1. Fulfilling Potential
ecdp response, March 2012
Part 4/4: Annexes
This document forms part four of four of ecdp’s response to the Office for Disability Issues
Fulfilling Potential discussion. The Annexes below describe how ecdp worked with members to
coproduce a response and some of the key outputs which resulted from this work.
All four parts of the report are available on the ecdp website: www.ecdp.co.uk.
For further information on any element of these documents, please contact Rich Watts (Director
of Policy & Development, ecdp) on rwatts@ecdp.co.uk or 01245 392 324.
Annex 1 – How this response was created
Following ODI’s announcement of the Fulfilling Potential discussion, ecdp has worked with
members to collect their lived experience and co-produce a response.
ecdp Fulfilling Potential focus groups
Through four focus groups, including 80 disabled people from all impairment groups and of all
ages, we held detailed discussions with people from across Essex:
• Focus group 1: a pan-impairment group for disabled and older people (aged16-80). This
group was attended by 15 participants
• Focus group 2: a group for young disabled people and people with learning disabilities,
attended by 25 people
• Focus group 3: a pan-impairment reference group who advise ecdp on issues surrounding
the Right to Control in Essex. The reference group has 10 regular contributors
• Focus group 4: a pan-impairment group formed of 30 members of ecdp’s staff drawing on
their own lived experience and that of supporting other disabled people in Essex.
Various outputs from the above focus groups are also available online, as described below:
• The stories of three focus of the focus groups are available on our website:
http://www.ecdp.org.uk/home/2012/3/2/fulfilling-potential-the-story-so-far-part-iii.html
• Photos from the events are available from ecdp’s Flickr account:
http://www.flickr.com/photos/essexcdp/
• Audio recordings are available on Audioboo:
o http://audioboo.fm/rich_w
o http://audioboo.fm/fayesavage
• Three videos are available on YouTube:
o http://youtu.be/bv_3Tc5k1r0
o http://youtu.be/9xVac02Ji34
o http://youtu.be/hD-wk9BIdXQ
ecdp Fulfilling Potential survey
We launched an online survey to inform our response, which ran for three months. The survey
was completed by 44 individuals from across Essex, who shared their lived experience of the key
Fulfilling Potential – ecdp response, March 2012 Page 1 of 5
Part 4/4 : Annex

2. areas outlined in the Fulfilling Potential discussion document. A more detailed demographic
breakdown of these individuals is provided below.
Please tell us which gender you identify as:
• Female – 64.7%
• Male – 29.4%
• Other – 0%
• Prefer not to say – 5.9%
Please give details of your sexuality:
• Heterosexual – 88.6%
• Homosexual – 2.9%
• Bisexual – 2.9%
• Prefer not to say – 5.7%
Please give details of your impairment (if you have multiple impairments, please tick all that
apply):
• Mental health condition – 31.4%
• Learning disability – 22.9%
• Physical impairment – 57.1%
• Sensory impairment – 8.6%
• Long term health condition – 48.6%
• Prefer not to say – 2.9%
Please give details of your ethnic group:
• Black African – 5.6%
• White British – 77.8%
• White Irish – 2.8%
• White (any other background) – 8.3%
• Prefer not to say – 5.6%
Please tell us which area of Essex you live in:
• North East Essex – 19.4%
• North West Essex – 2.8%
• Mid Essex – 11.1%
• South West Essex – 5.6%
• South East Essex – 22.2%
• Thurrock – 0%
• Outside of Essex – 30.5%
Other reports
ecdp also drew on previous work carried out with disabled people in Essex, which are highlighted
below. Throughout this report we have also drawn on the considerable contribution of disabled
people in Essex to these other key pieces of work. The number of individuals who have
contributed through surveys, focus groups and meetings to these other pieces of work are listed
below:
• Survey respondents – 404
• Focus group participants – 76
• Public meeting attendees – 140
Fulfilling Potential – ecdp response, March 2012 Page 2 of 5
Part 4/4 : Annex

3. When all of our engagement mechanisms are included, therefore, we estimate we have had
direct contact with approximately 650 disabled people in Essex and beyond in informing this
response to Fulfilling Potential.
Access to Work and Driver Support – ecdp Lived Experience Report (August 2011)
http://www.ecdp.org.uk/home/2011/8/15/disabled-people-may-be-prevented-from-
working-due-to-governm.html
Big Care Debate – ecdp response (November 2009)
http://www.ecdp.org.uk/home/2009/11/7/ecdp-contributes-to-the-big-care-debate.html
Changes to DLA and ILF – ecdp survey (July 2011)
http://www.ecdp.org.uk/home/2010/7/23/results-of-ecdps-survey-on-dla-ilf.html
Caring for Our Future – ecdp member engagement (November 2011)
http://www.ecdp.org.uk/home/2011/11/8/contribute-your-lived-experience-at-ecdps-
agm.html
Caring for our Future – ecdp response (December 2011)
http://www.ecdp.org.uk/home/2011/12/6/ecdp-response-to-caring-for-our-future.html
Disability Hate Crime – ecdp Lived experience report (May 2011)
http://www.ecdp.org.uk/home/2011/5/25/disability-hate-crime-in-essex-and-beyond-a-
report-by-ecdp.html
Disability Hate Crime: ecdp member engagement (November 2010)
http://www.ecdp.org.uk/home/2010/11/5/your-views-on-hate-crime-and-safeguarding.html
DLA reform Consultation – ecdp response (February 2011)
http://www.ecdp.org.uk/home/2011/2/16/dla-reform-consultation-ecdp-response.html
Modernising Commissioning Green Paper – ecdp response (December 2010)
http://www.ecdp.org.uk/home/2010/12/23/modernising-commissioning-green-paper-our-
response.html
PIP draft criteria and regulations – ecdp final report (August 2011) http://www.ecdp.org.uk/home/
2011/8/31/ecdp-members-share-final-views-on-pip.html
Personalisation: the experience of services users (June 2011)
http://www.ecdp.org.uk/home/2011/6/7/personalisation-the-experience-of-service-
users.html
Right to Control Consultation – ecdp response (September 2009)
http://www.ecdp.org.uk/home/2009/10/5/right-to-control-consulation-ecdp-response.html
Specialist Disability Employment Programmes Consultation – ecdp submission (October 2011)
http://www.ecdp.org.uk/home/2011/10/18/ecdp-response-to-getting-in-staying-in-and-
getting-on.html
Fulfilling Potential – ecdp response, March 2012 Page 3 of 5
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4. Annex 2 – About ecdp
ecdp is an organisation run by and for disabled and older people. Established in 1995 our origins
are firmly rooted in a belief that the voice of disabled and older people, both as individuals and
collectively, is vital if the lives of disabled and older people are to be enhanced.
Our vision is to enhance the everyday lives of disabled and older people in Essex and beyond.
We do this by:
• Actively involving and engaging with disabled and older people
• Delivering a range of high quality services, projects and programmes
• Working in partnership with a range of stakeholders in the public, private and voluntary
sectors
• Shaping and influencing strategy, policy and practice
• Creating a professional, effective and efficient organisation that can and does deliver.
We provide a wide range of support, information, advice and guidance services, primarily in the
field of social care. We currentlyi provide Direct Payment / Personal Budget support services to
approximately 3,900 clients in 3 services across 4 local authority areas. We are also closely
involved in the design and delivery of the Right to Control Trailblazer in Essex. As an organisation
we have 43 staff, approx £1.7m turnover, nearly 190 volunteers and approximately 1,700
members of all ages and impairment groups.
Fulfilling Potential – ecdp response, March 2012 Page 4 of 5
Part 4/4 : Annex

5. i
As of December 2010