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Preparation for Adulthood
Training for education providers
and advisory services
Academic year 2021/22
Introduction
• Training builds on Annual Review training
available on learnsheffield/Inclusion Taskforce
website
• Training delivered in 3 parts:
1. Training power point
2. Round table discussion
3. Further training and Q&A
Session aims
• To explain why Preparation for Adulthood (PFA) is important
• To consider best practice for supporting transition from age 14
into adult life
• To explain what should be done each year from age 14 to the
point a young person leaves formal full-time education
• To consider the legal responsibilities and requirements on
schools to support PFA for children with EHC Plans
• To build on training on Annual Reviews of EHC plans
• To consider how children at SEN Support and other
vulnerabilities can be supported
• To consider how health and care needs should be supported
as part of PFA work
• To answer questions that SENCOs and services have about
PFA
Some questions to hold in your
mind whilst completing this training
• What is the focus and aspiration for
each young person in adult life?
• What do you need to do to help
learners with SEND succeed in
becoming adults?
• What needs to be different to what is
in place now?
What is Preparation for Adulthood?
• Must be a focus of all reviews from Year 9
onwards
 Employment
 Independence
 Community participation
 Managing health
• Transition between children and adult services
• When an EHC plan is likely to be ceased within
the next 12 months ensure plan for the future
• https://www.youtube.com/watch?v=99AwXrcQ
wgE&feature=youtu.be
• https://www.learnsheffield.co.uk/Downloads/Inc
lusionDocuments/20-
21/Prep%20for%20adulthood%20updated%20
Nov%202020.pdf
Why is this important?
• Impact on individual
• Impact on families
• Creating opportunity and choice
• Access to and focus on employment
• Opportunities for independence
• Cost to the state
• More than academic study
• Clear and effective planning
Pause and think….
• What are the barriers to us doing this?
• Pause this video for a few minutes and
reflect on these questions
• Record any questions you have as we will
look to answer these in the Q&A session
What the code of practice says
• SEND Code of practice chapter 8
• Being supported towards greater independence and
employability can be life-transforming for children and
young people with SEN. This support needs to start
early, and should centre around the child or young
person’s own aspirations, interests and needs. All
professionals working with them should share high
aspirations and have a good understanding of what
support is effective in enabling children and young
people to achieve their ambitions. (7.37)
What the code of practice says
• Preparing for adulthood means preparing for:
• higher education and/or employment – this includes
exploring different employment options, such as support for
becoming self-employed and help from supported
employment agencies
• independent living – this means young people having
choice, control and freedom over their lives and the support
they have, their accommodation and living arrangements,
including supported living
• participating in society, including having friends and
supportive relationships, and participating in, and contributing
to, the local community
• being as healthy as possible in adult life (7.38)
Starting Early
• When a child is very young, or SEN is first identified,
families need to know that the great majority of children
and young people with SEN or disabilities, with the right
support, can find work, be supported to live
independently, and participate in their community. Health
workers, social workers, early years providers and
schools should encourage these ambitions right from the
start. (8.5)
Support from Year 9 onwards
• High aspirations about employment, independent living
and community participation should be developed
through the curriculum and extra-curricular provision.
Schools should seek partnerships with employment
services, businesses, housing agencies, disability
organisations and arts and sports groups, to help
children understand what is available to them as they get
older, and what it is possible for them to achieve. (8.7)
• For teenagers, preparation for adult life needs to be a
more explicit element of their planning and support. (8.8)
EHC Plans: Preparing for
Adulthood Reviews
• Local authorities must ensure that the EHC plan review at Year 9,
and every review thereafter, includes a focus on preparing for
adulthood. It can be helpful for EHC plan reviews before Year 9 to
have this focus too. Planning must be centred around the individual
and explore the child or young person’s aspirations and abilities,
what they want to be able to do when they leave post-16 education
or training and the support they need to achieve their ambition.
Local authorities should ensure that children and young people have
the support they need (for example, advocates) to participate fully in
this planning and make decisions. Transition planning must be built
into the revised EHC plan and should result in clear outcomes being
agreed that are ambitious and stretching and which will prepare
young people for adulthood. (8.9)
Support to prepare for higher
education and/or employment
• This should include identifying appropriate post-16
pathways that will lead to these outcomes. Training
options such as supported internships, apprenticeships
and traineeships should be discussed, or support for
setting up your own business. The review should also
cover support in finding a job, and learning how to do a
job (for example, through work experience opportunities
or the use of job coaches) and help in understanding any
welfare benefits that might be available when in work
(8.10)
Support to prepare for independent
living
• including exploring what decisions young people want to
take for themselves and planning their role in decision
making as they become older. This should also include
discussing where the child or young person wants to live
in the future, who they want to live with and what support
they will need. Local housing options, support in finding
accommodation, housing benefits and social care
support should be explained (8.10)
Support in maintaining good health
in adult life
• including effective planning with health services of the
transition from specialist paediatric services to adult
health care. Helping children and young people
understand which health professionals will work with
them as adults, ensuring those professionals understand
the young person’s learning difficulties or disabilities and
planning well-supported transitions is vital to ensure
young people are as healthy as possible in adult life
(8.10)
Support in participating in society
• including understanding mobility and transport support,
and how to find out about social and community
activities, and opportunities for engagement in local
decision-making. This also includes support in
developing and maintaining friendships and relationships
(8.10)
EHC review
• The review should identify the support the child or young
person needs to achieve these aspirations and should
also identify the components that should be included in
their study programme to best prepare them for adult life.
It should identify how the child or young person wants
that support to be available and what action should be
taken by whom to provide it. It should also identify the
support a child or young person may need as they
prepare to make more decisions for themselves. (8.11)
What does this all mean for us?
Transition planning for young
people
• Must be young person centred, in partnership with the family
Introduction to Person-centred Planning Tools
(preparingforadulthood.org.uk)
• Needs to be a focus throughout secondary
• Incorporate with whole school approach – what is available to
all?
• Statutory responsibilities for schools eg IIAG
• More than academic and employment – focus on all 4 areas
of preparation for adulthood (employment, independence,
community participation, good health)
• Good exit planning – stepping into post-education life and
everything needed to do this
Transition planning for young
people
• Person centred
• Golden thread – Aspiration, Outcome,
Needs, Provision
• What matters and what’s important
• Meetings are 1 part of the process
• Session 3 will focus more on these areas
(aspirations, outcomes, meetings)
Parent or Young Person decision?
• Everything changes at end of statutory school age – decisions
become the young persons
• Parent engagement is vital – as is helping the young person
to understand their responsibilities and rights
• Mental Capacity Act – Capacity is assumed unless assessed
otherwise
• Young People may need to be supported by parents or
advocates to make decisions – they have the right to make a
bad decision
• Parents may need to be supported to accept changes for
adult life – though all want good progress!
Timeline for Preparation for
Adulthood
• Before Year 9 – Developing independence
• Year 9 – Transition plan must be put in place
• Year 10 / 11 – Decision making for the future - clear
plan for adult life, defined outcomes, plan reviewed
to be fit for post-16 education, placement decided
• Up to age 18 – Continue to implement plan,
establish what, if any, further education or training
may be required to meet outcomes
• Post 18 – Continued learning if required. Most
expected to complete learning at same age as peers
• Up to age 25 – EHC plan ceases when educational
outcomes to support into adult life and academic
progress are complete, not at age 25. EHC Plan
does not continue in Higher Education
• https://www.learnsheffield.co.uk/Downloads/Inclusio
nDocuments/20-
21/Prep%20for%20adulthood%20updated%20Nov
%202020.pdf
Pause and think….
• What has worked well in your experience
to support transition planning?
• What are the barriers to effective transition
planning?
• Pause this video for a few minutes and
reflect on these questions
• Record any questions you have as we will
look to answer these in the Q&A session
Types of post-16 education /
training
• Academic – Qualification led e.g. A-levels – school or college,
leads to employment or university
• Vocational – Work related qualifications – college or training
provider, leads to employment or university
• Employment based – Focus on work through apprenticeship,
traineeship, internship – leads to employment
• Lifeskills – Activity focused – develops skills for adult life –
leads to volunteering, meaningful activity or employment
• Young people may move between these pathways, but good
planning should ensure that this is identified early
Careers guidance
• Maintained schools and pupil referral units (PRUs) have a statutory
duty under section 42A of the Education Act 1997 to ensure pupils
from Year 8 until Year 13 are provided with independent careers
guidance. Academies, including 16-19 academies, and free schools
are subject to this duty through their Funding Agreements. FE
colleges also have equivalent requirements in their Funding
Agreements – their duty applies for all students up to and including
age 18 and will apply to 19- to 25-year-olds with EHC plans. (8.27)
• How is this threaded throughout work?
• Who is responsible in your school/setting and how is this offered?
• What is needed above and beyond the usual offer?
What is a Study Programme?
• All students aged 16 to 19 (and, where they will have an EHC plan, up to
the age of 25) should follow a coherent study programme which provides
stretch and progression and enables them to achieve the best possible
outcomes in adult life. Schools and colleges are expected to design study
programmes which enable students to progress to a higher level of study
than their prior attainment, take rigorous, substantial qualifications, study
English and maths, participate in meaningful work experience and non-
qualification activity. They should not be repeating learning they have
already completed successfully. For students who are not taking
qualifications, their study programme should focus on high quality work
experience, and on non-qualification activity which prepares them well for
employment, independent living, being healthy adults and participating in
society. (8.30)
Preparing for a study programme
• Transition plan needs to identify what will need to be included
in the study programme to meet a learners needs and
Preparing for Adulthood Outcomes including:
* Universal
* Targeted
* Specific provision
• It’s not about fitting the learner into a programme, but about
creating a provision that holistically meets their needs
• Focus on aspirations and outcomes in session 3 of this training
Work Experience and Partnerships – questions
and challenges
• How can we arrange work experience for those with SEND?
• What partnerships can schools utilise? eg. housing agencies,
arts groups, older learners, entrepreneurs, other adults with
SEND in employment, higher education
• Partnership working with post-16 providers to access taster
activities in college that are meaningful to aspirations and
address needs
• Just as much entitlement as any other young person
• What is already happening in school?
• How are you communicating with families?
Pause and think….
• What changes might you need to put in place
to better support education and training?
• Pause this video for a few minutes and reflect
on these questions
• Record any questions you have as we will look
to answer these in the Q&A session
Health needs in adult life
• Early planning is essential for a successful transition in health.
• Transitions planning usually starts at 14 years, however some
patients with long term conditions may start transition planning at
11 or 12.
• The actual move to adult care can take place anywhere between 16
and 19 depending on the patient’s condition and their individual
needs.
• A transition plan is used to gradually plan and prepare a young
person for adult services. Sheffield Children’s NHS Trust use the
Ready Steady Go traffic light programme.
• Part of the transition process is to look at where a young person’s
ongoing healthcare needs can be best met. This may include at
hospital, in the community, or through general practice (GP).
Health needs in adult life
• The transitions process is led/coordinated by the doctors and
nurses in the child’s health service. These professionals are there
to:
– Provide advice and guidance on managing health needs, and the
changes to decision making responsibilities.
– Support the young person and their parent / carers to plan for
the future, particularly in cases of degenerative disease or life
limiting conditions.
– Ensure the young person (and their parent/carer) knows who to
contact if there are any concerns, or to make or change
appointments.
– Make links to the adult services who will be responsible for
ongoing care, and familiarise the young person with the new
service.
Health needs in adult life
• Transition from children to adult therapy services
should be planned.
• Therapy services may want to work with colleges to
make sure that the young person has access to the
correct equipment or make suggestions about
reasonable adjustments that could be made to better
support them.
• Therapy services should be made aware early that a
placement has been agreed. This is because sometimes
they will need to ensure access to specific pieces of
equipment that take time to plan for, order and check
upon receipt to make sure it is as safe as possible.
Health services
• Move to adult services becomes GP led where there is not complexity (3
comorbidities)
• Families should discuss with involved health services – not assume
provision continues in same way
• Input is around specific tasks – e.g. you might have a Speech Therapist
allocated to complete a communication assessment, or you might work
with an OT around using the kitchen – i.e. intervention is not on-going /
forever, but focused on an individual task.
• Ensure that the young person accesses their right for an LD health check at
14 where they have a learning disability
• Referrals to the Learning Disability team can take place from 16 onwards.
For young people without a learning disability, the GP can make referrals
to community OT/Physio, and you can self-refer to a lot of services.
• Request to be put on the LD register via their GP if not already done so in
childhood
Health needs in adult life
The key to successful transition in health is
preparing the young person and their parents /
carers early on.
By starting conversations ahead of time, young
people and their families can feel more
prepared to plan for the significant changes in
adult services before transition begins.
Pause and think – how can you support the
health transitions process?
Care planning
• Key to preparation for adulthood – all parts of the plan and
needs should be addressed
• Need to consider areas that may prevent a young person
moving through further education and on to independence
• Particularly important for those who are on a life skills
pathway
• Statutory care provision / non-statutory support
• Care routes being developed – 24/7 grid
• The Local Authority have a duty to assess someone’s needs,
but they do not have a duty to provide services. Universal
Services available to everyone can help meet any needs.
What is the care Act?
The Care Act 2014 introduces a national eligibility threshold,
which consists of three criteria, all of which must be met for a
person’s needs to be eligible:
1.Whether a person’s needs are due to a physical or mental
impairment or illness
2.To what extent a person’s needs affect their ability to achieve
at least two or more specified outcomes.
3.And whether and to what extent this impacts on their
wellbeing
• Assessments should be conducted at an appropriate time for
the young person as they move towards being 18 to ensure
clear planning is in place.
Mental Capacity Act
The Mental Capacity Act applies to young
people aged 16+ and this looks at an individuals’
ability to make their own decisions about key
aspects of their life (for example, where to live,
how to spend their money or how to be
supported). If a young person cannot make such
decisions, then a decision will be made in their
best interest, involving people who know them
well.
Areas to consider
• Care Act – the right to access an assessment
• Family responsibility and support
• Travel
• Plan for independent living
• Community participation – not everything is via
statutory services
• Accessing activities outside of school and with
growing levels of independence
• Benefits entitlement
Developing independence
• What is important for the young person to be as
independent in adult life as they can be?
• What are the barriers to this?
• What teaching and training is needed to address
this? How might the curriculum and provision in
section F be developed to deliver it?
• Areas such as:
– Where to live
– Managing money and appointments
– Personal care and travel
Community participation
• What is in the young person’s local area / community
and how might they get involved and access this? (not
just physical space)
• What relationships does the young person have and
need?
• What is the young person worried about?
• How do you work with families to consider what is in
their community?
• What is available that will help that is not social care
provision?
• Enables commissioning of provision for the future
Pause and think….
• What changes might you need to put in place
to better support health and care needs to
support young people to move to adult life?
• Pause this video for a few minutes and reflect
on these questions
• Record any questions you have as we will look
to answer these in the Q&A session
Working together to make it work
Training part 2 & 3
• Part 2 round table discussion
• Part 3:
o Aspirations and outcomes for PFA
o Transition meetings / Annual reviews from
year 9
o Q & A

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  • 1. Preparation for Adulthood Training for education providers and advisory services Academic year 2021/22
  • 2. Introduction • Training builds on Annual Review training available on learnsheffield/Inclusion Taskforce website • Training delivered in 3 parts: 1. Training power point 2. Round table discussion 3. Further training and Q&A
  • 3. Session aims • To explain why Preparation for Adulthood (PFA) is important • To consider best practice for supporting transition from age 14 into adult life • To explain what should be done each year from age 14 to the point a young person leaves formal full-time education • To consider the legal responsibilities and requirements on schools to support PFA for children with EHC Plans • To build on training on Annual Reviews of EHC plans • To consider how children at SEN Support and other vulnerabilities can be supported • To consider how health and care needs should be supported as part of PFA work • To answer questions that SENCOs and services have about PFA
  • 4. Some questions to hold in your mind whilst completing this training • What is the focus and aspiration for each young person in adult life? • What do you need to do to help learners with SEND succeed in becoming adults? • What needs to be different to what is in place now?
  • 5. What is Preparation for Adulthood? • Must be a focus of all reviews from Year 9 onwards  Employment  Independence  Community participation  Managing health • Transition between children and adult services • When an EHC plan is likely to be ceased within the next 12 months ensure plan for the future • https://www.youtube.com/watch?v=99AwXrcQ wgE&feature=youtu.be • https://www.learnsheffield.co.uk/Downloads/Inc lusionDocuments/20- 21/Prep%20for%20adulthood%20updated%20 Nov%202020.pdf
  • 6.
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  • 8.
  • 9.
  • 10. Why is this important? • Impact on individual • Impact on families • Creating opportunity and choice • Access to and focus on employment • Opportunities for independence • Cost to the state • More than academic study • Clear and effective planning
  • 11. Pause and think…. • What are the barriers to us doing this? • Pause this video for a few minutes and reflect on these questions • Record any questions you have as we will look to answer these in the Q&A session
  • 12. What the code of practice says • SEND Code of practice chapter 8 • Being supported towards greater independence and employability can be life-transforming for children and young people with SEN. This support needs to start early, and should centre around the child or young person’s own aspirations, interests and needs. All professionals working with them should share high aspirations and have a good understanding of what support is effective in enabling children and young people to achieve their ambitions. (7.37)
  • 13. What the code of practice says • Preparing for adulthood means preparing for: • higher education and/or employment – this includes exploring different employment options, such as support for becoming self-employed and help from supported employment agencies • independent living – this means young people having choice, control and freedom over their lives and the support they have, their accommodation and living arrangements, including supported living • participating in society, including having friends and supportive relationships, and participating in, and contributing to, the local community • being as healthy as possible in adult life (7.38)
  • 14. Starting Early • When a child is very young, or SEN is first identified, families need to know that the great majority of children and young people with SEN or disabilities, with the right support, can find work, be supported to live independently, and participate in their community. Health workers, social workers, early years providers and schools should encourage these ambitions right from the start. (8.5)
  • 15. Support from Year 9 onwards • High aspirations about employment, independent living and community participation should be developed through the curriculum and extra-curricular provision. Schools should seek partnerships with employment services, businesses, housing agencies, disability organisations and arts and sports groups, to help children understand what is available to them as they get older, and what it is possible for them to achieve. (8.7) • For teenagers, preparation for adult life needs to be a more explicit element of their planning and support. (8.8)
  • 16. EHC Plans: Preparing for Adulthood Reviews • Local authorities must ensure that the EHC plan review at Year 9, and every review thereafter, includes a focus on preparing for adulthood. It can be helpful for EHC plan reviews before Year 9 to have this focus too. Planning must be centred around the individual and explore the child or young person’s aspirations and abilities, what they want to be able to do when they leave post-16 education or training and the support they need to achieve their ambition. Local authorities should ensure that children and young people have the support they need (for example, advocates) to participate fully in this planning and make decisions. Transition planning must be built into the revised EHC plan and should result in clear outcomes being agreed that are ambitious and stretching and which will prepare young people for adulthood. (8.9)
  • 17. Support to prepare for higher education and/or employment • This should include identifying appropriate post-16 pathways that will lead to these outcomes. Training options such as supported internships, apprenticeships and traineeships should be discussed, or support for setting up your own business. The review should also cover support in finding a job, and learning how to do a job (for example, through work experience opportunities or the use of job coaches) and help in understanding any welfare benefits that might be available when in work (8.10)
  • 18. Support to prepare for independent living • including exploring what decisions young people want to take for themselves and planning their role in decision making as they become older. This should also include discussing where the child or young person wants to live in the future, who they want to live with and what support they will need. Local housing options, support in finding accommodation, housing benefits and social care support should be explained (8.10)
  • 19. Support in maintaining good health in adult life • including effective planning with health services of the transition from specialist paediatric services to adult health care. Helping children and young people understand which health professionals will work with them as adults, ensuring those professionals understand the young person’s learning difficulties or disabilities and planning well-supported transitions is vital to ensure young people are as healthy as possible in adult life (8.10)
  • 20. Support in participating in society • including understanding mobility and transport support, and how to find out about social and community activities, and opportunities for engagement in local decision-making. This also includes support in developing and maintaining friendships and relationships (8.10)
  • 21. EHC review • The review should identify the support the child or young person needs to achieve these aspirations and should also identify the components that should be included in their study programme to best prepare them for adult life. It should identify how the child or young person wants that support to be available and what action should be taken by whom to provide it. It should also identify the support a child or young person may need as they prepare to make more decisions for themselves. (8.11)
  • 22. What does this all mean for us?
  • 23. Transition planning for young people • Must be young person centred, in partnership with the family Introduction to Person-centred Planning Tools (preparingforadulthood.org.uk) • Needs to be a focus throughout secondary • Incorporate with whole school approach – what is available to all? • Statutory responsibilities for schools eg IIAG • More than academic and employment – focus on all 4 areas of preparation for adulthood (employment, independence, community participation, good health) • Good exit planning – stepping into post-education life and everything needed to do this
  • 24. Transition planning for young people • Person centred • Golden thread – Aspiration, Outcome, Needs, Provision • What matters and what’s important • Meetings are 1 part of the process • Session 3 will focus more on these areas (aspirations, outcomes, meetings)
  • 25.
  • 26. Parent or Young Person decision? • Everything changes at end of statutory school age – decisions become the young persons • Parent engagement is vital – as is helping the young person to understand their responsibilities and rights • Mental Capacity Act – Capacity is assumed unless assessed otherwise • Young People may need to be supported by parents or advocates to make decisions – they have the right to make a bad decision • Parents may need to be supported to accept changes for adult life – though all want good progress!
  • 27. Timeline for Preparation for Adulthood • Before Year 9 – Developing independence • Year 9 – Transition plan must be put in place • Year 10 / 11 – Decision making for the future - clear plan for adult life, defined outcomes, plan reviewed to be fit for post-16 education, placement decided • Up to age 18 – Continue to implement plan, establish what, if any, further education or training may be required to meet outcomes • Post 18 – Continued learning if required. Most expected to complete learning at same age as peers • Up to age 25 – EHC plan ceases when educational outcomes to support into adult life and academic progress are complete, not at age 25. EHC Plan does not continue in Higher Education • https://www.learnsheffield.co.uk/Downloads/Inclusio nDocuments/20- 21/Prep%20for%20adulthood%20updated%20Nov %202020.pdf
  • 28. Pause and think…. • What has worked well in your experience to support transition planning? • What are the barriers to effective transition planning? • Pause this video for a few minutes and reflect on these questions • Record any questions you have as we will look to answer these in the Q&A session
  • 29. Types of post-16 education / training • Academic – Qualification led e.g. A-levels – school or college, leads to employment or university • Vocational – Work related qualifications – college or training provider, leads to employment or university • Employment based – Focus on work through apprenticeship, traineeship, internship – leads to employment • Lifeskills – Activity focused – develops skills for adult life – leads to volunteering, meaningful activity or employment • Young people may move between these pathways, but good planning should ensure that this is identified early
  • 30. Careers guidance • Maintained schools and pupil referral units (PRUs) have a statutory duty under section 42A of the Education Act 1997 to ensure pupils from Year 8 until Year 13 are provided with independent careers guidance. Academies, including 16-19 academies, and free schools are subject to this duty through their Funding Agreements. FE colleges also have equivalent requirements in their Funding Agreements – their duty applies for all students up to and including age 18 and will apply to 19- to 25-year-olds with EHC plans. (8.27) • How is this threaded throughout work? • Who is responsible in your school/setting and how is this offered? • What is needed above and beyond the usual offer?
  • 31. What is a Study Programme? • All students aged 16 to 19 (and, where they will have an EHC plan, up to the age of 25) should follow a coherent study programme which provides stretch and progression and enables them to achieve the best possible outcomes in adult life. Schools and colleges are expected to design study programmes which enable students to progress to a higher level of study than their prior attainment, take rigorous, substantial qualifications, study English and maths, participate in meaningful work experience and non- qualification activity. They should not be repeating learning they have already completed successfully. For students who are not taking qualifications, their study programme should focus on high quality work experience, and on non-qualification activity which prepares them well for employment, independent living, being healthy adults and participating in society. (8.30)
  • 32. Preparing for a study programme • Transition plan needs to identify what will need to be included in the study programme to meet a learners needs and Preparing for Adulthood Outcomes including: * Universal * Targeted * Specific provision • It’s not about fitting the learner into a programme, but about creating a provision that holistically meets their needs • Focus on aspirations and outcomes in session 3 of this training
  • 33. Work Experience and Partnerships – questions and challenges • How can we arrange work experience for those with SEND? • What partnerships can schools utilise? eg. housing agencies, arts groups, older learners, entrepreneurs, other adults with SEND in employment, higher education • Partnership working with post-16 providers to access taster activities in college that are meaningful to aspirations and address needs • Just as much entitlement as any other young person • What is already happening in school? • How are you communicating with families?
  • 34. Pause and think…. • What changes might you need to put in place to better support education and training? • Pause this video for a few minutes and reflect on these questions • Record any questions you have as we will look to answer these in the Q&A session
  • 35. Health needs in adult life • Early planning is essential for a successful transition in health. • Transitions planning usually starts at 14 years, however some patients with long term conditions may start transition planning at 11 or 12. • The actual move to adult care can take place anywhere between 16 and 19 depending on the patient’s condition and their individual needs. • A transition plan is used to gradually plan and prepare a young person for adult services. Sheffield Children’s NHS Trust use the Ready Steady Go traffic light programme. • Part of the transition process is to look at where a young person’s ongoing healthcare needs can be best met. This may include at hospital, in the community, or through general practice (GP).
  • 36. Health needs in adult life • The transitions process is led/coordinated by the doctors and nurses in the child’s health service. These professionals are there to: – Provide advice and guidance on managing health needs, and the changes to decision making responsibilities. – Support the young person and their parent / carers to plan for the future, particularly in cases of degenerative disease or life limiting conditions. – Ensure the young person (and their parent/carer) knows who to contact if there are any concerns, or to make or change appointments. – Make links to the adult services who will be responsible for ongoing care, and familiarise the young person with the new service.
  • 37. Health needs in adult life • Transition from children to adult therapy services should be planned. • Therapy services may want to work with colleges to make sure that the young person has access to the correct equipment or make suggestions about reasonable adjustments that could be made to better support them. • Therapy services should be made aware early that a placement has been agreed. This is because sometimes they will need to ensure access to specific pieces of equipment that take time to plan for, order and check upon receipt to make sure it is as safe as possible.
  • 38. Health services • Move to adult services becomes GP led where there is not complexity (3 comorbidities) • Families should discuss with involved health services – not assume provision continues in same way • Input is around specific tasks – e.g. you might have a Speech Therapist allocated to complete a communication assessment, or you might work with an OT around using the kitchen – i.e. intervention is not on-going / forever, but focused on an individual task. • Ensure that the young person accesses their right for an LD health check at 14 where they have a learning disability • Referrals to the Learning Disability team can take place from 16 onwards. For young people without a learning disability, the GP can make referrals to community OT/Physio, and you can self-refer to a lot of services. • Request to be put on the LD register via their GP if not already done so in childhood
  • 39. Health needs in adult life The key to successful transition in health is preparing the young person and their parents / carers early on. By starting conversations ahead of time, young people and their families can feel more prepared to plan for the significant changes in adult services before transition begins. Pause and think – how can you support the health transitions process?
  • 40. Care planning • Key to preparation for adulthood – all parts of the plan and needs should be addressed • Need to consider areas that may prevent a young person moving through further education and on to independence • Particularly important for those who are on a life skills pathway • Statutory care provision / non-statutory support • Care routes being developed – 24/7 grid • The Local Authority have a duty to assess someone’s needs, but they do not have a duty to provide services. Universal Services available to everyone can help meet any needs.
  • 41. What is the care Act? The Care Act 2014 introduces a national eligibility threshold, which consists of three criteria, all of which must be met for a person’s needs to be eligible: 1.Whether a person’s needs are due to a physical or mental impairment or illness 2.To what extent a person’s needs affect their ability to achieve at least two or more specified outcomes. 3.And whether and to what extent this impacts on their wellbeing • Assessments should be conducted at an appropriate time for the young person as they move towards being 18 to ensure clear planning is in place.
  • 42. Mental Capacity Act The Mental Capacity Act applies to young people aged 16+ and this looks at an individuals’ ability to make their own decisions about key aspects of their life (for example, where to live, how to spend their money or how to be supported). If a young person cannot make such decisions, then a decision will be made in their best interest, involving people who know them well.
  • 43. Areas to consider • Care Act – the right to access an assessment • Family responsibility and support • Travel • Plan for independent living • Community participation – not everything is via statutory services • Accessing activities outside of school and with growing levels of independence • Benefits entitlement
  • 44. Developing independence • What is important for the young person to be as independent in adult life as they can be? • What are the barriers to this? • What teaching and training is needed to address this? How might the curriculum and provision in section F be developed to deliver it? • Areas such as: – Where to live – Managing money and appointments – Personal care and travel
  • 45. Community participation • What is in the young person’s local area / community and how might they get involved and access this? (not just physical space) • What relationships does the young person have and need? • What is the young person worried about? • How do you work with families to consider what is in their community? • What is available that will help that is not social care provision? • Enables commissioning of provision for the future
  • 46. Pause and think…. • What changes might you need to put in place to better support health and care needs to support young people to move to adult life? • Pause this video for a few minutes and reflect on these questions • Record any questions you have as we will look to answer these in the Q&A session
  • 47. Working together to make it work
  • 48. Training part 2 & 3 • Part 2 round table discussion • Part 3: o Aspirations and outcomes for PFA o Transition meetings / Annual reviews from year 9 o Q & A

Editor's Notes

  1. Meeting host to share slides / documents and spot light on presenters as needed in zoom throughout
  2. Include link for training video for PfA
  3. Person centred – all about the young person and their specific needs Working in partnership with the parents Doing things at the right time Preventing a cliff edge
  4. Include link for training video for PfA
  5. Need to include benefits info