The document discusses developing an engagement roadmap for patients with PIK3CA-Related Overgrowth Spectrum (PROS), a rare genetic disorder. It outlines objectives to better understand patient and caregiver experiences related to diagnosis, treatment, support needs. Insights were gained through interviews to create an interactive journey map depicting a patient's life from birth to old age. The map includes information accessed via icons on factors, barriers, considerations at each stage. Results of the roadmap were presented at conferences and published in a medical journal to increase understanding and support for those with PROS.