Improving data collection and information channels to support performance improvement -Insights from the ECHO Project
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This document discusses two ongoing transitions in health systems - from fragmented to integrated data, and from incremental to exponential data growth. It describes challenges in making sense of large amounts of data and turning it into useful knowledge. The ECHO project aims to address these challenges by facilitating access to real-world patient data, data sharing and linkage, and developing comparable health system performance indicators. The ultimate goal is providing timely, meaningful information to help decision-makers improve performance.
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Improving data collection and information channels to support performance improvement -Insights from the ECHO Project
- 1. www.echo-health.eu Improving data collection and information channels to support performance improvement Insights from the ECHO Project Enrique Bernal-Delgado MD PhD ebernal.iacs@aragon.es
- 6. www.echo-health.eu Exponential data growth Constant data production Integrated data Incremental data growth Quasi-static information Fragmented data
- 7. www.echo-health.eu MAKING SENSE OUT OF DATA THE BIG CHALLENGE From DATA to KNOWLEDGE
- 8. www.echo-health.eu RESEARCH INITIATIVES IN EUROPE AIMING THE TRANSITION
- 10. www.echo-health.eu Demonstration project aimed at eliciting unwarranted variations in health systems value http://www.echo-health.eu/
- 11. www.echo-health.eu ACCESS TO REAL WORLD PATIENT- AREA- LEVEL DATA DATA SHARING AND LINKAGE HARMONI ZATION COMPARABLE HSPA INDICATORS DATA CHALLENGES ADDRESSED IN ECHO
- 12. www.echo-health.eu Essentially ineffective care [Tonsillectomy in children] Effective surgery in non- eligible patients [C-section in low risk deliveries]
- 13. www.echo-health.eu Low quality care [Mortality after CABG] -50 0 50 100 150 200 0 500 1000 1500 Patient undergoing surgery CI-95 CI-99 Unsafe care [PTE & DVT after surgery RISK-ADJUSTEDCASEFATALITYRATES-(CABG) 2,11 1,48 3,84 2,04 3,16
- 14. www.echo-health.eu Interventions with a more cost-effective alternative [Hysterectomy in benign conditions] Underuse of effective care [PCI in low-income areas] 0 6 12 18 24 30 2002 2003 2004 2005 2006 2007 2008 2009 Standardised Rate Q1 Q2 Q3 Q4 Q5
- 15. www.echo-health.eu THIS IS USEFUL, ALTHOUGH NOT ENOUGH
- 16. www.echo-health.eu DECISION-MAKERS NEED TIMELY, MEANINGUL AND PRONE-TO-ACTION INFORMATION
- 20. www.echo-health.eu WORKSHOP ON BIG DATA – DG RESEARCH AND INNOVATION
- 21. www.echo-health.eu How likely is it that EHR will be used for National Health Care Quality Monitoring in the next five years?
- 22. www.echo-health.eu • Piloting the application of Big Data to inform on health • Leverage the potential of open science for the exploitation of Big Data in health • Harmonize regulatory frameworks for health-related research and data sharing • Development of research infrastructures • Rapid transition to new computational and/or mathematical methods • Involvement of relevant stakeholders in projects
- 24. www.echo-health.eu Improving data collection and information channels to support performance improvement Insights from the ECHO Project Enrique Bernal-Delgado MD PhD ebernal.iacs@aragon.es