Disabled Dissent Goes Online:
The Case of Opposition Groups
to Disability Welfare Cuts in
the UK
                              Filippo Trevisan
                 f.trevisan.1@research.gla.ac.uk
                         www.filippotrevisan.net

                              05 December 2011
Overview:
 2010/11: The birth of online disability activism?

 New media, old problems: Disability/internet research so
  far

 Exploring the “far side” of disability/internet: A three-step
  research strategy

 Case study: online disability opposition to disability
  welfare cuts
Theoretical enthusiasm vs. Research
focus
  Early theorists of the social model hypothesise a positive relationship
  between Information and Communication Technologies (ICTs) and the
  emancipation of disabled people:

  For Vic Finkelstein (1980), technological development will contribute to a
  future world in which “impaired persons will […] no longer be oppressed by
  disabling social conventions and disabling environments but will be
  absorbed in the mainstream of social interactions” (p. 37).

BUT:

 Research to date: dominance of the access/-ibility frame and the internet
  as a new source of exclusion for disabled people (Ellis and Kent, 2011;
  Goggin and Newell, 2003 & 2007; Dobranski and Hargittai, 2006; Ellcessor,
  2010)
Internet usage amongst disabled
people in the UK (1)




(Source: Oxford Internet Surveys, 2011: 18)
Internet usage amongst disabled
people in the UK (2):
   According to Office for Disability Issues, in 2008 an estimate
    42% of disabled people in the UK could be considered to be
    regular internet users (Williams et al., 2008)

   OfCom 2009 Customer Satisfaction report: slight differences in
    internet usage amongst people with different impairments
    (visual, hearing, mobility).

   According to the Pew Internet and American Life Project, 54%
    of disabled Americans are currently internet users compared to
    81% non disabled people (Fox, 2011)

 Key for future research: focus on experience of disabled users
The Far Side of Disability/Internet: New
Areas Worth Exploring
 Interpersonal, un-mediated relationships (Anderberg and Jönsson,
  2005; Seymour and Lupton, 2004)

 Peer-support and positive effects on self-esteem and personal growth
  (Obst and Stafurik, 2010)

 Blogs and discussion boards as “spaces” for alternative, un-filtered
  representations of disability (Thoreau, 2006; Goggin and Nooan, 2007)

 Participatory platforms hold positive potential against exclusionary
  barriers

 Are such benefits also extending/-able to the domain of politics?
  What parts of the online realm should researchers focus on to find
  out?
What disabled users say:


 “I don’t think anybody sees it as a luxury; it is,
 literally, a lifeline.”
 (Interview with disabled blogger and campaigner, July 2011)
A three-step research strategy:

                            Issue
  1
                          selection


      Identification of key online spaces and “players”,
  2
      categorisation, selection of in-depth case studies


           Data collection and in-depth analysis:
  3
                   focus on interactivity
Issue Selection: Google Insights
for Search
                                                 DLA consultation results released
                    Government Spending Review
                                                              WRB Introduced to the Lords




                                    DLA Consultation Closes
 Emergency Budget
                                                              Hardest Hit March
                             DLA Consultation Opens
3 Types of Online Actors:
 Formal Organisations Coalition: The Hardest Hit
  (www.thehardesthit.org.uk)

 Digitized Activists: Disabled People Against Cuts
  (www.dpac.uk.net)

 Digital Action Networks: The Broken of Britain
  (www.thebrokenofbritain.org)
What do they use digital media
for?
              “War” against the mass
               media: de-bunk myths
                 and stereotypes




      Build consensus,          Influence
      engage disabled        policy-making
      users, gather and   (both contentious &
        “broadcast”         Institutionalised
        their voices         political action)
1 - Digital strategy survey: Assessing
interaction potential
2 - Is such potential being realised?
The Broken of Britain’s Facebook wall
 Who is talking?
 Are the organisers actually engaging in dialogue with
  “ordinary” users?
 Are they talking politics, policy, both, or neither?
 Is this just talk, or is political action also being promoted and
  organised?

 One week of content, 8-14 Sept. 2011 (inclusive), preliminary
  observations rather than a representative sample
2 - The Broken of Britain: An online
“hybrid”
 Organisers have “monopoly” of conversation starters (90%) and
  almost never participate in comment threads (3.6%)
 Significant number of posts contains “personal stories” (16.2%)
  mostly posted directly by disabled users (81.8%) and clustered
  around political/policy topics
 Traditional socio-economic citizenship frame supplemented by new
  frames: political rights (16.3%); civil/human rights (12.4%); lack of
  morality (25.6%).
 Posts mentioning/soliciting action (14% of total) concentrate
  overwhelmingly on individual action (50.1%)
 A new type of moderate, self-advocacy player in disability politics: a
  “permanent campaign” entirely generated and sustained online.
The Broken of Britain in their own
words:
 “Shouting/screaming doesn't work. Explaining the reality of our lives
  calmly & rationally does. People don't get to ask about disabled
  people's lives. There's real desire to understand out there, but fear to
  ask.”
  (The Broken of Britain lead campaigner-1 on Twitter, Apr 2011)

 “Factual and balanced evaluation and criticism are key social media
  is invaluable in gaining supporters and shouldnt be underestimated.
  The digital age has completely changed the nature of activism. If you
  don't capitalise on it you get left behind. Older methods like demos
  work but to reach a lot of people in a short time you need the web.”
  (The Broken of Britain lead campaigner-2 on Twitter, Apr 2011)
Points to consider:
a.   The role of catalyst issues as promoters of online participation
     amongst disenfranchised and excluded groups
b.   Disability welfare campaigns do relatively well in terms of interaction
     potential
c.   The Broken of Britain as digitally enabled addition to the landscape of
     British disability activism: new leadership style and new “action”
     repertoire
d.   However, questions need to be asked re: accountability; legitimacy;
     long-term sustainability

    International comparison
    Enhance user-generated content coding scheme (automated frame
     detection)

                      f.trevisan.1@research.gla.ac.uk

Disabled Dissent Goes Online - Urban Studies Workshop, 5 Dec 2011

  • 1.
    Disabled Dissent GoesOnline: The Case of Opposition Groups to Disability Welfare Cuts in the UK Filippo Trevisan f.trevisan.1@research.gla.ac.uk www.filippotrevisan.net 05 December 2011
  • 2.
    Overview:  2010/11: Thebirth of online disability activism?  New media, old problems: Disability/internet research so far  Exploring the “far side” of disability/internet: A three-step research strategy  Case study: online disability opposition to disability welfare cuts
  • 4.
    Theoretical enthusiasm vs.Research focus Early theorists of the social model hypothesise a positive relationship between Information and Communication Technologies (ICTs) and the emancipation of disabled people: For Vic Finkelstein (1980), technological development will contribute to a future world in which “impaired persons will […] no longer be oppressed by disabling social conventions and disabling environments but will be absorbed in the mainstream of social interactions” (p. 37). BUT:  Research to date: dominance of the access/-ibility frame and the internet as a new source of exclusion for disabled people (Ellis and Kent, 2011; Goggin and Newell, 2003 & 2007; Dobranski and Hargittai, 2006; Ellcessor, 2010)
  • 5.
    Internet usage amongstdisabled people in the UK (1) (Source: Oxford Internet Surveys, 2011: 18)
  • 6.
    Internet usage amongstdisabled people in the UK (2):  According to Office for Disability Issues, in 2008 an estimate 42% of disabled people in the UK could be considered to be regular internet users (Williams et al., 2008)  OfCom 2009 Customer Satisfaction report: slight differences in internet usage amongst people with different impairments (visual, hearing, mobility).  According to the Pew Internet and American Life Project, 54% of disabled Americans are currently internet users compared to 81% non disabled people (Fox, 2011)  Key for future research: focus on experience of disabled users
  • 7.
    The Far Sideof Disability/Internet: New Areas Worth Exploring  Interpersonal, un-mediated relationships (Anderberg and Jönsson, 2005; Seymour and Lupton, 2004)  Peer-support and positive effects on self-esteem and personal growth (Obst and Stafurik, 2010)  Blogs and discussion boards as “spaces” for alternative, un-filtered representations of disability (Thoreau, 2006; Goggin and Nooan, 2007)  Participatory platforms hold positive potential against exclusionary barriers  Are such benefits also extending/-able to the domain of politics? What parts of the online realm should researchers focus on to find out?
  • 8.
    What disabled userssay: “I don’t think anybody sees it as a luxury; it is, literally, a lifeline.” (Interview with disabled blogger and campaigner, July 2011)
  • 9.
    A three-step researchstrategy: Issue 1 selection Identification of key online spaces and “players”, 2 categorisation, selection of in-depth case studies Data collection and in-depth analysis: 3 focus on interactivity
  • 10.
    Issue Selection: GoogleInsights for Search DLA consultation results released Government Spending Review WRB Introduced to the Lords DLA Consultation Closes Emergency Budget Hardest Hit March DLA Consultation Opens
  • 11.
    3 Types ofOnline Actors:  Formal Organisations Coalition: The Hardest Hit (www.thehardesthit.org.uk)  Digitized Activists: Disabled People Against Cuts (www.dpac.uk.net)  Digital Action Networks: The Broken of Britain (www.thebrokenofbritain.org)
  • 12.
    What do theyuse digital media for? “War” against the mass media: de-bunk myths and stereotypes Build consensus, Influence engage disabled policy-making users, gather and (both contentious & “broadcast” Institutionalised their voices political action)
  • 13.
    1 - Digitalstrategy survey: Assessing interaction potential
  • 14.
    2 - Issuch potential being realised? The Broken of Britain’s Facebook wall  Who is talking?  Are the organisers actually engaging in dialogue with “ordinary” users?  Are they talking politics, policy, both, or neither?  Is this just talk, or is political action also being promoted and organised?  One week of content, 8-14 Sept. 2011 (inclusive), preliminary observations rather than a representative sample
  • 15.
    2 - TheBroken of Britain: An online “hybrid”  Organisers have “monopoly” of conversation starters (90%) and almost never participate in comment threads (3.6%)  Significant number of posts contains “personal stories” (16.2%) mostly posted directly by disabled users (81.8%) and clustered around political/policy topics  Traditional socio-economic citizenship frame supplemented by new frames: political rights (16.3%); civil/human rights (12.4%); lack of morality (25.6%).  Posts mentioning/soliciting action (14% of total) concentrate overwhelmingly on individual action (50.1%)  A new type of moderate, self-advocacy player in disability politics: a “permanent campaign” entirely generated and sustained online.
  • 16.
    The Broken ofBritain in their own words:  “Shouting/screaming doesn't work. Explaining the reality of our lives calmly & rationally does. People don't get to ask about disabled people's lives. There's real desire to understand out there, but fear to ask.” (The Broken of Britain lead campaigner-1 on Twitter, Apr 2011)  “Factual and balanced evaluation and criticism are key social media is invaluable in gaining supporters and shouldnt be underestimated. The digital age has completely changed the nature of activism. If you don't capitalise on it you get left behind. Older methods like demos work but to reach a lot of people in a short time you need the web.” (The Broken of Britain lead campaigner-2 on Twitter, Apr 2011)
  • 17.
    Points to consider: a. The role of catalyst issues as promoters of online participation amongst disenfranchised and excluded groups b. Disability welfare campaigns do relatively well in terms of interaction potential c. The Broken of Britain as digitally enabled addition to the landscape of British disability activism: new leadership style and new “action” repertoire d. However, questions need to be asked re: accountability; legitimacy; long-term sustainability  International comparison  Enhance user-generated content coding scheme (automated frame detection) f.trevisan.1@research.gla.ac.uk