1. Hope is the most powerful
force on the planet.
Andrea Peet, Age 34
Diagnosed with ALS in August 2014
2015 ANNUAL REPORT

2. Serving people with ALS and their families is at the heart of what we do. ALS is not just physically
challenging, it’s emotionally and financially draining as well. That is why our Chapter strives to support
people with ALS and their families through a wide array of services that try to address all the needs of
the ALS community—multi-discipline ALS clinics, walkers and wheelchairs, speech-generating and other
communication devices, patient and caregiver support groups, respite care grants, and guidance to families
navigating complicated veterans and other government benefit programs, just to name a few.
This year’s Annual Report showcases the many ways that our Chapter—supported by donors like you—
meets those needs and moves us ever closer to fulfilling our vision to create a world without ALS.
The success of last summer’s Ice Bucket Challenge raised the bar for our Chapter and The ALS Association
across the nation. With awareness for ALS at an all-time high, our chapter saw an increase in the number of
people looking to us for critical services. Currently we are supporting nearly 600 people with ALS and their
families throughout Washington D.C, Maryland and Virginia and we expect that number to rise. The Ice
Bucket Challenge also opened new pathways to invaluable relationships with individuals and corporations
alike. We are grateful for these new opportunities to engage more people in the Chapter’s work and to find
new resources and increased revenue in our fight against ALS.
From broadening our care services and energizing and growing our fundraising events to inspiring our
volunteers, staff and leadership—our Chapter is working hard to support our mission today and set us on
a path of continued growth and success. With your help, our Chapter will continue to meet all the needs
of people with ALS, as well as support the ground-breaking ALS research that will lead us to a cure for this
devastating disease.
On behalf of The ALS Association – DC/MD/VA Chapter, its Board of Directors, staff and ALS families, we
thank you for your support. Your generosity truly helps us to make a difference.
Sincerely,
Judith Bailey Judy Taylor
President, Board of Directors Executive Director
The ALS Association – DC/MD/VA Chapter The ALS Association – DC/MD/VA Chapter
fromtheBoardPresident
&ExecutiveDirector
letter

3. warrior
Andrea Peet is the definition of a true warrior.
In August of 2014 at only 33 years old, Andrea was
diagnosed with ALS. Andrea joined the millions of people
around the world who were just learning about the
disease through the Ice Bucket Challenge.
Andrea’s diagnosis, like so many others, did not come
quickly or easily. Andrea began seeking medical
attention in 2013 after completing a 70.3 mile half
Ironman Marathon. Long after the race, she was feeling
unusually weak and even tripping over her own feet.
It took five different neurologists and a total of 11
months, for Andrea to be given the ALS diagnosis. And
the diagnosis hit hard. Andrea was newly married, had
recently bought a home and was already thinking about
starting a family. But faced with this challenge, Andrea’s
inner warrior emerged and she began to fight ALS in
every way that she could.
In October, only two months after her diagnosis,
Andrea laced up her sneakers and completed another
triathlon—raising $10,000 in two weeks for ALS
research. Although “Team Drea,” as her husband
coined them, came in last place by almost an hour, her
dedication, her fight and her strength were noticed. Her
amazing feat was highlighted in the January 2015 edition
of Endurance Magazine.
With the support of her husband, family and friends,
Andrea has been fighting this disease on all fronts. She
has been a major advocate for The ALS Association,
helping our Chapter’s efforts on Capitol Hill; has done
numerous media interviews; has spoken at corporate
events; and overall has been an amazing and significant
voice of the ALS community.
Andrea and the thousands of other people with ALS
and their families know all too well the harsh reality of
this devastating disease. But with people like Andrea to
inspire us, we have hope for the future. As Andrea has
told us, “Hope is the most powerful thing in the world.”
ALS knows
no age,
no gender,
no religion and
no race

4. Walk to Defeat ALS®
Our fundraising events are a critical component to
increasing our revenue and making sure that our
Chapter can continue to provide services to our
families free of charge, while still making important
contributions to research. Last year, our chapter event
staff was re-structured allowing each staff member
to focus on individual marketplaces throughout our
territory. With this new structure in place, our event
staff was able to concentrate their efforts on cultivating
new relationships, enhancing the event experience and
overall strengthening the fundraising efforts in each of
their individual markets.
The Walk to Defeat ALS®
program is The ALS
Association – DC/MD/VA Chapter’s largest fundraising
initiative. The Walk to Defeat ALS®
program has
an annual goal of $1.4 million— which contributes
greatly to the stability and success of the chapter. The
chapter hosts eight walks throughout Washington D.C.,
Maryland and Virginia including: Baltimore, Richmond,
Roanoke, Salisbury, Shenandoah, Virginia Beach,
Washington D.C. and Western Maryland.
The Walk to Defeat ALS®
program relies on the
fundraising efforts of individual and corporate teams
as well as corporate sponsorships. In the past year, the
chapter has significantly increased its corporate walk
outreach—leading to a greater number of corporate
sponsorships.
walk
Every 90 Minutes
Someone Is Diagnosed
With ALS

5. Western Maryland Walk to Defeat ALS®
$67,567.12
Virginia Beach Walk to Defeat ALS®
$107,865.71
Shenandoah Walk to Defeat ALS®
$43,269.01
Roanoke Walk to Defeat ALS®
$83,719.55
Baltimore Walk to Defeat ALS®
$170,676.38
Salisbury Walk to Defeat ALS®
$41,676.25
Richmond Walk to Defeat ALS®
$241,173.17
Washington D.C. Walk to Defeat ALS®
$688,430.52
FY 2015 Walk to Defeat ALS®
Total:
$1,405,706.84
Walk to Defeat ALS®
raised over
$1.4 millionacross eight walks
More than
6,000 people
walked to defeat ALS
Over 600 teamsjoined in the fight
200+corporate donations made
Every 90 Minutes
Someone Dies From ALS

6. Dine to Defeat ALS
The Dine to Defeat ALS dinner program is the Chapter’s
opportunity to honor leading philanthropists who
have made a significant impact in their communities
and in the fight against ALS. This past year, The ALS
Association – DC/MD/VA Chapter held two Dine to
Defeat ALS dinners in Washington, D.C. and Virginia
Beach.The dinner program raised about $250,000 and
had over 300 attendees.
Washington D.C. Honorees:
Booz Allen Hamilton – Since 1999 after the diagnosis
of an employee, Booz Allen Hamilton has been involved
with every aspect of The ALS Association – DC/MD/VA
Chapter. Their tremendous efforts have changed the
lives of hundreds of thousands of people living with ALS.
Paul Cellucci (1948-2013) – Paul Cellucci was Governor
of Massachusetts and the United States Ambassador
to Canada. When diagnosed in 2011, he announced
his campaign to raise money to find a treatment and a
cure for ALS. The campaign raised more than $1 million
in its first year.
Virginia Beach Honorees:
David E. LaMontagne Sr. (1949-2007) – David
LaMontagne was a retired Lieutenant Commander
in the United States Navy. Was inducted into his
company’s (AMSEC) Hall of Fame and used the
opportunity to introduce people to ALS and to The ALS
Association.
Kathy Thompson – When her son was diagnosed with
ALS, Kathy successfully lobbied for the compassionate
use of potentially helpful drugs for ALS patients. Kathy
also spreads information about ALS through her
mother’s company Quilters Dream Batting.
”“Find Your Reason
to Help Others.
– Robert P. Silverman, SVP Booz Allen Hamilton
Dine to Defeat ALS Dinner Chair
dine

7. Corporate Supporters, Booz Allen Hamilton
Corporate outreach plays an important role in the
successes of our Chapter. Corporate partnerships
provide the Chapter with new patients, walk teams,
significant financial support, valuable resources and
more. This past year our staff made significant efforts
to increase new corporate outreach and foster existing
partnerships. One of the Chapter’s most successful
corporate partnerships thus far is Booz Allen Hamilton.
Over 100 years in business, Booz Allen Hamilton is one
of the oldest and most recognized consulting firms in
the world. But even more impressive are the values
carried through it’s company all of these years. Founding
partner Edwin Booz set forth the guiding values of the
company and his, “Start with character,” principle is still
at the forefront of Booz Allen’s work. The character of
Booz Allen Hamilton, that of compassion, dedication
and generosity can clearly be seen throughout all of its
endeavors and employees.
The ALS Association - DC/MD/VA Chapter has had
a particularly special and valued relationship with
Booz Allen Hamilton since 1999—when one of their
employees Craig Miller was diagnosed with ALS. Fellow
Booz employee Jane Dealy, brought Craig’s diagnosis to
the attention of upper management and from there the
company sprung to action.
Since then, Booz Allen Hamilton has been a MAJOR
supporter of The ALS Association – DC/MD/VA Chapter,
participating in the DC Walk to Defeat ALS®
, Dine to
Defeat ALS and the ALS Ice Bucket Challenge. Booz Allen
Hamilton has been raising tens of thousands of dollars
each year through its employees’ fundraising efforts and
corporate sponsorships, and has donated more than
$55,000 to the Chapter’s Assistive Technology program.
Not only has Booz Allen Hamilton been a financial
supporter of the Chapter but it has on many occasions
offered use of its professional services to better the
organization. Booz Allen Hamilton’s commitment to
our Chapter and to this fight have impacted the lives of
those with ALS in immeasurable ways.
As we continue to build corporate support, we often ask
ourselves, who will the next Booz Allen be?
corporate
Did You Know Veterans
Are Twice As Likely To Be
Diagnosed With ALS?

8. care Care Services
Every year, approximately 5,000 Americans are newly
diagnosed with ALS. In our area alone, more than 1,000
people are currently battling the disease. Although the
ALS community continues to make significant strides in
research—the cold fact remains that we still have no cure.
And as The ALS Association – DC/MD/VA Chapter
continues to support ALS research, we also do all we
can to make life easier for those currently living with
this disease. The chapter does this by providing nearly
600 people with ALS and their families throughout
Washington D.C, Maryland and Virginia with a host of
services FREE OF CHARGE. These much-need services
include:
Individual Support & Home Visits – Every patient with
ALS has an expert caseworker to guide them through
the unique physical and emotional challenges of ALS –
aiding the patient and their family through all aspects
of living with the diagnosis.
Assistive Technology – With up to 75% of those
diagnosed with ALS losing their ability to speak, the ALS
Association’s Assistive Technology Program is able to
provide loaner communication devices (including text-
to-speech machines and eye-tracking technology) which
allow people to maintain their ability to communicate.
ALS Clinics – Patients are able to meet with a
specialized healthcare team familiar with the unique
challenges facing those diagnosed with ALS. In a
single appointment, patients have access to multiple
disciplines within the clinic – allowing the best possible
evaluation, treatment and support.
Equipment Loan Closet – As ALS progresses in a
patient, medical equipment needs arise. To assist the
success and independence of individuals diagnosed,
patients have access to a variety of medical equipment.
Monthly Support Groups – Through these community
groups, people with ALS and caregivers receive
valuable resources and information. Families are able
to strengthen their support system while learning that
they are not alone in this journey.
Respite Care – Recognizing the importance of “care for the
caregiver”, family caregivers can take a break and recharge,
knowing their loved ones are in professional care.
Transportation – Through the Chapter’s
transportation program, patients are able to attend
scheduled medical appointments and obtain the care
they need.
ALS Can Cost Families
Over $200,000 A Year

9. 197
126
162
7
26RESPITE GRANTS
HOME
VISITS
WHEELCHAIR ACCESSIBLE TRIPS
Support Groups
DURABLE MEDICAL EQUIPMENT
ALS
Multidisciplinary
Clinics
ASSISTIVE
TECHNOLOGY
EQUIPMENT PersonalConnectionswith
individualsandfamilies
4,000+
1,000+
900+
Thanks to your support, our chapter was able to provide the following:
thanks

10. The Heart of a Volunteer
Joan Deye has been volunteering with ALS patients
for over 30 years. She has received many awards and
recognition for her kind and selfless acts, including
Washingtonian of the Year—awarded to an individual who
has improved the lives of others in the Washington D.C.
community and the LOTZ Humanitarian Award—The
ALS Association’s highest volunteer recognition award.
Joan’s volunteerism began as a young mother of four,
looking for something to do outside of her home.
Trained as an RN, she began volunteering with terminally
ill cancer patients and shortly after, ALS patients.
Joan’s first patient, Robin was only 22 years old—with
no family to rely on. Joan not only helped care for Robin
physically but she also became an important emotional
support for her while she navigated the disease. Robin
lived with ALS for an amazing 14 years.
While accompanying Robin to a clinic trial, Joan met her
second patient, 26-year-old Marty. Although Robin and
Marty initially had nothing but their age in common—
they quickly bonded and supported each other through
their struggles. From Robin and Marty, Joan would
discover the important need of ALS support groups.
Marty battled ALS for four-and-a-half years before
succumbing to the disease. On the weekend of his
passing Joan attended her first ALS support group. Joan
eventually took over facilitating the group as she still
does today and even introduced a caregiver support
group as well.
Joan has been an important part of the founding and
continued success of the chapter. She served on the
Board of Directors for 17 years and its patient services
committee. She represented the needs and views of
patients and worked to expand patient programs. Joan
has also played a major role in working with hospice
organizations to help train staff to better serve the
needs of those with ALS.
After 30 years, we recently asked Joan why she continues
to do it. She said, “Because I love them. I’ve met some of
the most remarkable people you can imagine.“
Joan is thankful to her husband Jim and her four children,
Greg, Kristen, Bill and Emily, for always supporting her and
the work she has done for the ALS community.
The ALS Association – DC/MD/VA Chapter is extremely
grateful to all of its volunteers, especially Joan Deye for
her over 30 years of service and commitment to people
with ALS and the mission of The ALS Association.
volunteer
There is nothing
stronger than the
heart of a volunteer

11. 17 millionpeople took the challenge
$220 millionraised worldwide
$115 millionin gifts to The ALS Association
$700,000in gifts to The ALS Association –
DC/MD/VA Chapter
The ALS Ice Bucket Challenge
The summer of 2014 represents an unexpected yet
tremendous milestone for our organization. The ALS Ice
Bucket Challenge flooded the nation and brought more
funds and awareness to our organization than ever before.
More than 17 million people participated in the challenge
that raised over $220 million worldwide and $115 million in
gifts to The ALS Association. Close to home, the challenge
raised over $700,000 for our local Chapter, leading to a
significant increase in revenue for the year. These additional
funds have allowed us to continue to meet the ever-changing
needs of the over 600 patients we serve in Washington, D.C.,
Maryland and Virginia.
The Ice Bucket Challenge also made a significant impact
on awareness of the disease and The ALS Association.
Many more people now know what a devastating disease
ALS is and how critical it is to address the needs of people
struggling with it. With awareness at an all-time-high, the
Chapter has been able to introduce new individuals and
corporate partners to our organization.
Overall, the Ice Bucket Challenge has had an extremely
positive effect on our Chapter. We now find ourselves well-
positioned to grow and serve more people with ALS in more
ways. We are thankful to all of those who participated in
the ALS Ice Bucket Challenge, and we look forward to our
continued work together in this battle against ALS.
icebucket

12. financials STATEMENTS OF FINANCIAL POSITION
FISCAL YEAR ENDED JANUARY 31, 2015
ASSETS
CURRENT ASSETS
Cash and Cash Equivalents 1,586,798
Investments 259,502
Contributions Receivable 53,500
Due From National Affiliate 0
Prepaid Expenses 1,458
TOTAL CURRENT ASSETS 1,901,258
PROPERTY AND EQUIPMENT, NET 60,582
DEPOSITS 10,573
TOTAL ASSETS 1,972,413
LIABILITIES AND NET ASSETS
CURRENT LIABILITIES
Due To National Affiliate 5,100
Accounts Payable and Accrued Expenses 166,144
TOTAL CURRENT LIABILITIES 171,244
TOTAL NET ASSETS 1,801,169
TOTAL LIABILITIES AND NET ASSETS 1,972,413
FYE 2015 (February 2014 – January 2015) Financial Statements
STATEMENT OF ACTIVITIES
FISCAL YEAR ENDED JANUARY 31, 2015
REVENUE AND SUPPORT
Temporarily
Unrestricted Restricted Total
Indirect Public Support 127,411 127,411
Direct Public Support 795,097 301,288 1,096,385
In-Kind Contributions 229,516 229,516
Contributions -
Events Income 1,916,615 1,916,615
Merchandise Sales 103 103
Net Investment Income 2,110 2,110
Net Assets released from Restrictions 22,482 (22,482) - -
TOTAL REVENUE AND SUPPORT 3,093,334 278,806 3,372,140
EXPENSES
Program
Services 1,594,198 1,594,198
Dues to National - -
Total Program Expenses 1,594,198 1,594,198
General and Administrative 220,246 220,246
Fundraising 706,153 706,153
TOTAL EXPENSES 2,520,597 2,520,597
CHANGE IN NET ASSETS 572,737 278,806 851,543
NET ASSETS, BEGINNING OF YEAR 774,226 175,400 949,626
NET ASSETS, END OF YEAR 1,346,963 454,206 1,801,169

13. staff
Board & Staff
The ALS Association – DC/MD/VA Chapter Board of Directors
Judith Bailey, President
Paul Ingholt, Vice President
Andrew Berman, Assistant Treasurer
Scott Golden, Past President
Robert Roseman, Treasurer
Shelby Tudor, Secretary
Richard Bodson
Zarina Durrani
Sally Horner
Joseph LaMontagne
Jill P. McGlaughlin
David Tamasi
Steven M. Wellner
Kurt W. Wiegert
The ALS Association – DC/MD/VA Chapter Staff
Senior Management Team
Judy Taylor
Executive Director
Kerry Graves
Senior Director of Development
Tremetris Harrell, MHA
Senior Director of Operations
David Miller
Director of Care Services
Events Team
Carrie Bassett
Event Manager
Washington, D.C. Market
Laura Fien
Event Manager
Virginia Beach Market
Brittany Garcia
Event Manager
Maryland Market
Jennifer Hughes
Event Manager
Roanoke & Charlottesville Market
Andrea Kephart
Event Manager
Richmond Market
Erica Long
Event Assistant
Development
Tanyelle Gill
Marketing & Communications Manager
René Henry
Database & Donor Relations Manager
David Hogge
Grant Writer
Karen Rarog
Public Policy Associate
Care Services
Ebony Bradford, MSW
Care Services Coordinator
Montgomery County, Prince George’s
County and Southern Maryland Region
Blaire Bryant, MPH
Care Services Program Administrator
Teri R. Clayton, LCSW-C
Care Services Coordinator
Greater Baltimore Region
Ellen Cochrane
Care Services Coordinator
Northern Virginia Region
Emma Denat, MSW
Care Services Coordinator
Central Virginia
Kathleen Kelly, MSW
Care Services Coordinator
Shenandoah Valley & Southwest Virginia
Emily Mckeough, M.Ed
Assistive Technology Specialist
Jennifer Mundy, MSW
Care Services Coordinator
Southwest Virginia
Jeri Prosser, BTPS, RRT
Care Services Coordinator
Tidewater Virginia
Sherry Singer, CCC-SLP
Care Services Coordinator
Eastern Shore of Maryland
Erin Swann, ATP
Senior Assistive Technology Manager
Robin Swope, LCSW
Care Services Coordinator
Western Maryland
Rachell Westby, M.C.C.,CCC-SLP
Assistive Technology Specialist
Virginia

14. TogetherWeFightALS!

15. Our Vision:
Create a World Without ALS
Our Mission:
Leading the fight to treat and cure ALS through global research
and nationwide advocacy while also empowering people with
Lou Gehrig’s Disease and their families to live fuller lives by
providing them with compassionate care and support.

16. www.ALSinfo.org
301-978-9855
7507 Standish Place
Rockville, MD 20855
thank you
For Helping The ALS Association – DC/MD/VA Chapter Make a Difference in the Lives of Those Living With ALS
Follow us on:
www.facebook/ALSofDCMDVA
@ALSofDCMDVA