The document discusses Jonah, who has Sanfilippo Syndrome type C, a rare genetic disease. Jonah's father has formed JJB to fund research for a treatment. JJB located the world's top expert on Sanfilippo type C and created the first mouse model with the missing enzyme to study. JJB is working with families and scientists around the world to fund research and develop treatments, as drug companies will not due to the disease's rarity. Jonah could be the first child with Sanfilippo to graduate high school if a treatment is found in time.