Light in the Midst of
Darkness : Lived
Experiences of
A Cancer Warriors
Presented by:
Mignodel M. Morales, RN
Purpose and Significance
• Nursing Practice
•Nursing Education
•Nursing Profession
•Society
Research
Impediments and
Constraints
•Pedia
•Diagnosed with cancer
•Undergo chemotherapy
Research Questions
1.What are the perceptions
of informants regarding
cancer ?
2.How do the informants
cope with the life changing
condition ?
3.What are the motives and
the driving force of the
informants to continue life?
1.Anu iyong nasa isip pag
sinabing Cancer?
2.Panu mo Kinabagayan ang
Cancer? Anung mga pag
baabgo mong naranasan sa
iyong buhay?
3.Anung iyong pangarap at
saan ka nakuha ng lakas
upang ipag patuloy mo ang
iyong laban.
Research Methodology
Qualitative Research
Phenomenology
Purposive and Convenient
Sampling
Subjects of the
study
• 8 qualified
informants
•(M I G N O D E L as
their code name)
• 7 from Batangas
then 1 from Mindoro
•5 have ALL, 1 has
Langerhans Histio
cystosis , 1 osteo
sarcoma , 1
Lymphoma
Settings of the Study
Batangas Regional Hospital
Clinic for the Sick Child
Rigors of Qualitative Research
• Credibility
•Dependability
•Confirmability
•Transferability
Method of data collection
• Preparing for the interview
• Conducting the interview
• Post Interview
• Ethical Consideration
Data Analysis
1.Gathered and collated informant's
descriptions of the phenomenon
2.Transcribed informant’s verbalizations
3.Rechecked transcribed data
4.Read and analyze all data gathered
regarding informant’s description of the
phenomenon
5.Extracted significant statements from
transcribed data
6.Identified the meaning in each statement
7.Generated meaning from each
settlement
8.Organized the generated , meanings
and clustered
9.Referred back to original statements to
check for validity
10.Formulated exhaustive descriptions of
the phenomenon
11.Validation and confirmation of identified
themes with the informants
Results and
Discussion
Background and
Rationale
Cancer
Pedia
Qualitative
Research
Perceptions of
the Informants
regarding cancer
Fear of death
Darkness that
lurks within
Whisperer of
Death
hinihintay mo na hanggang saan ka na
lang
Kasi di ga siyempre nag papagamot kami
pag nag papagamot ka parang ang iniintay
mo ay gumaling o hinihintay mo na
hanggang saan ka na lang
Feelings of the
informants
Regarding
Cancer
Sense of Pain
and
Depression
Gloomy in the
dusk
Fierce Flame
Malungkot
Nakapag emote na
Masakit sa pakiramdam
Naiinis syempre di
pwedeng gumala
Nagagalit
Changes within
the Family
Family
Metamorphosis
Game of Luck
Tone of
Command
Freezing within
Game of Luck
• Malaking gastos
• Kasi di ga siyempre
nag papagamot,
kami pag nag
papagamot ka
parang ang iniintay
mo ay gumaling o
hinihintay mo na
hanggang saan ka
na lang
Tone of Command
• Naging maasikaso po
sila
• Maalaga po
• Sinusunod po nila ang
gusto ko
• Ako po binibili lagi ng
gusto ko ako lang
nakain
Freezing Within
• minsan po pag
ako’y minsan lang
po nakakapag laro,
di gaya ng dati na
lagi ako nag lalaro
Changes in the
community
Changing the
Unchanged
Inevitable Mask
Changing the Unchanged
• di ako tinuturing na
may sakit, talaga
normal na tao
• Hindi ako
pinagbabawalang
lumabas
• Nagtititnda, nag
aalaga ng aking
pamangkin
Inevitable Mask
• Kasi dati nasanay
ako ng ako ang
dumadalaw, ayw
ako ung ako’y
dadalawin o
puntahan
• Naiisip ko na may
sakit ako
• Yun na pabayaan
pagchicks
Changes in
one self
Prisoners of
Dusk
Shattered
Reflection
Sinking Ship
• Ako nga eh naiinis
syempre pag alis eh
di pwedeng mag
gala ng mag gala
• Parang nakakulong ,
parang nasa kampo
ng military lahat
may limit
Prisoners
of Dusk
• Yung sa rob kasi ,
yung lady guard ,
parang bago palang
yun , di ga di naman
lagi may lady guard
dun ,eh nakabonet
ako nuon ,
pinapatanggal , na
pa ha ganun, ako eh
sabi nung lalaki hindi
po hindi po parang
hiyang hiya yung
lalaki , nakakinis
Shattered
Reflection
• Parang may beke
daw, malaki nga
siya, ganun di ako
makalakad ng isang
Linggo UTI naman .
• Tapos nuneg gabi po
, din a po talaga
yung mata ko daw
po may pasa pasa,
yung dila kop o
brown daw po.
Sinking Ship
Blinded Dreams
Stealing the Light
Nakakhadlang sa kabarkada , nag
overnyt saya saya ngaun eh hindi
na
nakakaladlang pos a pagtututloy ng
pag aaral, makatulong sa pamilya at
magandang trabaho
Motivation and
dreams of the
Informants
A Sparkling
Light in the
midst of
Darkness
Holding onto
the light
gumaling ako ,
makapag tapos
ng pag aaral ,
mag karoon ng
magandang
trabaho
mag patayo
ako ng hotel or
restaurant
Looking beyond the Gloom
Fuel of Hope
lagi pong mag papasalamat sa
Panginoon
magpapasalamat kay Jesus
sa pamilya ko at sa mga friends
at yung aking pinakamamahal
bale ako na lang po eh
Light in the midst
of Darkness:
Coping and
Adaptation of
Cancer Children
Perceptions of
the informants
regarding cancer
Coping
Mechanism
Denial
Anger
Bargaining
Depression
Acceptance
Adaptation and
motivation of
informants
Changes n the
family
•Family task
•Financial
Changes in the
community
Changes in
oneself
•Physical
•Social
•Emotional
spiritual
A
Sparkling
Light in
the Midst
of
Darkness
A Sparkling Light in the
Midst of Darkness
Summary
Conclusions
The best use of life is to
spend it from something
that outlast life
William James
• Interviewer: “ Anu ang pinakamasakit
na naramdaman mo ? ”
• Interviewee: “ malaman ko po ang sakit
ko yun yung pinakamasakit ”
• Interviewer: “bakit ito ang
pinakamasakit nung nalaman mo ang
sakit mo? ”
• Interviewee: “di na po ako
makapagtapos”.
Recommendations
• Nursing Practice
• Nursing staff specially pediatric
oncology should be subjected to
intense training regarding the
interactions towards the special case
of the patient.
• Nursing staff should be sensitive
enough to the grievances of the
patients to be able to feel the genuine
care that patient longs to receive.
• The nursing staff should be always
within the optimistic environment to
aid in developing a positive mind set
within the hospital.
Recommendations
• Nursing Education
• The findings of this study be
incorporated into the discussions of
oncology nursing in the classrooms of
various nursing schools.
• Future nurse researchers can utilize
the conceptual model forwarded in
the study. (Light in the Midst of
Darkness: Adaptation and Motivation
of Cancer Children)
• Young nurses can pursue qualitative research
to provide them an in depth analysis of things
that are relevant to nursing. Seeing things in
other lenses and sides of nurses’ life and
patient’s perceptions can be a challenging
contribution.
• The study can be replicated with different
informants such as other terminal illnesses,
End Stage Renal Disease, Severe Pneumonia
and in other age range , adult , young adult or
geriatrics.
Recommendations
• Nursing Profession
• Intensify the oncology nursing
specialization , dealing not only with
physical signs but also on their emotional
state.
• Be adaptable to the continuous change
of health care especially for cancer
patients.
• Have some tie-ups with government and
non – government organizations in
addressing the problems of cancer
Thank You
and
Good Day

Mignodel

  • 1.
    Light in theMidst of Darkness : Lived Experiences of A Cancer Warriors Presented by: Mignodel M. Morales, RN
  • 2.
    Purpose and Significance •Nursing Practice •Nursing Education •Nursing Profession •Society
  • 3.
  • 4.
    Research Questions 1.What arethe perceptions of informants regarding cancer ? 2.How do the informants cope with the life changing condition ? 3.What are the motives and the driving force of the informants to continue life? 1.Anu iyong nasa isip pag sinabing Cancer? 2.Panu mo Kinabagayan ang Cancer? Anung mga pag baabgo mong naranasan sa iyong buhay? 3.Anung iyong pangarap at saan ka nakuha ng lakas upang ipag patuloy mo ang iyong laban.
  • 5.
  • 6.
    Subjects of the study •8 qualified informants •(M I G N O D E L as their code name) • 7 from Batangas then 1 from Mindoro •5 have ALL, 1 has Langerhans Histio cystosis , 1 osteo sarcoma , 1 Lymphoma
  • 7.
    Settings of theStudy Batangas Regional Hospital Clinic for the Sick Child
  • 8.
    Rigors of QualitativeResearch • Credibility •Dependability •Confirmability •Transferability
  • 9.
    Method of datacollection • Preparing for the interview • Conducting the interview • Post Interview • Ethical Consideration
  • 10.
    Data Analysis 1.Gathered andcollated informant's descriptions of the phenomenon 2.Transcribed informant’s verbalizations 3.Rechecked transcribed data 4.Read and analyze all data gathered regarding informant’s description of the phenomenon 5.Extracted significant statements from transcribed data
  • 11.
    6.Identified the meaningin each statement 7.Generated meaning from each settlement 8.Organized the generated , meanings and clustered 9.Referred back to original statements to check for validity 10.Formulated exhaustive descriptions of the phenomenon 11.Validation and confirmation of identified themes with the informants
  • 12.
  • 13.
  • 14.
  • 15.
    Fear of death Darknessthat lurks within Whisperer of Death hinihintay mo na hanggang saan ka na lang Kasi di ga siyempre nag papagamot kami pag nag papagamot ka parang ang iniintay mo ay gumaling o hinihintay mo na hanggang saan ka na lang
  • 16.
  • 17.
    Sense of Pain and Depression Gloomyin the dusk Fierce Flame Malungkot Nakapag emote na Masakit sa pakiramdam Naiinis syempre di pwedeng gumala Nagagalit
  • 18.
  • 19.
    Family Metamorphosis Game of Luck Toneof Command Freezing within
  • 20.
    Game of Luck •Malaking gastos • Kasi di ga siyempre nag papagamot, kami pag nag papagamot ka parang ang iniintay mo ay gumaling o hinihintay mo na hanggang saan ka na lang
  • 21.
    Tone of Command •Naging maasikaso po sila • Maalaga po • Sinusunod po nila ang gusto ko • Ako po binibili lagi ng gusto ko ako lang nakain
  • 22.
    Freezing Within • minsanpo pag ako’y minsan lang po nakakapag laro, di gaya ng dati na lagi ako nag lalaro
  • 23.
  • 24.
  • 25.
    Changing the Unchanged •di ako tinuturing na may sakit, talaga normal na tao • Hindi ako pinagbabawalang lumabas • Nagtititnda, nag aalaga ng aking pamangkin
  • 26.
    Inevitable Mask • Kasidati nasanay ako ng ako ang dumadalaw, ayw ako ung ako’y dadalawin o puntahan • Naiisip ko na may sakit ako • Yun na pabayaan pagchicks
  • 27.
  • 28.
  • 29.
    • Ako ngaeh naiinis syempre pag alis eh di pwedeng mag gala ng mag gala • Parang nakakulong , parang nasa kampo ng military lahat may limit Prisoners of Dusk
  • 30.
    • Yung sarob kasi , yung lady guard , parang bago palang yun , di ga di naman lagi may lady guard dun ,eh nakabonet ako nuon , pinapatanggal , na pa ha ganun, ako eh sabi nung lalaki hindi po hindi po parang hiyang hiya yung lalaki , nakakinis Shattered Reflection
  • 31.
    • Parang maybeke daw, malaki nga siya, ganun di ako makalakad ng isang Linggo UTI naman . • Tapos nuneg gabi po , din a po talaga yung mata ko daw po may pasa pasa, yung dila kop o brown daw po. Sinking Ship
  • 32.
    Blinded Dreams Stealing theLight Nakakhadlang sa kabarkada , nag overnyt saya saya ngaun eh hindi na nakakaladlang pos a pagtututloy ng pag aaral, makatulong sa pamilya at magandang trabaho
  • 33.
  • 34.
    A Sparkling Light inthe midst of Darkness Holding onto the light gumaling ako , makapag tapos ng pag aaral , mag karoon ng magandang trabaho mag patayo ako ng hotel or restaurant
  • 35.
    Looking beyond theGloom Fuel of Hope lagi pong mag papasalamat sa Panginoon magpapasalamat kay Jesus sa pamilya ko at sa mga friends at yung aking pinakamamahal bale ako na lang po eh
  • 36.
    Light in themidst of Darkness: Coping and Adaptation of Cancer Children
  • 37.
    Perceptions of the informants regardingcancer Coping Mechanism Denial Anger Bargaining Depression Acceptance Adaptation and motivation of informants Changes n the family •Family task •Financial Changes in the community Changes in oneself •Physical •Social •Emotional spiritual A Sparkling Light in the Midst of Darkness
  • 38.
    A Sparkling Lightin the Midst of Darkness
  • 39.
    Summary Conclusions The best useof life is to spend it from something that outlast life William James
  • 40.
    • Interviewer: “Anu ang pinakamasakit na naramdaman mo ? ” • Interviewee: “ malaman ko po ang sakit ko yun yung pinakamasakit ” • Interviewer: “bakit ito ang pinakamasakit nung nalaman mo ang sakit mo? ” • Interviewee: “di na po ako makapagtapos”.
  • 41.
  • 42.
    • Nursing staffspecially pediatric oncology should be subjected to intense training regarding the interactions towards the special case of the patient. • Nursing staff should be sensitive enough to the grievances of the patients to be able to feel the genuine care that patient longs to receive.
  • 43.
    • The nursingstaff should be always within the optimistic environment to aid in developing a positive mind set within the hospital.
  • 44.
  • 45.
    • The findingsof this study be incorporated into the discussions of oncology nursing in the classrooms of various nursing schools. • Future nurse researchers can utilize the conceptual model forwarded in the study. (Light in the Midst of Darkness: Adaptation and Motivation of Cancer Children)
  • 46.
    • Young nursescan pursue qualitative research to provide them an in depth analysis of things that are relevant to nursing. Seeing things in other lenses and sides of nurses’ life and patient’s perceptions can be a challenging contribution. • The study can be replicated with different informants such as other terminal illnesses, End Stage Renal Disease, Severe Pneumonia and in other age range , adult , young adult or geriatrics.
  • 47.
  • 48.
    • Intensify theoncology nursing specialization , dealing not only with physical signs but also on their emotional state. • Be adaptable to the continuous change of health care especially for cancer patients. • Have some tie-ups with government and non – government organizations in addressing the problems of cancer
  • 49.