Early-onset Group B Streptococcal Disease - Insights from affected families https://www.meningitis.org/mrf-conference-2017

1. Presented by: Jane Plumb MBE
Group B Strep Support
jplumb@gbss.org.uk / 01444 416176

2. UK charity, founded 1996
Dedicated to eradicating
GBS infection in babies
Provides up-to-date
evidence-based info to
families & health
professionals
Supports affected families
Expert medical advisory
panel

3. Explore the health, social and other
issues faced by affected families
during their baby’s EOGBS
afterwards, including subsequent
pregnancies

4. Online survey
(n=930):
parents/carers
of EOGBS
babies
Participants asked about:
• awareness of antenatal GBS
carriage status
• IV antibiotics in labour
• clinical presentation of
baby’s EOGBS
• longer-term health, social &
other consequences of

5. 74% of babies first
unwell aged <12
hours
15% aged 12-24
hours
5% aged 2 days
3% aged 3 days

6. 68% made a
full recovery
24% recovered
with long-term
health
consequences
40%
substantial
8% died

7. 76% of
surviving
babies were
in hospital
for 7+ days

8.  89% respondents
(n=752) reported
practical or
financial difficulties
during baby’s
hospital stay

9.  30% reported
that siblings
experienced
difficulties as a
result of their
sibling’s EOGBS
 24% reported
resultant financial
difficulty

10. Insight into what families may be experiencing during EOGBS and afterwards,
including subsequent pregnancies
Most parents of a EOGBS baby experienced difficulties during baby’s
inpatient care
Long-term issues remain for many families, even when EOGBS babies make a
full recovery
Need for health professionals to reflect on the care, support and information
these families may need