenXate instrucXon by ability (āliteracyā) level
5.āÆ Provide scripts for providers that minimize complexity
6.āÆ Provide paXent handout that reinforces learning
25
27. AADEās descripXon of DSM*
Living well with diabetes requires acXve, diligent, eļ¬ecXve self-management of the
disease. It is a process that:
ā¢āÆ Requires making and acXng on choices, on a regular and recurring basis, that aļ¬ect
oneās health
ā¢āÆ Includes
ĆāÆ learning the body of knowledge relevant to the disease state,
ĆāÆ deļ¬ning personal goals, weighing the beneļ¬ts and risks of various treatment opXons,
ĆāÆ making informed choices about treatment,
ĆāÆ developing skills (both physical and behavioral) to support those choices,
ĆāÆ evaluaXng the eļ¬cacy of the plan toward reaching self-deļ¬ned goals.
*American AssociaXon of Diabetes Educators (AADE) (2011). Scope of Prac*ce, Standards of Prac*ce, and Standards
of Professional Performance for Diabetes Educators, pp. 1-2. h=p://www.diabeteseducator.org/export/sites/aade/
_resources/pdf/research/ScopeStandards_Final2_1_11.pdf
What Bloom level would you assign to each?
ā¢āÆ Remember
ā¢āÆ Understand
ā¢āÆ Apply
ā¢āÆ Analyze
ā¢āÆ Evaluate
ā¢āÆ Create 27
AADE7TM
curriculum content
1.āÆ Healthy eaXng
2.āÆ Being acXve
3.āÆ Monitoring
4.āÆ Taking medicaXon
5.āÆ Problem solving
6.āÆ Reducing risks
7.āÆ Healthy coping
28. Objec7ve: Maintain blood glucose within healthy limits to avoid complica7ons
ā¢āÆ Learn about diabetes in general (At āentryā)
āāÆ Physiological process
āāÆ Interdependence of diet, exercise, meds
āāÆ Symptoms & correcXve acXon
āāÆ Consequences of poor control
ā¢āÆ Apply knowledge to own case (Daily, Hourly)
āāÆ Implement appropriate regimen
āāÆ ConXnuously monitor physical signs
āāÆ Diagnose problems in Xmely manner
āāÆ Adjust food, exercise, meds in Xmely and appropriate manner
ā¢āÆ Coordinate with relevant par7es (Frequently)
āāÆ NegoXate changes in acXviXes with family, friends, job
āāÆ Enlist/capitalize on social support
āāÆ Communicate status and needs to pracXXoners
ā¢āÆ Update knowledge & adjust regimen (Occasionally)
āāÆ When other chronic condiXons or disabiliXes develop
āāÆ When new treatments are ordered
āāÆ When life circumstances change
ā¢āÆ Condi7ons of workā24/7, no days oļ¬, no re7rement
Our more paXent-centered job descripXon
Self-
management
Training
28
29. Objec7ve: Maintain blood glucose within healthy limits to avoid complica7ons
ā¢āÆ Learn about diabetes in general (At āentryā)
āāÆ Physiological process
āāÆ Interdependence of diet, exercise, meds
āāÆ Symptoms & correcXve acXon
āāÆ Consequences of poor control
ā¢āÆ Apply knowledge to own case (Daily, Hourly)
āāÆ Implement appropriate regimen
āāÆ ConXnuously monitor physical signs
āāÆ Diagnose problems in Xmely manner
āāÆ Adjust food, exercise, meds in Xmely and appropriate manner
ā¢āÆ Coordinate with relevant par7es (Frequently)
āāÆ NegoXate changes in acXviXes with family, friends, job
āāÆ Enlist/capitalize on social support
āāÆ Communicate status and needs to pracXXoners
ā¢āÆ Update knowledge & adjust regimen (Occasionally)
āāÆ When other chronic condiXons or disabiliXes develop
āāÆ When new treatments are ordered
āāÆ When life circumstances change
ā¢āÆ Condi7ons of workā24/7, no days oļ¬, no re7rement
Our more paXent-centered job descripXon
Self-
management
Training
29
It is NOT just following a plan.
It is also thinking and acXng to minimize problems.
41. Pros:
ā¢āÆ Fewer items
ā¢āÆ Single vertical list
ā¢āÆ Major headings
stand out
Cons:
ā¢āÆ Lots of irrelevant
info
ā¢āÆ Seemingly
inconsistent info
Be=er, butā¦
41
45. Typical literacy items, by diļ¬culty level
NaXonal Adult Literacy Survey (NALS), 1993
NALS
difficulty
level (&
scores)
% US
adults (age 65+)
peaking at
this level
Simulated everyday tasks
5
(375-500)
3%
~0%
Ā§āÆ Use calculator to determine cost of carpet for a room
Ā§āÆ Use table of information to compare 2 credit cards
4
(325-375)
15%
4%
Ā§āÆ Use eligibility pamphlet to calculate SSI benefits
Ā§āÆ Explain difference between 2 types of employee benefits
3
(275-325)
31%
16%
Ā§āÆ Calculate miles per gallon from mileage record chart
Ā§āÆ Write brief letter explaining error on credit card bill
2
(225-275)
28%
33%
Ā§āÆ Determine difference in price between 2 show tickets
Ā§āÆ Locate intersection on street map
1
(0-225)
23%
47%
Ā§āÆTotal bank deposit entry
Ā§āÆ Locate expiration date on driverās license
Daily self-maintenance in modern literate societies
45
46. NALS
difficulty
level (&
scores)
% US
adults (age 65+)
peaking at
this level
Simulated everyday tasks
National Adult Literacy Survey (NALS), 1993)
5
(375-500)
3%
~0%
Ā§āÆ Use calculator to determine cost of carpet for a room
Ā§āÆ Use table of information to compare 2 credit cards
4
(325-375)
15%
4%
Ā§āÆ Use eligibility pamphlet to calculate SSI benefits
Ā§āÆ Explain difference between 2 types of employee benefits
3
(275-325)
31%
16%
Ā§āÆ Calculate miles per gallon from mileage record chart
Ā§āÆ Write brief letter explaining error on credit card bill
2
(225-275)
28%
33%
Ā§āÆ Determine difference in price between 2 show tickets
Ā§āÆ Locate intersection on street map
1
(0-225)
23%
47%
Ā§āÆTotal bank deposit entry
Ā§āÆ Locate expiration date on driverās license
Ā§āÆ level of inference
(āconnecting the dotsā)
Ā§āÆ abstractness of info
Ā§āÆ distracting information
Ā§āÆ number of features to match
Not reading per se, but
āproblem solvingā
Typical literacy items, by diļ¬culty level
NaXonal Adult Literacy Survey (NALS), 1993
46
50. āRx for Physical Ac7vityā
for a Rural Community Health Center
Linda S. Gottfredson, PhD
School of Education
University of Delaware
Kathy Stroh, MS, RD, CDE
Diabetes Prevention & Control Program
Delaware Division of Public Health
Presented at the 2009 Diabetes Translation Conference of the Centers for Disease Control & Prevention (CDC).
Long Beach, CA, April 24, 2009
50