www.echo-health.eu
Improving data collection and
information channels to support
performance improvement
Insights from the ECHO Project
Enrique Bernal-Delgado MD PhD
ebernal.iacs@aragon.es
www.echo-health.eu
TWO TRANSITIONS
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HEALTH SYSTEMS
TRANSITION
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KNOWLEDGE TRANSITION
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Exponential data growth
Constant data production
Integrated data
Incremental data growth
Quasi-static information
Fragmented data
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MAKING SENSE OUT OF DATA
THE BIG CHALLENGE
From DATA to KNOWLEDGE
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RESEARCH INITIATIVES IN
EUROPE AIMING THE
TRANSITION
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http://www.bridge-health.eu/
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Demonstration project aimed at
eliciting unwarranted variations in
health systems value
http://www.echo-health.eu/
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ACCESS TO
REAL WORLD
PATIENT-
AREA- LEVEL
DATA
DATA
SHARING
AND
LINKAGE
HARMONI
ZATION
COMPARABLE
HSPA
INDICATORS
DATA CHALLENGES ADDRESSED IN ECHO
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Essentially ineffective care
[Tonsillectomy in children]
Effective surgery in non-
eligible patients
[C-section in low risk deliveries]
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Low quality care
[Mortality after CABG]
-50
0
50
100
150
200
0 500 1000 1500
Patient undergoing surgery
CI-95 CI-99
Unsafe care
[PTE & DVT after surgery
RISK-ADJUSTEDCASEFATALITYRATES-(CABG)
2,11 1,48 3,84 2,04 3,16
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Interventions with a more
cost-effective alternative
[Hysterectomy in benign conditions]
Underuse of effective care
[PCI in low-income areas]
0
6
12
18
24
30
2002 2003 2004 2005 2006 2007 2008 2009
Standardised	Rate
Q1 Q2 Q3 Q4 Q5
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THIS IS USEFUL,
ALTHOUGH NOT ENOUGH
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DECISION-MAKERS NEED TIMELY, MEANINGUL AND
PRONE-TO-ACTION INFORMATION
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THE EU LANDSCAPE
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WORKSHOP ON BIG DATA – DG RESEARCH AND INNOVATION
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How likely is it that EHR will be used for National Health
Care Quality Monitoring in the next five years?
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•  Piloting the application of Big Data to inform on health
•  Leverage the potential of open science for the exploitation of Big
Data in health
•  Harmonize regulatory frameworks for health-related research and
data sharing
•  Development of research infrastructures
•  Rapid transition to new computational and/or mathematical
methods
•  Involvement of relevant stakeholders in projects
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EXCHANGES
DATA
MANAGES
DATA
CREATES
KNOWLEDGE
TRANSFERS
KNOWLEDGE
ERIC
on
DATA
REUSE
INFRASTRUCTURE DEVELOPMENT
CAPACITY BUILDING
www.echo-health.eu
Improving data collection and
information channels to support
performance improvement
Insights from the ECHO Project
Enrique Bernal-Delgado MD PhD
ebernal.iacs@aragon.es

Improving data collection and information channels to support performance improvement -Insights from the ECHO Project