Accessing and using TILDA data, available through Irish Social Science Data Archive (ISSDA), Using publicly archived TILDA datasets. Delivered by TILDA in conjunction with the Irish Social Science Data Archive (ISSDA) and Gateway to Global Aging.
This presentation covers the background to the Irish Social Science Data Archive (ISSDA), some of the sports related datasets that are available, how to access these data and tip to researchers using these data for secondary analysis.
IFLA Poster: Optimizing Discoverability of Research and ScholarshipORCID, Inc
ORCID Ambassador Consol Garcia, http://orcid.org/0000-0001-8085-0088, presented this poster at the 2014 IFLA World Library and Information Congress, 16-22 August 2014, Lyon, France.
ORCID iDs in the Academic Publishing Workflow: ORCID and the Publishing Commu...ORCID, Inc
This document summarizes a webinar presented by ORCID on implementing ORCID iDs in the academic publishing workflow. The webinar discussed how ORCID iDs can be used for manuscript submission, publication, and linking works to authors' ORCID profiles. It provided an overview of ORCID as an organization and registry, benefits to the research community, growth in usage, international participation, member organizations, features and services offered, integration options, upcoming developments, and how publishers can get involved.
ORCID integration at Thomson Reuters (S.D. Seng)ORCID, Inc
The document discusses the partnership between Thomson Reuters and ORCID to integrate ORCID IDs into Thomson Reuters scholarly research products. Some key points:
- Thomson Reuters products like Web of Science, ResearcherID, Converis, and ScholarOne now integrate ORCID IDs to improve author identification and attribution.
- Over 5.6 million records in Web of Science now include ORCID IDs, allowing users to access an author's complete works directly from their ORCID profile.
- Beginning in 2016, Web of Science will use ORCID IDs within its author disambiguation system to more accurately cluster authors and their works.
- Integration allows users to seamlessly exchange data between Thomson Reuters products and
Panel on ORCID integrations by publishersORCID, Inc
Connecting Research and Researchers: How ORCID is Facilitating the Interoperable Exchange of Information, presented at the annual meeting of the Society for Scholarly Publishing, 30 May 2014.
ABSTRACT:
The publishing community has been an early and enthusiastic adopter of the work of ORCID, an independent non-profit organization with a twofold mission: to provide an open registry of unique identifiers for researchers, and to work with the scholarly community to ensure that this persistent identifier is embedded in research workflows. ORCID serves as a hub, linking existing identifiers, such as CrossRef and DataCite DOIs, ISNI organizational identifiers, and author identifiers including ResearcherId and ScopusAuthor ID with the ultimate goal of connecting researchers with their contributions. This session will provide an opportunity to learn about the status of ORCID integration into manuscript submission and production systems, into reviewer workflows, into conference systems, and into repositories and evaluation systems. A panel of experts from diverse publishing will provide practical examples and best practices for how the scholarly communications community is using ORCID.
Moderator: Rebecca Bryant, ORCID
Speakers
Martin Fenner, PLOS
Cesar Berrios-Otero, F1000 Research
Michael Habib, Elsevier B.V.
Brooks Hanson, American Geophysical Union
Rebecca Bryant, ORCID
ORCID identifiers in research workflows - Wellcome Trust (R. Kiley)ORCID, Inc
The document discusses the Wellcome Trust's current and future use of ORCID identifiers in researcher workflows from a funder's perspective. It outlines that the Trust currently mandates ORCID on all grant applications. Future plans include pulling publication and dataset information from ORCID profiles and pushing grant information back to ORCID to better link researchers to their work. This is intended to simplify processes and create more accurate researcher records.
This presentation covers the background to the Irish Social Science Data Archive (ISSDA), some of the sports related datasets that are available, how to access these data and tip to researchers using these data for secondary analysis.
IFLA Poster: Optimizing Discoverability of Research and ScholarshipORCID, Inc
ORCID Ambassador Consol Garcia, http://orcid.org/0000-0001-8085-0088, presented this poster at the 2014 IFLA World Library and Information Congress, 16-22 August 2014, Lyon, France.
ORCID iDs in the Academic Publishing Workflow: ORCID and the Publishing Commu...ORCID, Inc
This document summarizes a webinar presented by ORCID on implementing ORCID iDs in the academic publishing workflow. The webinar discussed how ORCID iDs can be used for manuscript submission, publication, and linking works to authors' ORCID profiles. It provided an overview of ORCID as an organization and registry, benefits to the research community, growth in usage, international participation, member organizations, features and services offered, integration options, upcoming developments, and how publishers can get involved.
ORCID integration at Thomson Reuters (S.D. Seng)ORCID, Inc
The document discusses the partnership between Thomson Reuters and ORCID to integrate ORCID IDs into Thomson Reuters scholarly research products. Some key points:
- Thomson Reuters products like Web of Science, ResearcherID, Converis, and ScholarOne now integrate ORCID IDs to improve author identification and attribution.
- Over 5.6 million records in Web of Science now include ORCID IDs, allowing users to access an author's complete works directly from their ORCID profile.
- Beginning in 2016, Web of Science will use ORCID IDs within its author disambiguation system to more accurately cluster authors and their works.
- Integration allows users to seamlessly exchange data between Thomson Reuters products and
Panel on ORCID integrations by publishersORCID, Inc
Connecting Research and Researchers: How ORCID is Facilitating the Interoperable Exchange of Information, presented at the annual meeting of the Society for Scholarly Publishing, 30 May 2014.
ABSTRACT:
The publishing community has been an early and enthusiastic adopter of the work of ORCID, an independent non-profit organization with a twofold mission: to provide an open registry of unique identifiers for researchers, and to work with the scholarly community to ensure that this persistent identifier is embedded in research workflows. ORCID serves as a hub, linking existing identifiers, such as CrossRef and DataCite DOIs, ISNI organizational identifiers, and author identifiers including ResearcherId and ScopusAuthor ID with the ultimate goal of connecting researchers with their contributions. This session will provide an opportunity to learn about the status of ORCID integration into manuscript submission and production systems, into reviewer workflows, into conference systems, and into repositories and evaluation systems. A panel of experts from diverse publishing will provide practical examples and best practices for how the scholarly communications community is using ORCID.
Moderator: Rebecca Bryant, ORCID
Speakers
Martin Fenner, PLOS
Cesar Berrios-Otero, F1000 Research
Michael Habib, Elsevier B.V.
Brooks Hanson, American Geophysical Union
Rebecca Bryant, ORCID
ORCID identifiers in research workflows - Wellcome Trust (R. Kiley)ORCID, Inc
The document discusses the Wellcome Trust's current and future use of ORCID identifiers in researcher workflows from a funder's perspective. It outlines that the Trust currently mandates ORCID on all grant applications. Future plans include pulling publication and dataset information from ORCID profiles and pushing grant information back to ORCID to better link researchers to their work. This is intended to simplify processes and create more accurate researcher records.
CAS is a global leader in chemical information and provides the most comprehensive databases of disclosed research in chemistry and related sciences. It has two principal databases, CAplus which contains bibliographic information and abstracts for chemical journals, patents, and publications, and Registry, the world's largest substance database containing over 41 million organic and inorganic substances. CAS makes this information searchable through products like STN and SciFinder, which allow users to rapidly find chemical information to support research and business decisions.
Enabling information interoperability with identifiers (L. Haak)ORCID, Inc
1) ORCID provides persistent digital identifiers that uniquely identify researchers and enable information interoperability by connecting researchers to their work like publications and grants.
2) Over 2 million researchers have registered for an ORCID identifier which are associated with over 5 million publications and 40 thousand organizations.
3) Major publishers, funders, and universities are using ORCID to simplify researcher workflows by allowing information to be entered once and then reused, reducing duplicate effort and improving reporting and attribution of work.
ORCID provides a summary of its status and plans. It has issued over 700,000 identifiers since launching in 2012. Integration is international, with over 130 member organizations from publishing, universities, funders, and associations. Standards help enable interoperability between identifiers for people, content, and organizations. Universities are integrating ORCID identifiers by including them in directories, CRIS systems, and publications. Publishers are embedding identifiers in publications. Funders like Wellcome Trust are integrating identifiers into grant applications. ORCID aims to connect researchers with their works and organizations through its identifiers and APIs.
2013 CrossRef Annual Meeting Flash Update ORCID, Ed Pentz.Crossref
ORCID provides a unique identifier for researchers that persists throughout their career. It has issued over 350,000 identifiers since launching one year ago. ORCID is supported by over 90 member organizations from publishing, funding, and academic institutions. It aims to integrate identifiers into publishing, grant submission, and university systems to help identify and connect researchers and their works.
ORCID in platform research lifecycle products -Elsevier (C. Shillum)ORCID, Inc
This document discusses how Elsevier products integrate with ORCID to help researchers build and promote their ORCID profiles throughout the research lifecycle. It provides details on how ORCID profiles are incorporated in Elsevier's publishing, search and discovery, and research intelligence tools. Key points include gathering ORCIDs during manuscript submission, depositing ORCIDs in Crossref metadata, linking Scopus author profiles to ORCIDs, and enabling Pure users to link their profiles and automatically update ORCID records.
This document discusses Imperial College London's perspective on ORCID, a unique identifier for researchers. It summarizes Imperial's ORCID pilot project which aimed to raise awareness of ORCID and issue identifiers to researchers. The project created over 3,000 new IDs and pre-populated ORCID profiles. Over 1,100 researchers linked their IDs to Imperial's research information system within 7 weeks. Benefits of ORCID include automated claiming of publications and integration with other systems. Further work is needed to improve ORCID integration within Imperial's systems and partners to realize the full benefits.
Irish Social Science Data Archive Services for Depositors & ResearchersISSDA
The Irish Social Science Data Archive (ISSDA) is Ireland's leading center for acquiring, preserving, and disseminating quantitative social science datasets. Based at University College Dublin Library, ISSDA's mission is to ensure wide access to Irish and international comparative social science data. ISSDA professionally curates data by checking for anonymization, creating metadata records, and working towards long-term preservation. ISSDA also disseminates data through its platform under various licenses and provides usage reports to depositors. Future services will include assigning DOIs to data and implementing the Nesstar data publishing and analysis software.
This document provides an overview of ISSDA (Ireland's leading centre for quantitative data acquisition, preservation, and dissemination) and how to find and access data. It discusses key concepts like primary/secondary data and quantitative/qualitative data. It also outlines ISSDA's objectives to be a central access point and facilitate data analysis skills. The document guides users on finding data sources in Ireland, Europe, and internationally and how to access data through registering, terms of use, and citing data properly.
Preparing for the UK Research Data Registry and Discovery ServiceRepository Fringe
The document discusses the UK Research Data Registry and Discovery Service (RDRDS) project. It provides an overview of the project's vision and progress, including participating data repositories in the initial pilot phase. It also discusses what participation in RDRDS means for data repositories, including requirements for metadata and options for syndicating metadata through harvesting. The goals of the second phase of the project are outlined as further defining use cases, evaluating platform options, and testing the system usability.
The Digital Repository of Ireland Digital Preservation and Research Sustainab...dri_ireland
This presentation was delivered by DRI interim director Dr. Lisa Griffith as part of Love Data Week in University College Dublin (UCD) research community on 15th February 2023.
IDA is a research data storage service for projects in Finnish universities, universities of applied sciences, and the Academy of Finland. It uses secure storage procedures with data replication and open source iRODS technology. Data owners decide on the openness and usage of their data, and IDA aims to be part of long-term data preservation. Universities manage quotas assigned by the Ministry of Education and Culture, and individual users get accounts through university approval.
The document provides background information on RDM services at the University of Edinburgh. It summarizes that EDINA and the University Data Library provide research data management support and online resources. It then overviews key RDM services including DataStore for active research data storage, DataShare for open data publication, and plans for a long-term DataVault archive. The document also discusses RDM training and the university's RDM policy implemented through a multi-phase roadmap.
The document outlines various funding opportunities for research related to intellectual disabilities, including the MSU-DOCTRID Hegarty Fellowships from 2013-2016, the Marie Curie COFUND and IRSES programs from 2013-2018, and the HRB Health Services Research Doctoral scholars program. It also lists potential topics for proposals under programs like Health 2020 and the USA-Ireland Partnership that focus on areas like assistive technologies for intellectual disabilities. Next steps discussed include submitting proposals for specific programs and hosting workshops and conferences to facilitate collaboration.
SND provides a coordinated structure for describing, depositing, sharing, and finding research data from its member institutions. It aims to support researchers in fulfilling open data standards, properly curating and handling data, and ensuring data remains under university control. SND has expanded from its initial 7 members to include all major Swedish universities and research institutes. It utilizes distributed secured storage through SUNET and SNIC and will continue to strengthen collaborations with these and other partners in 2020 to further develop its services and connect to initiatives like EOSC and RDA.
presented by Stuart Macdonald at the College of Science and Engineering - "What's new for you in the Library“, Murray Library, Kings Buildings, University of Edinburgh. 28 May 2014
Covers research data, research data management, funder policies and the University's RDM policy, RDM services and support, awareness raising, training, progress so far.
Data Library Services at the University of EdinburghRobin Rice
The Data Library at the University of Edinburgh was established in the early 1980s to provide access to datasets like UK census data. It has since evolved to support research data management across its lifecycle through services like consultancy, a dataset catalogue, and training. The Data Library is now part of a research data management program that includes an institutional data repository called Edinburgh DataShare that has deposited around 250 datasets so far. A key part of training is the open online Research Data Management course called MANTRA.
Why we care about research data? Why we share?Richard Ferrers
An introduction to why ANDS cares about research data. ANDS, the Australian National Data Service, encourages researchers to share data. This presentation explains why.
Slides presented at the Spanish Agency of Science and Technology (FECYT) and the network of Spanish repositories (RECOLECTA) Research Data Management Webinar Series - see url:
http://www.recolecta.net/buscador/webminars.jsp
From "A National Approach to Open Research Data in Ireland", a workshop held on 8 September 2017 in National Library of Ireland, organised by The National Library of Ireland, the Digital Repository of Ireland, the Research Data Alliance and Open Research Ireland.
ORCID: Connecting Research and Researchers. Author: Michael LadischUCD Library
ORCID (Open Researcher and Contributor ID) is a unique identifier for researchers that is used to distinguish researchers from others with similar names and link their works and activities over time and across changes to their professional circumstances. The presenter discusses how ORCID helps solve name ambiguity issues, connects researchers to their works, and facilitates information sharing between systems through its API. Major supporters and adopters of ORCID include universities, publishers, and funding agencies who want to better attribute works and understand research impacts and outputs.
CAS is a global leader in chemical information and provides the most comprehensive databases of disclosed research in chemistry and related sciences. It has two principal databases, CAplus which contains bibliographic information and abstracts for chemical journals, patents, and publications, and Registry, the world's largest substance database containing over 41 million organic and inorganic substances. CAS makes this information searchable through products like STN and SciFinder, which allow users to rapidly find chemical information to support research and business decisions.
Enabling information interoperability with identifiers (L. Haak)ORCID, Inc
1) ORCID provides persistent digital identifiers that uniquely identify researchers and enable information interoperability by connecting researchers to their work like publications and grants.
2) Over 2 million researchers have registered for an ORCID identifier which are associated with over 5 million publications and 40 thousand organizations.
3) Major publishers, funders, and universities are using ORCID to simplify researcher workflows by allowing information to be entered once and then reused, reducing duplicate effort and improving reporting and attribution of work.
ORCID provides a summary of its status and plans. It has issued over 700,000 identifiers since launching in 2012. Integration is international, with over 130 member organizations from publishing, universities, funders, and associations. Standards help enable interoperability between identifiers for people, content, and organizations. Universities are integrating ORCID identifiers by including them in directories, CRIS systems, and publications. Publishers are embedding identifiers in publications. Funders like Wellcome Trust are integrating identifiers into grant applications. ORCID aims to connect researchers with their works and organizations through its identifiers and APIs.
2013 CrossRef Annual Meeting Flash Update ORCID, Ed Pentz.Crossref
ORCID provides a unique identifier for researchers that persists throughout their career. It has issued over 350,000 identifiers since launching one year ago. ORCID is supported by over 90 member organizations from publishing, funding, and academic institutions. It aims to integrate identifiers into publishing, grant submission, and university systems to help identify and connect researchers and their works.
ORCID in platform research lifecycle products -Elsevier (C. Shillum)ORCID, Inc
This document discusses how Elsevier products integrate with ORCID to help researchers build and promote their ORCID profiles throughout the research lifecycle. It provides details on how ORCID profiles are incorporated in Elsevier's publishing, search and discovery, and research intelligence tools. Key points include gathering ORCIDs during manuscript submission, depositing ORCIDs in Crossref metadata, linking Scopus author profiles to ORCIDs, and enabling Pure users to link their profiles and automatically update ORCID records.
This document discusses Imperial College London's perspective on ORCID, a unique identifier for researchers. It summarizes Imperial's ORCID pilot project which aimed to raise awareness of ORCID and issue identifiers to researchers. The project created over 3,000 new IDs and pre-populated ORCID profiles. Over 1,100 researchers linked their IDs to Imperial's research information system within 7 weeks. Benefits of ORCID include automated claiming of publications and integration with other systems. Further work is needed to improve ORCID integration within Imperial's systems and partners to realize the full benefits.
Irish Social Science Data Archive Services for Depositors & ResearchersISSDA
The Irish Social Science Data Archive (ISSDA) is Ireland's leading center for acquiring, preserving, and disseminating quantitative social science datasets. Based at University College Dublin Library, ISSDA's mission is to ensure wide access to Irish and international comparative social science data. ISSDA professionally curates data by checking for anonymization, creating metadata records, and working towards long-term preservation. ISSDA also disseminates data through its platform under various licenses and provides usage reports to depositors. Future services will include assigning DOIs to data and implementing the Nesstar data publishing and analysis software.
This document provides an overview of ISSDA (Ireland's leading centre for quantitative data acquisition, preservation, and dissemination) and how to find and access data. It discusses key concepts like primary/secondary data and quantitative/qualitative data. It also outlines ISSDA's objectives to be a central access point and facilitate data analysis skills. The document guides users on finding data sources in Ireland, Europe, and internationally and how to access data through registering, terms of use, and citing data properly.
Preparing for the UK Research Data Registry and Discovery ServiceRepository Fringe
The document discusses the UK Research Data Registry and Discovery Service (RDRDS) project. It provides an overview of the project's vision and progress, including participating data repositories in the initial pilot phase. It also discusses what participation in RDRDS means for data repositories, including requirements for metadata and options for syndicating metadata through harvesting. The goals of the second phase of the project are outlined as further defining use cases, evaluating platform options, and testing the system usability.
The Digital Repository of Ireland Digital Preservation and Research Sustainab...dri_ireland
This presentation was delivered by DRI interim director Dr. Lisa Griffith as part of Love Data Week in University College Dublin (UCD) research community on 15th February 2023.
IDA is a research data storage service for projects in Finnish universities, universities of applied sciences, and the Academy of Finland. It uses secure storage procedures with data replication and open source iRODS technology. Data owners decide on the openness and usage of their data, and IDA aims to be part of long-term data preservation. Universities manage quotas assigned by the Ministry of Education and Culture, and individual users get accounts through university approval.
The document provides background information on RDM services at the University of Edinburgh. It summarizes that EDINA and the University Data Library provide research data management support and online resources. It then overviews key RDM services including DataStore for active research data storage, DataShare for open data publication, and plans for a long-term DataVault archive. The document also discusses RDM training and the university's RDM policy implemented through a multi-phase roadmap.
The document outlines various funding opportunities for research related to intellectual disabilities, including the MSU-DOCTRID Hegarty Fellowships from 2013-2016, the Marie Curie COFUND and IRSES programs from 2013-2018, and the HRB Health Services Research Doctoral scholars program. It also lists potential topics for proposals under programs like Health 2020 and the USA-Ireland Partnership that focus on areas like assistive technologies for intellectual disabilities. Next steps discussed include submitting proposals for specific programs and hosting workshops and conferences to facilitate collaboration.
SND provides a coordinated structure for describing, depositing, sharing, and finding research data from its member institutions. It aims to support researchers in fulfilling open data standards, properly curating and handling data, and ensuring data remains under university control. SND has expanded from its initial 7 members to include all major Swedish universities and research institutes. It utilizes distributed secured storage through SUNET and SNIC and will continue to strengthen collaborations with these and other partners in 2020 to further develop its services and connect to initiatives like EOSC and RDA.
presented by Stuart Macdonald at the College of Science and Engineering - "What's new for you in the Library“, Murray Library, Kings Buildings, University of Edinburgh. 28 May 2014
Covers research data, research data management, funder policies and the University's RDM policy, RDM services and support, awareness raising, training, progress so far.
Data Library Services at the University of EdinburghRobin Rice
The Data Library at the University of Edinburgh was established in the early 1980s to provide access to datasets like UK census data. It has since evolved to support research data management across its lifecycle through services like consultancy, a dataset catalogue, and training. The Data Library is now part of a research data management program that includes an institutional data repository called Edinburgh DataShare that has deposited around 250 datasets so far. A key part of training is the open online Research Data Management course called MANTRA.
Why we care about research data? Why we share?Richard Ferrers
An introduction to why ANDS cares about research data. ANDS, the Australian National Data Service, encourages researchers to share data. This presentation explains why.
Slides presented at the Spanish Agency of Science and Technology (FECYT) and the network of Spanish repositories (RECOLECTA) Research Data Management Webinar Series - see url:
http://www.recolecta.net/buscador/webminars.jsp
From "A National Approach to Open Research Data in Ireland", a workshop held on 8 September 2017 in National Library of Ireland, organised by The National Library of Ireland, the Digital Repository of Ireland, the Research Data Alliance and Open Research Ireland.
ORCID: Connecting Research and Researchers. Author: Michael LadischUCD Library
ORCID (Open Researcher and Contributor ID) is a unique identifier for researchers that is used to distinguish researchers from others with similar names and link their works and activities over time and across changes to their professional circumstances. The presenter discusses how ORCID helps solve name ambiguity issues, connects researchers to their works, and facilitates information sharing between systems through its API. Major supporters and adopters of ORCID include universities, publishers, and funding agencies who want to better attribute works and understand research impacts and outputs.
This document summarizes an update on the Research Data Alliance (RDA). It discusses the growth of RDA membership and activities. Key points include:
- RDA works to reduce barriers to data sharing and exchange by building social, organizational and technical infrastructure.
- RDA has grown significantly since its launch in 2013, with over 2,500 members from over 90 countries working in various working groups.
- Working groups focus on developing deliverables like standards, best practices and code to enable data sharing in various domains and for community needs, data stewardship, and base infrastructure.
- The first deliverables have been presented, with more to come, aimed at making data sharing and discovery more trustworthy
Sandra collins_Stakeholders Advisory 2015_Overview of the Digital Repository ...dri_ireland
Overview of the Digital Repository of Ireland presented to the DRI Stakeholders Advisory Group on 14 April 2015 by Dr Sandra Collins, Director of the DRI.
Presented by Robin Rice at the "IRs dealing with data" workshop at the Open Repositories 2013 Conference in Charlottetown, Prince Edward Island, Canada, on 8 July 2013.
This document discusses the development of a "DIY" research data management training kit for librarians at the University of Edinburgh. The training kit was created based on a pilot training course for librarians that aimed to help them develop skills to support research data management. The training kit uses blended learning and includes materials from the MANTRA online training course, as well as presentations, exercises and reflective writing activities. It covers key topics in research data management and is made freely available under an open license for other institutions to use for librarian training. Evaluation of the pilot training found it valuable but suggested an independent study component to apply the skills, for which data curation profiles were assigned.
This document provides an introduction to research data management for geoscience PhD students. It defines research data and different data types. It discusses the importance of managing data throughout its lifecycle for efficient and valid research. It outlines funder requirements, university policies, and activities involved in good research data management like data planning, documentation, storage, sharing and preservation.
Similar to Accessing and using TILDA data, available through ISSDA (20)
The document provides information about research grants from the Children's Research Network that aim to further analyze data generated by The Atlantic Philanthropies' Prevention and Early Intervention Initiative (PEII). The grants offer up to €10,000 for secondary analysis of PEII datasets within a six-month period. Applicants must be eligible to live/study in Ireland or the UK and have a relevant graduate degree or academic mentor. Successful grantees will produce a publication or training event highlighting the analyzed data within the grant period. The application deadline is June 22nd.
This document provides an overview of a hands-on session on accessing and working with data from the Preparing for Life (PFL) collection. The session includes a presentation on the PFL evaluation and intervention, followed by a guided session exploring subsets of archived PFL data using SPSS. Attendees are introduced to the domains examined in the PFL study and shown samples of de-identified data from the baseline, 12-month, 24-month, and 48-month waves of data collection. Guidance is provided on opening and navigating the data files, merging files, and exploring demographic and health-related variables.
This document summarizes a workshop on preparing and curating research data from the Prevention and Early Intervention Initiative (PEII) in Ireland. It describes several data collections that were generated from evaluations of PEII programs, including the Preparing for Life (PFL) study, the Children's Profile at School Entry (CPSE) study, and others. The PFL study involved home visiting and supports for families from pregnancy to age 4, while the CPSE study collected data on school readiness for junior infants. Both studies used mixed methods and longitudinal designs. The document outlines the process of preparing, anonymizing, and curating these datasets so they can be safely and ethically archived and reused.
Anonymisation and Social Research
Ruth Geraghty
Data Curator on the CRNINI-PEI Research Initiative
Children’s Research Network for Ireland and Northern Ireland
Anonymising Research Data workshop, University College Dublin, 22nd June 2016
www.childrensresearchnetwork.org
Anonymising quantitative data
Dr Sharon Bolton
UK Data Service
UK Data Archive, University of Essex
Anonymising Research Data workshop
Dublin, 22 June 2016
- Video recording of this lecture in English language: https://youtu.be/kqbnxVAZs-0
- Video recording of this lecture in Arabic language: https://youtu.be/SINlygW1Mpc
- Link to download the book free: https://nephrotube.blogspot.com/p/nephrotube-nephrology-books.html
- Link to NephroTube website: www.NephroTube.com
- Link to NephroTube social media accounts: https://nephrotube.blogspot.com/p/join-nephrotube-on-social-media.html
Integrating Ayurveda into Parkinson’s Management: A Holistic ApproachAyurveda ForAll
Explore the benefits of combining Ayurveda with conventional Parkinson's treatments. Learn how a holistic approach can manage symptoms, enhance well-being, and balance body energies. Discover the steps to safely integrate Ayurvedic practices into your Parkinson’s care plan, including expert guidance on diet, herbal remedies, and lifestyle modifications.
Osteoporosis - Definition , Evaluation and Management .pdfJim Jacob Roy
Osteoporosis is an increasing cause of morbidity among the elderly.
In this document , a brief outline of osteoporosis is given , including the risk factors of osteoporosis fractures , the indications for testing bone mineral density and the management of osteoporosis
TEST BANK For Community Health Nursing A Canadian Perspective, 5th Edition by...Donc Test
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Adhd Medication Shortage Uk - trinexpharmacy.comreignlana06
The UK is currently facing a Adhd Medication Shortage Uk, which has left many patients and their families grappling with uncertainty and frustration. ADHD, or Attention Deficit Hyperactivity Disorder, is a chronic condition that requires consistent medication to manage effectively. This shortage has highlighted the critical role these medications play in the daily lives of those affected by ADHD. Contact : +1 (747) 209 – 3649 E-mail : sales@trinexpharmacy.com
TEST BANK For Basic and Clinical Pharmacology, 14th Edition by Bertram G. Kat...rightmanforbloodline
TEST BANK For Basic and Clinical Pharmacology, 14th Edition by Bertram G. Katzung, Verified Chapters 1 - 66, Complete Newest Version.
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Cell Therapy Expansion and Challenges in Autoimmune DiseaseHealth Advances
There is increasing confidence that cell therapies will soon play a role in the treatment of autoimmune disorders, but the extent of this impact remains to be seen. Early readouts on autologous CAR-Ts in lupus are encouraging, but manufacturing and cost limitations are likely to restrict access to highly refractory patients. Allogeneic CAR-Ts have the potential to broaden access to earlier lines of treatment due to their inherent cost benefits, however they will need to demonstrate comparable or improved efficacy to established modalities.
In addition to infrastructure and capacity constraints, CAR-Ts face a very different risk-benefit dynamic in autoimmune compared to oncology, highlighting the need for tolerable therapies with low adverse event risk. CAR-NK and Treg-based therapies are also being developed in certain autoimmune disorders and may demonstrate favorable safety profiles. Several novel non-cell therapies such as bispecific antibodies, nanobodies, and RNAi drugs, may also offer future alternative competitive solutions with variable value propositions.
Widespread adoption of cell therapies will not only require strong efficacy and safety data, but also adapted pricing and access strategies. At oncology-based price points, CAR-Ts are unlikely to achieve broad market access in autoimmune disorders, with eligible patient populations that are potentially orders of magnitude greater than the number of currently addressable cancer patients. Developers have made strides towards reducing cell therapy COGS while improving manufacturing efficiency, but payors will inevitably restrict access until more sustainable pricing is achieved.
Despite these headwinds, industry leaders and investors remain confident that cell therapies are poised to address significant unmet need in patients suffering from autoimmune disorders. However, the extent of this impact on the treatment landscape remains to be seen, as the industry rapidly approaches an inflection point.
Basavarajeeyam is a Sreshta Sangraha grantha (Compiled book ), written by Neelkanta kotturu Basavaraja Virachita. It contains 25 Prakaranas, First 24 Chapters related to Rogas& 25th to Rasadravyas.
Local Advanced Lung Cancer: Artificial Intelligence, Synergetics, Complex Sys...Oleg Kshivets
Overall life span (LS) was 1671.7±1721.6 days and cumulative 5YS reached 62.4%, 10 years – 50.4%, 20 years – 44.6%. 94 LCP lived more than 5 years without cancer (LS=2958.6±1723.6 days), 22 – more than 10 years (LS=5571±1841.8 days). 67 LCP died because of LC (LS=471.9±344 days). AT significantly improved 5YS (68% vs. 53.7%) (P=0.028 by log-rank test). Cox modeling displayed that 5YS of LCP significantly depended on: N0-N12, T3-4, blood cell circuit, cell ratio factors (ratio between cancer cells-CC and blood cells subpopulations), LC cell dynamics, recalcification time, heparin tolerance, prothrombin index, protein, AT, procedure type (P=0.000-0.031). Neural networks, genetic algorithm selection and bootstrap simulation revealed relationships between 5YS and N0-12 (rank=1), thrombocytes/CC (rank=2), segmented neutrophils/CC (3), eosinophils/CC (4), erythrocytes/CC (5), healthy cells/CC (6), lymphocytes/CC (7), stick neutrophils/CC (8), leucocytes/CC (9), monocytes/CC (10). Correct prediction of 5YS was 100% by neural networks computing (error=0.000; area under ROC curve=1.0).
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2. O V E R V I E W
Background
Data Services
Services for Researchers
Accessing TILDA Data
www.ucd.ie/issda/tilda/
3. IRISH
SOCIAL
SCIENCE
DATA
ARCHIVE
ISSDA is
Ireland’s leading centre for quantitative data
acquisition, preservation, and dissemination.
Based at UCD Library, its mission is to ensure wide
access to quantitative datasets in the social
sciences, and to advance the promotion of
international comparative studies of the Irish
economy and Irish society.
4. 2000ISSDA was set up in 2000
in the Geary Institute in
UCD with support from
the CSO & ESRI.
ISSDA transferred from
the Geary Institute to UCD
Library during the
summer of 2012.
20162012
B A C K G R O U N D
A Data Manager for ISSDA
was hired, highlighting
UCD Library's
continuing commitment
to ISSDA.
6. PROFESSIONALLY
CURATED
All data disseminated by
ISSDA have undergone
rigorous checks to ensure
that they are of a high
quality.
ISSDA enhances data
through the creation of
metadata based the Data
Documentation Initiative
(DDI) .
PRESERVEDENHANCED WITH
METADATA
D A T A A R E
ISSDA is committed to
maintaining data resources
for the long term, ensuring
that the archive’s holdings
are always available in
easily accessible forms.
7. DISSEMINATED VIA A
NATIONAL PLATFORM
All data disseminated by
ISSDA have undergone
rigorous checks to ensure
that they are of a high
quality.
ISSDA holds a range of key
Irish and international
comparative datasets, and
makes them available for
secondary analysis by
students, academics, and
researchers in the public
and commercial sectors.
ENCRYPTEDDISSEMINATED
UNDER LICENCE
D A T A A R E
ISSDA uses tools to ensure
that data are encrypted at
ingest and delivery.
We use HEAnet FileSender
to deliver data to
researchers.
8. DIGITAL OBJECT
IDENTIFIERS
ISSDA will roll out Digital
Object Identifiers
(DOIs) for both data and
documentation in the
future.
Nesstar is a software
system for data publishing
and online analysis. Users
can search, browse and
analyse the data online.
NESSTAR
F U T U R E S E R V I C E S
10. Request data
01
Researchers submit an application
form to ISSDA. This describes which
data are required, who will be using
the data and what the intended use of
the data is.
The End User License is signed by the
primary user, who is bound by the
terms of the licence.
www.ucd.ie/issda/tilda/
Researchers can
11. Submit queries
02
ISSDA supports the re-use of data by
handling researcher queries via
email. General queries are handled
by our Library Assistant.
Data specific queries, including those
relating to variables or methodology,
are forwarded to the Data Provider,
if necessary, by the Data Manager.
Researchers can
12. Register of Use
03
ISSDA manages a register of use for two
studies – Growing up in Ireland (GUI) and
The Irish Longitudinal study on Ageing
(TILDA). Each register is organised around
research themes according to the research
projects that have/are being carried out.
http://www.ucd.ie/issda/data/tilda/tildareg/
Researchers can be included in the
13. Workshops
04
To help researchers re-use data
successfully ISSDA is developing a
series of workshops.
So far we have organised a workshop
on 'Anonymising Research Data' with
CRNINI.
Researchers can attend
17. Citation &
Acknowledgement
It is a requirement of both TILDA
(see Release Guide v2.2, p34) and
ISSDA (see ISSDA_Application_
Research_V2.3, section 8) that data
are cited in any work based on the
data.
End with
18. CONTACT USi s s d a @ u c d . i e
@ I S S D A
w w w . u c d . i e / i s s d a / t i l d a /