C3N Project Webinar w. Ginger.io - Aug 21 2012
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The C3N Project held a live webcast on August 21, 2012 - the third in a quarterly series scheduled for 2012. Drs. Peter Margolis and Michael Seid – C3N Principal Investigators – presented an overview of the project and answered questions throughout the hour. We were also joined by Ginger.io, who collaborates with the C3N on one of our innovations: Passive PRO. The mobile app, also called Ginger.io, passively tracks data and has the potential to predict flares for patients in the IBD community. To test the app, visit ginger.io/join/c3n today! And watch the live webcast by visiting Vimeo: https://vimeo.com/48010954
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C3N Project Webinar w. Ginger.io - Aug 21 2012
- 1. LIVE WEBCAST | Featuring August 21, 2012 C3N Supported by NIH NIDDK R01DK085719 AHRQ R01HS020024 AHRQ U18HS016957
- 2. Welcome! • We will pause for questions after the C3N Project overview, and at the conclusion of our feature presentation we will host more time for Q&A; but you can also Peter Margolis, MD, PhD direct questions and comments anytime using the chat function • After the presentation, a short survey will appear – thanks for your feedback + participation! Michael Seid, PhD • First, a few technology pointers…
- 3. Mute/ Un-Mute Your Line
- 4. Raising Your Hand Raise your hand Lower your hand 4
- 5. Writing Comments & Asking Questions CLICK HERE TO OPEN BOX. TYPE YOUR QUESTION HERE!
- 6. take the conversation to twitter #C3N @C3NProject @Ginger_io 6
- 7. An Introduction of the C3N Project with Dr. Peter Margolis
- 8. What if….? • …we could create a vastly better chronic care system by harnessing inherent motivation and collective intelligence of patients and clinicians? • … this system allowed patients and physicians to share information, collaborate to solve problems, use their collective creativity and expertise to act in ways that improve health?
- 9. .5 x .5 = .25 9
- 10. What is the C3N? • Self-reinforcing network • “Lab” and “proving ground” • A social, technical and scientific platform to support a learning health system
- 11. Learning Health Systems • Patients and providers work together to choose care based on best evidence • Drive discovery as natural outgrowth of patient care • Ensure innovation, quality, safety and value • All in real-time Institute of Medicine
- 12. C3N Design Process Design Test Adapt, Implement & Spread Screen Observation Concept Prototype design testing Pilot Synthesis testing Generate new ideas Test new ideas Spread new ideas
- 13. Creating Conditions for a C3N 1. Align motivation around common vision 2. Make it easy to contribute – design, system engineering and technology 3. Enable better communication 4. Reduce “transactional” costs
- 15. Percent of Patients 10% 20% 30% 40% 50% 60% 70% 80% 90% 100% 0% Jul-2007 N=338 Aug-2007 N=396 Sep-2007 N=428 Oct-2007 N=479 Nov-2007 N=508 Dec-2007 N=531 Jan-2008 N=570 Feb-2008 N=607 Mar-2008 N=643 Apr-2008 N=654 May-2008 N=667 Jun-2008 N=671 Jul-2008 N=686 Aug-2008 N=731 Sep-2008 N=754 Oct-2008 N=801 Nov-2008 N=832 Dec-2008 N=901 Jan-2009 N=973 Feb-2009 N=995 Mar-2009 N=1021 Apr-2009 N=1070 May-2009 N=1112 Jun-2009 N=1194 Jul-2009 N=1240 Aug-2009 N=1277 Sep-2009 N=1314 Month Oct-2009 N=1344 Nov-2009 N=1366 Dec-2009 N=1400 Jan-2010 N=1421 Feb-2010 N=1410 Mar-2010 N=1440 Percent of IBD Patients in Remission (PGA) Apr-2010 N=1455 May-2010 N=1461 Jun-2010 N=1471 Jul-2010 N=1489 Aug-2010 N=1518 Sep-2010 N=1547 Oct-2010 N=1576 Nov-2010 N=1985 Dec-2010 N=2032 Jan-2011 N=2043 Feb-2011 N=2065 Mar-2011 N=2124 Apr-2011 N=2191 May-2011 N=2206 Percent of Patients in Remission Jun-2011 N=2272 Jul-2011 N=2301 Aug-2011 N=2335
- 16. Why Crohn’s as a Prototype? • Number of patients small • Few incentives for industry to invest in research • No center has enough patients • Teenagers especially likely to use Internet communications
- 18. Reducing Transactional Costs Example: Data Collection
- 19. 19
- 20. “Enhanced” Registry • Research using distributed registry of 10,000 patients • Automated Pre-visit Prompts • Automated Physician Pre-Visit Planning
- 21. “Enhanced” Registry - Research Infliximab and Thiopurine Treatment by Site 70% Percentage of CD Patients 60% 50% 40% 30% 20% 10% 0% Sites Infliximab Thiopurine
- 22. QUESTIONS?
Editor's Notes
- Americans receive only 50% of recommended care and typically perform only about half of the "self-management" procedures and behaviors necessary to keep them healthy.
- This slide shows the impact on the rate of remission among the first 15 teams to join the network. This is an annotated control chart showing, on the Y-axis, the % of patients in remission. Time is on the X-axis. The various interventions are noted on the slide. These data are from last August when the rate of remission reached about 73%. We are now up to about 77%.
- In discussions with parents, patients, and clinicians, there was massive confusion about whether and how top-down worked better than bottom-up or vice versa. In all interviewed populations we saw evidence of the strength of hope over facts, owing to the paucity of data.