The national cancer registry program

1. Cancer Registries
in India
Dr Pallavi Kalbande
MD radiation Oncology

2. Introduction
• Cancer registration is the process of systematically and
continuously collecting information of cancer
• Cancer-related Information
• Demographics
• Medical history
• Diagnosis and prognosis indicators
• Treatment patterns

3. Goal
• Collect cancer information to
prevent and control cancer and
improve patient care

4. National cancer registry programme
• National Cancer Registry Programme was launched in 1982
• by Indian council of medical research(ICMR) to provide true
information on cancer prevalence and incidence

6. Objective
• To generate authentic data on the magnitude of cancer problem in India
• To undertake epidemiological investigations and advice control measures
• Promote human resource development in cancer epidemiology

7. Secondary objectives
• Strengthening of departments of pathology in medical colleges and
other hospitals with personal computers and internet connection
• Providing orientation/ training in cancer registration and
epidemiology to pathologists

8. Types of
cancer
registry
Hospital Based
registry
Population based
registry

9. Population based registry
• The total coverage of population is 3.3% only
• It covers mainly urban population which is 12.8% and coverage of
rural population is 0.06
 The population-based registries provide epidemiological data on
• Crude incidence rates for all ages
• Age adjusted standardized incidence rates
• Annual age adjusted incidence rates
• Incidence rates for all ages

10. Population
based registry
(Urban)

11. Population
based registry
(Rural)

13. • These registries provide information on
• Common cancers in India
• Geographical variation of occurrence of cancer
• Nature of cancers for effective control measures
• Data on incidence and mortality (also variation in incidence and
mortality)

14. • Personal identification (names (in full) and/or unique
• Sex
• Date of birth or age
• Address (usual residence)
• Ethnic group (when the population consists of two or more groups)
• Most valid basis of diagnosis (enables cases to be registered with a
non-histological diagnosis)
• Topography (site) of primary cancer
• Tumor morphology (histology)
Data collection

15. • Date of last contact
• Status at last contact (at least dead or alive)
• Stage or extent of disease at diagnosis
• Initial treatment
• Tumor behavior (benign, uncertain, in situ or malignant)
• Source of information

16. • The primary purpose
• To contribute to patient care by providing readily accessible information
on the patients
• Data - used for clinical research and for epidemiological purposes
• Integral part of the hospital’s cancer programme or health care delivery
system
Hospital based registry

17. Objectives
- Assess Patient Care
- Participate in Clinical Research to Evaluate Therapy
- Provide an idea of the patterns of cancer in the area -help plan
hospital facilities

18. • Data collection is done by the individual registries using a
standardized common core form
• The information of patient
• Identifying and demographic information
• Details of diagnosis the clinical stage of the disease
• Broad type of treatment instituted

19. https://ncdirindia.org/All_Reports/Report_2020/default.aspx