1. Jeans for Genes day!
Friday 7 th October
We’re changing the world for children with genetic disorders.
All you have to do is wear your jeans.
2. Facts about genetic disorders
It is estimated that 2.8m people in the UK are affected by rare genetic disorders*
(2m are affected by cancer)
An estimated 1 in 25 children born in the UK is affected by a genetic disorder / birth defect, that
equates to more than 30,000 babies born in the UK each year
There are more than 4,500 recognised genetic disorders
Genetic disorders are the biggest cause of death for children aged 14 and under
*Source: 2009 Annual Report of the Chef Medical Officer (80% of rare diseases are estimated to be genetic)
3. what is Jeans for genes day?
Thousands of children and adults pay £1 / £2 to wear
their jeans to school or work on Jeans for Genes Day
4. Our supporters
Today, we have a database of 100,000 supporters from work places to schools across the UK.
5. How we spend donations
All of the net income raised by Jeans for Genes each year is distributed amongst charities
dedicated to supporting individual genetic disorders.
These charities provide vital care and support services for affected children and families, as well
as ongoing research into these conditions.
6. Projects funded in 2010
Chronic Granulomatous Disorder Research We help to fund a variety of projects including a psychological support
Trust service and CGD clinical nurse specialists.
Genetic Alliance UK A coordinator for families living with Sydrome Without a Name (SWAN).
Jeans for Genes supports several research projects each year, from PhD
Great Ormond Street Hospital Children's research grants to ongoing work by senior academics at the Jeans for
Charity Genes Centre for Inherited Diseases.
Headlines Craniofacial Support Jeans for Genes is funding a workshop with horses. Gentle and non-
judgemental, the animals will also help the children develop their non-
verbal communication.
Ichthyosis Support Group Jeans for Genes is giving the ISG a grant towards its national conference.
Families can meet and know they're not alone. And the children can see
others who look like them.
International Costello Syndrome Support We're proud to be helping families with Costello syndrome come
Group together for the very first time in the UK at their first annual retreat.
Boys and men can have low self confidence because of the differences in
Klinefelter's Syndrome Association their bodies and they can find social situations difficult. We are funding
an activity weekend; which will make a dramatic difference to how boys
and young men feel about themselves.
With our help, the MGA are setting up an outreach programme. One of
Myasthenia Gravis Association its key aims will be to help families get the educational support their
children need and are entitled to at school.
Currently projects include a five year research programme at Oxford
The Primary Immunodeficiency Association University and the Oxford Radcliffe Hospitals and comprehensive support
and advocacy activities for children and adults.
Jeans for Genes provides funding to the MPS Society each year. It's
The Society for Mucopolysaccharide Diseases invested in research to find treatments for some of the 21 different MPS
conditions. It also supports regional clinics for families.
We are funding a workshop for young people. They can share their
Sickle Cell and Young Stroke Survivors experiences, learn how to be healthy and their families can share their
worries.
7. Help us reach our target
Find out more about our work at
www.jeansforgenesday.com
8. Buy our t-shirts
Designed to make a difference! Buy from our webshop and you won't just look amazing, you'll feel great too, knowing
that all profits from every sale goes to Jeans for Genes.
Order 25 t-shirts or more and get 20% off the cost of your order! Order online or via our free phone number 0800 980
4800.
www.jeansforgenes.com/webshop
Limited edition women's t-shirt design for 2010 modeled Our white branded t-shirts modeled by
by Amanda Holden and Amber Le Bon Leighton Denny and Jenny Frost
9. Buy or sell our stickers
Fifi Forget-Me-Not and her friends in Flowertot Garden are back!
This year they're helping to raise money for Jeans for Genes with a range of brand new glittery stickers.
Order a box and sell them at your school, club, workplace or just to friends and family. 40 sheets per box.
www.jeansforgenes.com/webshop
