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Adapting Community
PROMISE with Older
MSM &Transgender
 Individuals of Color




   Hanna Tessema, MPH, MSW
Background:
 HIV & Aging
HIV/AIDS in New York
• New York State reported 125,718 Living HIV/AIDS cases
  as of December 2008

• 109,446 known PLWHA as of 06/30/2010 in NYC

• NYC is the HIV/AIDS epicenter in the U.S.
• 80% are persons of color
• Half are African-Americans

       25% of new cases in 2008 were diagnosed concurrently with
         AIDS. Among persons aged ≥ 50 years, the proportion of
                              concurrent diagnoses was 39%


   NYC DOHMH HIV Epidemiology and Field Services Program Semiannual Report: March 31, 2011
                   http://www.nyc.gov/html/doh/downloads/pdf/dires/2011-1st-semi-rpt.pdf
   http://www.health.state.ny.us/diseases/aids/statistics/annual/2008/2008-12_annual_surveillance_report.pdf
NYC: HIV Among MSM

As of June 30, 2010:

• 109, 446 PLWHA
• 33.5% MSM
• 62% of newly diagnosed males in the first half
  of 2010 were MSM
Transgender
   Transgender persons are those whose current gender identity differs from
   their sex at birth.

 May or may not receive hormone therapy
 May or may not have had surgery to change their anatomy
 May have any sexual orientation

   Research studies on samples of transgender persons have demonstrated
   high rates of HIV/AIDS in this population in the US and NYC.
“There are no reliable data
     on the number of
transgender people living in
    the United States.”

             --Transgender Law Center
Of the newly diagnosed
 transgender population in
            NYC:
90% are Black or Hispanic,
7% white
4% other
The highest numbers of newly diagnosed transgender persons lived in Bedford Stuyvesant–Crown
Heights, West Queens, Chelsea–Clinton, and Fordham–Bronx Park (areas in dark red).
Community PROMISE
Community PROMISE
 CDC Evidence Based Intervention
  (Community Level Intervention)


 Peers Reaching Out and Modeling Intervention Strategies for
  HIV/AIDS Risk Reduction in their Community

 First time implementing CDC DEBI: Community PROMISE for
  Older Adult populations (50+)
Community PROMISE:
                         Four Core Elements
1. Community Identification Process (CID)
  An ongoing community needs assessment of the targeted population. Allows us to
  better understand specific risk taking and risk reducing behaviors as well as
  circumstances & environments where they take place.

2. Role Model Stories
  Short stories based on real experiences of people in the target population who
  have made or are planning to make a risk-reducing behavioral change. (Stages of
  change)

3. Peer Advocates
  Volunteers from the target population who have access to the community. They
  distribute the role model stories in places where they congregate.

4. Evaluation
  Providing evidence of the effectiveness of the intervention at the agency. Reveals
  whether the proven intervention was implemented with fidelity.
Community PROMISE
   ACRIA chose to implement Community PROMISE
   within the over 50 target population because:
• DEBI’s are proven evidence based interventions

• Currently none of the CDC-funded prevention interventions
  specifically target older adults.

• NYCDOHMH Funding allowed PROMISE to target the highest
  risk groups in NYC (including MSM & Transgender)

• Felt OA would be more inclined to engage in behavior change
  based on messages which resonate with them via relevant
  RMS.
Unique Effort
• ROAH Study Results established target population
• We trained and prepared our partners on HIV &
  Aging well before the implementation of the
  intervention
• CID process began before PROMISE & is ongoing
• Partners continue the CID process as well…and
  receive input from the community
• Many peers were referred via partners
• Linked to HIV testing campaign for 50+
• Fully bilingual program: English & Spanish
Unique Effort
• Online recruitment for interviews beyond
  Facebook: Adam4Adam
• Focus groups reviewed stories focusing on
  MSM & Transgender
• More intense trainings for peer advocates
  because:
     Knowledge levels lower,
     Stigma & Ageism
     More myths
     *Focus more on how to engage populations because this
                is a taboo topic for OA generally*
RMS Distribution
   The peers told us where to distribute rather than us telling them – they
   had the information on where the target population congregates.

• Areas mentioned in the stories (i.e. near hospitals, intersections,
  subway stations, etc.)

• Barbershops & beauty salons

• Gay Bars

• Senior Centers (lunch time)

• Syringe Exchange – IV drug users within MSM & Transgender groups

• Ex-sex worker transgender peers had access to OA transgender sex
  worker populations
Challenges:
       Implementing PROMISE
–Limited Time (less than 1 year) to implement
 due to funding

–Recruiting for interviews via online sex sites
 (i.e. Adam 4 Adam)

–Training peers and ensuring their HIV
 knowledge was up to par prior to distributing
 stories in the community
Challenges:
         Implementing PROMISE
• Ensuring all staff were properly trained to
  implement DEBI with fidelity

• Choosing images to represent stories

• Engaging OA can be more difficult than
  younger people because they are not usually
  targeted with these types of messages
Lessons Learned

•   HIV+ older MSM & transgender
    individuals are largely stigmatized by    •   Important factors influencing behavior :
    HIV-phobia, homophobia, transphobia,           – perceived susceptibility
    and ageism.
                                                   – self-efficacy
                                                   – communication & negotiation
•   Integrating HIV treatment and care into
                                                   – cultural norms about sexuality &
    the RMSs has been essential in
                                                     gender roles
    targeting older adults living with HIV.

                                              •   Evidence Based Interventions work with
•   Social isolation & loneliness are
                                                  Older Adults and should continue to be
    important factors in sexual risk taking
                                                  implemented
    and need to be considered when
    developing RMSs targeting older MSM
    & transgender individuals.
Next Steps
• Implementing evidence based prevention strategies which
  target older MSM & transgender adults. (Including HIV/STD
  primary and secondary prevention.)

• Ensuring RMS & prevention messages are culturally
  sensitive and age appropriate

• More education among service providers & peers to
  increase knowledge and skills to help older adults negotiate
  risk-reduction behaviors
Contact Information
   If you have any questions regarding
Community PROMISE at ACRIA, please feel
             free to contact:



       Hanna Tessema, MPH, MSW
         htessema@acria.org
          212.924.3934 x135

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Adapting Community PROMISE with Older MSM &Transgender Individuals of Color

  • 1. Adapting Community PROMISE with Older MSM &Transgender Individuals of Color Hanna Tessema, MPH, MSW
  • 3.
  • 4. HIV/AIDS in New York • New York State reported 125,718 Living HIV/AIDS cases as of December 2008 • 109,446 known PLWHA as of 06/30/2010 in NYC • NYC is the HIV/AIDS epicenter in the U.S. • 80% are persons of color • Half are African-Americans 25% of new cases in 2008 were diagnosed concurrently with AIDS. Among persons aged ≥ 50 years, the proportion of concurrent diagnoses was 39% NYC DOHMH HIV Epidemiology and Field Services Program Semiannual Report: March 31, 2011 http://www.nyc.gov/html/doh/downloads/pdf/dires/2011-1st-semi-rpt.pdf http://www.health.state.ny.us/diseases/aids/statistics/annual/2008/2008-12_annual_surveillance_report.pdf
  • 5. NYC: HIV Among MSM As of June 30, 2010: • 109, 446 PLWHA • 33.5% MSM • 62% of newly diagnosed males in the first half of 2010 were MSM
  • 6. Transgender Transgender persons are those whose current gender identity differs from their sex at birth.  May or may not receive hormone therapy  May or may not have had surgery to change their anatomy  May have any sexual orientation Research studies on samples of transgender persons have demonstrated high rates of HIV/AIDS in this population in the US and NYC.
  • 7. “There are no reliable data on the number of transgender people living in the United States.” --Transgender Law Center
  • 8. Of the newly diagnosed transgender population in NYC: 90% are Black or Hispanic, 7% white 4% other
  • 9.
  • 10.
  • 11. The highest numbers of newly diagnosed transgender persons lived in Bedford Stuyvesant–Crown Heights, West Queens, Chelsea–Clinton, and Fordham–Bronx Park (areas in dark red).
  • 13. Community PROMISE  CDC Evidence Based Intervention (Community Level Intervention)  Peers Reaching Out and Modeling Intervention Strategies for HIV/AIDS Risk Reduction in their Community  First time implementing CDC DEBI: Community PROMISE for Older Adult populations (50+)
  • 14. Community PROMISE: Four Core Elements 1. Community Identification Process (CID) An ongoing community needs assessment of the targeted population. Allows us to better understand specific risk taking and risk reducing behaviors as well as circumstances & environments where they take place. 2. Role Model Stories Short stories based on real experiences of people in the target population who have made or are planning to make a risk-reducing behavioral change. (Stages of change) 3. Peer Advocates Volunteers from the target population who have access to the community. They distribute the role model stories in places where they congregate. 4. Evaluation Providing evidence of the effectiveness of the intervention at the agency. Reveals whether the proven intervention was implemented with fidelity.
  • 15. Community PROMISE ACRIA chose to implement Community PROMISE within the over 50 target population because: • DEBI’s are proven evidence based interventions • Currently none of the CDC-funded prevention interventions specifically target older adults. • NYCDOHMH Funding allowed PROMISE to target the highest risk groups in NYC (including MSM & Transgender) • Felt OA would be more inclined to engage in behavior change based on messages which resonate with them via relevant RMS.
  • 16. Unique Effort • ROAH Study Results established target population • We trained and prepared our partners on HIV & Aging well before the implementation of the intervention • CID process began before PROMISE & is ongoing • Partners continue the CID process as well…and receive input from the community • Many peers were referred via partners • Linked to HIV testing campaign for 50+ • Fully bilingual program: English & Spanish
  • 17. Unique Effort • Online recruitment for interviews beyond Facebook: Adam4Adam • Focus groups reviewed stories focusing on MSM & Transgender • More intense trainings for peer advocates because: Knowledge levels lower, Stigma & Ageism More myths *Focus more on how to engage populations because this is a taboo topic for OA generally*
  • 18. RMS Distribution The peers told us where to distribute rather than us telling them – they had the information on where the target population congregates. • Areas mentioned in the stories (i.e. near hospitals, intersections, subway stations, etc.) • Barbershops & beauty salons • Gay Bars • Senior Centers (lunch time) • Syringe Exchange – IV drug users within MSM & Transgender groups • Ex-sex worker transgender peers had access to OA transgender sex worker populations
  • 19. Challenges: Implementing PROMISE –Limited Time (less than 1 year) to implement due to funding –Recruiting for interviews via online sex sites (i.e. Adam 4 Adam) –Training peers and ensuring their HIV knowledge was up to par prior to distributing stories in the community
  • 20. Challenges: Implementing PROMISE • Ensuring all staff were properly trained to implement DEBI with fidelity • Choosing images to represent stories • Engaging OA can be more difficult than younger people because they are not usually targeted with these types of messages
  • 21. Lessons Learned • HIV+ older MSM & transgender individuals are largely stigmatized by • Important factors influencing behavior : HIV-phobia, homophobia, transphobia, – perceived susceptibility and ageism. – self-efficacy – communication & negotiation • Integrating HIV treatment and care into – cultural norms about sexuality & the RMSs has been essential in gender roles targeting older adults living with HIV. • Evidence Based Interventions work with • Social isolation & loneliness are Older Adults and should continue to be important factors in sexual risk taking implemented and need to be considered when developing RMSs targeting older MSM & transgender individuals.
  • 22. Next Steps • Implementing evidence based prevention strategies which target older MSM & transgender adults. (Including HIV/STD primary and secondary prevention.) • Ensuring RMS & prevention messages are culturally sensitive and age appropriate • More education among service providers & peers to increase knowledge and skills to help older adults negotiate risk-reduction behaviors
  • 23. Contact Information If you have any questions regarding Community PROMISE at ACRIA, please feel free to contact: Hanna Tessema, MPH, MSW htessema@acria.org 212.924.3934 x135