Lyme and Co-infections
A Patients’ perspective
Books I recommend:
•   I recommend seeing a Naturopath
    or similar to work with you
    alongside your regular MD
• DETOX
  A lot of symptoms come from
 inflammation & “die-off” (neuro-toxins,
 endo-toxins) and other viruses, bacteria
 that take advantage of your lowered
 immune system due to the B burgdorferi
 (and / or “co”) infection and
 environmental issues (mold, unclean
 water, de-mineralized water/food,
 exposure to toxins) etc
• So, it is important to support your
 cleansing organs: kidneys, gallbladder,
  lymphatic, spleen, liver, adrenals etc

• It is important to reduce chemical
  exposure:
  cleaning products, personal care products
  (shampoo, anti-perspirent, lotion,
  toothpaste, perfume, hair colour)
  pesticides (yard, garden, food) etc
• It is important to have clean drinking
  water and air in your home
I personally recommend speaking to
Mario of “Purahome Inc.”, an
environmentally aware, science-based
company that provides you all the benefits
of healthier air and water -St. Catharines, ON
Telephone: 905-934-3168
       www.purahome.com
My Supportive Alternative Options:
• Good pro-biotic (taken at night)
• Good digestive enzyme with protease
• Slippery elm
      The largest part of our immune
      system is in the gut (I make Kefir from
      grains for my pro-biotic)
• Flax Seed
• Milk Thistle
• B-Complex - take with fats so the B12 is
• Vitamin C - 1000 to 4000 mg
• CoQ10
• Magnesium - "Natural Calm“ & Magnesium
 oil (if irritation mix it with aloe vera gel)
• Fresh lemon squeezed in good water
• Glucosamine
• For pain – powdered MSM
   Liquids and powdered forms of
   supplements are more easily assimilated
   by our bodies
• Chlorophyll – 1 tsp in a.m. water
• Try to have green salad once a day
• Take epsom salts baths
• Light excercise; lights bouncing moves
  Lymphatic system
• Ionic foot baths
• Dandelion tea, burdock tea, red root
  tincture
• Food Grade Hydrogen Peroxide (as 35%
  mixed to 3% with distilled water) – use as a
body spray after shower/ leave on for a few
  minutes then rinse off
• Lugol’s Iodine – Skin test per Dr. Cowden –
  8-10 drops on skin/rub on/if gone in 2 hrs-
  profoundly deficient – to catch up apply to
  skin each day until patch is present after 24
  hrs you are caught up
• Stephen Harrod Buhner’s protocol’s
• RIFE
     ***Above everything else I juice***
The following slide is the table of
alternative/natural things that I do / take
(and some things the children take)
 to cope with our disease each day.

This table was prepared for the Global
National News interview
Symptoms I deal with daily:
• Hair Loss
• Poor body temperature regulation;
  Cold/Heat intolerance, sun intolerance
• Arthritic symptoms - large and small joints
• Sharp shooting pains that occur all over my
  body
• Nausea
• Headaches, Head pressure
• Eye pain - Vision problems -Floaters in
  vision - trouble driving at night - sun
  sensitivity - *lesions on my eyes
• Dizziness, feeling off balance
• Jaw and face pain, tooth and gum pain
• Burning sensation & pain in my feet and
  hands
• “Vibration like” feeling inside
• Neck pain and neck vein pressure
• Shortness of breath on exertion
• Chronic Fatigue
• Muscle soreness, muscle spasms and
  twitches, muscle weakness, burning in my
  muscles – even with minimal exertion
• Periodic fluid noises -like spurts - at the
  base of my skull
• Heart palpitations, Chest pain
• Numbness and tingling in different areas
 of both the right and left side of my body,
  but right side is worse (my right pinkie
  finger has been numb since 2009)
  Constant numbness on right side includes
  facial numbness, arm, hand and foot.
  Constant left side includes facial numbness
 and arm, hand, foot seems to come & go
  more. Worse when driving & I’ve had
 episodes of both feet being numb all day
• Ear ache and pain, hearing cuts in and
  out - both ears but right side worse- e.g.
  periods of 40 minutes have occurred,
  Constant high pitch ringing in my ears
  & short, buzzing noise in right ear (like a
  bee or bug);
• Skin Broken blood vessels - or petichia(?),
  Spontaneous bruising, Changing –
  thinning skin, Prominent veins, weird
  skin crawling sensations
• Periodic episodes of rage; Amped up
  feeling at times
• Inability to sleep, disrupted sleep; Bouts
   of insomnia
• Cognitive issues: affecting multi-tasking,
 easily distracted, overly sensitive to
 commotion, easily overwhelmed, mental
  fatigue, stutter at times, if really tired have
  trouble talking and forming words,
  finding words, putting sentences together
- trouble processing spoken/written word
-re-read a sentence/par. a number of times;
  eye doesn't follow the words in a sentence
  properly - they skip words or read them
  backwards, the page looks all jumbled up
- sometimes trouble finding places
-sometimes I will forget something I've
  been told seconds later,
-sometimes I forget things I have started to
  cook
• Inflammation, worsened with exertion
• Low libido
• Sore lymph nodes - left side is worse
• Chemical intolerance
• Bladder incontinence
• Bowel incontinence
Common comments that I have
heard from Dr’s, Specialists.......
“Well, Lyme disease is very
rare....... I don’t know anything
about it nor have I ever treated
anyone for it but....................
you don’t have it.”
“I don’t know anything about
Lyme disease but, that is not
what is causing these
problems.....
(when asked what is....)
......I don’t know”
“If you had come in here with a
diagnosis of MS or ALS, I would
know what to do for you.
I don’t know what to do for your
brain.”

(Neurologist)
I have also heard the following
from some Dr’s,
Specialists.........
“We don’t have all the answers...if
you have found something that
works for you............Run with it”

(Cardiologist)
“Don’t beat yourself up with this
guilt, you didn’t choose this...
The hardest person on you...... is
              YOU”

“Remember the Serenity Prayer”
Remember:
You can help yourself......
          .......there are options!

Take control of your healthcare.
Get copies of your own records, test
results, specialist’s reports, CT’s,
MRI’s etc

Dr’s are only required to keep your
records for 10 years – then they can
shred them
Best wishes – Be Aware –Stay Healthy

Patient Perspective

  • 1.
    Lyme and Co-infections APatients’ perspective
  • 2.
  • 4.
    I recommend seeing a Naturopath or similar to work with you alongside your regular MD
  • 5.
    • DETOX A lot of symptoms come from inflammation & “die-off” (neuro-toxins, endo-toxins) and other viruses, bacteria that take advantage of your lowered immune system due to the B burgdorferi (and / or “co”) infection and environmental issues (mold, unclean water, de-mineralized water/food, exposure to toxins) etc
  • 6.
    • So, itis important to support your cleansing organs: kidneys, gallbladder, lymphatic, spleen, liver, adrenals etc • It is important to reduce chemical exposure: cleaning products, personal care products (shampoo, anti-perspirent, lotion, toothpaste, perfume, hair colour) pesticides (yard, garden, food) etc
  • 7.
    • It isimportant to have clean drinking water and air in your home I personally recommend speaking to Mario of “Purahome Inc.”, an environmentally aware, science-based company that provides you all the benefits of healthier air and water -St. Catharines, ON Telephone: 905-934-3168 www.purahome.com
  • 8.
    My Supportive AlternativeOptions: • Good pro-biotic (taken at night) • Good digestive enzyme with protease • Slippery elm The largest part of our immune system is in the gut (I make Kefir from grains for my pro-biotic) • Flax Seed • Milk Thistle • B-Complex - take with fats so the B12 is
  • 9.
    • Vitamin C- 1000 to 4000 mg • CoQ10 • Magnesium - "Natural Calm“ & Magnesium oil (if irritation mix it with aloe vera gel) • Fresh lemon squeezed in good water • Glucosamine • For pain – powdered MSM Liquids and powdered forms of supplements are more easily assimilated by our bodies
  • 10.
    • Chlorophyll –1 tsp in a.m. water • Try to have green salad once a day • Take epsom salts baths • Light excercise; lights bouncing moves Lymphatic system • Ionic foot baths • Dandelion tea, burdock tea, red root tincture • Food Grade Hydrogen Peroxide (as 35% mixed to 3% with distilled water) – use as a
  • 11.
    body spray aftershower/ leave on for a few minutes then rinse off • Lugol’s Iodine – Skin test per Dr. Cowden – 8-10 drops on skin/rub on/if gone in 2 hrs- profoundly deficient – to catch up apply to skin each day until patch is present after 24 hrs you are caught up • Stephen Harrod Buhner’s protocol’s • RIFE ***Above everything else I juice***
  • 12.
    The following slideis the table of alternative/natural things that I do / take (and some things the children take) to cope with our disease each day. This table was prepared for the Global National News interview
  • 14.
    Symptoms I dealwith daily: • Hair Loss • Poor body temperature regulation; Cold/Heat intolerance, sun intolerance • Arthritic symptoms - large and small joints • Sharp shooting pains that occur all over my body • Nausea • Headaches, Head pressure
  • 15.
    • Eye pain- Vision problems -Floaters in vision - trouble driving at night - sun sensitivity - *lesions on my eyes • Dizziness, feeling off balance • Jaw and face pain, tooth and gum pain • Burning sensation & pain in my feet and hands • “Vibration like” feeling inside • Neck pain and neck vein pressure • Shortness of breath on exertion
  • 16.
    • Chronic Fatigue •Muscle soreness, muscle spasms and twitches, muscle weakness, burning in my muscles – even with minimal exertion • Periodic fluid noises -like spurts - at the base of my skull • Heart palpitations, Chest pain
  • 17.
    • Numbness andtingling in different areas of both the right and left side of my body, but right side is worse (my right pinkie finger has been numb since 2009) Constant numbness on right side includes facial numbness, arm, hand and foot. Constant left side includes facial numbness and arm, hand, foot seems to come & go more. Worse when driving & I’ve had episodes of both feet being numb all day
  • 18.
    • Ear acheand pain, hearing cuts in and out - both ears but right side worse- e.g. periods of 40 minutes have occurred, Constant high pitch ringing in my ears & short, buzzing noise in right ear (like a bee or bug); • Skin Broken blood vessels - or petichia(?), Spontaneous bruising, Changing – thinning skin, Prominent veins, weird skin crawling sensations
  • 19.
    • Periodic episodesof rage; Amped up feeling at times • Inability to sleep, disrupted sleep; Bouts of insomnia • Cognitive issues: affecting multi-tasking, easily distracted, overly sensitive to commotion, easily overwhelmed, mental fatigue, stutter at times, if really tired have trouble talking and forming words, finding words, putting sentences together
  • 20.
    - trouble processingspoken/written word -re-read a sentence/par. a number of times; eye doesn't follow the words in a sentence properly - they skip words or read them backwards, the page looks all jumbled up - sometimes trouble finding places -sometimes I will forget something I've been told seconds later, -sometimes I forget things I have started to cook
  • 21.
    • Inflammation, worsenedwith exertion • Low libido • Sore lymph nodes - left side is worse • Chemical intolerance • Bladder incontinence • Bowel incontinence
  • 22.
    Common comments thatI have heard from Dr’s, Specialists.......
  • 23.
    “Well, Lyme diseaseis very rare....... I don’t know anything about it nor have I ever treated anyone for it but.................... you don’t have it.”
  • 24.
    “I don’t knowanything about Lyme disease but, that is not what is causing these problems..... (when asked what is....) ......I don’t know”
  • 25.
    “If you hadcome in here with a diagnosis of MS or ALS, I would know what to do for you. I don’t know what to do for your brain.” (Neurologist)
  • 26.
    I have alsoheard the following from some Dr’s, Specialists.........
  • 27.
    “We don’t haveall the answers...if you have found something that works for you............Run with it” (Cardiologist)
  • 28.
    “Don’t beat yourselfup with this guilt, you didn’t choose this... The hardest person on you...... is YOU” “Remember the Serenity Prayer”
  • 29.
    Remember: You can helpyourself...... .......there are options! Take control of your healthcare.
  • 30.
    Get copies ofyour own records, test results, specialist’s reports, CT’s, MRI’s etc Dr’s are only required to keep your records for 10 years – then they can shred them
  • 31.
    Best wishes –Be Aware –Stay Healthy