My Name is Lola
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Lola has a rare condition known as Sturge Weber Syndrome. This is a chronicle of her challenges and triumphs. We also created a yearly golf tournament to sponsor this charity. Please visit lolasgift.com if you'd like to contribute.
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My Name is Lola
- 1. My name is Lola I have Sturge-Weber Syndrome A RARE DISORDER
- 15. Honoring all children affected by Sturge-Weber Syndrome and Benefiting Research being done at the Hunter Nelson Sturge-Weber Center at Kennedy Krieger Institute. All proceeds from this fundraiser will go directly to the Kennedy Krieger Foundation
- 17. Laser Surgery
- 18. Little is known about the cause of SWS or the full impact on those who suffer with the syndrome. Blood vessel abnormalities in the brain, skin, and eyes can cause countless health complications, not all of which are fully known or understood.
- 19. It is with great enthusiasm that we work together to raise awareness and support for those suffering with this devastating and incurable syndrome.
- 20. You can s how your support by joining us for a day of fun, food and prizes at Tropical Realty’s Annual Charity Golf Tournament.
- 21. When: April 30, 2011 Where: Savannahs Golf Course Merritt Island Time: 7:30-8:15 Registration 8:30 Shotgun Start For registration info go to: www.TropicalRealtyGolf.com
- 29. The generous support of our community sometimes makes all the difference in the quality of life of persons with developmental disabilities. This type of support comprises the extra quality of life that makes a memorable impression on individuals with disabilities, their families and even the staff that work with them. Knowing that the people in the broader community care enough to donate money or goods makes a difference. Thank You!