A Window Into Our World
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The document discusses the experiences of parents of children born with congenital heart defects (CHDs). It describes the emotions of initially believing a baby is healthy after birth, only to later discover life-threatening CHD symptoms. It details the medical interventions children with CHDs often require, including multiple surgeries and lifelong monitoring. It aims to increase awareness of CHDs and their impact on families in order to support research funding and early detection through fetal ultrasound screening.
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A Window Into Our World
- 1. Imagine… A Window into Our World Congenital Heart Defect Awareness
- 7. Causes for most CHDs are unknown. Often the mother has led a healthy lifestyle. Defects develop soon after birth before most women know they are pregnant. CHDs affect all races, religions, and sexes. That is more than 32,000 babies born with CHD every year! In the United States, approximately 1 in 125 babies is born with a congenital heart defect.
- 8. Most babies appear healthy after birth…
- 10. Many parents do not recognize the symptoms as abnormal and sadly, some babies reach a life threatening state or die before diagnosis.
- 13. If the CHD is discovered, you may get to hold and kiss your baby one last time…
- 17. Imagine the possibility of your child enduring open heart surgery.
- 21. Imagine living for weeks…maybe months in a hotel and hospital….
- 30. There will be many doctor visits…
- 31. and the possibility of more hospital stays…
- 32. and surgeries…
- 36. Congenital Heart Defects cause more deaths in the first year of life than any other birth defect.
- 44. This is another window into our world…
- 45. They run…
- 46. They play…
- 47. They laugh…
- 48. They love…
- 49. They live !
- 50. Please meet a few of our CHD warriors…
- 67. Please… help us give them more tomorrows!