ecdp email bulletin 34


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ecdp email bulletin 34

  1. 1. March 2012 This update includesMonthly Bulletin 34 articles on the following topics:Dear Members,Welcome to the March edition of ecdp’s monthlyemail bulletin. This has been an exceptionally ecdp newsbusy month at ecdp, and we have been workingon some exciting projects with our members. 1. Fulfilling Potential discussionThis week we held our second Fulfilling Potential 2. Health and social care:focus group with young disabled people and effectively capturing yourpeople with learning disabilities. It was great to views and experiencessee so many people engaged with the work and 3. Working with Skills foroffering practical solutions to tackling some of the Care to give you thebarriers disabled people face in their lives. information you need as an employerHugh Pullinger, Deputy Director of DisabilityStrategy at DWP introduced the session andspent the day listening to the suggestions of local newsparticipants. 4. Job Opportunity atYou can read more about the event and how you Terrence Higgins Trustcan contribute your lived experience to this 5. A new animal in Essex:important work on page 3. Dancing GiraffeWe welcome member contributions to the national newsbulletin, our website and the ecdp magazine. Ifyou would like to write something, or comment on 6. Joint Committeeany of the articles in this edition of the bulletin, publishes report on theplease get in touch with us using the details human rights of disabledbelow. people 7. Disability Rights UKIf you have missed a previous email bulletin, they launch hate crimeare all available on our website: ecdp monthly guidanceMarch 2012 – Monthly Update 34 Page 1 of 21
  2. 2. Monthly Bulletin 34 – March 2012email bulletin. 8. Disability Law ServiceBest wishes, Training Courses 9. Disability Rights UKRich Watts networking andDirector of Policy and Development empowerment events 10.New smartphone app based on Braille 11.Inclusion London – A matter of survival If you want to get in touch with us about any of the articles included in this bulletin: Telephone: 01245 392 300 Email: Post: Ivan Peck House, 1 Russell Way, Chelmsford, Essex, CM1 3AA.March 2012 – Monthly Update 34 Page 2 of 21
  3. 3. ecdp newsFulfilling Potential discussionThe Government is currently engaging with disabledpeople and their organisations on a new cross-Government disability strategy.ecdp has been working with disabled people in Essex toinform our response to the Fulfilling Potential discussionexercise, which will inform this strategy. Last month weshared details of our first focus group.ecdp held the second event on Tuesday 28 February.All our members were invited, but we particularly wantedto ensure the perspective of young disabled people andpeople with learning disabilities was represented.We were delighted to welcome Hugh Pullinger, who isDeputy Director of Disability Strategy at Department ofWork and Pensions (DWP). Hugh introduced thesessions by talking about the importance of the FulfillingPotential work and the purpose of a disability strategy.Participants were then able to ask Hugh questions;including how the disability strategy will addressparticular issues they had.Smaller groups discussed three questions; aboutachieving in education and employment, about havingchoice and control and living independently and aboutchanging attitudes towards disabled people.You can follow the conversations through a Storify available onthe ecdp website: Fulfilling Potential: the story so far… (part II)All participants made a huge contribution and had a lot to sayabout how to improve the lives of disabled people.Damon Rose, a journalist from BBC Radio 4 joined us duringthe event to record a segment for the Radio 4 You and Yoursprogramme which was broadcast today. We will share therecording with members as soon as it is available.March 2012 – Monthly Update 34 Page 3 of 21
  4. 4. ecdp newsStephen Hodgkins produced a ‘graphick’ representing the wideranging discussion we had on the day, resulting in the fantastic imagebelow.Remember, there is still time for you to share your lived experiencethrough the ecdp Fulfilling Potential survey, which will close this Friday2 March.If you’d like any further information on the Fulfilling Potential work,please contact Faye Savage at ecdp: email orcall 01245 214 023.March 2012 – Monthly Update 34 Page 4 of 21
  5. 5. ecdp newsHealth and social care: effectivelycapturing your views and experiencesecdp has recently been asked by Essex County Council to find outhow to best capture your views and experiences of the health andsocial care systems. This is to ensure that your views and experiencesare reflected in the way decisions about health and social care inEssex are taken.Over the coming months, we will be finding out what you think are themost practical and effective ways of capturing what people think, andhow we can ensure that everyone has a chance for their voice to beheard.How we will do this workVery soon we will be using our website, our monthly email bulletin andour various social media (such as Twitter and Facebook) to let youknow more about the work and how you can get involved. We will alsokeep you updated on the progress we are making so that you can letus know if we’re including the sorts of things you would expect us to.We will be hosting a range of focus groups through March, April andMay, where we will bring people together to talk about how they wouldlike to be involved in shaping health and social care. We will also havean online survey so that you can tell us your views at any time.We’re very keen to ensure this work covers as many different groupsof people across Essex. This means we will work with: People with learning disabilities People with long-term health conditions People with mental health conditions People with physical and/or sensory impairments Young people People from BME backgrounds LGBT people Gypsy, Roma and Traveller communities.March 2012 – Monthly Update 34 Page 5 of 21
  6. 6. ecdp newsOur colleagues at Age UK (Essex) will also be working closely with usto ensure the views of older people in Essex are included.Contact usIf you’d like to ensure you receive information about the research workwe’re doing, or if you’d like to make sure your voice is heard, pleasecontact: Rich Watts on or 01245 392 324. We willbe able to pay people for their time and travel in being involved in thiswork.Our experienceecdp has a wide range of experience in capturing the views and livedexperiences of disabled and older people in Essex. We do this in avariety of different ways, including varied communications techniques,focus groups, interviews and surveys. We have used this experienceto do work on a number of different topics, such as: Disability benefit reform Access to Work Blue Badge reform Disability Hate Crime The personalisation of social care The Right to ControlMarch 2012 – Monthly Update 34 Page 6 of 21
  7. 7. ecdp newsWorking with Skills for Care to give youthe information you need as anemployerecdp is delighted to be working with Skills for Care to supportdisabled people in Essex and beyond who employ their ownstaff to access Skills for Care’s useful and time-savingresources.Skills for Care wants to ensure that the people who work for disabledand older people in providing care – often paid for by Direct Paymentsor Personal Budgets – have the right skills and qualifications to do so.We know Direct Payments can be a very beneficial way of arrangingyour social care. But we also understand that it can sometimes taketime to get the right information to feel fully in control.This is why ecdp is working with Skills for Care to ensure their usefulinformation is made as available as possible to you. We also want tomake sure you have the opportunity to let Skills for Care know howuseful their resources are: what is good, what can be improved, andwhat new things you might like to see.How we will do thisOver the next four months, we’ll be telling you much more about theresources that Skills for Care have. We will be using our website(, our monthly bulletin, our quarterly magazine andour social media (Twitter, Audioboo and YouTube) to keep you up-to-date on the support available and how you can access it.We will also be holding three dedicated focus groups in March, Apriland May. This means you’ll have the chance in person to find out fromSkills for Care about the work they do, and let them know how it couldbe improved.We’re also keen to let you know about a very useful source ofinformation that Skills for Care has developed: it’s called a “SocialMarch 2012 – Monthly Update 34 Page 7 of 21
  8. 8. ecdp newsCare Data Set”, and what it can tell you is the types of skills you canexpect to find for carers in Essex, what types of qualifications theymight have, and all sorts of other useful information you might need tohelp you make a good decision when looking for your next carer /Personal Assistant.Keep in touchIf you’d like to ensure you receive information about the work we’redoing with Skills for Care, or if you’d like to take part in the plannedfocus groups, please contact: Rich Watts on or01245 392 324. We will be able to pay people for their time and travelin being involved in this work.You can find out more about Skills for Care and what they do here: ecdp’s payroll support service – ecdp passOur payroll service – ecdp pass – supports disabled and older peoplewith employing Personal Assistants (PAs). ecdp pass provides a vitalsupport system for people who want the independence that a DirectPayment / Personal Budget / cash payment can give them, but forwhatever reason feel they need some support to do so. We have apersonalised payroll service to meet user’s individual needs throughoffering as much of a tailored service as possible. This includespayment facilities, quarterly returns to Councils, staff recruitment andchecking, and PA training. To find out more about ecdp pass pleasevisit the ecdp website or contact them on 01245 392 320.March 2012 – Monthly Update 34 Page 8 of 21
  9. 9. Local NewsJob Opportunity at Terrence Higgins TrustHIV is the fastest growing serious health condition in the UK todaywith 6,136 new cases diagnosed in 2010 alone. Terrence HigginsTrust (THT) is at the forefront of the fight against HIV and poorsexual health, working with both individuals and communities to raiseawareness and understanding, and to provide support and guidanceto individuals to empower them to make decisions around their ownsexual health needs.Terrence Higgins Trust is looking for a Case Worker, who will be responsiblefor a caseload of clients with a direct focus on improving long term conditionmanagement for people living with HIV.You will be competent in assessment and care planning and reviewprocedures. You will be a good communicator both verbal and written, be ableto cope in a crisis and have skills in team working and working alone. You willbe computer literate and able to use a database recording system.This post requires travel across the Essex area so you must be a car driverand have a current UK driver’s licence. This role requires an Enhanced CRBdisclosure.THT will reward your energy and enthusiasm with a great range of benefitsincluding generous annual leave, season ticket loan, family friendly policiesand support for flexible working agreements.Role: Case WorkerHours: 35 hours per weekStarting salary: £22,624 per annumLocation: ColchesterRef: EWE010Closing date:19 March 2012Interview: 26 March 2012THT Case Worker - Job Description and Person Specification.To apply online and for information on all vacancies go to: 2012 – Monthly Update 34 Page 9 of 21
  10. 10. Local NewsFor enquiries: email quoting the reference numberEWE010.March 2012 – Monthly Update 34 Page 10 of 21
  11. 11. Local NewsA new animal in Essex: Dancing GiraffeA new Colchester-based organisation, that aims to bringnew opportunities to disabled people throughout Essex,has recently launched.Dancing Giraffe is an online community which enables people to accessinformation, products and services. It was founded and launched by ShaunMoffat, a Colchester-based businessman and campaigner, and received BigLottery Funding to enable it to launch in January 2012.Its Mission Statement is:To provide a platform to inspire, inform and represent the Essex disabledcommunity. Through this internet portal, Dancing Giraffe will offer support andadvice for people with disabilities, their carer/s, professionals, organisationsand the media. It will bring together comprehensive information and dataabout services and facilities available and will present them in one easy toaccess place. Dancing Giraffe will also provide a forum for disabled people todiscuss and compare access issues and solutions.To find out more about what Dancing Giraffe do and how you can getinvolved, visit their website: 2012 – Monthly Update 34 Page 11 of 21
  12. 12. National NewsJoint Committee publishes report on thehuman rights of disabled peopleThe Joint Committee on Human Rights (JCHR) haspublished its Report on the implementation of the right ofdisabled people to independent living.The report looks at how the law is or isn’t working to ensurethat disabled people have the same opportunities aseveryone else. It particularly looks at what the UnitedNations thinks governments should be doing – throughsomething called the United Nations Convention on theRights of Disabled People – and whether this is happeningin practice.The report unfortunately finds that there is still a lot to do if the rightto independent living is to be achieved for disabled people. It alsoexpresses concern that a lot of the current changes happening –such as to benefits and social care services – risk leaving peoplewithout the support they need to live independently.You can read about the JCHR’s report on the Parliament website:Joint Committee on Human Rights.The full report is also available as a pdf on the Parliament website:Joint Committee on Human Rights – full reportecdp was delighted to be involved in the Joint Committee’s workon this report. In September last year we hosted a visit of theCommittee to our offices in Chelmsford (see photos). You can readabout their visit in two articles on the ecdp website:ecdp hosts visit of a group of MPs and LordsThe story of JCHR visit to ecdpWe were pleased to see that the Joint Committee includingMarch 2012 – Monthly Update 34 Page 12 of 21
  13. 13. National Newsreference to our work on Disability Hate Crime over the last 18 months. Youcan read what the Joint Committee said about this work in paragraph 206 oftheir full report. You can also read about ecdp’s work on Disability Hate Crimeon the ecdp website: Disability Hate Crime in Essex and beyond.March 2012 – Monthly Update 34 Page 13 of 21
  14. 14. National NewsDisability Rights UK launch hate crimeguidanceDisability Rights UK has launched a new guide on reporting hate crimeexperienced by disabled people. Maria Miller MP, the Minister for DisabledPeople spoke at the launch alongside Liz Sayce, the Chief Executive ofDisability Rights UK. The guidance was developed by Disability Rights UK inalliance with ODI and the launch was attended by senior stakeholders fromthe disability movement.Reports of hate crime against disabled people are growing and so areprosecutions, which went up to 579 in 2009-10. However, around half ofdisabled people say in surveys that they have experienced disability-relatedhate crime or harassment – so these convictions are only the tip of a largeiceberg and there is a major discrepancy between the number of disabledpeople who have been the victim of disability hate crime and the number ofdisability hate crimes that have been recorded.The guidance has been developed for local disabled peoples organisations tosupport them to report incidents of hate crime to the police. In addition,guidance has been produced for carers, friends and familiesLiz Sayce said: "Hate Crime against disabled people is shocking and has tostop. I hope our guidance will lead to change locally, enable disabled peopleto report hate crime and support new partnerships between disabled peoplesorganisations and local agencies, ranging from housing associations throughto the police and the CPS."Minister for Disabled People Maria Miller MP added: "Hate crime in all itsforms is intolerable as it perpetuates segregation and creates fear. It has noplace in our society, whether it is verbal abuse from children on street corners,mental persecution by those who are meant to provide care or physicalattacks carried out by callous bullies. We will not tolerate it.”The Let’s Stop Disability Hate Crime guidance documents can be downloadedfrom the Radar website.March 2012 – Monthly Update 34 Page 14 of 21
  15. 15. National Newsecdp’s work on disability hate crime is available on the ecdp website:Disability Hate Crime in Essex and Beyond.March 2012 – Monthly Update 34 Page 15 of 21
  16. 16. National NewsDisability Law Service Training CoursesDisability Law Service (DLS) has announced the next session of trainingcourses delivered by their specialist legal team.If you are involved with advice, advocacy or campaigning, or provide servicesto disabled people or carers, you may be interested in the courses below.For further information, please click on the course you are interested inattending (see below) and the link will take you to the DLS website.Legal courses delivered by DLS expert lawyers:Understanding mental capacity and the law - 14 March (10am–1pm)Introduction to Community Care Law - 15 March (10am–1pm)Supporting people facing discrimination at work - 19 March (10am–4:30pm)Disability Living Allowance and Attendance Allowance – A Guide toSuccessful Claims - 21 March (10am–1pm)Using the Equality Duty to challenge decisions and promote disability rights -23 March (10am–1pm)A basic guide to Employment and Support Allowance and to appealingdecisions - 26 March (10am–1pm)Disability Discrimination Overview: Challenging discrimination at work andpromoting access to goods and services - 28 March (10am–1pm)Additional non legal courses delivered by DLS development team:Knowledge is power? Empowering disabled people through public legaleducation - 2 April (10am–1pm)Personalisation – taking stock and moving - 16 April (10am-1pm)Courses are delivered at DLS’s accessible offices in Whitechapel and costMarch 2012 – Monthly Update 34 Page 16 of 21
  17. 17. National News£63 + VAT for half day/ £105 + VAT for full day (voluntary sector rates).Discounts are available for multiple bookings. All legal courses are accreditedwith the Solicitors Regulation Authority and attract CPD points.For additional information or to discuss DLS training, please call 020 77919819 or email: 2012 – Monthly Update 34 Page 17 of 21
  18. 18. National News Disability Rights UK networking and empowerment events Disability Rights UK is a new organisation formed from the recent merger of Radar, Disability Alliance and the National Centre for Independent Living. They are holding a series of regional events to introduce the new organisation to disabled people and their organisations across the country. This is an opportunity for you and / or your organisation to find out about Disability Rights UK, to ask questions, and crucially, to get involved. Disability Rights UK aims to be a user-led organisation, so they need you to be part of it. Thursday 1 March, Birmingham, RNIB Tuesday 6 March, Ipswich, IP City Tuesday 13 March, London, SCOPE, Market Road Wednesday 14 March, Southampton, Southampton CIL Monday 19 March, Sheffield, The Circle Tuesday 27 March, Manchester, Breakthrough UK Wednesday 4 April, Plymouth, HQ For Darlington, Sheffield and Manchester download the Booking Form or contact Cheryl Gowar, 020 7503 6176, For Leicester, Birmingham, Ipswich, London, Southampton and Plymouth download the Booking Form or contact Karen Earl, 020 7587 1663, March 2012 – Monthly Update 34 Page 18 of 21
  19. 19. National NewsNew smartphone app based on BrailleA new app has been developed to help people with visualimpairments to use smartphones. The new system is basedon the Braille writing system, and could make typing up to sixtimes faster than existing methods for texting without sight.The system is faster because users do not have to move theirhands to text as they do with the Qwerty keyboard.The app, Brailletouch, was developed in America and will be available onApple and Android phones.The full Brailletouch story is available on the BBC website.March 2012 – Monthly Update 34 Page 19 of 21
  20. 20. National News Inclusion London – A matter of survival Inclusion London have published an important new report on recent research they carried out into the funding cuts experienced by London’s Deaf and disabled peoples organisations and the implications these cuts have for users and wider social and disability equality policy. There are an estimated 120 Deaf and Disabled People’s Organisations (DDPOs) in London. DDPOs have played a pioneering and pivotal role in the progress towards equality for Deaf and disabled people over the last 30 years - promoting the rights, equality and inclusion of Deaf and disabled people and providing a wide range of essential projects and services that enable many thousands of Deaf and disabled Londoners to have more choice, control and independence in their lives. Despite plenty of anecdotal evidence of significant cuts to DDPOs, there has been no specific research on funding cuts experienced by DDPOs and the implications these cuts may have for social and disability equality policy. In response, Inclusion London – a pan London DDPO – carried out a survey with 54 London DDPOs on the funding cuts experienced by these organisations and the implications these cuts have for DDPO users and wider social and disability equality policy. The research was funded by Trust for London. Key findings included: 1 in 5 of the DDPOs surveyed face closure this year or next. Of the 54 DDPOs surveyed 40 had experienced cuts in funding in 2011/12. 8 of these DDPOs had cuts of up 20% of their total income. 5 DDPOs had cuts of between 20% -50% of total income. 31 DDPOs expected further funding cuts in 2012/13. 12 of these DDPOs expected cuts of 50% or more of their total income The biggest reductions in funding came from Local Authority funding sources. March 2012 – Monthly Update 34 Page 20 of 21
  21. 21. National NewsThe full report, including the implications of these findings for DDPOs, isavailable on Inclusion London’s websiteMarch 2012 – Monthly Update 34 Page 21 of 21